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Re: We've started the diet but I have a couple of questions

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First suggestion - get a new neuro!! Ok now I know that is easier said

than done, just had to say that. What a thing to do to a child!! How

awful!

Regarding hiding the cream:

add a bit of water to make milk

add sweetner and vanilla and banana (or other fruit that she can have

more of as banana is very little even on Mike's lax diet) and freeze a

bit to make a milkshake

add vanilla and sweetner and freeze to make ice cream - this tastes

almost exactly like " real " ice cream

add cream to egg and fry

make a cream soup - we have done this with both a broccoli soup and with

chicken noodle (very little noodles) soup

use the keto chocolate mousse recipe - tastes good and high in fat -cant

remember the recipe but it might be posted at the ketorecipes group.

make creamsicles - use cream and ketokoolaid (we use orange/banana - has

a tiny bit of sugar in it) Mike isnt very fond of them but we have only

tried once and I think it was just because it was a new thing. He likes

is fave's right now.

Freeze cream as ice cream, add to diet pop or koolaid to make an " ice

cream " float.

Hiding butter:

soups are always good for hiding butter and oil

I add any oil (melted butter works ok too as we dont have a whole lot of

it) to Mike's ice cream

Melted butter hides well in scrambled eggs (I use a spatula to scrape

the plate afterwards to make sure I get everything)

Make " butter candy " add sweetner and vanilla (or other " safe " flavor) to

butter and freeze in fancy ice cube trays

we have a bit more carb than you are working with so I make Mike

pancakes and for him this is an all in one meal - cream, butter, egg,

carb and oil. Someone would know better, but would it work to do this

with pumpkin pancakes?

What about using mayo for a few meals for veggie dip or mixing with

chicken for chicken salad on a bed of lettuce?

Another of Mike's fave's is the chocolate mousse recipe - I dont have it

any longer but it might be posted on the ketorecipes board. It tastes

good and is quite high fat even my girls loved it.

Can you hide oil or butter in jello? I have never tried, thought just

popped into my head. What about putting oil in popsicles? I have never

been able to figure this out but I read it here somewhere.

Hope some of this helps.

Jenn

Halina wrote:

> We've finally started the diet!! I wish Kaitlynn was more

> enthusiastic though. Our first day was tough but we made it through.

> The next day Kaitlynn got her egg nog, well the first one which was a

> 1/3 strength was pretty easy to get down but when it got to the

> 2/3rd's strength it was tough getting it down for her. I even made a

> slushie with it and STILL she wouldn't drink it all. Today was food

> but she didn't want any part of the butter or cream! HELP! She's

> registering ketones but without the fat it won't stay right? Her

> ratio is 3.5:1 and her Kcal/day is 1411.

> Today I was ready to strangle the neuro! He tells me (after agreeing

> to do the diet) that he's now thinking it's not a great idea. He was

> being so negative with Kaitlynn today asking her " do you like the

> cream Kaitlynn? Of course Kaitlynn shook her head no, then he asked

> do you like the butter Kaitlynn? Again no from her. He even asked if

> she liked olive oil. I mean what was this about but being negative?

> Now he prescribed me Carnitin ( I think that is what it's called) to

> help in the digestion of the fat, my question is, do we REALLY need

> that or is there something else I could use in the aid of the

> digestion of the fat? I'm just thinking that the neuro wrote out this

> prescription to discourage us from continuing the diet because when I

> found out how much it was I almost fell on the floor! He's a

> horrible, negative person when it concerns the diet. I didn't say

> much but I stuck it to him and asked Kaitlynn & qu! ot;Do you want to

> be on medicine again? Is there some sort of homeopathic digestive

> enzyme we could use instead of this Carnitine?

> I'm willing to give this a try and with the neuro's negativity I don't

> think Kaitlynn will give it an honest effort. I told him that there

> has to be a way for the butter and cream to be hidden in the food but

> he said that it's too much to hide. What about putting the cream in

> when I cook an egg? Afterwards putting the butter over the scrambled

> eggs? I've got all the meal plans and I'm going to make a menu up for

> her. The neurologist wants to see Kaitlynn in a weeks time to see how

> she's doing on the diet and if she's not eating the cream and butter

> he said that he won't continue her on the diet! I'm so ticked at him

> right now! What he doesn't realize is he's given me MORE motivation

> to do it now! He also said when the child is younger, age 4 or 5 that

> it's much easier to do. Well, I seem to recall asking him about this

> diet and he was NOT willing to do it whatsoever! Back then Kaitlynn

> was only 5!

> I'm so sorry for going on like this but he really upset me today! I

> will stop now but if anyone could let me know about the Carnitine I

> would really appreciate it. Thank you for those who made it this far.

>

> Halina

>

>

>

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Also wanted to add that we have never given Mike carnitine. We have

used acidophilis in the past (wrong kind tho as when we stopped seizures

decreased and increased upon re-introduction) We want to start up on it

again, just waiting to hear if the brand I found is ok. We also have

some digestive enzymes but havent used them much as Mike refused them in

the beginning, then we started meds weans and I didnt want to add

anything to the " mix " to rock the boat. Still something we will do when

we are done weaning a bit more.

Just a side note - dont worry about " venting " here. Everyone

understands - nice thing about this group - everyone " gets it " Things

are very stressful and hard especially when starting the diet with

little neurology support. My son's neuro wasnt as negative as yours,

but complained that Mike wasnt getting adequate seizure control for the

first 9 months and kept talking about adding another med. Then we

weaned dilantin and he got much better control, she has stopped bugging

me now, but has told me she isnt happy about those seizures still

remaining. I am just ecstatic to see him down on meds without an

increase in seizures!

Jenn

Halina wrote:

> We've finally started the diet!! I wish Kaitlynn was more

> enthusiastic though. Our first day was tough but we made it through.

> The next day Kaitlynn got her egg nog, well the first one which was a

> 1/3 strength was pretty easy to get down but when it got to the

> 2/3rd's strength it was tough getting it down for her. I even made a

> slushie with it and STILL she wouldn't drink it all. Today was food

> but she didn't want any part of the butter or cream! HELP! She's

> registering ketones but without the fat it won't stay right? Her

> ratio is 3.5:1 and her Kcal/day is 1411.

> Today I was ready to strangle the neuro! He tells me (after agreeing

> to do the diet) that he's now thinking it's not a great idea. He was

> being so negative with Kaitlynn today asking her " do you like the

> cream Kaitlynn? Of course Kaitlynn shook her head no, then he asked

> do you like the butter Kaitlynn? Again no from her. He even asked if

> she liked olive oil. I mean what was this about but being negative?

> Now he prescribed me Carnitin ( I think that is what it's called) to

> help in the digestion of the fat, my question is, do we REALLY need

> that or is there something else I could use in the aid of the

> digestion of the fat? I'm just thinking that the neuro wrote out this

> prescription to discourage us from continuing the diet because when I

> found out how much it was I almost fell on the floor! He's a

> horrible, negative person when it concerns the diet. I didn't say

> much but I stuck it to him and asked Kaitlynn & qu! ot;Do you want to

> be on medicine again? Is there some sort of homeopathic digestive

> enzyme we could use instead of this Carnitine?

> I'm willing to give this a try and with the neuro's negativity I don't

> think Kaitlynn will give it an honest effort. I told him that there

> has to be a way for the butter and cream to be hidden in the food but

> he said that it's too much to hide. What about putting the cream in

> when I cook an egg? Afterwards putting the butter over the scrambled

> eggs? I've got all the meal plans and I'm going to make a menu up for

> her. The neurologist wants to see Kaitlynn in a weeks time to see how

> she's doing on the diet and if she's not eating the cream and butter

> he said that he won't continue her on the diet! I'm so ticked at him

> right now! What he doesn't realize is he's given me MORE motivation

> to do it now! He also said when the child is younger, age 4 or 5 that

> it's much easier to do. Well, I seem to recall asking him about this

> diet and he was NOT willing to do it whatsoever! Back then Kaitlynn

> was only 5!

> I'm so sorry for going on like this but he really upset me today! I

> will stop now but if anyone could let me know about the Carnitine I

> would really appreciate it. Thank you for those who made it this far.

>

> Halina

>

>

>

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Dear Halina,

We started the diet at the end of February, my daughter,

Kim is 9 years old. She was not crazy about the buuter and

cream at first so I had to find a few ways to make it more appealing

to her. All the idea I got where either from here or the Freeman's

book. I make popsickles out the cream, I measure the grams and mix

in a drop of sweetner and diet soda and then freeze them in molds.

She gets one each meal. I use diet rootbeer and diet blackcherry and

diet orange. She likes them. With the butter, I mix all the butter

and cream in with the eggs in the morning and I microwave them, they

are fluffy and good, a tad runnny but not bad. With the hot dog

meal, I cut up the hot dog and melt the butter and give it to her in

a bowl. For a few of the other meals I make butter lollipops, I

thought these would be gross but she likes them. I melt the butter

add sweetner and either one or two drops of vanilla extract or now I

use Strawberry extract. I pour them in a candy lollipop mold and

keep them in the freezer. We have all different molds, smile face

pops, and ice cream cone pops, it is ALOT better than just eating

butter straight at least she likes them better.

I will try to think of more ways and if I do I will let you know.

Hang in there and I would make sure to give the diet a good chance

before I would abandon it. Oh, I remember how difficult those first

few months were.

Pam and Kim

> We've finally started the diet!! I wish Kaitlynn was more

enthusiastic though. Our first day was tough but we made it

through. The next day Kaitlynn got her egg nog, well the first one

which was a 1/3 strength was pretty easy to get down but when it got

to the 2/3rd's strength it was tough getting it down for her. I even

made a slushie with it and STILL she wouldn't drink it all. Today

was food but she didn't want any part of the butter or cream! HELP!

She's registering ketones but without the fat it won't stay right?

Her ratio is 3.5:1 and her Kcal/day is 1411.

> Today I was ready to strangle the neuro! He tells me (after

agreeing to do the diet) that he's now thinking it's not a great

idea. He was being so negative with Kaitlynn today asking her " do

you like the cream Kaitlynn? Of course Kaitlynn shook her head no,

then he asked do you like the butter Kaitlynn? Again no from her.

He even asked if she liked olive oil. I mean what was this about but

being negative? Now he prescribed me Carnitin ( I think that is what

it's called) to help in the digestion of the fat, my question is, do

we REALLY need that or is there something else I could use in the aid

of the digestion of the fat? I'm just thinking that the neuro wrote

out this prescription to discourage us from continuing the diet

because when I found out how much it was I almost fell on the floor!

He's a horrible, negative person when it concerns the diet. I didn't

say much but I stuck it to him and asked Kaitlynn " Do you want to be

on medicine again? Is there some sort of homeopathic digestive

enzyme we could use instead of this Carnitine?

> I'm willing to give this a try and with the neuro's negativity I

don't think Kaitlynn will give it an honest effort. I told him that

there has to be a way for the butter and cream to be hidden in the

food but he said that it's too much to hide. What about putting the

cream in when I cook an egg? Afterwards putting the butter over the

scrambled eggs? I've got all the meal plans and I'm going to make a

menu up for her. The neurologist wants to see Kaitlynn in a weeks

time to see how she's doing on the diet and if she's not eating the

cream and butter he said that he won't continue her on the diet! I'm

so ticked at him right now! What he doesn't realize is he's given me

MORE motivation to do it now! He also said when the child is

younger, age 4 or 5 that it's much easier to do. Well, I seem to

recall asking him about this diet and he was NOT willing to do it

whatsoever! Back then Kaitlynn was only 5!

> I'm so sorry for going on like this but he really upset me today!

I will stop now but if anyone could let me know about the Carnitine I

would really appreciate it. Thank you for those who made it this far.

> Halina

>

>

>

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Halina,

Sounds like your neuro WANTS you to fail..... I suppose then he can gloat about

what a lousy idea the diet was! Our doc prescribed Carnitor (brand name of

prescription l-carnitine), too.... but never had our daughter's blood levels

checked. They (neuro and dietician) said the test was really expensive so they'd

rather just put her on it because (they felt) " most keto kids need it " . Well, I

did give it to her for 2 months but it gave her terrible diarrhea..... and

another side effect that kids can have (although Katera did not) is stomach

pain, by the way. I stopped and told them I would not give it to her unless they

did the test and proved to me that she needed it. They didn't think it was that

important, I guess, because they never mentioned it again and didn't order the

test. I decided instead that I'd rather give her digestive enzymes..... we use

HN-Zyme-Prime from Houston Nutraceuticals (www.houstonni.com ). I think that has

helped a lot. Looks like Jenn gave you some really good suggestions for getting

the fat in. I'd just suggest that you see that neurologist as little as possible

and learn from the moms here. You sound very determined..... so hang in there,

you can do it!

Patti, mom to Katera..... age 5 (almost 6), Keto Kid since 10-10-2000.

We've started the diet but I have a couple of questions

We've finally started the diet!! I wish Kaitlynn was more enthusiastic

though. Our first day was tough but we made it through. The next day Kaitlynn

got her egg nog, well the first one which was a 1/3 strength was pretty easy to

get down but when it got to the 2/3rd's strength it was tough getting it down

for her. I even made a slushie with it and STILL she wouldn't drink it all.

Today was food but she didn't want any part of the butter or cream! HELP!

She's registering ketones but without the fat it won't stay right? Her ratio is

3.5:1 and her Kcal/day is 1411.

Today I was ready to strangle the neuro! He tells me (after agreeing to do

the diet) that he's now thinking it's not a great idea. He was being so

negative with Kaitlynn today asking her " do you like the cream Kaitlynn? Of

course Kaitlynn shook her head no, then he asked do you like the butter

Kaitlynn? Again no from her. He even asked if she liked olive oil. I mean

what was this about but being negative? Now he prescribed me Carnitin ( I think

that is what it's called) to help in the digestion of the fat, my question is,

do we REALLY need that or is there something else I could use in the aid of the

digestion of the fat? I'm just thinking that the neuro wrote out this

prescription to discourage us from continuing the diet because when I found out

how much it was I almost fell on the floor! He's a horrible, negative person

when it concerns the diet. I didn't say much but I stuck it to him and asked

Kaitlynn " Do you want to be on medicine again? Is there some sort of

homeopathic digestive enzyme we could use instead of this Carnitine?

I'm willing to give this a try and with the neuro's negativity I don't think

Kaitlynn will give it an honest effort. I told him that there has to be a way

for the butter and cream to be hidden in the food but he said that it's too much

to hide. What about putting the cream in when I cook an egg? Afterwards

putting the butter over the scrambled eggs? I've got all the meal plans and I'm

going to make a menu up for her. The neurologist wants to see Kaitlynn in a

weeks time to see how she's doing on the diet and if she's not eating the cream

and butter he said that he won't continue her on the diet! I'm so ticked at him

right now! What he doesn't realize is he's given me MORE motivation to do it

now! He also said when the child is younger, age 4 or 5 that it's much easier

to do. Well, I seem to recall asking him about this diet and he was NOT willing

to do it whatsoever! Back then Kaitlynn was only 5!

I'm so sorry for going on like this but he really upset me today! I will stop

now but if anyone could let me know about the Carnitine I would really

appreciate it. Thank you for those who made it this far.

Halina

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Hi Halina,

Your neruo is terribly rude and obnoxious asking Kaitlynn those

questions! Ignore his bad behavior, he obviously doesn't have a clue

about how yummy some of the meals can be even with all that cream and

oil. Surround yourself with positive keto people (like everyone here

at this group) and you will do fine even with the neruos negative

attitude.

There are some great recipes in the files section here or you can go

to the recipe site at http://groups.yahoo.com/group/ketorecipes/ ,

they are a little easier to find by heading. A couple of Mallorie's

favorites are Jane's spinach pie and pumpkin pancakes. In both of

these recipes I have been able to get all the oil in the recipes and

they taste great. On the pancakes I add extra alloted butter on top.

There are a lot of other great meals and ideas too. We just started

making the keto mac (zucchini) & cheese this week, it is so good. You

can make cream soda, floats. I am going to try Jane's chocolate

custard tomorrow, it sounds delicious.

As far as the Carnitor goes some kids need it. It is usualy

prescribed if your child shows a carnitine deficiency. Carnitine

helps to metabolize fatty acids and to move toxins out of the cells.

Mallorie has been on it in the past when she was on Depakote and it

seemed to make her feel better. She has not been doing well lately so

her doctor has called in a prescription to see if she will feel

better on it. It is covered by our insurance. Did Kaitlynn's neruo

prescribe Carnitor or just carnitine? You may want to check out

http://www.carnitor.com to read more about it.

Good luck and a great beginning to you and Kaitlynn.

(Mallorie's mom)

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HI,

I'M SORRY ABOUT YOUR STRUGGLE. BUT IT'S GREAT THAT YOU HAVE HELD

YOUR GROUND WITH THE NEURO. THESE DOCTORS DON'T HAVE TO WATCH THEIR KIDS

HAVE ALMOST CONSTANT SEIZURE AND WATCH THEM LOSE DEVELOPMENT FROM BEING SO

DRUGED, DEAL WITH OTHER SIDE EFFECTS, OR WONDER WHAT IT'S REALLY DOING TO

THEIR BODIES. NOT TO MENTION THE EFFECTS FROM THE SEIZURES, AND FORCE

FEEDING MEDS DAY AND NIGHT. SORRY, IT GETS TO ME. I PUT THE CREAM AND THE

BUTTER IN THE EGGS AND COOK IT ALL. IT TURNS OUT FINE AND MY SONS LIKES IT.

I TRY TO DO MORE RECIPES THAT ARE ALL INCLUSIVE THAT WAY HE WON'T HATE

BUTTER, OIL, AND CREAM FOR THE REST OF HIS LIFE. WE JUST GOT THE NUMBERS AND

RECIPE FOR " MAC AND CHEESE " FOR MY SON, HE LOVES IT. HE JUST GOT A BAVARIAN

CREAM RECIPE FOR HIS SNACK, LOOKS LIKE CHOCOLATE MOOSE. IT IS TO SOON FOR

THE DOCTOR TO WANT TO GIVE UP. THE NUTRITIONIST CAN HELP WITH DIFFERENT

MEALS SHE WILL LIKE. TACO'S, SHRIMP,PIZZA, OF COURSE THEIR A LITTLE

DIFFERENT THAN SHE'S USE TO BUT NOT TO BAD. I WISH YOU GUYS ALL THE LUCK IN

THE WORLD.. HAS SHE IMPROVED WITH SEIZURE CONTROL YET?

GOD BLESS,

BOBBI HAMMETT

P.S.

YOU CAN ALSO PUT THE BUTTER IN CANDY MOLDS WITH A LITTLE FLAVORING, SWEETENER

AND FOOD COLORING, CHILL AND MAYBE SHE'LL FIND IT A TREAT.

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Well, I agree with someone else's comments - fire the neuro!!

That likely not being feasible - do your dammedest to prove him wrong!

:)

has been on diet four a half years and our neuro still goes on

about diet being so unpalatable and he can't believe Jess is happy and

healthy on it......geuss it just goes to show, much as they like to

think they do, they don't know everything!

How old is your daughter? What were some of her favourite meals? There

are lots of ways to try to make it easier. We whip cream and oil, with

sweetner and Bickford flavourings (they have all kinds of flavours that

are keto-friendly), if you put in freezer it gets hard like ice cream,

if you keep in fridge, it keeps consistency of whipped cream you would

put on your fruit. Then rest of meal can be pretty " normal " .

She might like the yoghurt recipe, sounds great but doesn't taste too

bad - stir sour cream, oil, vanilla, sweetner together with some small

chunks of fruit, peaches or strawberries work well. Stir and stir until

you get consistency of yoghurt. Refrigerate. When you take out to use

you will have to restir because oil will separate out. Of if in

container with a lid, just shake before you take lid off and it will mix

back in. With cheese (we use the cheese sticks Jess likes so much) on

the side you have a full meal, no cream. But if more than half as much

oil as sour cream it won't work well. In that case use mayonnaise on the

side to make up some of the fat, works well to dip the cheese stick into

it.

Depending on the ratio, you can make pizza using pita bread as the base,

pepperoni, grated cheese on top, nuke to melt cheese and " ice cream " for

dessert. There is a chicken casserole recipe in the files that is really

good, no cream, a whole meal in a bowl. All kinds of ideas, just takes

a while to get creative.

Best of luck!

Halina wrote:

> We've finally started the diet!! I wish Kaitlynn was more

> enthusiastic though. Our first day was tough but we made it through.

> The next day Kaitlynn got her egg nog, well the first one which was a

> 1/3 strength was pretty easy to get down but when it got to the

> 2/3rd's strength it was tough getting it down for her. I even made a

> slushie with it and STILL she wouldn't drink it all. Today was food

> but she didn't want any part of the butter or cream! HELP! She's

> registering ketones but without the fat it won't stay right? Her

> ratio is 3.5:1 and her Kcal/day is 1411.

> Today I was ready to strangle the neuro! He tells me (after agreeing

> to do the diet) that he's now thinking it's not a great idea. He was

> being so negative with Kaitlynn today asking her " do you like the

> cream Kaitlynn? Of course Kaitlynn shook her head no, then he asked

> do you like the butter Kaitlynn? Again no from her. He even asked if

> she liked olive oil. I mean what was this about but being negative?

> Now he prescribed me Carnitin ( I think that is what it's called) to

> help in the digestion of the fat, my question is, do we REALLY need

> that or is there something else I could use in the aid of the

> digestion of the fat? I'm just thinking that the neuro wrote out this

> prescription to discourage us from continuing the diet because when I

> found out how much it was I almost fell on the floor! He's a

> horrible, negative person when it concerns the diet. I didn't say

> much but I stuck it to him and asked Kaitlynn " Do you want to be on

> medicine again? Is there some sort of homeopathic digestive enzyme we

> could use instead of this Carnitine?

> I'm willing to give this a try and with the neuro's negativity I don't

> think Kaitlynn will give it an honest effort. I told him that there

> has to be a way for the butter and cream to be hidden in the food but

> he said that it's too much to hide. What about putting the cream in

> when I cook an egg? Afterwards putting the butter over the scrambled

> eggs? I've got all the meal plans and I'm going to make a menu up for

> her. The neurologist wants to see Kaitlynn in a weeks time to see how

> she's doing on the diet and if she's not eating the cream and butter

> he said that he won't continue her on the diet! I'm so ticked at him

> right now! What he doesn't realize is he's given me MORE motivation

> to do it now! He also said when the child is younger, age 4 or 5 that

> it's much easier to do. Well, I seem to recall asking him about this

> diet and he was NOT willing to do it whatsoever! Back then Kaitlynn

> was only 5!

> I'm so sorry for going on like this but he really upset me today! I

> will stop now but if anyone could let me know about the Carnitine I

> would really appreciate it. Thank you for those who made it this far.

>

> Halina

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My son likes the cream in strong decaf coffee or whip the cream and layer it

with sugar free jello in a cup. s favorite way to hide fat is to make ranch

dressing, 45g mayo, 15g sour cream, 62 g 40% cream and then put fresh basil or

some other herb or herbs in it to make it have a flavor they like. Then put it

in a salad or dip hot dogs in it with celery or carrots. Of course adjust

amounts to your specific amounts.

Above all DON " T GIVE UP!!! It takes a few weeks of experimenting to find out

what will work for your child. I agree your doc is a jerk! Our's told us the

diet " wasn't safe " . I knew that wasn't true and switched as fast as I could!

is seizure free since June, started in Dec 2001. NO MEDS!!!

Bob

We've started the diet but I have a couple of questions

We've finally started the diet!! I wish Kaitlynn was more enthusiastic though.

Our first day was tough but we made it through. The next day Kaitlynn got her

egg nog, well the first one which was a 1/3 strength was pretty easy to get down

but when it got to the 2/3rd's strength it was tough getting it down for her. I

even made a slushie with it and STILL she wouldn't drink it all. Today was food

but she didn't want any part of the butter or cream! HELP! She's registering

ketones but without the fat it won't stay right? Her ratio is 3.5:1 and her

Kcal/day is 1411.

Today I was ready to strangle the neuro! He tells me (after agreeing to do the

diet) that he's now thinking it's not a great idea. He was being so negative

with Kaitlynn today asking her " do you like the cream Kaitlynn? Of course

Kaitlynn shook her head no, then he asked do you like the butter Kaitlynn?

Again no from her. He even asked if she liked olive oil. I mean what was this

about but being negative? Now he prescribed me Carnitin ( I think that is what

it's called) to help in the digestion of the fat, my question is, do we REALLY

need that or is there something else I could use in the aid of the digestion of

the fat? I'm just thinking that the neuro wrote out this prescription to

discourage us from continuing the diet because when I found out how much it was

I almost fell on the floor! He's a horrible, negative person when it concerns

the diet. I didn't say much but I stuck it to him and asked Kaitlynn " Do you

want to be on medicine again? Is there some sort of homeopathic digestive

enzyme we

could use instead of this Carnitine?

I'm willing to give this a try and with the neuro's negativity I don't think

Kaitlynn will give it an honest effort. I told him that there has to be a way

for the butter and cream to be hidden in the food but he said that it's too much

to hide. What about putting the cream in when I cook an egg? Afterwards

putting the butter over the scrambled eggs? I've got all the meal plans and I'm

going to make a menu up for her. The neurologist wants to see Kaitlynn in a

weeks time to see how she's doing on the diet and if she's not eating the cream

and butter he said that he won't continue her on the diet! I'm so ticked at him

right now! What he doesn't realize is he's given me MORE motivation to do it

now! He also said when the child is younger, age 4 or 5 that it's much easier

to do. Well, I seem to recall asking him about this diet and he was NOT willing

to do it whatsoever! Back then Kaitlynn was only 5!

I'm so sorry for going on like this but he really upset me today! I will stop

now but if anyone could let me know about the Carnitine I would really

appreciate it. Thank you for those who made it this far.

Halina

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Kill your neuro! :)

And...about Carnitin , my daughter takes it and it really helps , I

know, because she had problem with enzymes when she was not on

Carnitin (simply I couldn't find it in my country).

This one is " our " Carnitin:

CARNITINE LEN Liquid in 2 Tablespoons contains 1.3 g Carnitine (as L-

Carnitine)

My doctor told us to take 1mg on kg of child weight.

MADE IN USA

Universal Nutrition

New Brunswick, NJ 08901

800-USA-0101

Lija

> We've finally started the diet!! I wish Kaitlynn was more

enthusiastic though. Our first day was tough but we made it

through. The next day Kaitlynn got her egg nog, well the first one

which was a 1/3 strength was pretty easy to get down but when it got

to the 2/3rd's strength it was tough getting it down for her. I

even made a slushie with it and STILL she wouldn't drink it all.

Today was food but she didn't want any part of the butter or cream!

HELP! She's registering ketones but without the fat it won't stay

right? Her ratio is 3.5:1 and her Kcal/day is 1411.

> Today I was ready to strangle the neuro! He tells me (after

agreeing to do the diet) that he's now thinking it's not a great

idea. He was being so negative with Kaitlynn today asking her " do

you like the cream Kaitlynn? Of course Kaitlynn shook her head no,

then he asked do you like the butter Kaitlynn? Again no from her.

He even asked if she liked olive oil. I mean what was this about

but being negative? Now he prescribed me Carnitin ( I think that is

what it's called) to help in the digestion of the fat, my question

is, do we REALLY need that or is there something else I could use in

the aid of the digestion of the fat? I'm just thinking that the

neuro wrote out this prescription to discourage us from continuing

the diet because when I found out how much it was I almost fell on

the floor! He's a horrible, negative person when it concerns the

diet. I didn't say much but I stuck it to him and asked

Kaitlynn " Do you want to be on medicine again? Is there some sort

of homeopathic digestive enzyme we could use instead of this

Carnitine?

> I'm willing to give this a try and with the neuro's negativity I

don't think Kaitlynn will give it an honest effort. I told him that

there has to be a way for the butter and cream to be hidden in the

food but he said that it's too much to hide. What about putting the

cream in when I cook an egg? Afterwards putting the butter over the

scrambled eggs? I've got all the meal plans and I'm going to make a

menu up for her. The neurologist wants to see Kaitlynn in a weeks

time to see how she's doing on the diet and if she's not eating the

cream and butter he said that he won't continue her on the diet!

I'm so ticked at him right now! What he doesn't realize is he's

given me MORE motivation to do it now! He also said when the child

is younger, age 4 or 5 that it's much easier to do. Well, I seem to

recall asking him about this diet and he was NOT willing to do it

whatsoever! Back then Kaitlynn was only 5!

> I'm so sorry for going on like this but he really upset me today!

I will stop now but if anyone could let me know about the Carnitine

I would really appreciate it. Thank you for those who made it this

far.

> Halina

>

>

>

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