Guest guest Posted April 26, 2006 Report Posted April 26, 2006 Hello my name is and my sister who does not have a computer was just diagnosed with fibromyalgia. She has had a awful time this past winter. She had 2 heart attacks and continues to have awful chest pain but all her test shows it's not her heart. She also has alot of body pain, swelling in her legs, feet, stomach and hands. She has real bad headaches migraines, High blood pressure, diabetes, arthritis, stomach issues and a lot of other issues. She is only 31 and is really suffering and has been in and out of the hospital. She has been on a few different pain meds with out much relief and her quality of life is really going down. I am just trying to figure out and get as much info on this condition as I can for her. Can any of you share what has worked for you for pain and swelling? Is there anything we can do to help her more that the doctors don't tell us?? I am looking forward to getting to know all of you. Thank you all and God Bless, . Quote
Guest guest Posted April 26, 2006 Report Posted April 26, 2006 Welcome to the group , I just joined last week so I`m just beginning to learn who ppl are. I have not been dx with fibro but my D and GD both were and I suffer similar symptoms. I will let the other members tell you about medications etc. Nice to know you. Cille " lisa " wrote: > > Hello my name is and my sister who does not have a computer was > just diagnosed with fibromyalgia. She has had a awful time this > past winter. She had 2 heart attacks and continues to have awful > chest pain but all her test shows it's not her heart. She also has > alot of body pain, swelling in her legs, feet, stomach and hands. > She has real bad headaches migraines, High blood pressure, diabetes, > arthritis, stomach issues and a lot of other issues. She is only 31 > and is really suffering and has been in and out of the hospital. > She has been on a few different pain meds with out much relief and > her quality of life is really going down. I am just trying to > figure out and get as much info on this condition as I can for her. > Can any of you share what has worked for you for pain and swelling? > Is there anything we can do to help her more that the doctors don't > tell us?? > I am looking forward to getting to know all of you. > > Thank you all and God Bless, > > . > Quote
Guest guest Posted April 26, 2006 Report Posted April 26, 2006 Welcome !! Christie -- New to group. Hello my name is and my sister who does not have a computer was just diagnosed with fibromyalgia. She has had a awful time this past winter. She had 2 heart attacks and continues to have awful chest pain but all her test shows it's not her heart. She also has alot of body pain, swelling in her legs, feet, stomach and hands. She has real bad headaches migraines, High blood pressure, diabetes, arthritis, stomach issues and a lot of other issues. She is only 31 and is really suffering and has been in and out of the hospital. She has been on a few different pain meds with out much relief and her quality of life is really going down. I am just trying to figure out and get as much info on this condition as I can for her. Can any of you share what has worked for you for pain and swelling? Is there anything we can do to help her more that the doctors don't tell us?? I am looking forward to getting to know all of you. Thank you all and God Bless, . 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone. Quote
Guest guest Posted April 26, 2006 Report Posted April 26, 2006 , My name is Debbie and I am 29 and feel for your sister. I try hard to keep positive and fight this but quality of life does decrease, that is why I am here. The group is wonderful, many people who had no idea who I was have helped me tremendously. My advice as your sister is close to my age is that I went on Ebay and purchased books on fibro, your sister is very lucky to have your support as I am still trying to educate my family and friends!! If she is having tummy trouble, I would like to share my opinion on ibuprofen for swelling. The docs told me to take ibuprofen I was taking 3 800mg daily and now have severe ulcerations as it ate away the lining of my stomach. Right now, I am without meds, another story, and I know how she feels when nothing works. I reach out and talk to people and communicate. I recently spoke with a woman in Washington where I am from and we spoke on the phone, it helps to know there are others out there. I would be more than willing to pen pal with your sister also since she has no computer. Most important is pushing to keep her going. Without my friend and fiance, I would have gotten a lot worse. Its hard to say everything I want to, I am totally fogged right now, but what are her worse complaints? What do the doctors say? Are they giving you the run around? Fill us in more so we can help ya out, and keep your chin up, you are awesome for helping her out! Deb --- lisa wrote: > Hello my name is and my sister who does not > have a computer was > just diagnosed with fibromyalgia. She has had a > awful time this > past winter. She had 2 heart attacks and continues > to have awful > chest pain but all her test shows it's not her > heart. She also has > alot of body pain, swelling in her legs, feet, > stomach and hands. > She has real bad headaches migraines, High blood > pressure, diabetes, > arthritis, stomach issues and a lot of other issues. > She is only 31 > and is really suffering and has been in and out of > the hospital. > She has been on a few different pain meds with out > much relief and > her quality of life is really going down. I am just > trying to > figure out and get as much info on this condition as > I can for her. > Can any of you share what has worked for you for > pain and swelling? > Is there anything we can do to help her more that > the doctors don't > tell us?? > I am looking forward to getting to know all of you. > > Thank you all and God Bless, > > . > > > > > > > > > __________________________________________________ Quote
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