Bells Palsy was---->MYCOPLASMA? in many diseases.

[Guest guest]

HI Zig,

Well I can sure see you're as determined as I was by insisting on some things. with the hopes it may help. I think we have to at times take the bull by the horns!

That site I sent on the mycoplasmas had a lot of links that are really interesting as well. one was a list of the over 100 species names. Speaking of adrenal problems? Zig I'm going to send a chart that compares Adrenal fatigue vs. Thyroid, I think you might find that interesting. I know how frustrating it all is and too bad a doctor doesn't have the time to devote to one patient to really nail things down let alone the expense. *sigh*

I'm so sorry those six weeks on the oxyquinolone didn't help. Ironically the quinolones (with sulfa) are one of the few things I can't take, I'm mildly allergic to those and the dangers with those can be horrendous even death from something that seems so simple a drug at times. (if one is allergic) Bactrim is one for instance.

The Bells Palsey? That is a total paralysis of the face, complete muscle loss where you can't smile, or even close your eye or lift your forehead or wrinkle your nose. Your speech is slurred and you can't eat or drink (I lost 15 lbs) (you drool) It feels as though your mouth is full of novacaine and you can't purse your lips. You have no idea how many facial muscles we have. Thank goodness It generally only hits one side of the face at a time.

You end up looking like Quasi Moto of The Hunchback of Notre Dame, YOU REALLY DO. it's terrible. (No doubt that's what he had) with the one eye wide open and the pulled over cheek and mouth and slurred speech. You lose all sensation and it's so weird to want to smile (and I'm a real smiley one) and you just can't yet you try to 'will' it. You want to close your eye but it won't close.

I noticed it one morning applying my lipstick to get ready for work and my lips felt odd they wouldn't press together right, I KNEW right away what it was... by the time noon came it moved up to my nose and by that night to the top of my scalp. That's how fast it happens. Carol Burnett and Greta VanSustern (lawyer on TV) are a few left with residue from it. It's quite obvious once one has had it to spot it in others, usually they're left with a crooked mouth pulled to one side but when it's in full bloom the whole face is distorted.

I was one of the lucky ones with no symptoms leftover... (just a bit of sensitivity in one ear to loud noise which it affects as well.)

They sometimes call it Taxi Driver or Truck driver syndrome, saying it may come from a breeze in the open windows, or direct drafts with air conditioners, you may get it from a beauty shop or dentists chair with the neck being tilted back (so some say) or even an injection of novacaine if it hits the wrong nerve near the upper back of the mouth (near the temple)

It's a set of nerves that spread out over each side of the face as if your palm was on your ear and the fingers splayed openly over your face from your temple over the ear, it originates there and we have the same on the each side. (called the Trigeminal nerves) .

They claim the nerve gets inflammed by a virus (why they say it's viral) and supposedly related to the Herpes family. It swells that nerve so that no electrical conductivity can get through and why the muscles totally go dead.

It does resolve itself in time with some, others never have any resolution and once one has it it's more susceptible to come back again. (fingers crossed) and that ol' bugger 'Stress' again is part of the trigger they say.

My gyne told me at the time, that month he'd delivered 3 babies with it. (stress?) One thing you have to do and it's immediate, is to get help ASAP, after 3-4 days go by, the muscles start to atrophy or forget where they were supposed to be (why I hit 5 doctors within 2 days) and the 'wiring' of those electrical nerves simply can die or be 'rewired' wrongly if it does come back. You can bet I was on the net for 22 hrs a day then.

Whew... didnt mean to go on that long, but it was the most horrible thing to look in that mirror and not see YOU in the reflection. Thank goodness for me and in my heart I know it was the antibiotic that did bring me back because I literally 'saw' that smile come back tooth by tooth as it worked almost immediately.

Sure hoping you find the root of your problem Zig, I know how long you've suffered and all you've gone through but keep on keeping on, there HAS to be an answer somewhere out there.

Hugs

Dee