Guest guest Posted June 3, 2006 Report Posted June 3, 2006 Hi Lori Well at least you now know what you are trying to manage on this journey. It always amazes me why they would think a 14 yr old would be faking something like that. Poor him!!!! I mean really does this make sense that he would not want to be healthy and active and with his friends at school at his age. I work with kids and believe me even when they hate school they do not want to be a slug and away from their friends. So glad to here he has a good supportive mom and that there is finally a diagnosis. Lori Pound wrote: ***Comment from Co-Owner: Updated for easier reading. ***Hello! My name is Lori and I have a fourteen year old son who was just diagnosedwith Fibro. He's actually had problems since he was eight but not diagnoseduntil now. He has had several kidney stones so the doctors would just correlate hisback pain to that even when he didn't have any stones. Last August he had a "reoccurrence" so I took him to his Pediatrician. Whosent me to the nephrologists, urologist, gastroenterologist, psychiatrist,who did lots of test which all came up "Normal" . I kept telling them he was lethargic, ran a low grade fever several times aweek, he had severe back pain, and abdominal pain and headaches and NOBODYwas listening to me. So I switched his primary Dr. I took him to a family dr who checked his thyroid and did a "complete"physical and everything was normal. I took him back insisting that heycheck him for strep, hepatitis, Mono everything wrongdiagnosis.com suggestedhe could have. And everything was negative except his urine test does andalways has shown positive for blood and protein. Which again I was toldthis is NORMAL. So I took him to a different dr in the same practice on one of his baddays and he actually accused him of pretending to be in pain so he couldget pain medicine to sell in school. I was so mad!! He hasn't been toschool since August. For a couple of mths I had a teacher coming out to thehouse but they stopped coming because the doctors would n't write excusesfor him because they couldn't find anything wrong. So I ended upwithdrawing him and signing him for an online high school. So at my wits end I took him to new Nephrologists. He listened to me and and did several more tests and said that there was so9mething wrongand he would find out what it was. He thought he might have lupus so he didan ANA test which came up positive, the he did further test which all cameback negative. I did some research on Lupus and it did sound like his symptoms so Idecided to see a Rheumy. So we went to the Rheumy she examines him and says he has Fibro "AClassic case". And I'm like "You THINK he has Fibro? Figuring there wouldbe more tests more waiting etc. and she's like "no, I KNOW he has fibro"So there I had it. He wasn't crazy, I wasn't crazy. He has fibro. I'm just now finding out that instead of being at the end of our journeyit's just the beginning. Thanks for listening!!!Lori Make free worldwide PC-to-PC calls. Try the new Yahoo! Canada Messenger with Voice Quote
Guest guest Posted June 3, 2006 Report Posted June 3, 2006 Lori & I wish I could say that this surprises me but it doesn't. Last year when my daughter was 14 I took her to the ER with severe pain right under her right ribs. After several trips to the ER, the pediatrician and a gall bladder scan, the pediatrician's PA AND the ped both told me that she was " faking it " and that I should take her to see a psychiatrist to find out why. She was jaundice - not slightly, she was YELLOW - had a temp and was having vomiting & diarrhea. I immediately called & made an appointment with a family practice doctor, went the the hospital & got her x-rays & the tape of the gall bladder scan & was told 'yep, it's definitely her gall bladder, we'll get her in with a surgeon'. That very same night she was admitted to the hospital with h.pylori & spent a week. It was another 6 weeks before she got her gall bladder out & the whole time I was being told that " kids don't have gall bladder problems, only fat 40 year old women do " .. yeah whatever. She missed almost 3 months of school & was on homebound tutoring during this whole time. Lori, be persistant & keep trying until you find someone that listens. I'm praying for you & your son. Amy > ***Comment from Co-Owner: Updated for easier reading. *** > > > Hello! > > > > My name is Lori and I have a fourteen year old son who was just diagnosed > with Fibro. He's actually had problems since he was eight but not diagnosed > until now. > > He has had several kidney stones so the doctors would just correlate his > back pain to that even when he didn't have any stones. > > Last August he had a " reoccurrence " so I took him to his Pediatrician. Who > sent me to the nephrologists, urologist, gastroenterologist, psychiatrist, > who did lots of test which all came up " Normal " . > > > > I kept telling them he was lethargic, ran a low grade fever several times a > week, he had severe back pain, and abdominal pain and headaches and NOBODY > was listening to me. So I switched his primary Dr. > > I took him to a family dr who checked his thyroid and did a " complete " > physical and everything was normal. I took him back insisting that hey > check him for strep, hepatitis, Mono everything wrongdiagnosis.com suggested > he could have. And everything was negative except his urine test does and > always has shown positive for blood and protein. Which again I was told > this is NORMAL. > > > > So I took him to a different dr in the same practice on one of his bad > days and he actually accused him of pretending to be in pain so he could > get pain medicine to sell in school. I was so mad!! He hasn't been to > school since August. For a couple of mths I had a teacher coming out to the > house but they stopped coming because the doctors would n't write excuses > for him because they couldn't find anything wrong. So I ended up > withdrawing him and signing him for an online high school. > > > > So at my wits end I took him to new Nephrologists. He listened to me and > and did several more tests and said that there was so9mething wrong > and he would find out what it was. He thought he might have lupus so he did > an ANA test which came up positive, the he did further test which all came > back negative. > > I did some research on Lupus and it did sound like his symptoms so I > decided to see a Rheumy. > > > > So we went to the Rheumy she examines him and says he has Fibro " A > Classic case " . And I'm like " You THINK he has Fibro? Figuring there would > be more tests more waiting etc. and she's like " no, I KNOW he has fibro " > > > > So there I had it. He wasn't crazy, I wasn't crazy. He has fibro. > > > > I'm just now finding out that instead of being at the end of our journey > it's just the beginning. > > > > Thanks for listening!!! > > > > > > Lori > > > > > > > > > > > > > > 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. > > 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. > > 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group- unsubscribe > > 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. > > 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. > > Have a nice day everyone. > > > > > Quote
Guest guest Posted June 9, 2006 Report Posted June 9, 2006 Quoting um_naseem : > It was another 6 weeks before she got her gall bladder out & the whole time > I was being told that " kids don't have gall bladder problems, only > fat 40 year old women do " .. yeah whatever. You're right, that is absolute poppycock (I could use a stronger term, but...). I work for a 12 surgeon group, & we take gall bladders out of EVERYBODY, kids, teenagers, regular people, fit people, thin people, even our OWN surgeons! Gallbladders can go to pot for a number of reasons, so I see no reason why it should be limited to " fat 40 year old women. " I would document EVERYBODY who said that ignorant thing to you & perhaps consult an attorney. --kj *http://kadan.avonrepresentative.com/ " Like German tourists, the stupid are everywhere. " -A.J. Rimmer Quote
Guest guest Posted June 9, 2006 Report Posted June 9, 2006 I agree! I was 21 when I was dxed with galstones. I was about 20 when I started having the pain from them. I was a healthy weight, very active, ate well, not lots of fat or colesterol. It just happens. KJ Adan wrote: Quoting um_naseem <um_naseem>: > It was another 6 weeks before she got her gall bladder out & the whole time > I was being told that "kids don't have gall bladder problems, only > fat 40 year old women do" .. yeah whatever. You're right, that is absolute poppycock (I could use a stronger term, but...). I work for a 12 surgeon group, & we take gall bladders out of EVERYBODY, kids, teenagers, regular people, fit people, thin people, even our OWN surgeons! Gallbladders can go to pot for a number of reasons, so I see no reason why it should be limited to "fat 40 year old women." I would document EVERYBODY who said that ignorant thing to you & perhaps consult an attorney. --kj *http://kadan.avonrepresentative.com/ "Like German tourists, the stupid are everywhere." -A.J. Rimmer __________________________________________________ Quote
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