Re: Hello, I am new to the group

[Guest guest]

,

Welcome, wish it were the " we've never felt better

group " lol, but everyone here is very kind and

responsive. I am 30 and on year number 2 of diagnosis

but about #5 of pain. I am with you on the pain

specialist thing, we have some out here but not that

will accept the insurance. I too have tried about

everything still having ups and downs. Do you have

support from family/friends? That part is very

important. This group is wonderful though, everyone

is very supportive and anything I can do to help, just

ask.

Deb R

--- Zwolf wrote:

> Hello

> (this is a long one)

> Well I am new to this group, so here is a little

> background.

> I am over 40, but under 100.....

> I live in Northern California, in a town that the

> 'Welcome to' had a

> single digit up until the last census.

> I have not been diagnosed for FM, (YET)....

> The nearest Rhum is 3 hours away and he is in a

> office that is on

> the 4th floor, (I have this thing about anything

> over standing on my

> tiptoes).

> The next Rhum is over 10 hours away and the next

> available

> appointment is NEXT November, (not 2006----In

> 2007)

> There is no " Pain Management " place except for the

> one that is about

> 10 hours away.

> My current DR. has not confirmed 'FM' but what

> little he has read on

> it, he says that I might have FM.

> My first symptom was about 8 years ago, at least

> that is what I

> think.

> My Older brother has had the symptoms for over 15

> years, which made

> it hard for my last 4 doctors to come to the

> conclusion that it is

> not hereditary..

>

> I have went through x-rays, hours in the MRI

> machine and several

> full body catscans.

> I have went thru so many different meds that I can

> not remember most

> of them.

> I have been on antidepressants that left me so far

> in a fog that I

> have lost several hundred days.

> The current meds are keeping me (most of the

> time)at a point that I

> can function.

> I have to take some meds, such as Nexium, because

> some of the early

> meds cause damage to me tummy.

>

> As for weight gain, I am taking a NSAID,

> (etodolac)the only one that has

> worked for me, also makes my tummy fill like it is

> full of

> acid......

> I also take Norco, 4 times a day, but I take 1 in

> the morning, 1

> before dinner and then 1 about 2 hours before

> Bedtime and 1 at

> bedtime so I get the major amount of the affect at

> bedtime or I

> can't sleep, the DR. suggested doing it this way.

>

> I went thru vicadin and others that did not do

> anything.

>

> My pain is at about 4-5 (out of 10) for most of

> the time, even on

> meds.

> Some days I am at 7-8 or 2-3, but that is very

> rare.

> I hit 10+ about 2-3 times a month.

> Two years ago, the top pain I was in was about 7

> today, and about

> every 2 years the top level has went up 1 or two

> points.

>

> About 3 years ago, I started a journal, so I could

> take it in and

> show the Dr. (but the first 2 books are in

> storage, (we just moved

> to a new location and are living in a 30 foot

> travel trailer).

>

> The time to type this in, took about an hour, and

> that was because

> of the pain, Last year it would have been about 40

> minutes.

>

> My pain also chooses different locations to be at

> on different days.

> Today it is my left shoulder, yesterday it was my

> knees, day before

> my elbows.

> I also have times when I do not know if the pain

> is the FM or

> everyday stress on the muscles and joints.

>

> Well until Later

>

>

>

>

>

__________________________________________________

[Guest guest]

Welcome !

This is a great group to belong to. More close knit like a

family/friend relationship. Much better than a larger group. Your

name will be easy to remember because I am married to a .

Wow you really must be isolated where you live. If you have to drive

hours to see doctors I won't complain if I drive 25 miles into

Austin to see any when my insurance change.

Since your doctor can't confirm fibro, do you look it up on the

internet. I do when I can't find something in any of my books. The

2006 fibro book I just book though is very helpful.

Like you I have been on several different meds since 1992 for my

treatment. NSAIDS don't agree with my tummy either so I take

Protonix and Cytotec with my etodolac. That is what my GI and rheum

agree I should take.

Sorry to hear you are in such pain. I hope you can find a specialist

to treat you. One who believes in fibro for sure. It took awhile for

me to find one here in 1996 when I lost the GP that was treating me.

When you get a chance tell us more about yourself, like what you do

during the day that may be causing tbe stress on you.

Good luck finding the right treatment!

Debbie J

>

> Hello

> (this is a long one)

> Well I am new to this group, so here is a little background.

>

> I have not been diagnosed for FM, (YET)....

> The nearest Rhum is 3 hours away and he is in a office that is on

> the 4th floor, (I have this thing about anything over standing

on my

> tiptoes).

> The next Rhum is over 10 hours away and the next available

> appointment is NEXT November, (not 2006----In 2007)

> There is no " Pain Management " place except for the one that is

about

> 10 hours away.

>

>

> The current meds are keeping me (most of the time)at a point

that I

> can function.

> I have to take some meds, such as Nexium, because some of the

early

> meds cause damage to me tummy.

>

> As for weight gain, I am taking a NSAID, (etodolac)the only one

that has

> worked for me, also makes my tummy fill like it is full of

> acid......

> I>

> My pain is at about 4-5 (out of 10) for most of the time, even on

> meds.

> Some days I am at 7-8 or 2-3, but that is very rare.

> I hit 10+ about 2-3 times a month.

> Two years ago, the top pain I was in was about 7 today, and about

> every 2 years the top level has went up 1 or two points.

>

I also have times when I do not know if the pain is the FM or

> everyday stress on the muscles and joints.

>

> Well until Later

>

>