Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 I have lurked on this site for quite some time now and thought I would make my first e-mail appearance by responding to the discussion on aggressiveness. I have a 13 year old son who is considered moderately involved (autism), however, if he were not so apraxic I suspect he would be considered high functioning. Anyhow, we are at a good spot now, but we went through HE-- for a few years and I wanted to pass on some experience. My son at age 3 and 4 was very much like many of you describe your children. We did not have a label of autism - he was speech impaired - severe - apraxia was not a term that was heard of but we thought our son spoke as though he had a stroke - some times the words came easily other times he couldn't get anything out and other times it was so garbled no one had a clue what he was saying. To this day the apraxia is severe and his speech is unlike any kid I have ever met w/ autism...and his social skills are his strength. Anyhow, our son started to throw temper tantrums rather early - they were long and loud - but not physical. As he got older and smarter he learned that throwing objects got a big reaction - and in retrospect that reaction reinforced the behavior. When it got really bad - age 4 - I went to a psychologist who gave me the EXACT advice you got- " ignore negative behavior as much as possible, use time out, if he won;t stay, restrain him. " I encourage you to RUN from any psychologist that teaches these strategies. Restraining is the worst thing you can be doing and should be used only if there are no other options. I followed the 'expert's advice and passed it on to the school...and my son got worse. yelling and screaming and baby hits turned into hair pulling, biting, spitting, flipping desks. IT continued and got worse and worse until we placed him residentially at age 9 ( 65 days). What happens over time is the kids self esteem heads south and they are not being taught other strategies to get what they want/need. A functional behavioral analysis is key here - you have to observe and collect and analyze data to determine why the behavior is occurring - 'frustration' is too global of a reason - he is seeking attention, seeking tangibles, trying to avoid something, etc..Then you have to build a plan that teaches him how to get what he wants w/o all the behavior. During this process it might mean you have to kiddie proof your home and have a strategy for dealing w. the aggression - such as - w/ no eye contact and one statement " If you hit you must be alone " , pick the child up and place them in their room and hold the door shut 0 if they escalate, remain quite until they calm down - the second they are calm, reinforce " Great, you are calm!Come show mom what you want " - or " you cannot watch TV still, but let's go play trains. " or what ever is appropriate. A restraint gives attention, and it also teaches the child they only need to control them selves when there is someone big enough to make them. I have also seen the restraint turn into a pattern - the kid thinks the only way they can get calm is to go throw the restraint and kick and scream and flail to near exhaustion...and then they are calm. I hope I haven't offended anyone w/ my first post - but I have been there - you will loose critical years if you get in the " restraint as behavior management " mode of thinking. My son is doing great now, but in retrospect we did not have to go through what we went through. I cannot stress to you how important it is to find a better way to deal w., the aggression. I have seen too many kids end up in very restrictive placements because of the use of restraints. If you are restraining on a daily basis, this is WAY too frequent...and this goes for using a mechanical restraint such as a car seat. Just my 2 cents. Ronnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Hi Ronnie , I agree with you . I tend not to comment on this too much because I think people read " my son is autistic " and think that that means it can't possibly apply to their child but I think the reinforcement stategy is absoloutely universal . Restraining only stops the behaviour of that moment but teaches nothing . I did have to restrain Charlie briefly but it was part of a strategy designed to stop the violence but imediately replace it with something more appropriate . When he attacked me ( or whoever) I would just take hold of his wrists and turn his body away from me - withdrawing any intimate contact ( eye contact especially - which as he was autistic I found really hard !!!) . I had to keep my voice low and the language very very limited , perhaps just NO. The idea was to make sure that he was not reinforced or stimulated by raised emotion or noise , nor was he overwhelmed by language at a time when he was already overburdened. As soon as he was quiet I would praise him . He fought like a demon for the first couple of times but I never held him longer than ten - twenty seconds . I just had to repeat it a couple of times when we first started . I also found that vocalising what I knew he was feeling seemed to help " Charlie is angry " . He took to it really quickly and soon found that he had no pay off for it . It stopped . I had to be very careful with distraction as he could interpret that as a reward . I kept the praise to " good quiet Charlie " and maybe a drink or a hug - no fun activities or my smart boy would have been tantruming every five minutes in no time at all !!! It was for a long time about being patient and calm just at a time when I wanted to either die of embarresment or , frankly , smack him . He was though nearly always acting out of fear and to hold him and restrain him for long periods would have thrown his distress into orbit. Once he had stopped being violent towards me everything else was much easier - I found just calmly taking him to his bedroom solved nearly every situation . I now find that sometimes he will come to me and just be very still next to me . I out my arm around him but keep still and quiet - he has started to find away to come to me for comfort when he is anxious and that is amazing for him ...I made the mistake initially of muttering soothing stuff at him but I quickly realised he needed me to be silent and still - it is calming for him , although I look like a bitch to the passoing public !!! I also had to learn which of my sons behaviours were stims and out of his control and which were acting out . I could get him on his best behaviour and have a hundred of his best treats lined up but he CANNOT go into the toy shop and not look at the the Tank engine . And I can't ask him to share that - anything else yes , but that one no ...that is his autism and all I can do with that behaviour is manage it and try to understand . I found your post interesting ...Thanks !!! Regards Deborah ( ps ..I have to say though that I was also watching a massive drop in his mood swings at this time anyway and I recognised the foods that were likely to provoke an outburst ( SKITTLES !!!! and milk products )so that helped too !!!......whatever works !!! ) > I have lurked on this site for quite some time now and thought I would make > my first e-mail appearance by responding to the discussion on > aggressiveness. > > I have a 13 year old son who is considered moderately involved (autism), > however, if he were not so apraxic I suspect he would be considered high > functioning. Anyhow, we are at a good spot now, but we went through HE-- for > a few years and I wanted to pass on some experience. > > My son at age 3 and 4 was very much like many of you describe your children. > We did not have a label of autism - he was speech impaired - severe - > apraxia was not a term that was heard of but we thought our son spoke as > though he had a stroke - some times the words came easily other times he > couldn't get anything out and other times it was so garbled no one had a > clue what he was saying. To this day the apraxia is severe and his speech is > unlike any kid I have ever met w/ autism...and his social skills are his > strength. > > Anyhow, our son started to throw temper tantrums rather early - they were > long and loud - but not physical. As he got older and smarter he learned > that throwing objects got a big reaction - and in retrospect that reaction > reinforced the behavior. When it got really bad - age 4 - I went to a > psychologist who gave me the EXACT advice you got- " ignore negative behavior > as much as possible, use time out, if he won;t stay, restrain him. " I > encourage you to RUN from any psychologist that teaches these strategies. > Restraining is the worst thing you can be doing and should be used only if > there are no other options. > > I followed the 'expert's advice and passed it on to the school...and my son > got worse. yelling and screaming and baby hits turned into hair pulling, > biting, spitting, flipping desks. IT continued and got worse and worse until > we placed him residentially at age 9 ( 65 days). What happens over time is > the kids self esteem heads south and they are not being taught other > strategies to get what they want/need. A functional behavioral analysis is > key here - you have to observe and collect and analyze data to determine why > the behavior is occurring - 'frustration' is too global of a reason - he is > seeking attention, seeking tangibles, trying to avoid something, etc..Then > you have to build a plan that teaches him how to get what he wants w/o all > the behavior. > > During this process it might mean you have to kiddie proof your home and > have a strategy for dealing w. the aggression - such as - w/ no eye contact > and one statement " If you hit you must be alone " , pick the child up and > place them in their room and hold the door shut 0 if they escalate, remain > quite until they calm down - the second they are calm, reinforce " Great, you > are calm!Come show mom what you want " - or " you cannot watch TV still, but > let's go play trains. " or what ever is appropriate. > > A restraint gives attention, and it also teaches the child they only need to > control them selves when there is someone big enough to make them. I have > also seen the restraint turn into a pattern - the kid thinks the only way > they can get calm is to go throw the restraint and kick and scream and flail > to near exhaustion...and then they are calm. > > I hope I haven't offended anyone w/ my first post - but I have been there - > you will loose critical years if you get in the " restraint as behavior > management " mode of thinking. My son is doing great now, but in retrospect > we did not have to go through what we went through. I cannot stress to you > how important it is to find a better way to deal w., the aggression. I have > seen too many kids end up in very restrictive placements because of the use > of restraints. If you are restraining on a daily basis, this is WAY too > frequent...and this goes for using a mechanical restraint such as a car > seat. Just my 2 cents. > > Ronnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Hi All ANother thing we did with Jack which helped was using " Replays " He responded fairly well to that. Eileen > > I have lurked on this site for quite some time now and thought I > would make > > my first e-mail appearance by responding to the discussion on > > aggressiveness. > > > > I have a 13 year old son who is considered moderately involved > (autism), > > however, if he were not so apraxic I suspect he would be considered > high > > functioning. Anyhow, we are at a good spot now, but we went through > HE-- for > > a few years and I wanted to pass on some experience. > > > > My son at age 3 and 4 was very much like many of you describe your > children. > > We did not have a label of autism - he was speech impaired - > severe - > > apraxia was not a term that was heard of but we thought our son > spoke as > > though he had a stroke - some times the words came easily other > times he > > couldn't get anything out and other times it was so garbled no one > had a > > clue what he was saying. To this day the apraxia is severe and his > speech is > > unlike any kid I have ever met w/ autism...and his social skills > are his > > strength. > > > > Anyhow, our son started to throw temper tantrums rather early - > they were > > long and loud - but not physical. As he got older and smarter he > learned > > that throwing objects got a big reaction - and in retrospect that > reaction > > reinforced the behavior. When it got really bad - age 4 - I went to > a > > psychologist who gave me the EXACT advice you got- " ignore negative > behavior > > as much as possible, use time out, if he won;t stay, restrain him. " > I > > encourage you to RUN from any psychologist that teaches these > strategies. > > Restraining is the worst thing you can be doing and should be used > only if > > there are no other options. > > > > I followed the 'expert's advice and passed it on to the > school...and my son > > got worse. yelling and screaming and baby hits turned into hair > pulling, > > biting, spitting, flipping desks. IT continued and got worse and > worse until > > we placed him residentially at age 9 ( 65 days). What happens over > time is > > the kids self esteem heads south and they are not being taught other > > strategies to get what they want/need. A functional behavioral > analysis is > > key here - you have to observe and collect and analyze data to > determine why > > the behavior is occurring - 'frustration' is too global of a > reason - he is > > seeking attention, seeking tangibles, trying to avoid something, > etc..Then > > you have to build a plan that teaches him how to get what he wants > w/o all > > the behavior. > > > > During this process it might mean you have to kiddie proof your > home and > > have a strategy for dealing w. the aggression - such as - w/ no eye > contact > > and one statement " If you hit you must be alone " , pick the child up > and > > place them in their room and hold the door shut 0 if they escalate, > remain > > quite until they calm down - the second they are calm, > reinforce " Great, you > > are calm!Come show mom what you want " - or " you cannot watch TV > still, but > > let's go play trains. " or what ever is appropriate. > > > > A restraint gives attention, and it also teaches the child they > only need to > > control them selves when there is someone big enough to make them. > I have > > also seen the restraint turn into a pattern - the kid thinks the > only way > > they can get calm is to go throw the restraint and kick and scream > and flail > > to near exhaustion...and then they are calm. > > > > I hope I haven't offended anyone w/ my first post - but I have been > there - > > you will loose critical years if you get in the " restraint as > behavior > > management " mode of thinking. My son is doing great now, but in > retrospect > > we did not have to go through what we went through. I cannot stress > to you > > how important it is to find a better way to deal w., the > aggression. I have > > seen too many kids end up in very restrictive placements because of > the use > > of restraints. If you are restraining on a daily basis, this is WAY > too > > frequent...and this goes for using a mechanical restraint such as a > car > > seat. Just my 2 cents. > > > > Ronnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Hi Ronnie, This happens to be my first posting as well. I have an 8 year olf boy who has mild/moderate cerebral palsy, more importantly he is speech impaired as well as cognitively impaired. Last fall he was staffed in a behavioral oriented classroom. ph had to be moved into this classroom because he was becoming increasingly frustrated at school. I had put him in what what I believed was the least restrictive environment hoping he would pick up the 'approppriate behaviors " of his peers. What a disaster !! During his first grade year as the classroom size began to increase and his teacher became pregnant, his behaviors became increasingly more aggressive--non participation, tantruming, kicking, defacating in his pants. Thank goodness the staff was very supportive and being an involved parent we strove together and tried to implement some behavior management stratgies Fortuntely, the behaviors became less frequent but no one could get him motivated to partcipate in school work. So we all agreed the current placement was in appropriate and overwhelming for him. So he was placed in a severly emotionally disturbed class that pride itself on behavior management techniques. I must admit that at first the label frightened me and I initially resisted. I went and visited a few of the different classrooms and was very selective in which school I wanted him. ph responds well to a lot of nuturing . So I knew I had to find the right teacher ! Last fall he began 2nd grade. As he did begin tantruming they did have to restrain but in a very calm way. I must tell you by the end of this passing school year no restraining was necessary. although he was the only child w/ CP and speech impaired -- the other children loved him and protecetd him. Since he is a very shy and introverted child it was a great accomplishment to see him playing with other children on the playground. During the year-- my husband and myself were actively invololved with the school psychotherapist that would counsel us on parenting skills as well as counsel ph in private and group thearpies. Although all is not perfect and far from it-- he has made significant strides in managing his aggressive impulses . I must also mention that ph was also a learning experience for the class room staff in understanding sensory integartion issues and all that comes with communication disorders. From this entire experience I can honestly say that it is extremely important to have good relationship with teachers, school staffs, etc and they will truly help in staffing appropriately. Of course we all have to research and stay involved !! Quote Link to comment Share on other sites More sharing options...
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