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Re: Attn? IRENE

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Posted

Benedryl is over the counter as are other antihistamine creams and lotions. You can also ask for a prescription of it compounded into a base which shouldn't irritate you, like olive oil.

I never had the itching with the vv, so I don't know what would be effective. In my case I used the antihistamine cream to quell the inflammation - which according to my docs was an allergic reaction. I just didn't have itching - only the burning pain.

I used the Benedryl all on my own from the drugstore - didn't ask the doc. When I got positive results, THEN I called the doc and asked for it to be compounded in the oil.

Read the box on baking soda - she if it says you can use for itching.

Good luck

Oh and something that DID help with the itching of a rash on my inner thighs was Cortizone 10 (I think its called) Its over the counter l% cortizone with a petroleum base, so there was very little ingredients to cause harm.

Lidex and Aveeno soaks/not helping yet> > > I'm wondering how long it takes Lidex to be effective against > vulvar itching. I've been on it a week and a half and am still > itching like crazy. > > During the time I've been on it, I've kept up the Aveeno sitz baths, > but I honestly think maybe I've developed a sensitivity to it, b/c > now when I soak I feel itchy in the bath, where I didn't before. Is it > even possible to become allergic to colloidal oatmeal?> > I'm stopping the soaks as of yesterday, and last night I did a tea > tree oil sitz bath - just a tiny quantity. Will just continue with that > and the Lidex. But I'm getting worried - I've been on several > protocols already, and if this Lidex doesn't help I don't want to > itch forever.> > Does it always help, but just take a while?????> > Thanks,> Irene> > > > *****END OF MESSAGE/REMOVE WHEN REPLYING*****> http://groups.yahoo.com/group/VulvarDisorders> to search our archive or view our files.> > ***

Posted

Thanks - I just talked to the PA and she and the doc are going to

see me again tomorrow. This is just so frustrating - I don't have

VV, just awful itching due to some sweat gland thing, and I've

already been on clobetasol, topical estrogen, elidel and now

lidex and nothing works. Actually the clobetasol worked for 2

months before it quit, so maybe it's something I could cycle on

and off. However, that was prescribed by my regular gyn. I'm

now seeing a vulva specialist who says that the clobetasol is

bad stuff, but I haven't probed to find out why he says that.

My allergist that I see for hay fever took an interest and had me try

10mg. of doxepin at night - that cured the itching the next day but

turned me into a complete zombie, knocked out on the couch

and unable to perform the most basic of functions, so that's not

the answer either, though I wonder if something along those

lines in a much lower dose might help.

I also tried 25 mg. of atarax which didn't touch the itching, even

though it's supposed to have anti-puritic qualities.

I'll ask about topiclal antihistamines, just wonder if steriods don't

touch this why an antihistamine would.

Wishing this would just go away. . . .

Irene

> > Have you tried antishitamine topically? Like Benedryl

Cream?

> >

> > I was afraid to use the cream, afraid of reactions so I used

the

> childrens

> > dye and alcohol free (which is taken by mouth by children)

> topically on my

> > vulvar skin. I started with one small area at a time - so that if

I

> were

> > going to react to anything in it, it would only be on a small

spot.

> >

> > Sometimes - I'm not saying this is so in your case - the water

> can be too

> > drying if you are doing it frequently. By that I mean that

several

> women

> > (early on in my participation here on the list) suggested

rinsing

> after each

> > urination. After doing this for several days, I became very

> irritated and

> > chapped, much like the chapped lips (forgive the pun) we all

> sometimes get.

> >

> >

> > Lidex and Aveeno soaks/not helping yet

> >

> >

> > I'm wondering how long it takes Lidex to be effective against

> > vulvar itching. I've been on it a week and a half and am still

> > itching like crazy.

> >

> > During the time I've been on it, I've kept up the Aveeno sitz

> baths,

> > but I honestly think maybe I've developed a sensitivity to it, b/c

> > now when I soak I feel itchy in the bath, where I didn't before.

Is

> it

> > even possible to become allergic to colloidal oatmeal?

> >

> > I'm stopping the soaks as of yesterday, and last night I did a

> tea

> > tree oil sitz bath - just a tiny quantity. Will just continue with

> that

> > and the Lidex. But I'm getting worried - I've been on several

> > protocols already, and if this Lidex doesn't help I don't want to

> > itch forever.

> >

> > Does it always help, but just take a while?????

> >

> > Thanks,

> > Irene

> >

> >

> >

> > *****END OF MESSAGE/REMOVE WHEN REPLYING*****

> > http://groups.yahoo.com/group/VulvarDisorders

> > to search our archive or view our files.

> >

> > ***

Posted

You said it is a sweat gland thing. What did they tell you? What are your

sweat glands doing.

Ora

>Thanks - I just talked to the PA and she and the doc are going to

>see me again tomorrow. This is just so frustrating - I don't have

>VV, just awful itching due to some sweat gland thing, and I've

>already been on clobetasol, topical estrogen, elidel and now

>lidex and nothing works. Actually the clobetasol worked for 2

>months before it quit, so maybe it's something I could cycle on

>and off. However, that was prescribed by my regular gyn. I'm

>now seeing a vulva specialist who says that the clobetasol is

>bad stuff, but I haven't probed to find out why he says that.

>

>My allergist that I see for hay fever took an interest and had me try

>10mg. of doxepin at night - that cured the itching the next day but

>turned me into a complete zombie, knocked out on the couch

>and unable to perform the most basic of functions, so that's not

>the answer either, though I wonder if something along those

>lines in a much lower dose might help.

>

>I also tried 25 mg. of atarax which didn't touch the itching, even

>though it's supposed to have anti-puritic qualities.

>

>I'll ask about topiclal antihistamines, just wonder if steriods don't

>touch this why an antihistamine would.

>

>Wishing this would just go away. . . .

>

>Irene

Posted

Hi Ora,

The doc says it's squamous hyperplasia - something like the

sweat is making my vulva itch, like I can't tolerate my own sweat.

It's strange. I hope this makes sense.

Irene

>

> >Thanks - I just talked to the PA and she and the doc are going

to

> >see me again tomorrow. This is just so frustrating - I don't

have

> >VV, just awful itching due to some sweat gland thing, and I've

> >already been on clobetasol, topical estrogen, elidel and now

> >lidex and nothing works. Actually the clobetasol worked for 2

> >months before it quit, so maybe it's something I could cycle

on

> >and off. However, that was prescribed by my regular gyn. I'm

> >now seeing a vulva specialist who says that the clobetasol is

> >bad stuff, but I haven't probed to find out why he says that.

> >

> >My allergist that I see for hay fever took an interest and had

me try

> >10mg. of doxepin at night - that cured the itching the next day

but

> >turned me into a complete zombie, knocked out on the couch

> >and unable to perform the most basic of functions, so that's

not

> >the answer either, though I wonder if something along those

> >lines in a much lower dose might help.

> >

> >I also tried 25 mg. of atarax which didn't touch the itching,

even

> >though it's supposed to have anti-puritic qualities.

> >

> >I'll ask about topiclal antihistamines, just wonder if steriods

don't

> >touch this why an antihistamine would.

> >

> >Wishing this would just go away. . . .

> >

> >Irene

Posted

Shirley,

That sounds interesting but a little scary. I mean it is a toxin,

right? I wonder what the side effects are.

Irene

> Overactive sweat glands are being treated with botox injections

these days. If yours are overactive that is :-)

>

> Blessings,

> Shirley.

Posted

When you mentioned sweat it rang a bell because every time I perspire " down

there " it starts to burn and/or itch. I have been trying to lose 15 pounds for

years but every time I diet for a couple of days I start to perspire more than

usual and then I start to burn and just give up my diet.

As a matter of fact the day that my vulvodynia first started I had been moving

some office furniture around because I had relocated and the arrangement of the

furniture was not to my liking. I was not working hard or overdoing it but at

the same time I was on a diet and trying to lose weight. But I was sweating and

the burning started and and lasted for two years until the remissions started

from time to time but it still hits me sometimes even now.

Ora

>Hi Ora,

>

>The doc says it's squamous hyperplasia - something like the

>sweat is making my vulva itch, like I can't tolerate my own sweat.

>It's strange. I hope this makes sense.

>

>Irene

>

>

>

>> You said it is a sweat gland thing. What did they tell you?

>What are your

>> sweat glands doing.

>>

>> Ora

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