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[Guest guest]

Hi, and welcome! First let me say that I've not been active the past couple of months due to spinal fusion surgery, so I am happy to be back among this caring and helpful group once again. Secondly, you MUST tell your doctor everything, including that you suspect that you have fibromyalgia. I had been to various doctors for years, hearing the same thing "There's nothing wrong with you, all your tests were normal, etc.". Not until one day when I was in terrible pain and in the office of my orthopedic doctor for my osteoarthritis, did I mention to him that I thought I might have fibromyalgia. When he asked me why I thought that, I told him all my symptoms and how long I had been having them. He immediately (for the next day, in fact) got me an appointment with a rheumotologist who ran blood work and did a thorough evaluation and diagnosed me that very day! I will say that for a little over a year since my diagnosis, I was taking Neurotin, but just could not function if I took my morning dose. When I saw my rheum this past week for a normal checkup and voiced my concerns and problems with the Neurotin, he changed me to Lyrica 100mg 3x daily. I am not having "as much" of the side effect with the Lyrica as I was with the Neurotin, and am hoping that before too much longer, I will be able to see a difference in the neuropathy pain in my feet. Does anyone else have the neuropathy pain, pins & needles, electric shocksm numbness in your feet??? It drives me crazy!

[Guest guest]

HI Not in my feet but my right hand I have said things to my gp about this but he just changes the subject. I lost my rhumo becasue of the gp and pain meds. I was on Loritabs for the pain and waiting for surgery my surgeon had prescribed a lousy 30 hydrocodone 5/500mg which I only had filled becuse they told me that is all I was going to need post surgery so I was hoping and trying to be compliant.. on 30 Jan I tore the other knee up all I did was get out of a chair. So on the 31st I had to do something my gp wrote a rx for Norco 10/325 same drug just stronger.. The pharmists freaks out calls the gp and the rhumo thinking I am seeking drugs or something OMG like If I was trying to pull a scam I would have never gone to the same pharmacy lets get real. My poor young very shy husband went to the pharmacy to pick up my rx in he was told to have me call my dr. Anyway the gp told the rhumo he was taking over my pain mangment and I get into troube with the rhumo cuz I was on a pain mgmt contract. But in the last few weeks the hand has had this peculr pain which feels like when you fall asleep on a limb. I currently have been seeing a orthopedic suregon who is wonderful ..... any one out there that lives in the Portland OR area if your ever in need of knee or shoulder work done contact or get a referral to see Dr. Brad ... the clinic is great drs offices on the 3rd floor surgery center on 2nd and MRI (you can get in imediatly so if your in need of a mri I had to wait all of like 20 mns from the time the dr ordered the mir till the time I was seen. MY previous experiences with mri have made me wait for weeks to be seen. So now my rhumo had let me go she will no longer treat me she was alreday up set with me becuase I wanted to go to the ORtho that I wanted to see and not the one she referrs people to hell there my knees and Brad is the best. So kind and considerate he even shakes my husbands hand every visit treats all with conpassion and respect. This last visit I totally lost it started crying Its another 8 weeks till you can work at least ok he was its ok Jackie it ok your under so much stress and really did not need this I realize your money must be very thight by now.

So now I am being treated for my fibro, osteo arthritis , and lupus by this moron..he is doing nothing but montering my pain meds I keep complaing about the muscle tight ness and the fog and tingling and rls... he just is worried about my pain its nice that some one has finally aknowleged it though..

Anyone know a Rumo in the portland ore area I would already have a 90 mile drive there but to get quality health care I would drive a lot futher lol there I go if its more than 40 miles I imke husband drive thern I need to call it a night sweet dreams to all and a pain free day to all ..

Reply-To: Fibromyalgia_Support_Group To: "Fibromyalgia_Support_Group" <Fibromyalgia_Support_Group >Subject: Reply to and questionDate: Fri, 9 Jun 2006 22:32:34 -0500 (Central Daylight Time)

Hi, and welcome! First let me say that I've not been active the past couple of months due to spinal fusion surgery, so I am happy to be back among this caring and helpful group once again. Secondly, you MUST tell your doctor everything, including that you suspect that you have fibromyalgia. I had been to various doctors for years, hearing the same thing "There's nothing wrong with you, all your tests were normal, etc.". Not until one day when I was in terrible pain and in the office of my orthopedic doctor for my osteoarthritis, did I mention to him that I thought I might have fibromyalgia. When he asked me why I thought that, I told him all my symptoms and how long I had been having them. He immediately (for the next day, in fact) got me an appointment with a rheumotologist who ran blood work and did a thorough evaluation and diagnosed me that very day! I will say that for a little over a year since my diagnosis, I was taking Neurotin, but just could not function if I took my morning dose. When I saw my rheum this past week for a normal checkup and voiced my concerns and problems with the Neurotin, he changed me to Lyrica 100mg 3x daily. I am not having "as much" of the side effect with the Lyrica as I was with the Neurotin, and am hoping that before too much longer, I will be able to see a difference in the neuropathy pain in my feet. Does anyone else have the neuropathy pain, pins & needles, electric shocksm numbness in your feet??? It drives me crazy!