Re: assymetry

[Guest guest]

:

Just a slight correction......my son wears Stride Rite shoes (not Buster

Brown) and they work very well for him! They will special order shoes

if need be for the width to make them more narrow. They are a really

great company and worth the extra money for good shoes as Missy

explained. 's physical therapist was not only adement about

getting the shoe lift, but also a good quality of shoe with good support

and an arch inside the shoe.

Good luck to you!

Stacie

's Mommy

Missy Shost wrote:

> , I am very surprised that you were advised against a shoe lift.

> Ian's ped ortho had us put a lift on his shoe when he started

> walking... He was running around barefoot just to get his balance, but

> we progressively kept his shoes on longer so he would get used it. The

> concern is keeping their back and hips in proper alignment, without

> they could do some damage. Also, scoliosis is a concern due to the

> assymetry.. The bottom of the shoe is cut off, with some sole still

> attached to the shoe and the lift is put in between. That way, the

> bottom of the shoe still has it's good tread on it. That has worked

> out best for us, we had some shoes with the lift just attached to the

> bottom & we had problems, so that is my suggestion.. We make sure we

> get good quality shoes to for the lifts, since he doesn't grow out of

> them as fast as most children would, it is worth the extra money.

> Nikes work best for us, he's got very narrow feet. I think Stacie was

> saying something about Buster Bro! wn shoes also. I do not know about

> the leg lenghtening. The ped ortho & I have been over it very briefly,

> but as we still don't have the absoulute results to his GH level test,

> I haven't been thinking that far down the road. I know of an older RSS

> child who was going to have it done, but I don't know the procedure

> went or how things have been going for him... Missy mom to Ian-5 yrs,

> 35 1/2 inches, 22 lbs

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>

[Guest guest]

will be 4 in March. He has assymetry of about 2.5cm. I'm fairly

certain that it is increasing. I've had 4 opinions; two say it does not

increase, therfore as he gets bigger it will become less of a problem.

The other two say it will incease in proportion, ie. when he is 180 cm

it should be two inches! (if he gets to 180). He's due for a second

x-ray, so the bone measurements will for the first time give us accurate

measurements. I'd be interested to hear how your experiences differ -

discrepancy when first noticed, and now?

hamiwers@... wrote:

> From: hamiwers@...

>

> Hi everyone.

> I've just joined the list and spent some time scanning through the

> recent

> archives. The info has been useful but I find the experiences of other

> RSS

> parents to be the most enlightening. My 11mo son Jasper was just

> diagnosed with

> RSS a week ago and until the week before xmas when we saw a pdendo, I

> had never

> heard of RSS. He was born full term at 18.5 " and 4lbs 10oz. He grew

> very well

> until about 5.5mos at which point he seemed to stall at 15.5lb and

> 25.5 " .

> He is now 16.5lb and 27 " . I nursed exclusively until 6mos and this is

> still

> his strongly preferred source of nourishment though he recently has

> started to eat more jar food and cheerios. We will probably go to a

> second geneticist (is

> there a list of relevant abbreviations somewhere so I don't have to

> spell

> everything out?) to confirm the diagnosis and since we are in the NY

> area, we

> might consider seeing Dr. Harbison. In addition to IUGR, Jasper has

> cafe au

> lait spots and size asymmetry in his legs. The only other obvious RSS

> characteristic is a small chin. He is an extremely active and happy

> baby which

> might have made it easier to stall investigating why his growth slowed

> down so

> abruptly. Is this common in RSS children? I would appreciate any

> advice on how

> we should proceed with " treating " Jasper.

> thanks,

>

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> [