Guest guest Posted July 6, 2004 Report Posted July 6, 2004 I agree. I have had people look at us like there is something wrong with us that we cannot control my daughter. It's just that not that many people know about the illness. We haven't exactly " announced " it around. People don't have a clue. > >Reply-To: WTOParentsOfBPs >To: WTOParentsOfBPs >Subject: invisibly diseases >Date: Mon, 05 Jul 2004 15:49:08 -0000 > >i know i have said it before but with this INVISIBLE disease, even >more than with physical illnesses that are not immediately apparent, >AND since its sx are behavioral BOTH we and our BPD are harshly >judged. WE " must " be bad parents(otherwise why can't we get control >of our own kids(!) and they are " bad " kids because they can't control >themselves. to ME it is like blaming us (if our child had, for eg >DIABETES) blaming US for their blood sugar being high AND blaming >them for having a disease where their blood sugar is hard to >control.as with diabetes, we can make a difference BUT we did not ASK >for the illness, did NOT cause the illnes aqnd sure as hell don't >need other people (either ignorant that the illness affects our child >OR ignorant HOW the illness affects them and their behavior) we do >NOT deserve to be judged! MORE people NEED to undrstand this illness-- >-AND the " old fashioned " way that some psych. still see the origins >of the illness--i.e. being caused by the home >environment/relationship with mother MUST, MUST, MUST be corrected. >this is a GENETIC illnes. this alters the BPD's ability to obtain >REALITY, control their EMOTIONS. >we need FIRST to forgive ourselves, KNOWING we did not cause it, and >even if it IS in the family GENETICS, we still did not know or wish >it to be passeed on-then we need to u8nderstand that IGNORANCE, >rampant, if unintentional ignorance is behind 99% of people's >judgemental attitudes. and their own frustartion, if they are close >enough to the BPD-in not being able to " fix " things. i hope i see, in >my lifetime BPD recognized as the BRAIN disease it is and not bad >parentoing. the " bad parenting " thing just keeps the illness for >getting proper attention, research AND in a funny way RESPECT-respect >for how they suffer, for their limited ability to help themselves >(though it is not helpful to put foreward this idea to them) AND how >difficult it is for US to help them!!!! it is like MS or diabetes >or any other PHYSICAL illness, just because it is the BRAIN , and the >symptoms are behavioral, does not mean the illness should have any >less respect! love, rivka > _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote
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