My Introduction

October 14, 2006

Hi - welcome to a great group of peoples.

My introduction

Hi everyone.

I just joined and wanted to intro myself briefly.

I was diagnossed about 15yrs ago with Fibrositis. Due to no insurance and

fixed income, I never had any followup care.

Here I am years later and I was trying to research about it because my

symptoms and pain are to the point that every aspect of my life is effected.

When doing the research, I found out they changed the name to fibromyalgia,

and there is much more info on it now.

So here I am, trying to learn ways to lessen the pain without doctors or

meds.

Thanks for being here,

in Fla.

November 24, 2006

Hi-

My name is Sylvia, and I live in New York City, burough of Staten Island. I was

diagnosed about 8 years go. I have a wonderful rheumatologist, I honestly

believe he is one of the more caring doctors. He understands. When I say, I

need a higher dose of med, he knows I meanit. He listens to me.

After reading several other intros and watching a few of the threads i realized

that I am not nearly as bad as many of you are. Sure I have bad days, but my

bad days seem to be your good days. I am able to work a full time job with

overtime...but when I come home, I'm whippped and if I do too many in a week

with OT, then I am gone for the weekend just sleeping and resting.

Oh, I also have a great chiropractor, whom I get massages from, at least 3 times

a day and if I am having a bad day, I can call him and say I'm coming up on my

lunch hour, I am never refused. Also he has a personal trainer 3x a week and so

I've begun to slowly excercise under close supervision and I think thats a good

thing.

I am 52, I have 1 son who lives in Massachusetts. I reside in a gorgeous apt

with my friend,whom I have known for years. Her mother died last year and she

realized she couldn't continue to pay full rent anywhere, so I moved in with

her. This apt. is beautiful. We have 3 bedrooms, deck, swimming pool (we will

have to pay to open it), jacuzzi which is good for me certainly and an enclosed

front porch which we are going to fix up and make it a nice place to read and

stuff in the summer.

I hope to make some more friends here as sometimes because I am able to work and

carry on as normal, people do not take me seriously. I'm sure you all know the

feeling.

Sylvia

Please don't shake me, no don't wake me, leave me where I am, I'm only sleeping.

Lennon/McCartney

November 25, 2006

Hi Sylvia, I too maintain a job with overtime and see a rheumatologist and

chiropracter. They don't have contacts with masseuse, but I try to get one at

least once a month. Your exercise program sounds right on ... I am slowly

building up the motivation to face the pain and exercise ... How did you do it?.

I spend a great many weekends sleeping too. But I too feel like my condition

is minor compared to others in the group.

I've always felt that despite the horrors of times of my life that at this

point I'm in the best place I have ever been. If it means I have to suffer

pain, I'll suffer it graciously, because something could always be worse.

SYLVIA STURGIS wrote:

Hi-

My name is Sylvia, and I live in New York City, burough of Staten Island. I was

diagnosed about 8 years go. I have a wonderful rheumatologist, I honestly

believe he is one of the more caring doctors. He understands. When I say, I need

a higher dose of med, he knows I meanit. He listens to me.

After reading several other intros and watching a few of the threads i realized

that I am not nearly as bad as many of you are. Sure I have bad days, but my bad

days seem to be your good days. I am able to work a full time job with

overtime...but when I come home, I'm whippped and if I do too many in a week

with OT, then I am gone for the weekend just sleeping and resting.

Oh, I also have a great chiropractor, whom I get massages from, at least 3 times

a day and if I am having a bad day, I can call him and say I'm coming up on my

lunch hour, I am never refused. Also he has a personal trainer 3x a week and so

I've begun to slowly excercise under close supervision and I think thats a good

thing.

I am 52, I have 1 son who lives in Massachusetts. I reside in a gorgeous apt

with my friend,whom I have known for years. Her mother died last year and she

realized she couldn't continue to pay full rent anywhere, so I moved in with

her. This apt. is beautiful. We have 3 bedrooms, deck, swimming pool (we will

have to pay to open it), jacuzzi which is good for me certainly and an enclosed

front porch which we are going to fix up and make it a nice place to read and

stuff in the summer.

I hope to make some more friends here as sometimes because I am able to work and

carry on as normal, people do not take me seriously. I'm sure you all know the

feeling.

Sylvia

Please don't shake me, no don't wake me, leave me where I am, I'm only sleeping.

Lennon/McCartney

November 25, 2006

Thanks Deborah, I will keep trying to keep going anyway.

I have a close friend with it also, she is much much worse than I am though.

sylvia

Please don't shake me, no don't wake me, leave me where I am, I'm only sleeping.

Lennon/McCartney

Re: My Introduction

Hi Sylvia

I am so glad that you are functioning so well and have great docs. I

wonder if I had found a better doc sooner if I would not have crashed

and burned like I did. But then I have had flares pop up for no

reason at all.

I guess we all have degrees of function and I remember the first time

I met someone on disability for fibro. I was at a pharmacy looking

for some natural meds that was good for fibro that I couldn't find

right of getting assistance. There was this lady there getting her

meds walking with a cane. We got to talking and she told me about

her FMS and I was shocked no one told me it could get that bad. But

then 14 years later here I am. It's just crazy, because I have read

that FMS is not debilitating and progressive. So I wish you all the

blessings to keep on keeping on and hope for all of us who have

progressed the kind of understanding you have with your docs.

Deborah T.

>

> Hi-

>

> My name is Sylvia, and I live in New York City, burough of Staten

Island. I was diagnosed about 8 years go. I have a wonderful

rheumatologist, I honestly believe he is one of the more caring

doctors. He understands. When I say, I need a higher dose of med,

he knows I meanit. He listens to me.

>

> After reading several other intros and watching a few of the

threads i realized that I am not nearly as bad as many of you are.

Sure I have bad days, but my bad days seem to be your good days. I

am able to work a full time job with overtime...but when I come home,

I'm whippped and if I do too many in a week with OT, then I am gone

for the weekend just sleeping and resting.

>

> Oh, I also have a great chiropractor, whom I get massages from, at

least 3 times a day and if I am having a bad day, I can call him and

say I'm coming up on my lunch hour, I am never refused. Also he has

a personal trainer 3x a week and so I've begun to slowly excercise

under close supervision and I think thats a good thing.

>

> I am 52, I have 1 son who lives in Massachusetts. I reside in a

gorgeous apt with my friend,whom I have known for years. Her mother

died last year and she realized she couldn't continue to pay full

rent anywhere, so I moved in with her. This apt. is beautiful. We

have 3 bedrooms, deck, swimming pool (we will have to pay to open

it), jacuzzi which is good for me certainly and an enclosed front

porch which we are going to fix up and make it a nice place to read

and stuff in the summer.

>

> I hope to make some more friends here as sometimes because I am

able to work and carry on as normal, people do not take me

seriously. I'm sure you all know the feeling.

>

> Sylvia

>

> Please don't shake me, no don't wake me, leave me where I am, I'm

only sleeping. Lennon/McCartney

>

November 25, 2006

Well, I started out with excercise very slowly on a treadmill. Then gradually

went up a little speed and gradient, however, I will never be able to run like

some do. Then we slowly added some weights for upper body strength. Also, the

personal trainer is at my side the entire time, when I'm on the treadmill,

because I have no balance, he keeps his hand on my back. Makes me feel more

secure ifnothing else.

sylvia

Please don't shake me, no don't wake me, leave me where I am, I'm only sleeping.

Lennon/McCartney

Re: My Introduction

Hi Sylvia, I too maintain a job with overtime and see a rheumatologist and

chiropracter. They don't have contacts with masseuse, but I try to get one at

least once a month. Your exercise program sounds right on ... I am slowly

building up the motivation to face the pain and exercise ... How did you do it?.

I spend a great many weekends sleeping too. But I too feel like my condition is

minor compared to others in the group.

I've always felt that despite the horrors of times of my life that at this point

I'm in the best place I have ever been. If it means I have to suffer pain, I'll

suffer it graciously, because something could always be worse.

SYLVIA STURGIS <sylviamacca@ verizon.net> wrote: