Re: Hopkins Dyspareunia and Vulvar Pain Clinic

[Guest guest]

s Hopkins University (Baltimore, MD)

Subject: Mechanisms of pain in vulvodynia in women ages 18 to 45 years.

Contact: Ursula Wesselmann, MD, PhD

or women@...

Requirements: Women who are between the ages 18 and 45, and have regular

menstrual cycles can participate in this study. Both, women who are on birth

control medication and women who are not taking birth control medication may

participate. If you are pregnant or if you had a hysterectomy you are not a

candidate for these studies.

You will be asked to come to s Hopkins Hospital in Baltimore, land for

an evaluation, which will take approximately 3 hours.

This is not a treatment study, and you are not expected to receive any direct

medical benefits from your participation in the study. The information in this

research study will add to our understanding of vulvodynia. This information may

lead to better pain management techniques in the future for women with

vulvodynia. You will receive an honorarium for participation. This study is

supported by the National Institutes of Health and the National Vulvodynia

Association.

>My mother-in-law has offered to pay for my airfare and lodging if I

>want to go to Hopkins to get treatment for my vulvar

>vestibulitis. I've been suffering from it for over 10 years with

>little to no relief. I did some research on the Internet and

>discover they now have a specific clinic set up just for women with

>vulvar pain disorders. I'm just wondering if any of you have been

>treated there and what you thought of it...

>

>Thanks,

>Heidi

>

>

>

>

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[Guest guest]

In a message dated 8/1/04 9:57:57 AM, VulvarDisorders writes:

<< My mother-in-law has offered to pay for my airfare and lodging if I

want to go to Hopkins to get treatment for my vulvar

vestibulitis. I've been suffering from it for over 10 years with

little to no relief. I did some research on the Internet and

discover they now have a specific clinic set up just for women with

vulvar pain disorders. I'm just wondering if any of you have been

treated there and what you thought of it... >>

If you're seeing Goldstein there, it's going to very expensive. He charges

$1,000 for an initial visit. And he doesn't offer anything different than the

other specialists that charge far less.

I haven't heard anything bad about Hopkins or anything good that makes

it stand out over any other university with a vulvar pain clinic. The

University of Michigan has a vulvodynia clinic, I see Dr. Hope Haefner there.

She's

among the dozen or so specialists in the country at the forefront of the

research into vv/vvs. I'm quite happy with my care there and once Haefner has

seen

you, she will work with your local gynecologist so he can oversee the treatment

plan you have worked out with her.

The problem with traveling so far to a vulvar pain clinic is that for it to

be successful, you need to make follow up visits. If you can't do that and

your local doctor and the specialist won't work together on your follow-up care,

it's a waste of money.

I would also make sure the clinic has treatment plans that you haven't tried.

Debbie

Tiger

" Hey Tiger, quit bringing quotes from UC to the Bruce list!! :-) " - Jim G.,

5/4/04

[Guest guest]

I had agreed to be part o this study a while back, but went into yeast mode about the time I was scheduled to participate in the "elder" version of this (Menopausal women).

What is listed below is NOT A TREATMENT PROGRAM . They conduct tests on you, on the vulvar skin and in the vagina - using various methods to see what your responses are. This group of people have a theory that vulvodynia is neurological in nature and they are trying to prove or disprove their theory by testing a wide range of women with a given set of tests designed to illicit responses from nerves. An example, as it was explained to me, is electrical stimulation to various areas to see what the nerve response is in that area. All testing is first done in a modified form to see if you can tolerate the test, as they do not wish to add to your discomfort. According to the coordinator that I dealt with, women generally do fine through the test, without any major discomfort.

Dusty

Mechanisms of pain in vulvodynia in women ages 18 to 45 years. Contact: Ursula Wesselmann, MD, PhD or women@... Requirements: Women who are between the ages 18 and 45, and have regularmenstrual cycles can participate in this study. Both, women who are on birthcontrol medication and women who are not taking birth control medication mayparticipate. If you are pregnant or if you had a hysterectomy you are not acandidate for these studies.You will be asked to come to s Hopkins Hospital in Baltimore, land foran evaluation, which will take approximately 3 hours.This is not a treatment study, and you are not expected to receive any directmedical benefits from your participation in the study. The information in thisresearch study will add to our understanding of vulvodynia. This information maylead to better pain management techniques in the future for women withvulvodynia. You will receive an honorarium for participation. This study issupported by the National Institutes of Health and the National VulvodyniaAssociation.>My mother-in-law has offered to pay for my airfare and lodging if I >want to go to Hopkins to get treatment for my vulvar >vestibulitis. I've been suffering from it for over 10 years with >little to no relief. I did some research on the Internet and >discover they now have a specific clinic set up just for women with >vulvar pain disorders. I'm just wondering if any of you have been >treated there and what you thought of it...>>Thanks,>Heidi>>>>>*****END OF MESSAGE/REMOVE WHEN REPLYING*****>http://groups.yahoo.com/group/VulvarDisorders>to search our archive or view our files.>>***

[Guest guest]

Heidi, where did you find that information about their specific clinic.

Ora

>My mother-in-law has offered to pay for my airfare and lodging if I

>want to go to Hopkins to get treatment for my vulvar

>vestibulitis. I've been suffering from it for over 10 years with

>little to no relief. I did some research on the Internet and

>discover they now have a specific clinic set up just for women with

>vulvar pain disorders. I'm just wondering if any of you have been

>treated there and what you thought of it...

>

>Thanks,

>Heidi

>

>

>

>

>*****END OF MESSAGE/REMOVE WHEN REPLYING*****

>http://groups.yahoo.com/group/VulvarDisorders

>to search our archive or view our files.

>

>***