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  • 4 months later...

Dear Jay,

Please tell us more about your journey. How old were you when you

were diagnosed? What are you using to control your diabetes? Do you

feel you are getting good diabetes info from your health care team?

It is as if we fall, PLUNK, into DiabetesLand - and, if we are very

lucky, we find a group such as this, which makes us feel that we are

not alone, that there is a Game Plan that Works, and that it is OK

for us to question the advice we get from our health care team.

Please tell us more about your life. (Sometimes we stumble ... I just

recommended a HAM-and-cheese omelette to someone living in Kuwait.)

Susie

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Hi Jay....I'm Tamarion...am new here too, and new to type 2 as well.

I hope we can give you tips to make it easier for you to cope...if we don't

know something we can probably direct you to a page that will tell you what

you need to know...or a book maybe.

At least you are not alone with this...groups really help.

Tam

Life is meant to be lived, not merely endured.

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Hey Suzie--should have sent the 'ham and cheese' to me...I love it!

'course lately having to do chicken hotdog with cheeze in an omelet with

mushrooms...it works! Yum. Ham is gonna be on payday though. :)

Tam

hehehehe...giggle..sorry...too much protein..can someone get high off that?

Life is meant to be lived, not merely endured.

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In a message dated 11/16/02 7:30:56 PM Pacific Standard Time, j111266@...

writes:

> hi my name is jay

> my typeing is not so great so pleas be patient

> i have type 2 diabetes!

> im look for frinds that have the same to chat with and get advise.

> so thank u in addvance and hope to here from u soon

> your friend J

Greetings Jay,

Welcome to the list. I'm glad you found us. There are many here on the list

that are willing to share their experiences at controlling their diabetes.

Ask any questions and likely someone will be able to offer helpful

information.

To help us help you, could you give us a little background on your diabetes

history (if you wish)?

What are some of your typical blood glucose (bg) readings and what was your

last Glycosylated Hemoglobin A1c (HbA1c) test result?

How are you controlling your bg's, diet/exercise, oral medications, insulin?

What guidance have you been provided by your medical team? What diet were you

prescribed? What bg goals were you given?

Do you have any questions for the list at this time?

I too am a T2, diagnosed 4 1/2 years ago. I was initially prescribed

Glyburide (a sulfonylurea class oral med) and the ADA/Food Pyramid diet.

After 3 months of roller-coaster bg's I decided there had to be a better way.

After some research I discovered Dr Bernstein's book " Dr Bernstein's Diabetes

Solution, " changed my diet to his low-carb plan and almost immediately was

able to quit the Glyburide, my bg's stabilized in the range of the " normal

non-diabetic " (70-110mg/dl & HbA1c <6.0%), and I have been maintaining in

that range since that time. As an unexpected benefit, my cholesterol &

triglycerides (lipid profile) also improved into the " normal " ranges.

I consider Dr B's book as a " must-read " for all diabetics. It is a real

education about the disease, its potential complications and how to best

avoid them. Even if you don't choose to use his diet plan, the rest of the

book is worth the price. It is available in paperback from Bayer Corp. for

$8.00 postpaid. Hardback is available in many bookstores, but its over $20.

If you are interested, I can dig up the toll-free phone #. That info has been

posted on the list within the last week several times and you may have

already seen it.

It has been proven that to minimize the risk for the onset of diabetic

complications, the goal for bg's must be that of the normal non-diabetic (see

above). That may sound difficult, but there are many here on the list that

have achieved it even though most Drs don't even discuss the possibility with

their patients.

That's enough for now, Jay. Hoping to hear more from you. We all learn from

each other.

Oregon

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Welcome Jay. If you go to the bottom of each message, there are many very

useful and informative links to help you with your learning experience.

Were I you, I would go immediately to Amazon.com and order the books: " Dr.

Bernstein's Diabetes Solution " and " Type II Diabetes, the First Year " by

Gretchen Becker. If you can only buy one book, get Gretchen Becker's first

and ask for Dr. Bernstein's for Christmas. These are very important, very

informative books on the truth about diabetes and how you can (without much

difficulty actually) control it.

In the meantime I would suggest starting a journal and writing down your

blood test when you wake up, before and 1 1/2 - 2 hours after every meal and

at bedtime, as well as everything you eat (look up the carbohydrate count if

you can and read labels) and the exercise and times you eat and exercise.

Soon you will have a much better idea of how your blood sugar reacts to each

of the above, whether or not your medication (if any) is working, etc. This

is really important to the learning experience, as each of us can be very

individual in how our blood sugar behaves. Alot of us aim for an hbA1c

under 6.0 or less, which vastly reduces the incidence of diabetic

complications (blindness, amputation, heart disease, stroke). Alot of us

have found easier to lose weight on a lower carb diet, as well as much

easier to control our blood sugar.

Ask all the questions you want. We're here and are now or have been where

you are.

Barb

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SUSIE

IM 36 I JUST LEARND THAT I HAVE DIABETES 4WEAKS AGO

ALL THIS INFO GETS ME LOST AT TIMES

I LOST MY GRANDMA TO IT AND THAT WAS HARD

BUT I THINK THAT WITH PEPOLE LIKE U THINGS CAN BE BETER

THANKS

JAY

>

>Reply-To: diabetes_int

>To: diabetes_int

>Subject: Re: newbie

>Date: Sun, 17 Nov 2002 08:11:10 -0000

>

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Hello Jay and welcome to the real world of diabetics. I'm sorry that you

had to join us but glad that you found us. Sometimes we have burdens such

as this one but we just have to make the best of whatever situations that

life hands us. In some ways diabetes has been a blessing to me because of

this group of wonderful people. I've been on here almost since the

beginning and these people are truly my " family " and I love each and every

one of them. I just haven't been posting lately since I've been so busy. I

've survived so many " near death " crisis and am back to driving (after

almost 6 years), going everywhere every chance I get and trying to live life

to the fullest. I'm not a health " nut " but I do know that the only way that

I can survive with diabetes is going " low carb " . I avoid bread, rice,

potatoes, pasta, etc and am able to keep my blood sugar in an acceptable

range the majority of the time. I'm running a temperature today so it's

running a little high (which is usual). My Hba1c is ALWAYS under 6. The

last one was 5.7.

Hugs,

Tootie

hi my name is jay

my typeing is not so great so pleas be patient

i have type 2 diabetes!

im look for frinds that have the same to chat with and get advise.

so thank u in addvance and hope to here from u soon

your friend J

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Dear Jay,

When I was (finally) diagnosed, I fell into a deep depression. That

was before I found the internet. Good groups such as this one can

provide you with lots of good advice, as well as giving you the

opportunity to describe your own experiences. Please know that you

are welcome here.

Susie

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hello jay what medication r u on? and what was your hba1c on diagnosis.

being a newly diagnosed person all the info can sometimes can overwhelm but

hang in there it will sort itself out. when i was first diagnosed i had a

honeymoon period where my sugars where nprmal for about a year so was off

medication. but then started the medication and dr bandwagon cheeky

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its a blood test to know yoput average blood sugar over 3-4 months. gives a

over all view of your sugars. glucoselated haemoglobin. its a protein that

attaches to the sticky glucose molecule its the stuff that sticks in vessles

too. though the proein lasts only 3 months in the bld stream. cheeky

>

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  • 2 weeks later...

Cheryl,

I don't know what state you live in, ut that is usually a state funded

organization, state to state. Get in touch with your state vocational rehab

office. They well in turn guide you to a training facility for the blind.

The ones here in Indiana will come to your home and work with you. They in

turn have a myriad of things to help a blind person stay in touch with the

real world, including radios where someone is reading the daily paper for the

person. These people will even provide cane training, and/or get the

paperwork for the person to apply to a seeing eye dog school (and to me, a

seeing eye dog is much more dependable than a cane). As far as talking

books, the program I was on came from the state library in Indianapolis. They

sent me the tape player and my first tapes with an order list of what I

preferred to read (in large print). I had three weeks (I think that was the

time frame) to listen to them and get them back. Mailing them out was easy.

All I had to do was flip the address card and drop it in the a mailbox or

give it to my postal carrier. POSTAGE WAS ALREADY PAID. Your mother is also

eligible for disability now too. I hope I have been some help to you. I

have been where your mother is now. If she is not seeing a retinologist, get

her into one NOW. Through the hard work of a wonderful doctor and many

prayers, my eyesight was returned to me. Granted, it's not the same, I do

have a depth perception problem, but my sight has gone from a fingercount in

the left to 20/60 and from 20/400 in the right to 20/30 (with corrective

lenses of course) and that's distance. Reading has improved to 20/40 in the

left and 20/30 in the right (and 2 letters on the 20/25 line) and that was

with no glasses at all. I hope I have been some help to you and good luck!

Fansler

PS If you need more help and want to e-mail me privately, feel free to do so.

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  • 3 years later...
Guest guest

Welcome to the group Kathy! Welcome to the Fibro Family here. Well all I can say is both you and your husband must be special to be so close and souly touched by one another. I am Christie, 36 yrs old, divorce with two teens 19 yr old daughter, 18 yrs old son and a son who is 11, gosh he is a preteen..Oy I feel so old. Anyway please feel free to talk with me anytime. I take Cymbalta and Lyrica mainly.. I was on Tradazon as well but it got to the point it just did not work anymore. Its all cool I am used to having to shuffle things about with my Doctor's help. Hope to talk with you soon Christie Ohio -- Newbie I am new to this board and wish to introduce myself. I am Kathy (Tobydog) and I have been diagnosed with fibro for 2 years although looking back it has been a whole lot longer than that. Remembering my mother I think she had it too. I am married to a wonderful man who suffers from chronic pain and we put no demands on each other because of our ailments. We have always been soulmates even before these things happened to us. My rheumy has me on Cymbalta, Tizanidine, and Trazadone. This combo seems to work pretty well for me. When I have flares I use my massage wand, heat, and icy hot patches. I try to keep a positive attitude and look for the funny things in life to keep me happy. We have a westie who gives us great joy and is very spoiled. Tobydog 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone.

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  • 1 month later...
Guest guest

Hi to all from Indiana,

I am new to this group but not FM.

I have the severe pain occasionally, but I suffer from the Chronic

Fatique portion of FM on a daily basis. I am 51, but used to be VERY

physically active.

Do any of you still work full time?? I am a corporate trainer.

I have to call in sick a lot because I cannot stay awake long enough

to drive the 30 minutes it takes to get to work. I don't know how

much longer I can work full time. I see my hubby and multiple pets

about 60 minutes each day, Monday - Friday. Just having a difficult

time with working. I know where my priorities lie, but I don't want

to be a couch potato lying around all day if I am not working. We

have a huge garden and 3 acres to mow and my husband is taking care of

most all of it himself, since I tire out so easily.

I haven't had a " good " day in months. My body requires soooo much

sleep! I take Elavil and Flexeril at bedtime. I cannot walk far

without frantically looking for somewhere to sit before I collapse.

I will gladly accept any and all offers of advice, suggestions, or

whatever!!

Thanks,

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Guest guest

Dear ,

You have my full sympathy! I know that doesn't count for much, but I have been

where you are. I was a career nurse, and over the years between the CFS in the

first stages, and FM straight up for the last 9 years, I've watched my career

come to a close. I went to part-time work for about the last 4 years I worked.

That helped and worked for a while. I hope you find a solution that works for

you! Just take it in stages, as you are probably dealing with a very long term

problem. I eventually was medically retired, after fighting my way through the

SS system for about 3 years. You always have that option, but you have to be

prepared for a long fight before you get there.

Don't worry, you will find your way.

Kellie

If logic tells us that life is a meaningless accident, don't give up on life,

give up on logic. If logic tells you that in the long run nothing you do makes

a difference, then don't live in the long run. Life is a series of moments--to

live each one is to succeed.

newbie

Hi to all from Indiana,

I am new to this group but not FM.

I have the severe pain occasionally, but I suffer from the Chronic

Fatique portion of FM on a daily basis. I am 51, but used to be VERY

physically active.

Do any of you still work full time?? I am a corporate trainer.

I have to call in sick a lot because I cannot stay awake long enough

to drive the 30 minutes it takes to get to work. I don't know how

much longer I can work full time. I see my hubby and multiple pets

about 60 minutes each day, Monday - Friday. Just having a difficult

time with working. I know where my priorities lie, but I don't want

to be a couch potato lying around all day if I am not working. We

have a huge garden and 3 acres to mow and my husband is taking care of

most all of it himself, since I tire out so easily.

I haven't had a " good " day in months. My body requires soooo much

sleep! I take Elavil and Flexeril at bedtime. I cannot walk far

without frantically looking for somewhere to sit before I collapse.

I will gladly accept any and all offers of advice, suggestions, or

whatever!!

Thanks,

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Guest guest

Hi

Welcome to the group.

I still work full time in the schools with special needs children, and

children that need resource help as they are at least 2 yrs behind.

It is sooo hard and I wonder more and more how long it can go on. I work and

sleep, work and sleep. My poor husband has to handle pretty much everything

unless I get a big spurt of energy and then usually I'll really pay for it

later.

We also live in the country and have 4 acres. The most I can do is mow with

the tractor.

I need to work for the insurance. I love my job though the kids are my

passion. Right now I'm whining that I can't wait until school is over but give

me 3 weeks and I'll be missing them terribly.

I am 48 and have been diagnosed for approx.17 yrs. I don't know how much

longer I can keep it up. I have informed them though that I can no longer work

with children who are physically taxing or in heavy crisis. I love them so but

someone else who is more physically able will have take those children.

So you see I know where your coming from.

Take care

A Canadian Fibro Friend

wrote:

Hi to all from Indiana,

I am new to this group but not FM.

I have the severe pain occasionally, but I suffer from the Chronic

Fatique portion of FM on a daily basis. I am 51, but used to be VERY

physically active.

Do any of you still work full time?? I am a corporate trainer.

I have to call in sick a lot because I cannot stay awake long enough

to drive the 30 minutes it takes to get to work. I don't know how

much longer I can work full time. I see my hubby and multiple pets

about 60 minutes each day, Monday - Friday. Just having a difficult

time with working. I know where my priorities lie, but I don't want

to be a couch potato lying around all day if I am not working. We

have a huge garden and 3 acres to mow and my husband is taking care of

most all of it himself, since I tire out so easily.

I haven't had a " good " day in months. My body requires soooo much

sleep! I take Elavil and Flexeril at bedtime. I cannot walk far

without frantically looking for somewhere to sit before I collapse.

I will gladly accept any and all offers of advice, suggestions, or

whatever!!

Thanks,

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr. Some

treatments are dangerous when given along with other meds as well as to certain

health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

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Guest guest

Hi and welcome to the group. In answer to your question, yes, I

still work full time. I am the office manager of a car dealership

averaging an 11 hour day (this includes an hours drive to work and an

hour's drive home).

I definatley know how extremely difficult it is to continue working

with the fibromyalgia and the chronic fatigue. By Thursday mornings it

is all I can do to make it to work and those last two days (thursday

and friday) are usually marked by crying all the way to work and all

the way home from the fatigue and mental exhaustion and pain.

The only thing I have found that has helped in the least little bit is

that I have started taking B12 tablets every morning and lunch. I can

definately tell a difference when I don't take them. It has only made

a small difference but I am hoping that as it builds up it will help

more.

Just for reference I am 42 and the single mom of two kids, one is away

at college and one (15 years old) lives at home with me.

I hope you find an answer

N.

>

> Hi to all from Indiana,

> Do any of you still work full time?? I am a corporate trainer.

> I have to call in sick a lot because I cannot stay awake long enough

> to drive the 30 minutes it takes to get to work.

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Guest guest

leasa, I would first try and have your doctor put you on some other med besides

elavil. That stuff made me the same way you are describing. see if he or she

will give you cymbalta or some thing else. The elavil helped me but made me so

tired and groggy I could not even take my dog to pee. I am having a majer endo

flairup so am really out of it from the pain meds but wanted to welcome you and

give you that tip. The flexeral did the same thing to me, see if they will give

you soma, it does nto leave me groggy and helps better then flexeral. It sounds

to me like the meds may be making you worse. hugs hugs. There is also doxpin as

well.

Amber & GSD Ruby

Age is no better, hardly so well qualified for an instructor as youth, for it

has not profited so much as it has lost

Henry Thoreau

newbie

Hi to all from Indiana,

I am new to this group but not FM.

I have the severe pain occasionally, but I suffer from the Chronic

Fatique portion of FM on a daily basis. I am 51, but used to be VERY

physically active.

Do any of you still work full time?? I am a corporate trainer.

I have to call in sick a lot because I cannot stay awake long enough

to drive the 30 minutes it takes to get to work. I don't know how

much longer I can work full time. I see my hubby and multiple pets

about 60 minutes each day, Monday - Friday. Just having a difficult

time with working. I know where my priorities lie, but I don't want

to be a couch potato lying around all day if I am not working. We

have a huge garden and 3 acres to mow and my husband is taking care of

most all of it himself, since I tire out so easily.

I haven't had a " good " day in months. My body requires soooo much

sleep! I take Elavil and Flexeril at bedtime. I cannot walk far

without frantically looking for somewhere to sit before I collapse.

I will gladly accept any and all offers of advice, suggestions, or

whatever!!

Thanks,

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