Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Hi Mache! Welcome aboard. Has your son been diagnosed long? Sue in MI 12 HFA 8 1/2 HFA, ADD ------------------------------------------- Introducing NetZero Long Distance Unlimited Long Distance only $29.95/ month! Sign Up Today! www.netzerolongdistance.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 Dear Jay, Please tell us more about your journey. How old were you when you were diagnosed? What are you using to control your diabetes? Do you feel you are getting good diabetes info from your health care team? It is as if we fall, PLUNK, into DiabetesLand - and, if we are very lucky, we find a group such as this, which makes us feel that we are not alone, that there is a Game Plan that Works, and that it is OK for us to question the advice we get from our health care team. Please tell us more about your life. (Sometimes we stumble ... I just recommended a HAM-and-cheese omelette to someone living in Kuwait.) Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 Hi Jay....I'm Tamarion...am new here too, and new to type 2 as well. I hope we can give you tips to make it easier for you to cope...if we don't know something we can probably direct you to a page that will tell you what you need to know...or a book maybe. At least you are not alone with this...groups really help. Tam Life is meant to be lived, not merely endured. _________________________________________________________________ The new MSN 8: smart spam protection and 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 Hey Suzie--should have sent the 'ham and cheese' to me...I love it! 'course lately having to do chicken hotdog with cheeze in an omelet with mushrooms...it works! Yum. Ham is gonna be on payday though. Tam hehehehe...giggle..sorry...too much protein..can someone get high off that? Life is meant to be lived, not merely endured. _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 In a message dated 11/16/02 7:30:56 PM Pacific Standard Time, j111266@... writes: > hi my name is jay > my typeing is not so great so pleas be patient > i have type 2 diabetes! > im look for frinds that have the same to chat with and get advise. > so thank u in addvance and hope to here from u soon > your friend J Greetings Jay, Welcome to the list. I'm glad you found us. There are many here on the list that are willing to share their experiences at controlling their diabetes. Ask any questions and likely someone will be able to offer helpful information. To help us help you, could you give us a little background on your diabetes history (if you wish)? What are some of your typical blood glucose (bg) readings and what was your last Glycosylated Hemoglobin A1c (HbA1c) test result? How are you controlling your bg's, diet/exercise, oral medications, insulin? What guidance have you been provided by your medical team? What diet were you prescribed? What bg goals were you given? Do you have any questions for the list at this time? I too am a T2, diagnosed 4 1/2 years ago. I was initially prescribed Glyburide (a sulfonylurea class oral med) and the ADA/Food Pyramid diet. After 3 months of roller-coaster bg's I decided there had to be a better way. After some research I discovered Dr Bernstein's book " Dr Bernstein's Diabetes Solution, " changed my diet to his low-carb plan and almost immediately was able to quit the Glyburide, my bg's stabilized in the range of the " normal non-diabetic " (70-110mg/dl & HbA1c <6.0%), and I have been maintaining in that range since that time. As an unexpected benefit, my cholesterol & triglycerides (lipid profile) also improved into the " normal " ranges. I consider Dr B's book as a " must-read " for all diabetics. It is a real education about the disease, its potential complications and how to best avoid them. Even if you don't choose to use his diet plan, the rest of the book is worth the price. It is available in paperback from Bayer Corp. for $8.00 postpaid. Hardback is available in many bookstores, but its over $20. If you are interested, I can dig up the toll-free phone #. That info has been posted on the list within the last week several times and you may have already seen it. It has been proven that to minimize the risk for the onset of diabetic complications, the goal for bg's must be that of the normal non-diabetic (see above). That may sound difficult, but there are many here on the list that have achieved it even though most Drs don't even discuss the possibility with their patients. That's enough for now, Jay. Hoping to hear more from you. We all learn from each other. Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 Welcome Jay. If you go to the bottom of each message, there are many very useful and informative links to help you with your learning experience. Were I you, I would go immediately to Amazon.com and order the books: " Dr. Bernstein's Diabetes Solution " and " Type II Diabetes, the First Year " by Gretchen Becker. If you can only buy one book, get Gretchen Becker's first and ask for Dr. Bernstein's for Christmas. These are very important, very informative books on the truth about diabetes and how you can (without much difficulty actually) control it. In the meantime I would suggest starting a journal and writing down your blood test when you wake up, before and 1 1/2 - 2 hours after every meal and at bedtime, as well as everything you eat (look up the carbohydrate count if you can and read labels) and the exercise and times you eat and exercise. Soon you will have a much better idea of how your blood sugar reacts to each of the above, whether or not your medication (if any) is working, etc. This is really important to the learning experience, as each of us can be very individual in how our blood sugar behaves. Alot of us aim for an hbA1c under 6.0 or less, which vastly reduces the incidence of diabetic complications (blindness, amputation, heart disease, stroke). Alot of us have found easier to lose weight on a lower carb diet, as well as much easier to control our blood sugar. Ask all the questions you want. We're here and are now or have been where you are. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 SUSIE IM 36 I JUST LEARND THAT I HAVE DIABETES 4WEAKS AGO ALL THIS INFO GETS ME LOST AT TIMES I LOST MY GRANDMA TO IT AND THAT WAS HARD BUT I THINK THAT WITH PEPOLE LIKE U THINGS CAN BE BETER THANKS JAY > >Reply-To: diabetes_int >To: diabetes_int >Subject: Re: newbie >Date: Sun, 17 Nov 2002 08:11:10 -0000 > _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 Hello Jay and welcome to the real world of diabetics. I'm sorry that you had to join us but glad that you found us. Sometimes we have burdens such as this one but we just have to make the best of whatever situations that life hands us. In some ways diabetes has been a blessing to me because of this group of wonderful people. I've been on here almost since the beginning and these people are truly my " family " and I love each and every one of them. I just haven't been posting lately since I've been so busy. I 've survived so many " near death " crisis and am back to driving (after almost 6 years), going everywhere every chance I get and trying to live life to the fullest. I'm not a health " nut " but I do know that the only way that I can survive with diabetes is going " low carb " . I avoid bread, rice, potatoes, pasta, etc and am able to keep my blood sugar in an acceptable range the majority of the time. I'm running a temperature today so it's running a little high (which is usual). My Hba1c is ALWAYS under 6. The last one was 5.7. Hugs, Tootie hi my name is jay my typeing is not so great so pleas be patient i have type 2 diabetes! im look for frinds that have the same to chat with and get advise. so thank u in addvance and hope to here from u soon your friend J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 Dear Jay, When I was (finally) diagnosed, I fell into a deep depression. That was before I found the internet. Good groups such as this one can provide you with lots of good advice, as well as giving you the opportunity to describe your own experiences. Please know that you are welcome here. Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 hello jay what medication r u on? and what was your hba1c on diagnosis. being a newly diagnosed person all the info can sometimes can overwhelm but hang in there it will sort itself out. when i was first diagnosed i had a honeymoon period where my sugars where nprmal for about a year so was off medication. but then started the medication and dr bandwagon cheeky _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 its a blood test to know yoput average blood sugar over 3-4 months. gives a over all view of your sugars. glucoselated haemoglobin. its a protein that attaches to the sticky glucose molecule its the stuff that sticks in vessles too. though the proein lasts only 3 months in the bld stream. cheeky > _________________________________________________________________ MSN 8 with e-mail virus protection service: 2 months FREE* http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 bein oui! but im anglophone in this littel town > >Reply-To: diabetes_int >To: diabetes_int >Subject: Re: newbie >Date: Tue, 19 Nov 2002 12:51:49 -0000 > _________________________________________________________________ The new MSN 8: advanced junk mail protection and 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 Cheryl, I don't know what state you live in, ut that is usually a state funded organization, state to state. Get in touch with your state vocational rehab office. They well in turn guide you to a training facility for the blind. The ones here in Indiana will come to your home and work with you. They in turn have a myriad of things to help a blind person stay in touch with the real world, including radios where someone is reading the daily paper for the person. These people will even provide cane training, and/or get the paperwork for the person to apply to a seeing eye dog school (and to me, a seeing eye dog is much more dependable than a cane). As far as talking books, the program I was on came from the state library in Indianapolis. They sent me the tape player and my first tapes with an order list of what I preferred to read (in large print). I had three weeks (I think that was the time frame) to listen to them and get them back. Mailing them out was easy. All I had to do was flip the address card and drop it in the a mailbox or give it to my postal carrier. POSTAGE WAS ALREADY PAID. Your mother is also eligible for disability now too. I hope I have been some help to you. I have been where your mother is now. If she is not seeing a retinologist, get her into one NOW. Through the hard work of a wonderful doctor and many prayers, my eyesight was returned to me. Granted, it's not the same, I do have a depth perception problem, but my sight has gone from a fingercount in the left to 20/60 and from 20/400 in the right to 20/30 (with corrective lenses of course) and that's distance. Reading has improved to 20/40 in the left and 20/30 in the right (and 2 letters on the 20/25 line) and that was with no glasses at all. I hope I have been some help to you and good luck! Fansler PS If you need more help and want to e-mail me privately, feel free to do so. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 Welcome to the group Kathy! Welcome to the Fibro Family here. Well all I can say is both you and your husband must be special to be so close and souly touched by one another. I am Christie, 36 yrs old, divorce with two teens 19 yr old daughter, 18 yrs old son and a son who is 11, gosh he is a preteen..Oy I feel so old. Anyway please feel free to talk with me anytime. I take Cymbalta and Lyrica mainly.. I was on Tradazon as well but it got to the point it just did not work anymore. Its all cool I am used to having to shuffle things about with my Doctor's help. Hope to talk with you soon Christie Ohio -- Newbie I am new to this board and wish to introduce myself. I am Kathy (Tobydog) and I have been diagnosed with fibro for 2 years although looking back it has been a whole lot longer than that. Remembering my mother I think she had it too. I am married to a wonderful man who suffers from chronic pain and we put no demands on each other because of our ailments. We have always been soulmates even before these things happened to us. My rheumy has me on Cymbalta, Tizanidine, and Trazadone. This combo seems to work pretty well for me. When I have flares I use my massage wand, heat, and icy hot patches. I try to keep a positive attitude and look for the funny things in life to keep me happy. We have a westie who gives us great joy and is very spoiled. Tobydog 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Hi to all from Indiana, I am new to this group but not FM. I have the severe pain occasionally, but I suffer from the Chronic Fatique portion of FM on a daily basis. I am 51, but used to be VERY physically active. Do any of you still work full time?? I am a corporate trainer. I have to call in sick a lot because I cannot stay awake long enough to drive the 30 minutes it takes to get to work. I don't know how much longer I can work full time. I see my hubby and multiple pets about 60 minutes each day, Monday - Friday. Just having a difficult time with working. I know where my priorities lie, but I don't want to be a couch potato lying around all day if I am not working. We have a huge garden and 3 acres to mow and my husband is taking care of most all of it himself, since I tire out so easily. I haven't had a " good " day in months. My body requires soooo much sleep! I take Elavil and Flexeril at bedtime. I cannot walk far without frantically looking for somewhere to sit before I collapse. I will gladly accept any and all offers of advice, suggestions, or whatever!! Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Dear , You have my full sympathy! I know that doesn't count for much, but I have been where you are. I was a career nurse, and over the years between the CFS in the first stages, and FM straight up for the last 9 years, I've watched my career come to a close. I went to part-time work for about the last 4 years I worked. That helped and worked for a while. I hope you find a solution that works for you! Just take it in stages, as you are probably dealing with a very long term problem. I eventually was medically retired, after fighting my way through the SS system for about 3 years. You always have that option, but you have to be prepared for a long fight before you get there. Don't worry, you will find your way. Kellie If logic tells us that life is a meaningless accident, don't give up on life, give up on logic. If logic tells you that in the long run nothing you do makes a difference, then don't live in the long run. Life is a series of moments--to live each one is to succeed. newbie Hi to all from Indiana, I am new to this group but not FM. I have the severe pain occasionally, but I suffer from the Chronic Fatique portion of FM on a daily basis. I am 51, but used to be VERY physically active. Do any of you still work full time?? I am a corporate trainer. I have to call in sick a lot because I cannot stay awake long enough to drive the 30 minutes it takes to get to work. I don't know how much longer I can work full time. I see my hubby and multiple pets about 60 minutes each day, Monday - Friday. Just having a difficult time with working. I know where my priorities lie, but I don't want to be a couch potato lying around all day if I am not working. We have a huge garden and 3 acres to mow and my husband is taking care of most all of it himself, since I tire out so easily. I haven't had a " good " day in months. My body requires soooo much sleep! I take Elavil and Flexeril at bedtime. I cannot walk far without frantically looking for somewhere to sit before I collapse. I will gladly accept any and all offers of advice, suggestions, or whatever!! Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Hi Welcome to the group. I still work full time in the schools with special needs children, and children that need resource help as they are at least 2 yrs behind. It is sooo hard and I wonder more and more how long it can go on. I work and sleep, work and sleep. My poor husband has to handle pretty much everything unless I get a big spurt of energy and then usually I'll really pay for it later. We also live in the country and have 4 acres. The most I can do is mow with the tractor. I need to work for the insurance. I love my job though the kids are my passion. Right now I'm whining that I can't wait until school is over but give me 3 weeks and I'll be missing them terribly. I am 48 and have been diagnosed for approx.17 yrs. I don't know how much longer I can keep it up. I have informed them though that I can no longer work with children who are physically taxing or in heavy crisis. I love them so but someone else who is more physically able will have take those children. So you see I know where your coming from. Take care A Canadian Fibro Friend wrote: Hi to all from Indiana, I am new to this group but not FM. I have the severe pain occasionally, but I suffer from the Chronic Fatique portion of FM on a daily basis. I am 51, but used to be VERY physically active. Do any of you still work full time?? I am a corporate trainer. I have to call in sick a lot because I cannot stay awake long enough to drive the 30 minutes it takes to get to work. I don't know how much longer I can work full time. I see my hubby and multiple pets about 60 minutes each day, Monday - Friday. Just having a difficult time with working. I know where my priorities lie, but I don't want to be a couch potato lying around all day if I am not working. We have a huge garden and 3 acres to mow and my husband is taking care of most all of it himself, since I tire out so easily. I haven't had a " good " day in months. My body requires soooo much sleep! I take Elavil and Flexeril at bedtime. I cannot walk far without frantically looking for somewhere to sit before I collapse. I will gladly accept any and all offers of advice, suggestions, or whatever!! Thanks, 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Hi and welcome to the group. In answer to your question, yes, I still work full time. I am the office manager of a car dealership averaging an 11 hour day (this includes an hours drive to work and an hour's drive home). I definatley know how extremely difficult it is to continue working with the fibromyalgia and the chronic fatigue. By Thursday mornings it is all I can do to make it to work and those last two days (thursday and friday) are usually marked by crying all the way to work and all the way home from the fatigue and mental exhaustion and pain. The only thing I have found that has helped in the least little bit is that I have started taking B12 tablets every morning and lunch. I can definately tell a difference when I don't take them. It has only made a small difference but I am hoping that as it builds up it will help more. Just for reference I am 42 and the single mom of two kids, one is away at college and one (15 years old) lives at home with me. I hope you find an answer N. > > Hi to all from Indiana, > Do any of you still work full time?? I am a corporate trainer. > I have to call in sick a lot because I cannot stay awake long enough > to drive the 30 minutes it takes to get to work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 leasa, I would first try and have your doctor put you on some other med besides elavil. That stuff made me the same way you are describing. see if he or she will give you cymbalta or some thing else. The elavil helped me but made me so tired and groggy I could not even take my dog to pee. I am having a majer endo flairup so am really out of it from the pain meds but wanted to welcome you and give you that tip. The flexeral did the same thing to me, see if they will give you soma, it does nto leave me groggy and helps better then flexeral. It sounds to me like the meds may be making you worse. hugs hugs. There is also doxpin as well. Amber & GSD Ruby Age is no better, hardly so well qualified for an instructor as youth, for it has not profited so much as it has lost Henry Thoreau newbie Hi to all from Indiana, I am new to this group but not FM. I have the severe pain occasionally, but I suffer from the Chronic Fatique portion of FM on a daily basis. I am 51, but used to be VERY physically active. Do any of you still work full time?? I am a corporate trainer. I have to call in sick a lot because I cannot stay awake long enough to drive the 30 minutes it takes to get to work. I don't know how much longer I can work full time. I see my hubby and multiple pets about 60 minutes each day, Monday - Friday. Just having a difficult time with working. I know where my priorities lie, but I don't want to be a couch potato lying around all day if I am not working. We have a huge garden and 3 acres to mow and my husband is taking care of most all of it himself, since I tire out so easily. I haven't had a " good " day in months. My body requires soooo much sleep! I take Elavil and Flexeril at bedtime. I cannot walk far without frantically looking for somewhere to sit before I collapse. I will gladly accept any and all offers of advice, suggestions, or whatever!! Thanks, Quote Link to comment Share on other sites More sharing options...
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