Remission

[Guest guest]

Chris-

What great news about Nikki!!!! How long has she been symptom-free? I have never heard of just stopping meds cold-turkey. As I said before, was even tapered off NSAIDs. I hope it works and Nikki has no return of symptoms. Keep us updated.

Diane (, 3, pauci)

[Guest guest]

Hi

I can understand your concerns.I have read several times how kids come off everything especially the MTX and everything comes back in 4-6 weeks.If Nikkis labs have been normal for 6months and she hasnt had any active arthritis for the same amount of time,no swelling,no morning stiffness or anything,then she meets the definition of clinical remmission.Personally I would feal better having the NSAID droped and the MTX reduced every month until off,that way if something happens along the way,you know and can get things back on track.If her labs are still off but the arthritis is under good control and she has no active joints then its medicated remmission.With that I believe it took that dose of meds to get you under complete control,so you should only taper to the lowest affective dose without bringing the arthritis symptoms back.Whatever type of remmission Nikki is in is great news.Tell your new rheumy your concerns and what you would like to see happen.I have found they like parents input because it takes some of the pressure off of them.They are usually willing to work with you and compromise.Let us know what you decide to do and keep us posted.CONGRADULATIONS NIKKI!!!!!!!!!

Becki and 4systemic

Re: ?? about flat feet

Hi my name is Gia, and my son ph has had oligoarticular arthrits since Jan 01. Anyway it effected his knees and ankles which is now under control with mtx. But I have noticed that he now seems to be quite flat footed, and when he runs he tends to leave his rt leg behind and throws it out to the side. This has only occurred since the arthritis started. His rheumy did say that she noticed this as well and that it was now a "learnt" thing. Where all those months he was compensating for the stiffness and pain in his knees and ankles, and changing his gait. She said that hopefully it will correct itself in time.

It doesn't give him any pain or discomfort, it just looks rather strange.

All the best, and a pain free day. love Gia & ph 7yrs

[Guest guest]

Hi

Becki said everything that I would have said. I hope it goes well for Nikki and

that she truly is in remission. The news that she is doing so well alone is

great.

Val

Rob's Mom (4,systemic)

In a message dated Wed, 7 Aug 2002 10:21:46 AM Eastern Standard Time,

alarson1@... writes:

> Hi

> I can understand your concerns.I have read several times how kids come off

everything especially the MTX and everything comes back in 4-6 weeks.If Nikkis

labs have been normal for 6months and she hasnt had any active arthritis for the

same amount of time,no swelling,no morning stiffness or anything,then she meets

the definition of clinical remmission.Personally I would feal better having the

NSAID droped and the MTX reduced every month until off,that way if something

happens along the way,you know and can get things back on track.If her labs are

still off but the arthritis is under good control and she has no active joints

then its medicated remmission.With that I believe it took that dose of meds to

get you under complete control,so you should only taper to the lowest affective

dose without bringing the arthritis symptoms back.Whatever type of remmission

Nikki is in is great news.Tell your new rheumy your concerns and what you would

like to see happen.I have found they like parents input because it takes some of

the pressure off of them.They are usually willing to work with you and

compromise.Let us know what you decide to do and keep us posted.CONGRADULATIONS

NIKKI!!!!!!!!!

> Becki and 4systemic

> Re: ?? about flat feet

> Hi my name is Gia, and my son ph has had oligoarticular arthrits

> since Jan 01. Anyway it effected his knees and ankles which is now

> under control with mtx. But I have noticed that he now seems to be

> quite flat footed, and when he runs he tends to leave his rt leg

> behind and throws it out to the side. This has only occurred since

> the arthritis started. His rheumy did say that she noticed this as

> well and that it was now a " learnt " thing. Where all those months he

> was compensating for the stiffness and pain in his knees and ankles,

> and changing his gait. She said that hopefully it will correct itself

> in time.

> It doesn't give him any pain or discomfort, it just looks rather

> strange.

> All the best, and a pain free day.

> love Gia & ph 7yrs

>

>

>

>

[Guest guest]

Diane,

What dose of methotrexate is on? The doctor called today and has now decided to drop Nikki's metho from .5cc to .3cc. He is not eliminating all now. I feel more comfortable with this decision. He felt Nikki was on a really high dose. She is 15 kg or 34 pounds.

Chris

-----Original Message-----From: dbornscheu@... [mailto:dbornscheu@...]Sent: Wednesday, August 07, 2002 12:29 PM Subject: Re: REMISSIONChris- What great news about Nikki!!!! How long has she been symptom-free? I have never heard of just stopping meds cold-turkey. As I said before, was even tapered off NSAIDs. I hope it works and Nikki has no return of symptoms. Keep us updated. Diane (, 3, pauci)

[Guest guest]

Hi

Unfortunately, we don't yet have any personal experience with this part of the process but I just wanted to let you know that I am extremely happy that Nikki has come so far and is doing so very well. It's always so exciting for us to read this kind of news. I hope others' responses have helped you in weighing the pros and cons. Your concerns are legitimate. You've got a lot to think about right now. Good luck in sorting through all the options and coming up with a plan that both you and the doctor feel comfortable about.

Take Care, Georgina

----- Original Message -----

From: Sevco,

A new rheumatologist started at Children's Hospital in Pittsburgh and he is suggesting that my daughter (Nikki 5 pauci) go off all medication (naprosyn, methotrexate) to see if she is in remission. This is great but scary news. She is doing really well but it is scary to think about her arthritis coming back. He wants to just stop all meds immediately. I thought you would taper her off the methotrexate. I know the reason for tapering with steroids but was not sure about methotrexate. Does anyone have any experience with this? I would appreciate your input. I know you all wish you were in this boat and I pray someday you will be. Thanks

[Guest guest]

rheumatic Remission

Is there anyone on here who has had success with AP and gone into remission so that they are leading a normal life with just the occasional flare?

Me! I went into remission on May 1991 and was symptom free until May 1994 when for 4-1/2 months I took full care of a friend dying because she found this therapy too late. Went into remission in Spring of 1996 and have been there since.

Ethel

To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

May I say a big thank you to all those who wrote to tell me of their

fantastic results with AP. I started by replying to each person

individually as they came in, but eventually decided to post my

thanks here to save my poor fingers

Your comments and histories have ben so encouraging and is all the

more ammunition I need to present my case to my RA Doc. Thanks once

again, I am so glad I stumbled across this site. You have all been

so friendly and helpful. It is great to know there are people I can

turn to who understand what I am going through. Take care all of you

and I'll keep you you posted how I get on.

Lindy

[Guest guest]

I'm in remission. Started Minocin in Feb/2000 and I guess it took about a year and a half. Havent had a flare or any symptons in a year. My labs were normal after about 1.5 years and when I started I had high RF and ESR. Except for the fact my left knee is messed up I can now do anything a normal person does. You can see me nailing a floor in the photos section. Over 1000 blows with that mallet in one day using wrist and arm that wouldnt lift a fork when I started Minocin.

-----Original Message-----From: purpleoranges2002 [mailto:melinda159@...]Sent: Sunday, October 13, 2002 4:40 AMrheumatic Subject: rheumatic RemissionI am very keen to try AP after reading so many heartwarming case histories in the book 'The New Arthritis Breakthrough' and also on other web sites conected to this issue. Is there anyone on here who has had success with AP and gone into remission so that they are leading a normal life with just the occasional flare? To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

Dear Judy,

My daughter has improved dramatically from where she was two years ago when she was diagnosed with systemic SD. She takes the oral minocycline and has periodic clindamycin IV's too. I am wondering where you are in Alabama. Our AP doctor has one office in northern Georgia and another just across the border in Chattanooga. If you want more information about him, please email me privately.

Ellen

rheumatic Remission

I would like to asked those who are in remission if they have achieve this by using minocin alone? Or have they included clindamycin to their therapy? I have yet to find a doctor in Alabama that will administer IV clindamycin for my daughter and I. Judy To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

I took Minocin alone, started at 200mg twice daily, now take 100mg m/w/f. I also see the Chattanooga Doc now but in the begining I treated myself. Changed my diet big time as well and I'm sure that didn't hurt.

-----Original Message-----From: JWARD38@... [mailto:JWARD38@...]Sent: Sunday, October 13, 2002 10:42 PMrheumatic Subject: rheumatic RemissionI would like to asked those who are in remission if they have achieve this by using minocin alone? Or have they included clindamycin to their therapy? I have yet to find a doctor in Alabama that will administer IV clindamycin for my daughter and I. Judy To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

Hi Judy,

Yes there is hope with AP. The best thing I did to keep me going

while the going was tough on AP was reading the wonderful stories of people

who had gotten so much better and were back to leading normal lives again.

I so wanted to lead a normal life again and do the things I love to do.

I've had RA for 28 years and have been on AP for over two years now.

The 22 and 23rd month on AP was a real breakthrough time for me.

I had seen small improvements before that but not the larger improvements

I saw at that time. I've got a lot of my energy back which was a

small miracle for me! I can do big projects now without feeling that

sick-tired feeling....just a normal tired.

I want to encourage you and your daughter to hang in there. AP

is really worth it!

Jeanette

JWARD38@... wrote:

Thanks

to everyone who has responded back to my questions. I just don't know what

I would have done without this group.

My daughter and I have been

on the AP for 13 months now and I can say we have improved.

Without it I believe we

would have gone way into the disease process of our illness.

We still have a long way

to go before remission but I still have faith we will achieve it.

I just need to know in my

heart that we are doing all the right things for this to happen.

I know our illness didn't

happen over night nor it will be cured over night. I am just happy there

is hope.

Judy

To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

You said:

"...also see the Chattanooga Doc now but in the begining I treated myself. Changed my diet big time as well and I'm sure that didn't hurt."

Is this "Chattanooga Doc" Dr. Sentef in Chattanooga? If so, he pooh-poohs diet of any kind, but my daughter has stuck to the basic Mercola diet and she swears by it. But not to detract from Dr. Sentef--he has been our lifeline out of this abyss called systemic scleroderma.

Ellen

RE: rheumatic Remission

I took Minocin alone, started at 200mg twice daily, now take 100mg m/w/f. I also see the Chattanooga Doc now but in the begining I treated myself. Changed my diet big time as well and I'm sure that didn't hurt.

-----Original Message-----From: JWARD38@... [mailto:JWARD38@...]Sent: Sunday, October 13, 2002 10:42 PMrheumatic Subject: rheumatic RemissionI would like to asked those who are in remission if they have achieve this by using minocin alone? Or have they included clindamycin to their therapy? I have yet to find a doctor in Alabama that will administer IV clindamycin for my daughter and I. Judy To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

Subject: Re: rheumatic Remission

No he knows nothing about diet, but i take a little information from a lot of people concerning health. He is great with the antibiotics and very caring, I work on my diet on my own using knowledge gained elsewhere.

You said:

"...also see the Chattanooga Doc now but in the begining I treated myself. Changed my diet big time as well and I'm sure that didn't hurt."

Is this "Chattanooga Doc" Dr. Sentef in Chattanooga? If so, he pooh-poohs diet of any kind, but my daughter has stuck to the basic Mercola diet and she swears by it. But not to detract from Dr. Sentef--he has been our lifeline out of this abyss called systemic scleroderma.

Ellen

RE: rheumatic Remission

I took Minocin alone, started at 200mg twice daily, now take 100mg m/w/f. I also see the Chattanooga Doc now but in the begining I treated myself. Changed my diet big time as well and I'm sure that didn't hurt.

-----Original Message-----From: JWARD38@... [mailto:JWARD38@...]Sent: Sunday, October 13, 2002 10:42 PMrheumatic Subject: rheumatic RemissionI would like to asked those who are in remission if they have achieve this by using minocin alone? Or have they included clindamycin to their therapy? I have yet to find a doctor in Alabama that will administer IV clindamycin for my daughter and I. Judy To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

For me remission is being on meds but symptom free, no more noticible

damage occuring. My Doc is still undecided about if one needs to be on

antibiotics once a person reaches remission (all blood tests are normal) but

lets each patient decide for themselves. He says the intermiddent therapy

cannot harm.....so I stay on it. I do have occasional twinges and just in

case some nasty little bacteria is lurking deep in a joint somewhere, waiting

for an opportune time to reappear, I will continue on Minocin. Martha

[Guest guest]

Hi Babs

I beleive there are several forms of remission.

Usually it is when your labs are normal and you are symptom fre while

being able to libve as you want.

I know several in remsission my daughter included were able to lower

there dose.

Some have goe off completely but theIowa doc in June told me that he

really does not suggest that anymore as manypeople get symptoms a few

years later and it is harder to treat. he felt even once or 2x a week

would be sufficient.

Hope this helps

Love

Marge

> I know this discussion occurred in the past. However, the minds

fades...So:

> what is " remission " , anyway? Being symptom free but still on meds,

or, being

> symptom free without meds?

>

> Babs

>

>

>

[Guest guest]

Dear Babs,

According to the American College of Rheumatology, five of six criteria

must exist for at least two months for remission to exist:

1. Duration of morning stiffness < 15 min

2. No fatigue

3. No joint pain

4. No joint tenderness or pain on motion

5. No swelling in joints or tendon sheaths

6. ESR (erythrocyte sedimentation rate) < 30 mm/h for women, < 20 mm/h for men

I found this information in

http://merck.praxis.md/bpm/bpmtables_print.asp?page=CPM02RH385

If you are symptom free without meds, you are healed -- better than remission.

Sincerely, Harald

>

>I know this discussion occurred in the past. However, the minds

>fades...So: what is " remission " , anyway? Being symptom free but still on

>meds, or, being

>symptom free without meds?

>Babs

[Guest guest]

Ana: Thanks for responding. What symptoms did you have when you became

sensitive to Minocin?

Babs

[Guest guest]

I am in remission from my DM (dermatomyositis) - I did relapse after having

my 3rd child in 2001, but again after using AP I am in remission (no meds

and no symptoms)... any questions let me know. Ldutro@...

Liesl (Lee) Dutro, Marketing Coordinator

hci

7011 Campus Drive, Suite 200

Colorado Springs, CO 80920

Visit our website at www.hciusa.com

[Guest guest]

to the time my husband has been taking sleeping pills for a while now. not every

night, just when he is having a flare or a bad day. even when he is sleeping he

is in pain and his ruemy said that the sleeping pills jsut put you into a more

sound, restfull sleep.

rosemary_croft <rosemarymc@...> wrote:hi glad to see you're all back

,i wasn't getting your letters for

awhile didnt know why but do now, sortoff ,any way i was wondering if

anyone ever went into remission (some what) (I don't have any signs

of psoriasis yet.) (but the arthritis is bad )right now it sortoff in

remission I think .i have lots of pain everyday but (bareable to a

point) i mean im not cripple to my bed like it was doing ( but do

have the tiredness )i was flaring up bad and was unable to move it

was terrible .but its been a year now and no serious flare up but i

do ache everyday sometimes to the point i can't hold the tears back.

im so scared most of time that its going to come back and i know some

day it will but for now im good (kind off)I know this don't sound

like its in remission but to a point i think it is ( someone can

correct me if im wrong)I guess i would like to know if anyone else

went through this or is going throught the same . It confuses me some

times i don't know what to think.but I know at this point im glad im

were im am now , (not really) but its the best i can hope for now but

im sure you all know what i mean . i love reading your letters it

gives me comfort,to know im not alone and everthing thats happening

to me is not all in my head . this desease is awful , i work with

home care and i had a client with arthritis and she die the pain was

so unbareable she couldnt take it any more and the hospital said they

couldnt help her , they sand her home she die that night she was in

too much pain , i think of her alot , well any way im tied its 9pm i

can't stay up past 9pm anymore but its the sleeping pills my rheum.

got me on for my fibro. does any one else take sleeping pills.my

rheumatologist says i need then the more sleep i get the better. good

night all

[Guest guest]

Hi Rosemary,

Glad you found us again. I, personally, haven't had a true remission

but my disease activity goes up and down. When I am in a bad flare

the quieter times sure seem like a remision of sorts.

I take something at night to make me sleepy. It definitely helps my

fibro which gets very bad from lack of sleep. As i understand it,

sleep is one of the big problems with fibro.

take Care,

Marti

> hi glad to see you're all back ,i wasn't getting your letters for

> awhile didnt know why but do now, sortoff ,any way i was wondering

if

> anyone ever went into remission (some what) (I don't have any signs

> of psoriasis yet.) (but the arthritis is bad )right now it sortoff

in

> remission I think .i have lots of pain everyday but (bareable to a

> point) i mean im not cripple to my bed like it was doing ( but do

> have the tiredness )i was flaring up bad and was unable to move it

> was terrible .but its been a year now and no serious flare up but i

> do ache everyday sometimes to the point i can't hold the tears

back.

> im so scared most of time that its going to come back and i know

some

> day it will but for now im good (kind off)I know this don't sound

> like its in remission but to a point i think it is ( someone can

> correct me if im wrong)I guess i would like to know if anyone else

> went through this or is going throught the same . It confuses me

some

> times i don't know what to think.but I know at this point im glad

im

> were im am now , (not really) but its the best i can hope for now

but

> im sure you all know what i mean . i love reading your letters it

> gives me comfort,to know im not alone and everthing thats happening

> to me is not all in my head . this desease is awful , i work with

> home care and i had a client with arthritis and she die the pain

was

> so unbareable she couldnt take it any more and the hospital said

they

> couldnt help her , they sand her home she die that night she was in

> too much pain , i think of her alot , well any way im tied its 9pm

i

> can't stay up past 9pm anymore but its the sleeping pills my rheum.

> got me on for my fibro. does any one else take sleeping pills.my

> rheumatologist says i need then the more sleep i get the better.

good

> night all

[Guest guest]

Remission is usually defined as disease free with no treatment for 5 years.

I thought I was entering remission a few months ago because after 1.5 years

on Enbrel I was off it and all other meds for over a year. I recently went

into a flare and had to resume Enbrel but at half the dose and I am not

nearly as affected as I was. I am hoping to stop Enbrel again in a few

months. I am virtually symptom free on Enbrel except for permanent problems

caused by PA before I was on it and the relatively minor side effects of

Enbrel and Viox.

[ ] remission

> hi glad to see you're all back ,i wasn't getting your letters for

> awhile didnt know why but do now, sortoff ,any way i was wondering if

> anyone ever went into remission (some what) (I don't have any signs

> of psoriasis yet.) (but the arthritis is bad )right now it sortoff in

> remission I think .i have lots of pain everyday but (bareable to a

> point) i mean im not cripple to my bed like it was doing ( but do

> have the tiredness )i was flaring up bad and was unable to move it

> was terrible .but its been a year now and no serious flare up but i

> do ache everyday sometimes to the point i can't hold the tears back.

> im so scared most of time that its going to come back and i know some

> day it will but for now im good (kind off)I know this don't sound

> like its in remission but to a point i think it is ( someone can

> correct me if im wrong)I guess i would like to know if anyone else

> went through this or is going throught the same . It confuses me some

> times i don't know what to think.but I know at this point im glad im

> were im am now , (not really) but its the best i can hope for now but

> im sure you all know what i mean . i love reading your letters it

> gives me comfort,to know im not alone and everthing thats happening

> to me is not all in my head . this desease is awful , i work with

> home care and i had a client with arthritis and she die the pain was

> so unbareable she couldnt take it any more and the hospital said they

> couldnt help her , they sand her home she die that night she was in

> too much pain , i think of her alot , well any way im tied its 9pm i

> can't stay up past 9pm anymore but its the sleeping pills my rheum.

> got me on for my fibro. does any one else take sleeping pills.my

> rheumatologist says i need then the more sleep i get the better. good

> night all

>

>

[Guest guest]

Hi Rosemary,

I'm not sure what the actual definition of remission is, but my

thought is that If you were in remission, you wouldn't have pain.

Also your message sounds like you are very confused, scared and

possibly depressed, If I were in your position, I would consider

talking to a therapist. Sometimes just getting all of my fears and

thoughts out to a non-biased, non judgemental person can help to

clear my head.

Stay Well,

[Guest guest]

To me Remission, means no to little pain. Labs such as sed rate, c-

reactive protein and other such labs would be in normal limits, and

off medication. My rheumy said if we can keep my labs normal for a

year then we may try to stop the enbrel, she brought up that it

would be in remission. Not that it will last forever but it's

certainly something to look forward to. Currently we are weaning off

of the disease modifing drug, (sulfasalizine I was on 4 pills-2000mg

a day, now only on two 1000mg a day, I can stop it completely in a

couple of weeks if not having major bouts of pain) I'm still on

enbrel 25 mg, twice weekly and vioxx 25mg once a day. Good luck and

I hope your pain levels get better for you.

Keli

> hi glad to see you're all back ,i wasn't getting your letters for

> awhile didnt know why but do now, sortoff ,any way i was wondering

if

> anyone ever went into remission (some what) (I don't have any

signs

> of psoriasis yet.) (but the arthritis is bad )right now it sortoff

in

> remission I think .i have lots of pain everyday but (bareable to a

> point) i mean im not cripple to my bed like it was doing ( but do

> have the tiredness )i was flaring up bad and was unable to move it

> was terrible .but its been a year now and no serious flare up but

i

> do ache everyday sometimes to the point i can't hold the tears

back.

> im so scared most of time that its going to come back and i know

some

> day it will but for now im good (kind off)I know this don't sound

> like its in remission but to a point i think it is ( someone can

> correct me if im wrong)I guess i would like to know if anyone

else

> went through this or is going throught the same . It confuses me

some

> times i don't know what to think.but I know at this point im glad

im

> were im am now , (not really) but its the best i can hope for now

but

> im sure you all know what i mean . i love reading your letters it

> gives me comfort,to know im not alone and everthing thats

happening

> to me is not all in my head . this desease is awful , i work with

> home care and i had a client with arthritis and she die the pain

was

> so unbareable she couldnt take it any more and the hospital said

they

> couldnt help her , they sand her home she die that night she was

in

> too much pain , i think of her alot , well any way im tied its 9pm

i

> can't stay up past 9pm anymore but its the sleeping pills my

rheum.

> got me on for my fibro. does any one else take sleeping pills.my

> rheumatologist says i need then the more sleep i get the better.

good

> night all

[Guest guest]

Thought I would look up the actual definition of remission since

there seems to be so much confusion:

Remission: Disappearance of the signs and symptoms of cancer or other

disease. When this happens, the disease is said to be " in remission. "

A remission can be temporary or permanent.

also,

clinical remission (which I have " almost " ) is remission that results

from meds or treatment of some kind. ( in my case enbrel and mtx

combination therapy of course diet, plenty of rest and home remedies

come in to play also. If I don't get enough rest or get sick from

over- doing it, It starts to come back)

Cured, at least where cancer patients are concerned, is five years of

unbroken remission. I think we would all start considering ourselves

cured at that point.

I hope this helps.

Lori

[Editor's Note: Lori, thanks for clearing that up! Kathy F.]

> Remission is usually defined as disease free with no treatment for

5 years.

> I thought I was entering remission a few months ago because after

1.5 years

> on Enbrel I was off it and all other meds for over a year. I

recently went

> into a flare and had to resume Enbrel but at half the dose and I am

not

> nearly as affected as I was. I am hoping to stop Enbrel again in a

few

> months. I am virtually symptom free on Enbrel except for permanent

problems

> caused by PA before I was on it and the relatively minor side

effects of

> Enbrel and Viox.

> [ ] remission

>

>

> > hi glad to see you're all back ,i wasn't getting your letters for

> > awhile didnt know why but do now, sortoff ,any way i was

wondering if

> > anyone ever went into remission (some what) (I don't have any

signs

> > of psoriasis yet.) (but the arthritis is bad )right now it

sortoff in

> > remission I think .i have lots of pain everyday but (bareable to a

> > point) i mean im not cripple to my bed like it was doing ( but do

> > have the tiredness )i was flaring up bad and was unable to move it

> > was terrible .but its been a year now and no serious flare up but

i

> > do ache everyday sometimes to the point i can't hold the tears

back.

> > im so scared most of time that its going to come back and i know

some

> > day it will but for now im good (kind off)I know this don't sound

> > like its in remission but to a point i think it is ( someone can

> > correct me if im wrong)I guess i would like to know if anyone else

> > went through this or is going throught the same . It confuses me

some

> > times i don't know what to think.but I know at this point im glad

im

> > were im am now , (not really) but its the best i can hope for now

but

> > im sure you all know what i mean . i love reading your letters it

> > gives me comfort,to know im not alone and everthing thats

happening

> > to me is not all in my head . this desease is awful , i work with

> > home care and i had a client with arthritis and she die the pain

was

> > so unbareable she couldnt take it any more and the hospital said

they

> > couldnt help her , they sand her home she die that night she was

in

> > too much pain , i think of her alot , well any way im tied its

9pm i

> > can't stay up past 9pm anymore but its the sleeping pills my

rheum.

> > got me on for my fibro. does any one else take sleeping pills.my

> > rheumatologist says i need then the more sleep i get the better.

good

> > night all

> >

> >

[Guest guest]

> Remission is usually defined as disease free with no treatment for

5 years.

> I thought I was entering remission a few months ago because after

1.5 years

> on Enbrel I was off it and all other meds for over a year. I

recently went

> into a flare and had to resume Enbrel but at half the dose and I am

not

> nearly as affected as I was. I am hoping to stop Enbrel again in a

few

> months. I am virtually symptom free on Enbrel except for permanent

problems

> caused by PA before I was on it and the relatively minor side

effects of

> Enbrel and Viox.

> [ ] remission

>

>

> > hi glad to see you're all back ,i wasn't getting your letters for

> > awhile didnt know why but do now, sortoff ,any way i was

wondering if

> > anyone ever went into remission (some what) (I don't have any

signs

> > of psoriasis yet.) (but the arthritis is bad )right now it

sortoff in

> > remission I think .i have lots of pain everyday but (bareable to a

> > point) i mean im not cripple to my bed like it was doing ( but do

> > have the tiredness )i was flaring up bad and was unable to move it

> > was terrible .but its been a year now and no serious flare up but

i

> > do ache everyday sometimes to the point i can't hold the tears

back.

> > im so scared most of time that its going to come back and i know

some

> > day it will but for now im good (kind off)I know this don't sound

> > like its in remission but to a point i think it is ( someone can

> > correct me if im wrong)I guess i would like to know if anyone else

> > went through this or is going throught the same . It confuses me

some

> > times i don't know what to think.but I know at this point im glad

im

> > were im am now , (not really) but its the best i can hope for now

but

> > im sure you all know what i mean . i love reading your letters it

> > gives me comfort,to know im not alone and everthing thats

happening

> > to me is not all in my head . this desease is awful , i work with

> > home care and i had a client with arthritis and she die the pain

was

> > so unbareable she couldnt take it any more and the hospital said

they

> > couldnt help her , they sand her home she die that night she was

in

> > too much pain , i think of her alot , well any way im tied its

9pm i

> > can't stay up past 9pm anymore but its the sleeping pills my

rheum.

> > got me on for my fibro. does any one else take sleeping pills.my

> > rheumatologist says i need then the more sleep i get the better.

good

> > night all

> >

> >