New here

[Guest guest]

You will feel so much better once the drugs kick in and you will start feeling

like your " old self " . You will even be able to work out and feel good about

your body! Hang in there!

Susie

[Guest guest]

Hi Sue: So sorry to here that you have been diagnosed with PA and at the same

time are going through a Divorce, it must be awful for you. I wanted to say

that we all have the need to vent and that is what this group is all about, get

it out and maybe one of our wonderful members will have some sage advice for

you. Also, the National Psoriasis Foundation has a great website and message

boards with topics on Psoriasis, PA, complimentary and alternative treatments,

support for family members, etc.... check out www.npf.org, you'll be glad you

did.

In the meantime since you are not working and can't get to a doctor see if

taking Aleve, or Motrin gives you some relief and try some over the counter

product for your Psoriasis to help with the itch and scaling, something like

hydrocortisone cream might help.

Good luck to you and welcome to the group.

Deanna

[Guest guest]

Thanks, Deanna. The dermatologist got me stuff for my head and lesions and I

can only take Tylenol because I'm on Coumadin for the clots. I don't find

the Tylenol (arthritis formula) does much for me tho.

We'll see what the rheumatologist says for meds on Thursday.

Sue

[Guest guest]

Dear Amy...

I am a horse person and I think you are so heartful and courageous to help your

horse so..... Where else can you go to look for help if not here - or any Lyme

site.

Our animals are our loved and cherished family members...... I can't say for

sure but all you have done should be weakening the bugs unless there is

re-exposure... something that would be almost impossible to know. The high

titers are an expression of immune response - not the microbial load.... I guess

your clues as to how things are going is your horse's joint pain.

There's got to be an equine site for diseases. I have read that horses and dogs

are particularly vulnerable to Lyme. Cattle have immune systems that can cope

better and their antibodies to Lyme are in raw milk.... that doesn't help you

much.

I'm wondering if there could be donations from other horse lovers or groups out

there..... living where you do I can imagine that you are not alone. My heart

and prayers are with you. J

[ ] New here

Hi All,

Just curious if anyone has any experience with lyme in horses. That's my

issue right now and there seems to be no group/list specifically for equine

lyme. I did do the Buhner herbal treatment with my horse for a year. I have

done multiple oral doxy treatments with 10 days pulsing over the last three

years. For example - 10 days on 10 days off 30 days on. I also did 28 days

of I/V oxytet six months ago. Still a strong positive titer. :-( I am going

broke feeding her doxy (she needs 40 twice/day), but it does have some

anti-inflammatory effects and during a bad spell it helps her feel better.

If this is not at all the place for my questions, feel free to say so. I am

at a loss and finding no support group specifically for equine lyme, so I am

trying here.

Thanks, Amy

Cape , Maine

[Guest guest]

Don't know for sure if this site will help, but it is focused on natural

solutions for animal health issues. Try googling or binging silverpets. Maybe

someone there can help you to at least find some relevant links.

SteveMenlo Park, CA(formerly Bangor, ME)

From: Amy Carlson <camy@...>

Subject: [ ] New here

Date: Thursday, May 20, 2010, 6:03 AM

 

Hi All,

Just curious if anyone has any experience with lyme in horses. That's my

issue right now and there seems to be no group/list specifically for equine

lyme. I did do the Buhner herbal treatment with my horse for a year. I have

done multiple oral doxy treatments with 10 days pulsing over the last three

years. For example - 10 days on 10 days off 30 days on. I also did 28 days

of I/V oxytet six months ago. Still a strong positive titer. :-( I am going

broke feeding her doxy (she needs 40 twice/day), but it does have some

anti-inflammatory effects and during a bad spell it helps her feel better.

If this is not at all the place for my questions, feel free to say so. I am

at a loss and finding no support group specifically for equine lyme, so I am

trying here.

Thanks, Amy

Cape , Maine

[Guest guest]

Spinal fusion is a rough surgery to go through. Be sure to make sure the doctor

knows what he/she is doing. Also look up the results of this kind of surgery. I

had it and I know several other people that has had it, and it does not do a lot

of good. Like I was told by my doctor, I hurt before surgery and I will hurt

afterwards. The pain does not really go away for most of us.

>

> Hello, I have been lurking for couple months this is my first post. My son was

diagnosed at 4years old with Chiari/holocord syringomyelia,scoliosis... He is

now 11yrs old has had 2 chiari decompressions and a syringopleural shunt placed

over the last several years. He has been braced off and on for years for the

scolio..IT recently has progressed to around 50 degree c curve, they are now

talking lower spinal fusion to keep it from getting worse as he grows...Has

anyone had this done & what are the outcomes , even if it was years ago do you

have pain now???? thanks for any help

>

>

>

[Guest guest]

I was born with spina bifida, scolosis, etc., I also have chiari and syrinx, but

I have NOT undergone surgery to repair the chiari or have the syrinx

drained/shunted. Yet I have had other surgeries.

I have a friend whose daughter sounds similar to your son. I'm not sure if her

surgery was actually a fusion, but I know they placed rods on each side of her

spine as a teenager to treat the scolosis to keep it from getting even worse.

She was down for several weeks (and after having a lumbar surgery of a different

nature I can tell you it is rough), but now she is in her 2nd year of college

and living a normal life and I have not heard her complain from the pain of the

rods, and you can not tell at all what she went through as a child!

Barb

>

> Hello, I have been lurking for couple months this is my first post. My son was

diagnosed at 4years old with Chiari/holocord syringomyelia,scoliosis... He is

now 11yrs old has had 2 chiari decompressions and a syringopleural shunt placed

over the last several years. He has been braced off and on for years for the

scolio..IT recently has progressed to around 50 degree c curve, they are now

talking lower spinal fusion to keep it from getting worse as he grows...Has

anyone had this done & what are the outcomes , even if it was years ago do you

have pain now???? thanks for any help

>

>

>

[Guest guest]

that is so true. I made a mistake the first two surgeries by allowing bone

doctors surgeons to do the first two, they failed miserably, however, the last

two were by spine specialist, i would have been okay if i had gotten a spine

specialist to do the first one, but by the time i found one the damage had

already been done and he could not fix what the other surgeons had done. I have

now over 80% nerve damage. I have to take morphine everyday and my spine is

crumbling slowly. be sure to get the right surgeon one who specialized in the

spine please.

Blessings,

L Kaiser

Art, Photography and more

http://www.kaisercreations.com

Healing Solutions

http://healingsolutionsbycathyandlaura.vpweb.com/default.html

Desert Fire’s Art Community:

http://desertfireartcommunity.yuku.com/

Ghost/Paranormal website:

http://azdesertfire.tripod.com

________________________________

From: Kittywagon_98 <kittywagon98@...>

spinal problems

Sent: Tue, July 6, 2010 5:06:40 PM

Subject: Re: New here

Spinal fusion is a rough surgery to go through. Be sure to make sure the doctor

knows what he/she is doing. Also look up the results of this kind of surgery. I

had it and I know several other people that has had it, and it does not do a lot

of good. Like I was told by my doctor, I hurt before surgery and I will hurt

afterwards. The pain does not really go away for most of us.

>

> Hello, I have been lurking for couple months this is my first post. My son was

>diagnosed at 4years old with Chiari/holocord syringomyelia,scoliosis... He is

>now 11yrs old has had 2 chiari decompressions and a syringopleural shunt placed

>over the last several years. He has been braced off and on for years for the

>scolio..IT recently has progressed to around 50 degree c curve, they are now

>talking lower spinal fusion to keep it from getting worse as he grows...Has

>anyone had this done & what are the outcomes , even if it was years ago do you

>have pain now???? thanks for any help

>

>

>

>

[Guest guest]

Yes you have to really research who is doing the work on you. A co-worker of

mine abused his body so badly from heavy lifting all his life. He had to go in

and get the rods placed onto his spine. Now he is in worse shape than before. I

guess they nicked a nerve to his right leg and he has to wear a brace on his

right leg because he falls over quite a bit. The brace stops his leg from giving

out and him falling over. He actually finds humour in it. I guess that must be

what keeps him going like he does

Re: New here

Spinal fusion is a rough surgery to go through. Be sure to make sure the

doctor

knows what he/she is doing. Also look up the results of this kind of surgery.

I

had it and I know several other people that has had it, and it does not do a

lot

of good. Like I was told by my doctor, I hurt before surgery and I will hurt

afterwards. The pain does not really go away for most of us.

>

> Hello, I have been lurking for couple months this is my first post. My son

was

>diagnosed at 4years old with Chiari/holocord syringomyelia,scoliosis... He is

>now 11yrs old has had 2 chiari decompressions and a syringopleural shunt

placed

>over the last several years. He has been braced off and on for years for the

>scolio..IT recently has progressed to around 50 degree c curve, they are now

>talking lower spinal fusion to keep it from getting worse as he grows...Has

>anyone had this done & what are the outcomes , even if it was years ago do

you

>have pain now???? thanks for any help

>

>

>

>

[Guest guest]

yes that is what happened he cut my sciatica nerve and it is permanently

damaged. the physical therapist says there is so much scar tissue he cannot get

to it, that nerve is now shrunk. the last time i saw my back x-rays, you cannot

see the spine all you see is a white mass like a white tornado storm all the

way down, i asked what that was and he told me it was scar tissue and arthritis.

Blessings,

L Kaiser

Art, Photography and more

http://www.kaisercreations.com

Healing Solutions

http://healingsolutionsbycathyandlaura.vpweb.com/default.html

Desert Fire’s Art Community:

http://desertfireartcommunity.yuku.com/

Ghost/Paranormal website:

http://azdesertfire.tripod.com

________________________________

From: jalbert <jalbert6855@...>

spinal problems

Sent: Wed, July 7, 2010 7:28:07 AM

Subject: Re: Re: New here

Yes you have to really research who is doing the work on you. A co-worker of

mine abused his body so badly from heavy lifting all his life. He had to go in

and get the rods placed onto his spine. Now he is in worse shape than before. I

guess they nicked a nerve to his right leg and he has to wear a brace on his

right leg because he falls over quite a bit. The brace stops his leg from giving

out and him falling over. He actually finds humour in it. I guess that must be

what keeps him going like he does

Re: New here

Spinal fusion is a rough surgery to go through. Be sure to make sure the doctor

knows what he/she is doing. Also look up the results of this kind of surgery. I

had it and I know several other people that has had it, and it does not do a lot

of good. Like I was told by my doctor, I hurt before surgery and I will hurt

afterwards. The pain does not really go away for most of us.

>

> Hello, I have been lurking for couple months this is my first post. My son was

>diagnosed at 4years old with Chiari/holocord syringomyelia,scoliosis... He is

>now 11yrs old has had 2 chiari decompressions and a syringopleural shunt placed

>over the last several years. He has been braced off and on for years for the

>scolio..IT recently has progressed to around 50 degree c curve, they are now

>talking lower spinal fusion to keep it from getting worse as he grows...Has

>anyone had this done & what are the outcomes , even if it was years ago do you

>have pain now???? thanks for any help

>

>

>

>

[Guest guest]

Thanks for all the responses. My son has the other 3 surgeries because his

symptoms were worse, He does have spinal cord damage from the syrinx is why they

decided on shunting his spinal cord. I have consulted with Dr. Bridwell who is

listed as a spinal expert. I just hate to put him thru another rough surgery and

dont want anymore further damage to him.

> >

> > Hello, I have been lurking for couple months this is my first post. My son

was diagnosed at 4years old with Chiari/holocord syringomyelia,scoliosis... He

is now 11yrs old has had 2 chiari decompressions and a syringopleural shunt

placed over the last several years. He has been braced off and on for years for

the scolio..IT recently has progressed to around 50 degree c curve, they are now

talking lower spinal fusion to keep it from getting worse as he grows...Has

anyone had this done & what are the outcomes , even if it was years ago do you

have pain now???? thanks for any help

> >

> >

> >

>

[Guest guest]

Hi Mom. You have come to a good place. Many of us have had hip/knee

replacements and we are from all over the English speaking world. And perhaps

other places as well!

If you ask specific questions, I'm sure you will get some good answers.

All the best, Joan, TKR Hospital for Joint Diseases 12/04/09 NYC, currently in

North Yorkshire

________________________________

From: " momtomonsters@... " <momtomonsters@...>

Joint Replacement

Sent: Sun, July 11, 2010 4:18:33 PM

Subject: New here

Hello all,

I am a 44 year old with two very damaged knees. Prior injury and lyme disease

has taken its toll on both. I hope to find lots of information about knee

replacement surgery and aftercare.

Thanks

Momtomonsters

[Guest guest]

Hi Mom,

I understand what you mean about Lyme and Joints leading to needing

replacements.

Are you aware of the Lymestrategies Group? There are a couple of others

as well.

If you need any Lyme Group info, let me know, okay?

-----------------------------

From: " momtomonsters@... " <momtomonsters@...>

Joint Replacement

Sent: Sun, July 11, 2010 4:18:33 PM

Subject: New here

Hello all,

I am a 44 year old with two very damaged knees. Prior injury and lyme disease

has taken its toll on both. I hope to find lots of information about knee

replacement surgery and aftercare.

Thanks

Momtomonsters

[Guest guest]

my insurance considers 12 + moderate to severe. my sons # was 20 and he is not covered but we decided to go ahead and band. his head is looking amazing...really seeing results from a week on...very happy money well, but not happily spent. how old is your son? we banded at 6 months and he will wear it for 3 months (so until he is 9 months). the later you band the longer the process, we have seen really great results. good luck deciding. i always say if it can be fixed, fix it. you will feel better and have no regrets.From: Jamers <jamiemckown@...>Plagiocephaly Sent: Wed, July 28, 2010 4:44:09 PMSubject: New here

Hi all,

I just joined today. Going to Cranial Tech tomorrow for my son's digital imaging and he will have his band in 2 weeks. Honestly, it has been a tough decision on what to do. His head doesn't look that bad, but in the back I can tell. He does have facial asymmetry, but it is barely noticeable. His cranial vault was 13 I think. His ears were slightly off also. We really struggled as he looks so perfect already, but I don't want this to bother him in the future. Our insurance is not covering it either, but from what I've heard, that is pretty common. Has anyone on here had similar CV numbers? We kept thinking, what if it fixes itself, but what if it doesn't?

-

[Guest guest]

Hello ,Welcome to the group. 13mm asymmetry is significant. You don't mention your son's age, but studies show that after 5.5 months of age, little correction will occur without banding. You are doing the right thing. Prior to banding, my daughter's measurements showed 13mm asymmetry(scanned)/14.5mm(neurosurgeon's caliper measurements.) She also had a 6mm ear shift and right front bossing. She was banded right at 8 months and corrected to 2.47mm in about 15 weeks. Our insurance company did cover her band.Good luck!-AmyFrom: Jamers <jamiemckown@...>Plagiocephaly Sent: Wed, July 28, 2010 4:44:09 PMSubject: New here

Hi all,

I just joined today. Going to Cranial Tech tomorrow for my son's digital imaging and he will have his band in 2 weeks. Honestly, it has been a tough decision on what to do. His head doesn't look that bad, but in the back I can tell. He does have facial asymmetry, but it is barely noticeable. His cranial vault was 13 I think. His ears were slightly off also. We really struggled as he looks so perfect already, but I don't want this to bother him in the future. Our insurance is not covering it either, but from what I've heard, that is pretty common. Has anyone on here had similar CV numbers? We kept thinking, what if it fixes itself, but what if it doesn't?

-

[Guest guest]

Hi ,

Welcome to the group. I would say you've made the right decision. Our specialist

(cranio facial plastic surgeon) recommends banding at 10mm or higher. Some

parents band a bit lower. I think you'll be pleased that you're banding when all

is said and done. It is really hard to know if a baby will correct on its own,

but definitely there are some that don't. My daughter wore a band for brachy

(flat in back with extra width). She did well in her band, but I was still

hoping for post band improvement. She's 4.5 yrs now and I haven't really noticed

any, so I'm pretty sure we wouldn't have seen much change without a band. Best

of luck with the adjustment (to wearing a band) and keep us posted on his

progress.

-christine

sydney, 4.5 yrs, starband grad

>

> Hi all,

>

> I just joined today. Going to Cranial Tech tomorrow for my son's digital

imaging and he will have his band in 2 weeks. Honestly, it has been a tough

decision on what to do. His head doesn't look that bad, but in the back I can

tell. He does have facial asymmetry, but it is barely noticeable. His cranial

vault was 13 I think. His ears were slightly off also. We really struggled as he

looks so perfect already, but I don't want this to bother him in the future. Our

insurance is not covering it either, but from what I've heard, that is pretty

common. Has anyone on here had similar CV numbers? We kept thinking, what if it

fixes itself, but what if it doesn't?

>

> -

>

[Guest guest]

I think everyone questions if they made the right decision or not. I struggled

with serious guilt for the first little while about putting Kieran through it,

but when you see the results you'll know that it's all been worth it

http://fixin-a-flat.blogspot.com

>

> Hi all,

>

> I just joined today. Going to Cranial Tech tomorrow for my son's digital

imaging and he will have his band in 2 weeks. Honestly, it has been a tough

decision on what to do. His head doesn't look that bad, but in the back I can

tell. He does have facial asymmetry, but it is barely noticeable. His cranial

vault was 13 I think. His ears were slightly off also. We really struggled as he

looks so perfect already, but I don't want this to bother him in the future. Our

insurance is not covering it either, but from what I've heard, that is pretty

common. Has anyone on here had similar CV numbers? We kept thinking, what if it

fixes itself, but what if it doesn't?

>

> -

>

[Guest guest]

My boy has a CV of 10, mid face 6 and skull base 6 and he was banded and actually going to need a second one.

My girl has a CV of 6, mid face 3 and skull base 4 and just got her band yesterday.

Jen

Re: New here

I think everyone questions if they made the right decision or not. I struggled with serious guilt for the first little while about putting Kieran through it, but when you see the results you'll know that it's all been worth it

http://fixin-a-flat.blogspot.com

>

> Hi all,

>

> I just joined today. Going to Cranial Tech tomorrow for my son's digital imaging and he will have his band in 2 weeks. Honestly, it has been a tough decision on what to do. His head doesn't look that bad, but in the back I can tell. He does have facial asymmetry, but it is barely noticeable. His cranial vault was 13 I think. His ears were slightly off also. We really struggled as he looks so perfect already, but I don't want this to bother him in the future. Our insurance is not covering it either, but from what I've heard, that is pretty common. Has anyone on here had similar CV numbers? We kept thinking, what if it fixes itself, but what if it doesn't?

>

> -

>

[Guest guest]

Hudson is just over 6 months old. I don't remember his ear and eye numbers, but

I think one was about 7 and the other might have been 4. The funny thing is that

they photo study pics they took hardly show anything. There is one photo, the

birdseye, where you can see it. But it doesn't look that visible in the other

pics. When I look at it in person and feel it, it is def there. Thanks for all

the comments. I'm a little nervous, but at least it's not surgery or something

like that. He probably won't even notice. And sorry if I'm posting this in the

wrong spot. This is my first time on these boards and wasn't sure where to

reply.

>

> Hi all,

>

> I just joined today. Going to Cranial Tech tomorrow for my son's digital

imaging and he will have his band in 2 weeks. Honestly, it has been a tough

decision on what to do. His head doesn't look that bad, but in the back I can

tell. He does have facial asymmetry, but it is barely noticeable. His cranial

vault was 13 I think. His ears were slightly off also. We really struggled as he

looks so perfect already, but I don't want this to bother him in the future. Our

insurance is not covering it either, but from what I've heard, that is pretty

common. Has anyone on here had similar CV numbers? We kept thinking, what if it

fixes itself, but what if it doesn't?

>

> -

>

[Guest guest]

Hi . Hope all goes well with your son's appt. We had our son's digital

images three weeks ago and he has had his band for almost two. So far we and

the techs have been sooo pleased with his progress. His was considered severe

so to see improvement is exciting. Good luck with the process. I hope all goes

well:) The feedback with the group has been helpful as too.

-- In Plagiocephaly , " Jamers " <jamiemckown@...> wrote:

>

> Hi all,

>

> I just joined today. Going to Cranial Tech tomorrow for my son's digital

imaging and he will have his band in 2 weeks. Honestly, it has been a tough

decision on what to do. His head doesn't look that bad, but in the back I can

tell. He does have facial asymmetry, but it is barely noticeable. His cranial

vault was 13 I think. His ears were slightly off also. We really struggled as he

looks so perfect already, but I don't want this to bother him in the future. Our

insurance is not covering it either, but from what I've heard, that is pretty

common. Has anyone on here had similar CV numbers? We kept thinking, what if it

fixes itself, but what if it doesn't?

>

> -

>

[Guest guest]

Thanks ! Did your son have any problems sleeping with it? They said our son

was moderate. I know I'll have a lot of questions once we get it. I want to try

to decorate it also. Maybe make it look less medical or something. Good luck

with your son! Great to hear that you are already seeing progress.

-

> >

> > Hi all,

> >

> > I just joined today. Going to Cranial Tech tomorrow for my son's digital

imaging and he will have his band in 2 weeks. Honestly, it has been a tough

decision on what to do. His head doesn't look that bad, but in the back I can

tell. He does have facial asymmetry, but it is barely noticeable. His cranial

vault was 13 I think. His ears were slightly off also. We really struggled as he

looks so perfect already, but I don't want this to bother him in the future. Our

insurance is not covering it either, but from what I've heard, that is pretty

common. Has anyone on here had similar CV numbers? We kept thinking, what if it

fixes itself, but what if it doesn't?

> >

> > -

> >

>

[Guest guest]

My son is just over 6 months. So we are at about the same place as you. They

told us he would wear it for 2-3 months. That is really encouraging that you are

already seen results in just a week. After seeing the 3d images, I feel very

confident in our decision to band. I agree, if we can fix it, why not.

>

> my insurance considers 12 + moderate to severe. my sons # was 20 and he is not

> covered but we decided to go ahead and band. his head is looking

> amazing...really seeing results from a week on...very happy money well, but

not

> happily spent. how old is your son? we banded at 6 months and he will wear it

> for 3 months (so until he is 9 months). the later you band the longer the

> process, we have seen really great results. good luck deciding. i always say

if

> it can be fixed, fix it. you will feel better and have no regrets.

>

>

>

>

> ________________________________

> From: Jamers <jamiemckown@...>

> Plagiocephaly

> Sent: Wed, July 28, 2010 4:44:09 PM

> Subject: New here

>

>

> Hi all,

>

> I just joined today. Going to Cranial Tech tomorrow for my son's digital

imaging

> and he will have his band in 2 weeks. Honestly, it has been a tough decision

on

> what to do. His head doesn't look that bad, but in the back I can tell. He

does

> have facial asymmetry, but it is barely noticeable. His cranial vault was 13 I

> think. His ears were slightly off also. We really struggled as he looks so

> perfect already, but I don't want this to bother him in the future. Our

> insurance is not covering it either, but from what I've heard, that is pretty

> common. Has anyone on here had similar CV numbers? We kept thinking, what if

it

> fixes itself, but what if it doesn't?

>

>

> -

>

[Guest guest]

9 is the beginning of some tough times for girls who are AS etc. My daughter has had the same diagnosis as your daughter, and she is now almost 16.. We have really struggled, but have made it this far, and all I can say is take it one day at a time. Just now we started my dd on Intuniv and I hope it works. She has been on one med after another. They work for about a year, and then her body seems to adapt to them and they don't work anymore. When she was in 6th grade we moved to an area that had a charter school for dyslexic students, and she went there successfully for middle school. It became private and we had to pay, but that worked, because they needed our money, so were willing to work with her. But, the point that I wanted to make was, she needed the dyslexic help and public schools do

not do dyslexia. They don't know how to do it, and the reading method that is needed is Mood Bells Phoenetic Program and it is costly and time consuming, so public schools don't do it. My daughter couldn't do regular work without first learning the basics. Now she has that mastered and I have hope that she will survive. She will never be able to spell, but maybe she can use a computer. So, maybe your daughter has a learning problem that they have not diagnosed or recognized. The schools will not diagnose dyslexia. I could not home school my daughter. She would not do anything for me. Plus, my Algebra skills are lousy...LOL she is better at math than I am.. From: Sharon <simplycraftymom@...> Sent: Tue, August 3, 2010 9:37:29 AMSubject: ( ) New here

Hi all I am new to this support thing. My oldest dd, 9,was diagnosed with ADHD and Aspergers and now possible ODD or mood disorder. We have been working with a therapist weekly in home and it seems to work for a short while then she gets worse. We have an appt for meds coming up as I am trying that route again. She was on ADHD meds at first but that did nothing to stop the bad behavior in school. We did the homeschool thing with K12 and the virtual school but that got us no where as she refused to work on anything so she is going to a charter school this year. I am at my wits end today as I am trying to get her on a routine to follow and she follows for a few days then decides she wants to deviate from the routine. I am confused cuz I thought Apsies were supposed to like routine. She

has a 6 year old sister that likes routine and tries to follow the routine every day even tho she doesn't have to. I guess I just am at a loss for what to do and am looking for some quides to show me how to deal. I am so stressed that I haven't even been working (in home worker), I am constantly tired all the time. Our only last resort is a hospital and I really don't want my dd in one. Any help would be great. ThanksSharon

[Guest guest]

>

> Hi Bee,

>

> Quick overview of my history:

> multiple antibiotics as a young child for sore throat, tonsils out at 5 years,

> teenager - antibiotics for acne,

> college - birth control pills (that's when all my troubles really seemed to

start),

> yeast infections - many,

> digestive issues started,

> on multiple antibiotics for various infections,

> had 1st child at 29 (this is when the fecal body odor started, not all the

time),

> multiple antibiotics for boil on back and two rounds for strep that would not

go away,

> severe cravings for sugar and alcohol,

> still off and on with birth control pills,

> saw doctor for candida - on nystatin for awhile, tried diflucan, became

pregnant again,

> tried every type of diet possible,

+++Hi Kim. Welcome to our group and thank you for your introduction.

>

> I was reading your website and it really hit home. Most of what you recommend

I have found to be what is best for me. I've been to many different types of

doctors and realized that what they are having me do isn't really what is

working for me. I do best on meat and vegetables. Your supplements are similar

to what I have found to work for me too.

>

> Green things like chlorella and wheat grass and spirulina seem to cause havoc

on my system and can even cause a fecal body odor. I always thought I was doing

something wrong.

+++That's wonderful you see the sense in my program!

>

> My questions:

>

> I had been taking chinese herbs to hep with my hormonal imbalance and they

seemed to work but made the time during my period even worse. The doctor

recommended 5HTP and this helps, but I didn't want to keep adding supplements

and the expense just keeps building. I stopped the chinese herbs and I'm

getting really weepy phases. I'm still on chaste tree, so I was wondering if I

should just try to normalize a little before stopping the chaste tree or if I

should stop it now?

+++You can stop taking any of those suddenly without any ill effects.

>

> I had taken coconut oil before but I think I started with too much. I just

started a few days ago with 1 teaspoon in am and one in pm. Before, I ended up

with fatty smelly sticky stools. I had thought that my fat digestion wasn't

working and tried low fat. That didn't work. I'm just going to add more as it

seems comfortable.

+++Ensure you follow Curing Candida, How to Get Started:

http://www.healingnaturallybybee.com/articles/intro1.php

>

> Also, I am taking a multi vitamin (RAW ONE for women) and this one really

seemed to be working for me. I was planning on finishing up what I had before

stopping and then adding B vitamins and E like you recommend. Any thoughts?

+++It won't hurt you to finish them up, since no company can cram that much into

one pill and have it provide the correct amount of nutrients, nor the quality

needed, so they are mostly a waste.

+++But you can take them in addition to taking all of the supplements I

recommend since you won't be overdoing it.

>

> If I get my hormonal issues straightened out do you think that my thyroid will

work better and stop needing thyroid medication? I'm on a low dose now.

+++Most members of this group have been successful in lowering their thyroid

meds and going off them completely. All you need to straighten out your

hormonal issues is this diet and all of the supplements. Your body is smart

enough to balance out all hormones and nutient levels when it gets what it needs

to do its job.

+++Also toxins make all cell membranes rigid/stiff so that makes any organs or

systems malfunction, and it also means hormones that are being produced aren't

able to get into rigid cells. The same is true for nutrients and even water

getting in.

>

> Is fecal body odor related to yeast? You can see from my history that my

system has had quite the shock to it. I know it is related to what I eat but I

could never quite pin point what was causing it. I new higher fat was good for

me, yet the nuts would make it worse. Now I know that it is the way they are

processed.

+++Fecal body odor is mainly caused by the large colon being forced to ferment

carbs because they were not properly prepared before eating them, since our

bodies are not able to break down fibres (which is the cell wall of all plants

foods, i.e. cellulose, etc.). There are only 2 ways to break down fibres and

that is by cooking plant foods long enough, and fermentation like sauerkraut is

made.

+++If you don't cook plant foods long enough or ferment them, your colon has to

do the job, which turns into a seething mass of yeast, bacteria, etc. In other

words it becomes a fermentation chamber that products horrible gas, bloating,

and spread throughout the body causing body odor, in addition toxins being

released.

+++You can therefore be very smelly indeed. See this article about breaking

down plant cell walls:

http://www.healingnaturallybybee.com/articles/veg3.php

+++Also read this Chapter from the Fiber Menace book:

http://www.gutsense.org/fibermenace/fm_chapter1.html

The best in health, Bee

[Guest guest]

Hi Cheri. I too live in SoCal and my son just got his Doc Band yesterday

morning. I felt like it took forever to get the process going & to finally get

the band but now that he has it I too admit I am very anxious about everything!

-Regarding the ear openings on our band - one is pretty wide to the point that

it will never touch the ear even after shifting. But the other side is much

narrower and if he is playing or sleeps on that side the band shifts just a bit

and pushes on his ear. I noticed this happen at the initial fitting and asked

our tech about it and she assured me that this was not a problem and that it was

normal for the band to shift. She told us that if it appeared to bother our son

we could undo the velcro and re-adjust so that the helmet isn't touching the

ear. He played all day yesterday and every time i looked at him it was against

the ear but he didn't seem to mind it at all.

-I asked about a fan as well and was told that it was fine to use a fan but to

put it on low.

-my son is on the larger side as well but I'm still not sure his clothing would

fit over the band without a bit of a struggle. He was sweating pretty badly in

his band yesterday - not sure if it was due to it being his first day and his

body not being used to it or if it was due to the hot weather - so we removed it

every few hours for just a few seconds to wipe off his head and to try and soak

up some of the sweat from inside the band. We also have to remove the band when

we change him to do a neck stretching exercise so we use a towel to pull as much

sweat off the band at that time as well. We also dress him during one of his

1st changes since the band will be off for the exercise anyway. These little

breaks for the exercise and to wipe the sweat are never longer than a couple of

minutes as we don't want the band of any longer than it has to be. Our tech

advised us to keep his room cooler than we usually do by opening windows or

using a fan and to only dress him in a onesie - no pants or shorts or long PJs -

as that will help him feel more comfortable and will also help with the red

marks that are made worse by the sweating. We did this last night and he slept

all night with no problems and his redness was way less than it had been

yesterday during the day even after having it on for such a long span without a

break.

Our child care provider has cared for children wearing the bands before and she

reassured me that removing the band even every hour for just a minute to wipe of

the sweat wouldn't hurt the process. She had to do this for a few of the

children she had with bands and all still had wonderful results. She just

reminded us not to keep it off but for a minute or two to wipe it out and then

put it right back on.

We haven't had him out running errands or anything yet but I am expecting

questions and looks once we do. We have our reponse ready as well and hopefully

it will educate people about this problem since for me I had never heard of

plagio or brachy prior to our doctor giving us our prescription for an

evaluation. Have you decorated the band or do you plan to? Or will you just

leave it white? I want to decorate it but I'm not a creative or artistic person

so if you hear of any great resources or places that decorate in our area please

let me know! I think i want to do decals or stickers or at least use someone

quick and local as i don't want to have the band off for any time outside of the

one hour if possible. Lastly - do you have any issue with the band across the

forehead coming a bit forward and squishing down on his eyes almost causing him

to squint or squish the skin between his eyes? Our band keeps doing that to our

son and we try to re-adjust but it goes right back. the tech said it was fine

but it looks so uncomfortable having his forehead and eyes squished down a bit

but he doesn't seem to mind so maybe its all in my head

Thanks & Good luck to you & your son!!

Wendi

>

> Hello,

>

> I've been reading the archives and catching up on posts the last few weeks.

> My son got his Doc Band last Thursday to treat his brachy which was measured

> at 94%. I had been trying to deal with the flat spot since he was 8 wks

> using positional techniques but nothing helped. I had to wait until he

> reached 4 months before our insurance would cover the little bit that they

> did.

>

> So the break in period went fine. He didn't really care that he was wearing

> it until it was time to goto bed and he couldn't rub is eyes like he likes

> too. Poor guy. He did develop a pretty bad red spot on his right temple this

> last Sunday so after going into the CT on Monday I was told to leave it off

> until the spots gone. I put the band back on tonight and hopefully all goes

> well. I'm going in at 10 pm to take it off and check for redness. We've had

> some pretty hot weather here in SoCal this last week and I'm looking forward

> to it cooling down for his sake. I think his sores happened because I didn't

> take it off soon enough when he was hot and sweating.

>

> This weekend we were out and about several times. I really wasn't sure what

> type of reactions I'd get to people seeing him wearing it. I admit I was a

> bit anxious. So far nobody has even asked me about it. They either ignore

> him or they stare and just don't ask. I'm prepared with my reply for when I

> am asked about it so either way, I just thought it has been interesting the

> lack of inquires.

>

> I have a few questions that I've been wondering about since I've actually

> started this journey.

>

> 1. Those with the Doc Band, how close to the ear was the band on the side

> opposite the Velcro? My son's is pretty close to his ear and when it shifts,

> it bends it just a bit. I'm kind of annoyed that the opening for the ear

> wasn't placed better. Is that a common problem and how worried should I be

> about the ear bending over?

>

> 2. After cleaning it with alcohol, is it okay to put it in front of a fan on

> high? The first few days it got kinda stinky. I'm anticipating it happening

> again since we're starting over. The fan really helped dry it faster.

>

> 3.Dressing, do most of you have to take the band off when you're dressing

> your kids? My son is a pretty big baby so he's already wearing larger sizes

> that are on the bigger end right now on him. Guess that's a good thing.

>

> 4. In the hot weather, do you just say every 2 hours you'll take it off real

> quick to wipe their heads and the inside of the band? I'm just trying to

> avoid the problem we just had with the red spot forming.

>

> I'm so looking forward to a time when I don't have to worry about his head

> shape and whether the way he's laying is making things worse. I'm finding it

> hard to relax when he's wearing the band. Should I continue to be careful

> the way he's laying? CT says no, I don't need to worry. And he can sleep in

> any position he likes, which is flat on his back of course.

>

> Thanks in advance and thanks for the supportive group.

>

> Cheri & , 4 1/2 months

>