New here

March 1, 2006

In a message dated 2/27/2006 11:56:27 P.M. Central Standard Time, my_name_iz_lisa@... writes:

Hi everyone, I just joined this group in hopes of answers to a fewquestions. I am 27 years old, I have psoriatic arthritis. I've been onenbrel for about 2 years, when I'm not getting a stupid cold. Theenbrel does help but not like it should by now. My rhuem has suggestedknee replacement surgery for both knees, one question about that ishas anyone had both knees done? And do they do both at the same time?After the knees are done and healed, the elbows are next. I have anappt with a surgeon on March 3rd. I'm not even sure what they will do,but I've been told I might have problems with them doing the jointreplacement surgery cause I'm so young.

Hi , gosh I thought that I was the young one and I'm 45. My arthritis did start when I was 26 though. I've had both of my knees now, just not at the same time, 3 months apart. The last one was 3 1/2 weeks ago. I think if I were you're age I would go for both at the same time. I really, really, considered it, but my Dr. sort of didn't want to do it. I'm so excited about getting this last one done and over with. Write me anytime.

March 1, 2006

Thanks everyone who replied. I did go through about 3 years of

physical therapy, it did help a little got me moving again more, but

not that much more. Of course the enbrel has helped some too. I

really trust my rheum, shes been my rheum for the past 5 years. I

only see her every 6 months now, but I can call when I need

something, she will do pretty much anything I ask. Actually I just

went to see her today, not much went on there though. Friday is my

surgeon appt, I'm still kinda nervous about it, but I'll get over

it. Everyones replies have made it easier, now I know what I'm

getting myself into. But I will still say if its going to help I'm

all for it. Nothing else seems to really be helping. Once again

thanks everyone. I need to go to my bed, its 1:15am now and shopping

day tomorrow, I can't wait till I can actually go in a store and be

able to walk around again, for now I use the electric wheelchairs.

My insurance won't cover one unless I can't walk at all.

>

> In a message dated 2/27/2006 11:56:27 P.M. Central Standard Time,

> my_name_iz_lisa@... writes:

>

> Hi everyone, I just joined this group in hopes of answers to a few

> questions. I am 27 years old, I have psoriatic arthritis. I've

been on

> enbrel for about 2 years, when I'm not getting a stupid cold. The

> enbrel does help but not like it should by now. My rhuem has

suggested

> knee replacement surgery for both knees, one question about that

is

> has anyone had both knees done? And do they do both at the same

time?

> After the knees are done and healed, the elbows are next. I have

an

> appt with a surgeon on March 3rd. I'm not even sure what they

will do,

> but I've been told I might have problems with them doing the joint

> replacement surgery cause I'm so young.

>

> Hi , gosh I thought that I was the young one and I'm 45. My

arthritis

> did start when I was 26 though. I've had both of my knees now,

just not at

> the same time, 3 months apart. The last one was 3 1/2 weeks

ago. I think if I

> were you're age I would go for both at the same time. I really,

really,

> considered it, but my Dr. sort of didn't want to do it. I'm so

excited about

> getting this last one done and over with. Write me anytime.

>

March 3, 2006

, here is a site that will give you all the info. you can take in!

miraclemountian.homestead.com/MiracleMountian.html

& Colburn <cordis7@...> wrote: Hi All,

I joined this group because of my son, 25 mos, who has a history of

infantile spasms (severe childhood epilepsy) and developmental

delay. He had seizures (30-200/day) which we were unable to control

for over a year. He has tried numerous medications as well as the

ketogenic diet. Finally, in June 05 they just stopped. There were

no recent changes to meds so we suspect he outgrew them; however,

they left him severely cognitively delayed.

He has made amazing physical strides since the seizures stopped -

going from infrequent rolling and unsteady sitting to running and

managing uneven ground easily in only 9 mos. The cognitive changes

we have seen have been much slower and I am looking for options to

help him reach his full potential.

I have heard a little about HBOT on other boards but I am fairly

ignorant on the details so I am started to educate myself. We live

in Northern Virginia. Any suggestions for recommended

reading/studies/experiences with HBOT in children with a history of

seizures or where I could go to get treatment and info on Medicaid

coverage would be greatly appreciated.

I look forward to learning from you all. God bless the Internet!!!

, mom to Cordis, dx Infantile Spasms @6 mos, seizure free

almost 9 mos!

" I know the plans I have for you, " declares the Lord, " plans to prosper you

and not to harm you, plans to give you a future and a hope. " [ 29:11]

_._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._.

Join the International Hyperbaric Medical Association

http://www.hyperbaricmedicalassociation.org/docs/JOIN_Friends_Apr04.pdf

Is HBOT at your hospital?

http://apps.nlm.nih.gov/medlineplus/directories/index.cfm

EPSDT decisions http://healthlaw.org/pubs/200308.epsdtdocket.html

Unrestricted downloads of 50+ pdf files on HBOT efficacy

medicaid/files/ ,

2/files/ and

http://www.drneubauerhbo.com/papers.htm

Download your state EPSDT program

http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the word

" ameliorate " . State Medicaid websites

http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver programs:

http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

Find a hyperbaric clinic http://www.netnet.net/mums/hbolistAK-FL.htm,

http://www.netnet.net/mums/hbolistGA-NC.htm,

http://www.netnet.net/mums/hbolistOH-WI.htm

HBOT can save billions of dollars and millions of heartaches. Subscribe to

by sending a blank email to

mailto:medicaid-subscribe

March 4, 2006

I can tell you from the standpoint of cognitive that is one of the

very first things you will see improvment in. I think everyone that does

HBOT say's that is the very first thing they notice. My daughters web page

is http:\\home.fullmoonwebs.com\katysplace\ there are so many other sites to

go to www.lufkinhbo.com or even www.oceanhbo.com vist them all read all

the testimonials. I think you will be amazed as well as pleased.

Darin

[ ] New Here

> Hi All,

>

> I joined this group because of my son, 25 mos, who has a history of

> infantile spasms (severe childhood epilepsy) and developmental

> delay. He had seizures (30-200/day) which we were unable to control

> for over a year. He has tried numerous medications as well as the

> ketogenic diet. Finally, in June 05 they just stopped. There were

> no recent changes to meds so we suspect he outgrew them; however,

> they left him severely cognitively delayed.

>

> He has made amazing physical strides since the seizures stopped -

> going from infrequent rolling and unsteady sitting to running and

> managing uneven ground easily in only 9 mos. The cognitive changes

> we have seen have been much slower and I am looking for options to

> help him reach his full potential.

>

> I have heard a little about HBOT on other boards but I am fairly

> ignorant on the details so I am started to educate myself. We live

> in Northern Virginia. Any suggestions for recommended

> reading/studies/experiences with HBOT in children with a history of

> seizures or where I could go to get treatment and info on Medicaid

> coverage would be greatly appreciated.

>

> I look forward to learning from you all. God bless the Internet!!!

>

> , mom to Cordis, dx Infantile Spasms @6 mos, seizure free

> almost 9 mos!

>

> " I know the plans I have for you, " declares the Lord, " plans to prosper

> you and not to harm you, plans to give you a future and a hope. " [

> 29:11]

> _._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._.

> Join the International Hyperbaric Medical Association

> http://www.hyperbaricmedicalassociation.org/docs/JOIN_Friends_Apr04.pdf

>

> Is HBOT at your hospital?

> http://apps.nlm.nih.gov/medlineplus/directories/index.cfm

>

> EPSDT decisions http://healthlaw.org/pubs/200308.epsdtdocket.html

>

> Unrestricted downloads of 50+ pdf files on HBOT efficacy

> medicaid/files/ ,

> 2/files/ and

> http://www.drneubauerhbo.com/papers.htm

>

> Download your state EPSDT program

> http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the

> word " ameliorate " . State Medicaid websites

> http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver

> programs: http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

>

> Find a hyperbaric clinic http://www.netnet.net/mums/hbolistAK-FL.htm,

> http://www.netnet.net/mums/hbolistGA-NC.htm,

> http://www.netnet.net/mums/hbolistOH-WI.htm

>

> HBOT can save billions of dollars and millions of heartaches. Subscribe to

> by sending a blank email to

> mailto:medicaid-subscribe

>

March 16, 2006

In a message dated 3/15/2006 10:24:45 AM Eastern Standard Time,

hepbex@... writes:

New here but not new to autism. Alot of drama in this house. Managed

kaos most of the time. Son 11 asperger, mom and dad bipolar recovering

alcoholics, 9 rabbits and one cat.

Remember when we were growing up and there was that one family in the

neighborhood that was a bit " eccentric " ? Yup thats us.

Anyway, looking foward to chating w/ y'all.

Welcome eccentric people! Glad you found us!

Roxanna ô¿ö

Autism Happens

March 17, 2006

Hi as I was just writing that's about when we noticed the

flat spot on my son 6 weeks. The spot was small then. Shortly after

the doctor noticed his neck was not strong enough, waited another

month to see if it would develop muscle on its own and then he was

diagnosed with torticollis. He hated tummy time because it's

uncomfortable.

Just keep a close eye on it and maybe mention to your doctor to check

his neck. Does he struggle with tummy time, favor sleeping on one

side, looking to one direction? those are signs of tort.

My son's small flat spot developed quickly to a severe flat spot by

month 4.

Keep up the repositioning it can help! Best of luck

Sherry

Chase (7 1/2 months

tort.

DOCband 2/15

NYC

>

> Hi! I found this site thru a link from NightForm.com. My son is 6

> weeks old and has developed a flat spot on the right side since he

> favors that side when he sleeps. No matter what I do to reposition

him

> at night, he still ends up laying on that side. We are doing lots

of

> tummy time and when I hold him, I hold him tummy to chest so his

head

> isn't pressured in any one way. The pedi said to just repostion him

> and stimulate him on his left...but easier said than done! I guess

I

> am just hoping this will correct itself?? But am looking at the

> nightform bed to help with the positioning. In the past I have used

> rolled up blanket and the Boppy Noggin Nest in the swing. I don't

like

> leaving him in the swing a lot, plus he is still so small that the

> noggin nest seems to be uncomfortable for him.

> I see a lot of posters have children who are a few months old.

Anyone

> dealing with this so early?

>

> BTW I am and my son is - 6 weeks old.

>

March 17, 2006

Hi as I was just writing that's about when we noticed the

flat spot on my son 6 weeks. The spot was small then. Shortly after

the doctor noticed his neck was not strong enough, waited another

month to see if it would develop muscle on its own and then he was

diagnosed with torticollis. He hated tummy time because it's

uncomfortable.

Just keep a close eye on it and maybe mention to your doctor to check

his neck. Does he struggle with tummy time, favor sleeping on one

side, looking to one direction? those are signs of tort.

My son's small flat spot developed quickly to a severe flat spot by

month 4.

Keep up the repositioning it can help! Best of luck

Sherry

Chase (7 1/2 months

tort.

DOCband 2/15

NYC

>

> Hi! I found this site thru a link from NightForm.com. My son is 6

> weeks old and has developed a flat spot on the right side since he

> favors that side when he sleeps. No matter what I do to reposition

him

> at night, he still ends up laying on that side. We are doing lots

of

> tummy time and when I hold him, I hold him tummy to chest so his

head

> isn't pressured in any one way. The pedi said to just repostion him

> and stimulate him on his left...but easier said than done! I guess

I

> am just hoping this will correct itself?? But am looking at the

> nightform bed to help with the positioning. In the past I have used

> rolled up blanket and the Boppy Noggin Nest in the swing. I don't

like

> leaving him in the swing a lot, plus he is still so small that the

> noggin nest seems to be uncomfortable for him.

> I see a lot of posters have children who are a few months old.

Anyone

> dealing with this so early?

>

> BTW I am and my son is - 6 weeks old.

>

March 17, 2006

Hi ,

Welcome to the group! :-) It sounds as if your baby may have

torticollis. It's a tight, twisted muscle in the neck. You can learn

more about it by going here:

http://www.infant-torticollis.org/

http://www.pedisurg.com/PtEduc/Torticollis.htm

http://www.drhull.com/EncyMaster/T/torticollis.html

Most plagio babies have tort also. My baby had tort, she went to

physical therapy 3 times a week for 3 months. Maybe you should have

him evaluated for torticollis. Don't be surprised if your pediatrican

doesn't know much about it. It took me 4 months and 3 different

doctors to get my daughter's tort diagnosed. If your ped isn't

educated about tort you could go see a physical therapist who is

familiar with infant tort.

At 6 weeks old you should be able to correct this, but it's going to

be very hard if he does have tort! Aggressive repositioning has to be

done 24 hours a day every day. It's hard work but it does work. You

have to limit or eliminate his time in the swing, car seat, bouncy

seat and infant seat.

You are so lucky to have caught this at such a young age! Good for you

for being so proactive about this. :-)

Keep us posted on your little one.

>

> Hi! I found this site thru a link from NightForm.com. My son is 6

> weeks old and has developed a flat spot on the right side since he

> favors that side when he sleeps. No matter what I do to reposition him

> at night, he still ends up laying on that side. We are doing lots of

> tummy time and when I hold him, I hold him tummy to chest so his head

> isn't pressured in any one way. The pedi said to just repostion him

> and stimulate him on his left...but easier said than done! I guess I

> am just hoping this will correct itself?? But am looking at the

> nightform bed to help with the positioning. In the past I have used

> rolled up blanket and the Boppy Noggin Nest in the swing. I don't like

> leaving him in the swing a lot, plus he is still so small that the

> noggin nest seems to be uncomfortable for him.

> I see a lot of posters have children who are a few months old. Anyone

> dealing with this so early?

>

> BTW I am and my son is - 6 weeks old.

>

March 17, 2006