New here

[Guest guest]

Hi Bonnie:

Welcome. It sounds like you are doing the best thing already, which is to read

the material Bee sent you so you begin to understand how this diet works and

why. Although it will cure any Candida issues you have, it is an overall health

program that strengthens your immune system so that your body can heal itself.

There are many success stories from this group and you may want to read some of

those too. Lots of women on this board have come here with various " women's

issues " and they are healing, so you will have lots of support here.

This is a very active board, so take the time to read things through. Look

around on Bee's site because it is a wealth of information. In fact, you can

often get answers to questions quickly and thoroughly by searching Bee's site

with a keyword or phrase that's describes your question.

Once you read through things, you can get back to us with any questions you

have, and many of your questions may have been asked and answered before, so you

can always search the message group too. Remember to follow Bee's advice when

reading old messages. Sometimes members have ideas that Bee will need to

correct or give an adjustment to.

Here is the starter reading material again just to make sure you have it:

Please ensure you read two important articles so you understand candida, and

know what you need to do and why:

1) How to Successfully Overcome Candida

http://www.healingnaturallybybee.com/articles/intro2.php

2) Curing Candida, How to Get Started

http://www.healingnaturallybybee.com/articles/intro1.php

For encouragement and inspiration see these wonderful Success Stories by members

of this group: http://www.healingnaturallybybee.com/success/index.php

The only way to cure candida:

Candida cannot be cured by " killing it off. " It just doesn't work that way.

Candida is only cured by building up the immune system, which is done by:

1) Consuming " proper nutrients " (diet plus supplements),

2) Eliminating toxins and foods that feed candida (they also feed bacteria and

cancer),

3) Eliminating damaging foods, and

4) Eliminating toxins in general.

When the immune system is strong enough it will automatically " make " candida (or

any bug, cancer, etc.) change back into the microbe it was before.

Welcome!

Marissa (a group moderator)

> My name is Bonnie. First day w/women's chronic pain syndrome, was recommended

here. Reading thru. Words of wisdom?

>

[Guest guest]

My Daughter went two weeks ago to the 1st appointment. You have to wait for the insurance to get approved, before they will go any further. We got approved and she goes tomorrow for the Pictures. Then she will go back in two weeks to get fitted for the band. We are going with Cranial Technology in Dallas, Tx. I am nervous, but it will help her have beautiful head. Please don't think it is your fault. It is just something that happens. We care for are children the best we can. This is just something that needs to be done.

From: kandmrod <kandmrod@...>Subject: New HerePlagiocephaly Date: Wednesday, February 24, 2010, 3:18 PM

I found this board through Cranial Technologies. My son is 5 1/2 months old and we go tomorrow for the measurements and get started thing for his DOC Band. I have been very upset feeling like I failed. I am getting no support from my husband which only makes this harder for me. He doesn't believe in this kind of stuff. I have been reading a lot and am looking forward to decorating the helmet (I really need to find a positive so this is what it will be). I would really like any info regarding this process. How long after this appointment tomorrow will it be before we get the helmet what should I expect tomorrow?

[Guest guest]

Hi! Our daughter just got her band from CT a week ago. At our first appt they took her measurements and then they contacted our insurance. After they got the approval (took about a week) then they made her appt for imaging. That was another week, and she got her helmet two weeks from that appointment.

My husband was not supportive at first either after we were referred to and saw the specialist. Then several people told us to get a second opinion, after that we were both more comfortable and my husband was on board. I guess the way the second specialist explained things and spoke with us in a way that made it easier.

My mother-in-law was also very against it until she came with me to the first appointment at CT. Since then she is so happy that we got it and she is great about it. Maybe if your husband comes to the first CT appointment it might help him come around.

You did NOT fail!!! I know I was crying and felt the same way. (Especially after seeing the first specialist) And it gets so much easier, I promise. My friend got us some neat vinyl decals at s of ladybugs, butterflies, etc. They are so cute and easy to apply and remove later if you want to change it up. They made the band so much cuter and honestly if my friend hadn't gotten them I might not have gotten around to decorating it and I'm glad I did.

Don't worry, it will be ok, I promise!

From: kandmrod <kandmrod@...>Subject: New HerePlagiocephaly Date: Wednesday, February 24, 2010, 1:18 PM

I found this board through Cranial Technologies. My son is 5 1/2 months old and we go tomorrow for the measurements and get started thing for his DOC Band. I have been very upset feeling like I failed. I am getting no support from my husband which only makes this harder for me. He doesn't believe in this kind of stuff. I have been reading a lot and am looking forward to decorating the helmet (I really need to find a positive so this is what it will be). I would really like any info regarding this process. How long after this appointment tomorrow will it be before we get the helmet what should I expect tomorrow?

[Guest guest]

This sounds very familiar. I always thought my 6 1/2 year old was what they

call " spirited " . In the back of my mind, I always suspected it might be

something more, but everyone else thought I was over-reacting. We even met with

the author of The Spirited Child, who is local and does behavioral consults.

She suggested that this was more than she was familiar with and she raised her

own spirited child!

We've been very lucky so far that they don't see any major issues at school, but

as she gets older her anxiety and meltdowns are getting worse at home. I feel

like it's only a matter of time before something sets her off at school and she

just can't keep it together until she gets home, which is what she does now. So

we are pursuing a diagnosis for her. We have our pre-assessment meeting on

Monday. She is on a 6-8 month waiting list for the actual diagnostic testing,

but I'm hoping we can get her bumped up the list a little when we are there on

Monday because life is just getting unmanageable at home with all her behaviors.

I feel like we really need help soon.

So,I would go ahead and pursue a diagnosis for your daughter. I'm a teacher and

I've decided I can't wait for the school system to help me with this, because

they aren't seeing what I am, so we are doing it on our own and then we'll take

whatever we discover to the schools. I'm fairly certain she has Asperger's and

so I believe the time will come when I'll need to have that diagnosis in my

pocket in order to get her the support she will need in school.

She doesn't have the GI issues that your daughter does, but she also perceives

herself as very different from other kids. I know what you mean about the

social piece. In the past few months, when she misreads a social situation she

starts saying " I'm so stupid " and then she starts crying. It's just breaking my

heart. I hope no one has called her stupid, but I'll probably never know. I

just know in my heart we have to pursue a diagnosis. I just feel at a loss

lately to help her through what she is going through.

Good luck to you. I'm sure you'll make the right decision for your daughter.

Just trust yourself. You know her best.

>

> Hi everyone,

> I think my 5 and 1/2 year old daughter may have Asperger's. it's been very

difficult to get an accurate diagnosis and often I get dismissed as an overly

concerned mother.

>

> My daughter has issues with social interactions, motor delays, reciprocal

language problems, anxiety, severe angry outbursts, and difficulty with change.

However, most people view her as having behavioral problems and my husband will

refer to it as being " bratty " .

>

> I feel so frustrated because the school took away all her services at 5 years

old so I held her back from kindergarten and kept her in preschool.

>

> I am worried about her starting kindergarten in the fall. I think they will

put her in an inclusion class but I think I need to get her a diagnosis also.

>

> She is on a very restricted diet due to GI issues and that really bothers her

and makes her feel different from the other kids. This adds to the social

problems.

>

> Can anyone relate to this?

> Would really appreciate feedback!

>

>

[Guest guest]

Hi ,

Thanks for the help. I am going to keep pursuing the diagnosis.

Best wishes for you too,

> >

> > Hi everyone,

> > I think my 5 and 1/2 year old daughter may have Asperger's. it's been very

difficult to get an accurate diagnosis and often I get dismissed as an overly

concerned mother.

> >

> > My daughter has issues with social interactions, motor delays, reciprocal

language problems, anxiety, severe angry outbursts, and difficulty with change.

However, most people view her as having behavioral problems and my husband will

refer to it as being " bratty " .

> >

> > I feel so frustrated because the school took away all her services at 5

years old so I held her back from kindergarten and kept her in preschool.

> >

> > I am worried about her starting kindergarten in the fall. I think they will

put her in an inclusion class but I think I need to get her a diagnosis also.

> >

> > She is on a very restricted diet due to GI issues and that really bothers

her and makes her feel different from the other kids. This adds to the social

problems.

> >

> > Can anyone relate to this?

> > Would really appreciate feedback!

> >

> >

>

[Guest guest]

Hi Marni!

So glad you found the group...even with my not being able to figure out how to

send a link from the iPhone...lol!

It is so difficult at first...but for us...one year later...we have settled into

our new 'normal'. Some days are easier than others...some days there is still a

range of not so nice emotions...and yes some days there is still denial. But

it's all normal. And as you get further into treatment and she starts feeling

better...some days you will actually be able to forget all about the JA.

You are still so new in this world...and hopefully now that you are dealing with

a known diagnosis...Jess will be able to get the right treatment and finally

start feeling better.

This is a great group of very experienced moms...I'm still so new that other

than support I don't have much to offer.

&

Sent from my iPhone

[Guest guest]

Hi Marni,

Mtx takes at least 6-8 weeks before it begins to work. It takes

about a full year to get to optimum dose in the body. Generally, the

game plan is to start mtx and slowly wean off the prednisone as the

mtx starts to work. But sometimes, a child needs more than mtx. If

mtx doesn't do the trick, then another medication is usually added

and that is a biological medication like enbrel.

You take mtx for as long as it works. You can take it for decades.

If your child is taking mtx and all of their symptoms are under

control, then that is called a medicated remission. The trick is

then to find out if the medication is keeping them in remission or if

the disease has truly gone away. I believe the current thinking is

that your child should be in this medicated remission for a year

before even thinking of tapering the medication. The medication is

then tapered and you hold your breath to see if the symptoms reappear

or not.

The goal is to get the disease under total control. No swelling or

pain means that there is no joint destruction going on. (a general

rule-nothing is precise with this disease)

I hope this helps. (n, 21, systemic)

On Mar 29, 2010, at 9:33 AM, marnifrank wrote:

> Hello all. I am new here and I guess I just wanted to introduce

> myself before I added my 2 cents to anything. I have a 13 year old

> daughter who was recently diagnoised with JRA. She suffered for

> about 3 years, in and out of hospitals before we finally received

> the diagnosis of an unclassical presentaion of JRA. suffers

> mostly in her hips & knees though it travels to other and obscure

> joints. I read on someones post about the jaw. Yes, this happened

> to Jess. Her jaw locked shut. So bizarre.

>

> Jess is not on her 8th week of MTX 6 pills once a week and is still

> on Methylpred. We tried to cut the dosage of the Prednisone last

> week and she flared in her knees. How long is okay to be on this

> stuff? It has been 3 months? And how do you know when to go off?

> This is all so confusing.

>

> As far as someone pain killer question. I use Advil mostly but when

> it becomes too much we used codien tylenol with not much effect. So

> we now have a prescription for Tramadol. We don't use it too

> often. This is very hard for us as a family becuase we are not big

> " drug " users. We prefer natural healing methods and such. But, pain

> is pain and who could bare to watch their child suffer.

>

> Well, as I write here I am still in somewhat of a denial. Like I do

> not belong. But, here I am. I am eager to hear others stories, seek

> advice and give it where I can. I never knew how " flaring " worked

> and that one day your are relatively fine and the next you can't

> walk! Amazing stuff. I am currenly having my youger daughter

> testing as well. Her ankles always hurt!

>

> Good luck to us all!

>

>

[Guest guest]

Hi Marni,

is right - you will need to wean your daughter offf the pred slowly -

following the rheumy's direction. It can take time. If you are not successful

weaning the pred without flares, then the next step would be to add another

medication to gain control and allow you to taper the pred dose.

My son was on pred for years - at varying doses. There are a lot of potential

side affects with the pred, so the best thing is to treat this disease

aggressively at the onset - this will help control the arthritis, prevent

permanent damage to the joints and hopefully allow a successful drop of the

pred.

Wishing you and your daughter all of the best.

Val

Rob's Mom (12,systemic)

Re: new here

Hi Marni,

Mtx takes at least 6-8 weeks before it begins to work. It takes

bout a full year to get to optimum dose in the body. Generally, the

ame plan is to start mtx and slowly wean off the prednisone as the

tx starts to work. But sometimes, a child needs more than mtx. If

tx doesn't do the trick, then another medication is usually added

nd that is a biological medication like enbrel.

You take mtx for as long as it works. You can take it for decades.

f your child is taking mtx and all of their symptoms are under

ontrol, then that is called a medicated remission. The trick is

hen to find out if the medication is keeping them in remission or if

he disease has truly gone away. I believe the current thinking is

hat your child should be in this medicated remission for a year

efore even thinking of tapering the medication. The medication is

hen tapered and you hold your breath to see if the symptoms reappear

r not.

The goal is to get the disease under total control. No swelling or

ain means that there is no joint destruction going on. (a general

ule-nothing is precise with this disease)

I hope this helps. (n, 21, systemic)

On Mar 29, 2010, at 9:33 AM, marnifrank wrote:

> Hello all. I am new here and I guess I just wanted to introduce

myself before I added my 2 cents to anything. I have a 13 year old

daughter who was recently diagnoised with JRA. She suffered for

about 3 years, in and out of hospitals before we finally received

the diagnosis of an unclassical presentaion of JRA. suffers

mostly in her hips & knees though it travels to other and obscure

joints. I read on someones post about the jaw. Yes, this happened

to Jess. Her jaw locked shut. So bizarre.

Jess is not on her 8th week of MTX 6 pills once a week and is still

on Methylpred. We tried to cut the dosage of the Prednisone last

week and she flared in her knees. How long is okay to be on this

stuff? It has been 3 months? And how do you know when to go off?

This is all so confusing.

As far as someone pain killer question. I use Advil mostly but when

it becomes too much we used codien tylenol with not much effect. So

we now have a prescription for Tramadol. We don't use it too

often. This is very hard for us as a family becuase we are not big

" drug " users. We prefer natural healing methods and such. But, pain

is pain and who could bare to watch their child suffer.

Well, as I write here I am still in somewhat of a denial. Like I do

not belong. But, here I am. I am eager to hear others stories, seek

advice and give it where I can. I never knew how " flaring " worked

and that one day your are relatively fine and the next you can't

walk! Amazing stuff. I am currenly having my youger daughter

testing as well. Her ankles always hurt!

Good luck to us all!

[Guest guest]

Welcome and feel free to ask anything. For me hear palps were mostly magnesium

related. I don't have then with 400 mg of mag glycinate (other types may work

as well) and three Epsom salts soaks per week.

Joan

candidiasis

From: rhodac@...

Date: Sun, 25 Apr 2010 06:17:37 +0000

Subject: new here

Hello everyone.

My name is Rhonda and I'm new here. I've left Bee's group for what I'm hoping is

a happier, healthier place. I did the candida diet (the one everyone seems to be

on here) for 4 months and then one evening while searching for a solution to my

constipation woes, joined Bee's cult-like group. After 2 weeks on her diet and

200 to 250 grams of fat a day, I lost approx 7 lbs (on top of the 10 I lost on

your diet) and gained a serious case of heart palpitaions. Being a naturally

thin person I felt I was becoming too thin and that the diet was not healthy for

me.

My candida symptoms started to show about 3 years with hypoglycemia and anemia.

I developed thrush in my mouth about a year ago. I feel that a bout with c

dificile and 6 weeks of antibiotics 10 years ago has brought me to this place. I

have started to eat red meat after 20 years of abstinence and the thrush has

dissipated. I would like to continue my journey into proper health but would

like to know if it's possible to beat candida. Bee's group takes an instant

dislike to you if you ask too many hard qestions.

Thank you all very much.

Rhonda

_________________________________________________________________

Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox.

http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\

-US:WM_HMP:042010_1

[Guest guest]

Rhonda,

Welcome to the group. Yes, I agree with you Bee's group is a dictatorship and

Bee's business. Anyway, you will find mixed information about if candida can be

cured or not. I call a cure to recover your health but trust me, when candida

overgrowth in the gut, it is hard to reverse. Candida always will be a part of

your inner ecology so to eliminate it from your body could be impossible. Did

you take antibiotics for 6 continue weeks or separated courses??? If you had C.

Dificile, Flagyl or Vancomycin come to my mint.

.

>

> Hello everyone.

>

> My name is Rhonda and I'm new here. I've left Bee's group for what I'm hoping

is a happier, healthier place. I did the candida diet (the one everyone seems to

be on here) for 4 months and then one evening while searching for a solution to

my constipation woes, joined Bee's cult-like group. After 2 weeks on her diet

and 200 to 250 grams of fat a day, I lost approx 7 lbs (on top of the 10 I lost

on your diet) and gained a serious case of heart palpitaions. Being a naturally

thin person I felt I was becoming too thin and that the diet was not healthy for

me.

>

> My candida symptoms started to show about 3 years with hypoglycemia and

anemia. I developed thrush in my mouth about a year ago. I feel that a bout with

c dificile and 6 weeks of antibiotics 10 years ago has brought me to this place.

I have started to eat red meat after 20 years of abstinence and the thrush has

dissipated. I would like to continue my journey into proper health but would

like to know if it's possible to beat candida. Bee's group takes an instant

dislike to you if you ask too many hard qestions.

>

> Thank you all very much.

>

> Rhonda

>

[Guest guest]

Hi ,

I was originally treated for a staph infection from a surgical procedure. I was

hospitalized and given 4 intravenious doses of 2 different antibiotics per day

(8 doses in total)for 1 week. I don't remember what either of those antibiotics

were. I was then sent home with a 2 week prescription of clydamiacin 4 times a

day. At the end of the two week period I developed symptoms of c. dificile but

was misdiagnosed for 10 days until I was again hospitalized. I was treated with

vancomyacin for 2 weeks so technically I was only given 5 weeks of antibiotics

and there was a 10 day break in the middle.

I didn't think that I could get rid of candida entirely but I do feel remarkably

better than I did when I started the diet and that's enough. If I need to be on

this diet for the rest of my life - I'm ok with that. I just couldn't imagine

being on Bee's diet for that long. I really felt uncomfortable over there.

Thank you very much.

Rhonda

> >

> > Hello everyone.

> >

> > My name is Rhonda and I'm new here. I've left Bee's group for what I'm

hoping is a happier, healthier place. I did the candida diet (the one everyone

seems to be on here) for 4 months and then one evening while searching for a

solution to my constipation woes, joined Bee's cult-like group. After 2 weeks on

her diet and 200 to 250 grams of fat a day, I lost approx 7 lbs (on top of the

10 I lost on your diet) and gained a serious case of heart palpitaions. Being a

naturally thin person I felt I was becoming too thin and that the diet was not

healthy for me.

> >

> > My candida symptoms started to show about 3 years with hypoglycemia and

anemia. I developed thrush in my mouth about a year ago. I feel that a bout with

c dificile and 6 weeks of antibiotics 10 years ago has brought me to this place.

I have started to eat red meat after 20 years of abstinence and the thrush has

dissipated. I would like to continue my journey into proper health but would

like to know if it's possible to beat candida. Bee's group takes an instant

dislike to you if you ask too many hard qestions.

> >

> > Thank you all very much.

> >

> > Rhonda

> >

>

[Guest guest]

I would like to know what diet are you following. Please, describe it.

.

> > >

> > > Hello everyone.

> > >

> > > My name is Rhonda and I'm new here. I've left Bee's group for what I'm

hoping is a happier, healthier place. I did the candida diet (the one everyone

seems to be on here) for 4 months and then one evening while searching for a

solution to my constipation woes, joined Bee's cult-like group. After 2 weeks on

her diet and 200 to 250 grams of fat a day, I lost approx 7 lbs (on top of the

10 I lost on your diet) and gained a serious case of heart palpitaions. Being a

naturally thin person I felt I was becoming too thin and that the diet was not

healthy for me.

> > >

> > > My candida symptoms started to show about 3 years with hypoglycemia and

anemia. I developed thrush in my mouth about a year ago. I feel that a bout with

c dificile and 6 weeks of antibiotics 10 years ago has brought me to this place.

I have started to eat red meat after 20 years of abstinence and the thrush has

dissipated. I would like to continue my journey into proper health but would

like to know if it's possible to beat candida. Bee's group takes an instant

dislike to you if you ask too many hard qestions.

> > >

> > > Thank you all very much.

> > >

> > > Rhonda

> > >

> >

>

[Guest guest]

I've just come off 2 weeks on Bee's diet but have slowly switched back to my

original candida diet. It is:

No bread (substitute coconut flour and buckwheat for small scone 1 x day)

No grain except brown and wild rice and quinoa (1/4 cup 4 x week)

No sugar (substituting with yacon syrup - less than 1/4 tsp. day

Protein from meat and eggs 3 x day

No fruit besides 1/4 cup berries/day and lemons and limes

Lots of green leafy and all but starchy veggies every day

No dairy except butter and 1/4 cup yogurt/day

Lots of almonds (raw and in butter form)

Some beans (lentils and black mostly) less than 1/4 cup every other day.

Supplementing with

4 tbsp. coconut oil day

Olive leaf extract

chlorophyll supplement

digestive enzymes

Like I said, I feel very well - besides a significant case of constipation. Some

times it's so rotten I miss the c. diff.

Thank you for your time,

Rhonda

> > > >

> > > > Hello everyone.

> > > >

> > > > My name is Rhonda and I'm new here. I've left Bee's group for what I'm

hoping is a happier, healthier place. I did the candida diet (the one everyone

seems to be on here) for 4 months and then one evening while searching for a

solution to my constipation woes, joined Bee's cult-like group. After 2 weeks on

her diet and 200 to 250 grams of fat a day, I lost approx 7 lbs (on top of the

10 I lost on your diet) and gained a serious case of heart palpitaions. Being a

naturally thin person I felt I was becoming too thin and that the diet was not

healthy for me.

> > > >

> > > > My candida symptoms started to show about 3 years with hypoglycemia and

anemia. I developed thrush in my mouth about a year ago. I feel that a bout with

c dificile and 6 weeks of antibiotics 10 years ago has brought me to this place.

I have started to eat red meat after 20 years of abstinence and the thrush has

dissipated. I would like to continue my journey into proper health but would

like to know if it's possible to beat candida. Bee's group takes an instant

dislike to you if you ask too many hard qestions.

> > > >

> > > > Thank you all very much.

> > > >

> > > > Rhonda

> > > >

> > >

> >

>

[Guest guest]

The " No grain " rule includes the " no exotic grain " and the " no brown rice " rules

-- grains and seeds feed candida and other pathogens because they are mostly

starch.

Duncan

>

> I've just come off 2 weeks on Bee's diet but have slowly switched back to my

original candida diet. It is:

> No bread (substitute coconut flour and buckwheat for small scone 1 x day)

> No grain except brown and wild rice and quinoa (1/4 cup 4 x week)

> No sugar (substituting with yacon syrup - less than 1/4 tsp. day

> Protein from meat and eggs 3 x day

> No fruit besides 1/4 cup berries/day and lemons and limes

> Lots of green leafy and all but starchy veggies every day

> No dairy except butter and 1/4 cup yogurt/day

> Lots of almonds (raw and in butter form)

> Some beans (lentils and black mostly) less than 1/4 cup every other day.

> Supplementing with

> 4 tbsp. coconut oil day

> Olive leaf extract

> chlorophyll supplement

> digestive enzymes

>

> Like I said, I feel very well - besides a significant case of constipation.

Some times it's so rotten I miss the c. diff.

>

> Thank you for your time,

>

> Rhonda

>

[Guest guest]

I'm assuming exotic grain is quinoa? I am listening to my body and it's telling

me that quinoa is ok as is coconut. The brown rice and buckwheat are causing

some problems and they are coming out of the routine. My main problem is weight

loss and I HAVE to keep some carbs in my diet so I don't lose any more weight.

I'm 6' and I'm down to 120lbs.

Thanks,

Rhonda

> >

> > I've just come off 2 weeks on Bee's diet but have slowly switched back to my

original candida diet. It is:

> > No bread (substitute coconut flour and buckwheat for small scone 1 x day)

> > No grain except brown and wild rice and quinoa (1/4 cup 4 x week)

> > No sugar (substituting with yacon syrup - less than 1/4 tsp. day

> > Protein from meat and eggs 3 x day

> > No fruit besides 1/4 cup berries/day and lemons and limes

> > Lots of green leafy and all but starchy veggies every day

> > No dairy except butter and 1/4 cup yogurt/day

> > Lots of almonds (raw and in butter form)

> > Some beans (lentils and black mostly) less than 1/4 cup every other day.

> > Supplementing with

> > 4 tbsp. coconut oil day

> > Olive leaf extract

> > chlorophyll supplement

> > digestive enzymes

> >

> > Like I said, I feel very well - besides a significant case of constipation.

Some times it's so rotten I miss the c. diff.

> >

> > Thank you for your time,

> >

> > Rhonda

> >

>

[Guest guest]

Upstage, what you're missing when you lose weight isn't carbs but bioavailable

protein, which is specifically indicated in the Physicians Desk Reference for

Prescription Drugs to keep weight on even in illness. The only natural product

in that reference book for some time was undenatured whey protein, listed as an

anti-wasting tool, an anti-oxidant tool, and a chemotherapeutic agent even on

its own. There might be a reference for that on my references page:

http://tinyurl.com/glutathione-references

Duncan

> > >

> > > I've just come off 2 weeks on Bee's diet but have slowly switched back to

my original candida diet. It is:

> > > No bread (substitute coconut flour and buckwheat for small scone 1 x day)

> > > No grain except brown and wild rice and quinoa (1/4 cup 4 x week)

> > > No sugar (substituting with yacon syrup - less than 1/4 tsp. day

> > > Protein from meat and eggs 3 x day

> > > No fruit besides 1/4 cup berries/day and lemons and limes

> > > Lots of green leafy and all but starchy veggies every day

> > > No dairy except butter and 1/4 cup yogurt/day

> > > Lots of almonds (raw and in butter form)

> > > Some beans (lentils and black mostly) less than 1/4 cup every other day.

> > > Supplementing with

> > > 4 tbsp. coconut oil day

> > > Olive leaf extract

> > > chlorophyll supplement

> > > digestive enzymes

> > >

> > > Like I said, I feel very well - besides a significant case of

constipation. Some times it's so rotten I miss the c. diff.

> > >

> > > Thank you for your time,

> > >

> > > Rhonda

> > >

> >

>

[Guest guest]

Feel the same way about Bee's group. No healing vibe there.

I have read many stories regarding people who have conquered candida. I have not

experienced it myself yet, but I choose to believe it is possible. My problem is

staying away from sugar. I long to be able to say I did the diet for months like

you.

I too have had constipation trouble. I now use Bioxy. Only thing that works for

me.

All the best to you.

Regards,

Bonnie

________________________________

From: upstageinteriors01 <rhodac@...>

candidiasis

Sent: Sat, April 24, 2010 11:17:37 PM

Subject: new here

 

Hello everyone.

My name is Rhonda and I'm new here. I've left Bee's group for what I'm hoping is

a happier, healthier place. I did the candida diet (the one everyone seems to be

on here) for 4 months and then one evening while searching for a solution to my

constipation woes, joined Bee's cult-like group. After 2 weeks on her diet and

200 to 250 grams of fat a day, I lost approx 7 lbs (on top of the 10 I lost on

your diet) and gained a serious case of heart palpitaions. Being a naturally

thin person I felt I was becoming too thin and that the diet was not healthy for

me.

My candida symptoms started to show about 3 years with hypoglycemia and anemia.

I developed thrush in my mouth about a year ago. I feel that a bout with c

dificile and 6 weeks of antibiotics 10 years ago has brought me to this place. I

have started to eat red meat after 20 years of abstinence and the thrush has

dissipated. I would like to continue my journey into proper health but would

like to know if it's possible to beat candida. Bee's group takes an instant

dislike to you if you ask too many hard qestions.

Thank you all very much.

Rhonda

[Guest guest]

Hi Darren,

Welcome to the group. I'm old (45 haha). I dealt with back pain for years

because of a spinal cord issue so I can relate to the pain coming and going or

at least the severity going up and down. I had my first cord surgery when I was

41. Maybe some of the others can give you suggestions for alternatives for disk

surgery. I did have a neck fusion but I don't believe those are as painful or as

difficult to recover from compared to the lower back.

If your pain comes and goes or at least eases at times, I honestly would

postpone surgery for as long as possible. I don't know what the rate is for

actual successful lower back surgery, but it's relatively low. I think doctors

believe a successful surgery means that the disk is repaired and you can still

walk, doesn't matter if your pain is the same or better! I also believe that the

disks above and below the fusion level start to degenerate after a fusion.

I hope you find something that eases the pain so that you can continue to have

an active life for years to come.

Barb

>

> Hi,

>

> I'm new to the group - I joined a few months ago, but haven't been checking

this email account - and I wanted to introduce myself.

>

> I'm 25 years old, and I have spinal stenosis and herniated discs at L4/5 and

L5/S1. I've done physical therapy (help, but only so much), epidural steroid

injections (didn't help), and medication (celebrex, neurontin, tylenol -

celebrex is a miracle, and neurontin helps a ton with the numbness in my leg).

I'm pretty active and physically fit, and I've never had surgery. My back was

injured in an accident a couple years ago.

>

> I have a couple questions for the group. First, what kind of doctors usually

manage your conditions? Orthopedic surgeon, sports medicine, neurologist,

primary care, someone else? I mostly see my primary care doctor, but I've also

seen orthopedic surgeons (who did my injections) and sports medicine doctors.

I've had trouble finding someone other than my primary care doctor to see

long-term. Everyone else wants to perform a procedure and then send me back on

my way.

>

> Second, what options have you all tried, besides surgery and the things I

mentioned above? I've been given surgical consults a couple times in the past

few years, but I never go through with it. My symptoms (pain, weakness,

numbness) are constant, but the severity comes and goes. Just when I'm ready to

see someone about surgery, the pain gets somewhat better I decide to wait &

see...

>

> And finally, are there any other youngish people on this list? I feel like

I'm mostly able to deal with the pain and other limitations right now, but I

worry about how things will change as I get older...

>

> Darren

>

[Guest guest]

Darren, I completely agree with Barb. I had back surgery 11 years ago

and have been searching for relief ever since.

Just put it off as long as possible and know that the success rate is

rarely heard of. I would take the pain that I used to have over what

I have now.

Mine was for spinal stenois, fusion with plates and screws and then

neuropathy came from what other Drs call failed back surgery.

Good luck to you.

Lois

On 5/2/10, Barb <ellijaygal@...> wrote:

>

> Hi Darren,

>

> Welcome to the group. I'm old (45 haha). I dealt with back pain for years

> because of a spinal cord issue so I can relate to the pain coming and going

> or at least the severity going up and down. I had my first cord surgery when

> I was 41. Maybe some of the others can give you suggestions for alternatives

> for disk surgery. I did have a neck fusion but I don't believe those are as

> painful or as difficult to recover from compared to the lower back.

>

> If your pain comes and goes or at least eases at times, I honestly would

> postpone surgery for as long as possible. I don't know what the rate is for

> actual successful lower back surgery, but it's relatively low. I think

> doctors believe a successful surgery means that the disk is repaired and you

> can still walk, doesn't matter if your pain is the same or better! I also

> believe that the disks above and below the fusion level start to degenerate

> after a fusion.

>

> I hope you find something that eases the pain so that you can continue to

> have an active life for years to come.

>

>

> Barb

>

>

>

>

>>

>> Hi,

>>

>> I'm new to the group - I joined a few months ago, but haven't been

>> checking this email account - and I wanted to introduce myself.

>>

>> I'm 25 years old, and I have spinal stenosis and herniated discs at L4/5

>> and L5/S1. I've done physical therapy (help, but only so much), epidural

>> steroid injections (didn't help), and medication (celebrex, neurontin,

>> tylenol - celebrex is a miracle, and neurontin helps a ton with the

>> numbness in my leg). I'm pretty active and physically fit, and I've never

>> had surgery. My back was injured in an accident a couple years ago.

>>

>> I have a couple questions for the group. First, what kind of doctors

>> usually manage your conditions? Orthopedic surgeon, sports medicine,

>> neurologist, primary care, someone else? I mostly see my primary care

>> doctor, but I've also seen orthopedic surgeons (who did my injections) and

>> sports medicine doctors. I've had trouble finding someone other than my

>> primary care doctor to see long-term. Everyone else wants to perform a

>> procedure and then send me back on my way.

>>

>> Second, what options have you all tried, besides surgery and the things I

>> mentioned above? I've been given surgical consults a couple times in the

>> past few years, but I never go through with it. My symptoms (pain,

>> weakness, numbness) are constant, but the severity comes and goes. Just

>> when I'm ready to see someone about surgery, the pain gets somewhat better

>> I decide to wait & see...

>>

>> And finally, are there any other youngish people on this list? I feel

>> like I'm mostly able to deal with the pain and other limitations right

>> now, but I worry about how things will change as I get older...

>>

>> Darren

>>

>

>

>

[Guest guest]

Welcome to the group, Darren. You have everything I have and I certainly

understand  your situation. I am 63 and had surgery 2 years ago, NO

CHOICE, as my disc were breaking up. I hope you find someone to help you go

though this. My thoughts  are with you.Jefferie

    JEFF!

________________________________

From: Lois Churchill <mickyk13@...>

spinal problems

Sent: Sun, May 2, 2010 10:56:39 AM

Subject: Re: Re: new here

 

Darren, I completely agree with Barb. I had back surgery 11 years ago

and have been searching for relief ever since.

Just put it off as long as possible and know that the success rate is

rarely heard of. I would take the pain that I used to have over what

I have now.

Mine was for spinal stenois, fusion with plates and screws and then

neuropathy came from what other Drs call failed back surgery.

Good luck to you.

Lois

On 5/2/10, Barb <ellijaygal (DOT) com> wrote:

>

> Hi Darren,

>

> Welcome to the group. I'm old (45 haha). I dealt with back pain for years

> because of a spinal cord issue so I can relate to the pain coming and going

> or at least the severity going up and down. I had my first cord surgery when

> I was 41. Maybe some of the others can give you suggestions for alternatives

> for disk surgery. I did have a neck fusion but I don't believe those are as

> painful or as difficult to recover from compared to the lower back.

>

> If your pain comes and goes or at least eases at times, I honestly would

> postpone surgery for as long as possible. I don't know what the rate is for

> actual successful lower back surgery, but it's relatively low. I think

> doctors believe a successful surgery means that the disk is repaired and you

> can still walk, doesn't matter if your pain is the same or better! I also

> believe that the disks above and below the fusion level start to degenerate

> after a fusion.

>

> I hope you find something that eases the pain so that you can continue to

> have an active life for years to come.

>

>

> Barb

>

>

>

>

>>

>> Hi,

>>

>> I'm new to the group - I joined a few months ago, but haven't been

>> checking this email account - and I wanted to introduce myself.

>>

>> I'm 25 years old, and I have spinal stenosis and herniated discs at L4/5

>> and L5/S1. I've done physical therapy (help, but only so much), epidural

>> steroid injections (didn't help), and medication (celebrex, neurontin,

>> tylenol - celebrex is a miracle, and neurontin helps a ton with the

>> numbness in my leg). I'm pretty active and physically fit, and I've never

>> had surgery. My back was injured in an accident a couple years ago.

>>

>> I have a couple questions for the group. First, what kind of doctors

>> usually manage your conditions? Orthopedic surgeon, sports medicine,

>> neurologist, primary care, someone else? I mostly see my primary care

>> doctor, but I've also seen orthopedic surgeons (who did my injections) and

>> sports medicine doctors. I've had trouble finding someone other than my

>> primary care doctor to see long-term. Everyone else wants to perform a

>> procedure and then send me back on my way.

>>

>> Second, what options have you all tried, besides surgery and the things I

>> mentioned above? I've been given surgical consults a couple times in the

>> past few years, but I never go through with it. My symptoms (pain,

>> weakness, numbness) are constant, but the severity comes and goes. Just

>> when I'm ready to see someone about surgery, the pain gets somewhat better

>> I decide to wait & see...

>>

>> And finally, are there any other youngish people on this list? I feel

>> like I'm mostly able to deal with the pain and other limitations right

>> now, but I worry about how things will change as I get older...

>>

>> Darren

>>

>

>

>

[Guest guest]

Darren,

As far as a doctor to oversee your back. You could just see your orthropeadic

surgeon every six months to a year to monitor what is going on with you back.

That way if something is going badly and you need surgery to prevent paralysis,

you have someone who has been actively involved with you. You can decide on a

plan on how often to x-rays and or MRIs. The option is if the bones in the

spine are a problem as well, you might want to consider going to a

rheumatologist. They can help with osteoarthritis.

There is one thing that you didn't mention on things you have done. That is

massage. Half hour deep tissue massage on your lower back as often as you can

afford might help. I know massage helped me before I knew that what my problem

was facet joint arthritis. That was caused by Rheumatoid Arthritis, that has

caused degenerative spinal issues up and down my spine.

So, keep asking questions of us, and your doctors. Next time you go to your

doctor had a written list of questions, and take someone in with you to the

appointment to take notes. This isn't because you do not trust your doctor, but

that like a lot of us in pain, we just do not remember everything.

Good luck,

[Guest guest]

In my opinion, you did great catching it at 15 weeks. There are a few moms on this list who successfully repositioned their babies and didn't need bands, but at 15 weeks, this is nearly the end of when that works well. As soon as the baby is able to roll over and move well, it is hard to keep the baby in position.

I was given some repositioning advice by my ped, but it wasn't nearly as good as some of the advice that I've read and heard elsewhere. Maybe one of the moms that did aggressive repositioning can give you some advice here.

Also, if you really want to avoid a band, you could try alternative treatments - cranial osteopathy, cranial sacral therapy, and chiropractic are three of the most common done with young babies and toddlers. I should mention that not everyone believes in these, so you will have to make that determination for yourself. Personally, I would have done it with a 15 week old for at least a month before pursuing a band. I did them along with a band and feel that we have had improvements from them.

At the same time, I would begin to research band options in your area. It may also be possible to get some before and after measurements so that you can see whether your other efforts are helping the head.

Good luck

, mom to , 2 2/3 years

STARband grad May 11, 2009

Chiro and CST

land

New here

Hi - I just joined since my 15 week old son's head has been getting flatter due to his tortocollis. Unfortunately, I am a new mom and our pediatrician is terrible so I didn't quite catch it earlier. We are starting PT 2xs a week and already I see improvements. I guess my question to everyone is if you see the plagio, catch it somewhat early and it is not too severe (the PT said he had a moderate case) can it be reversed without the aid of a helmet? Thanks!

[Guest guest]

Hi! Welcome! I'm sorry you're having a difficult time with your pediatrician.

Maybe it's time to find someone else... Anyway, it's good that your son is just

three months old. That means you have the opportunity to get really good

correction of his head shape.

To answer your question, not many people get full correction without a helmet,

but since your son is fairly young, you may see some correction with the PT,

repositioning, and extra tummy time. Depending on his amount of asymmetry and

how well he takes to repositioning, it could be enough correction to avoid a

helmet. FYI - Many insurance won't pay for a helmet for a young baby unless you

try this first.

If it were me, my suggestion would be to go to a helmet fitter and get an

evaluation even if you are happy with trying repositioning first. It will give

you an idea of his measurements so you know how much asymmetry/flattening he

has. You will find out if he has plagiocephaly or brachycephaly. It will also

give you a " baseline " so you know if the repositioning is working. And, you will

start a paperwork trail for insurance that will help you show you tried

repositioning first. I don't know about the other helmet providers personally,

but I know when I went to Cranial Tech, they went over repositioning techniques

with me. You can also find a lot of repositioning ideas online on the different

plagio/brachy sites. You don't have to get the helmet right away. You can

reevaluate in a couple months if you want to.

Here are the sites for the three major helmet providers so you can find out who

is in your area. Hanger and Cranial Tech do free evaluations. You might want to

call your insurance company or the provider and find out if your insurance

contracts with any of the helmet providers.

http://www.cranialtech.com/ (DOC Band)

http://www.orthomerica.com/products/cranial/cranialindex.htm (STARband)

http://www.hanger.com/orthotics/services/plagiocephaly/Pages/default.aspx

(Hanger Cranial Band)

You can also try going to a Craniofacial Team (CFT) neurosurgeon who knows a lot

about plagio/brachy and is supportive of treating it. I strongly suggest you

don't just go to anyone in your area as some neurosurgeons don't support

treatment of plagio/brachy and can be dismissive. Only go to someone who comes

highly recommended in the plagio/brachy community, or better yet go to a helmet

fitter first instead. Here is the site to find a CFT neurosurgeon. FYI, don't

choose someone who is just a CPT. That means Cleft Palate Team.

http://www.cleftline.org/team_listings/choose_team_listings

Good luck and keep us posted!

>

> Hi - I just joined since my 15 week old son's head has been getting flatter

due to his tortocollis. Unfortunately, I am a new mom and our pediatrician is

terrible so I didn't quite catch it earlier. We are starting PT 2xs a week and

already I see improvements. I guess my question to everyone is if you see the

plagio, catch it somewhat early and it is not too severe (the PT said he had a

moderate case) can it be reversed without the aid of a helmet? Thanks!

>

[Guest guest]

Hi .  I just wanted to welcome you to our wonderful group.  I am sorry

but I don't know anything about Fibro.  I sure hope you find out what is

causing all your symptons.  I hope you get on some good meds. that will help

you.  I am sure it is very hard for you to try and function each day feeling as

you do.

 

A lot of people here will be able to answer some of your questions.  Wishing

you better days ahead.

 

I lived on Cape Cod and moved here to Florida because of my RA.  I could not

tolerate the bad winters anymore.

 

Take care.

 

Hugs,

 

Barbara

[Guest guest]

      Welcome, sorry that you are having the kind of pain you explain, I am

no Dr but I sounds allot like RA. When I first started seeing my rheumy my RA

factor was also neg. and I had 2 markers for Lupus but he said it was just OA,

but I was not in a flare the first two visits. On the third visit I was in a

full blown flare up, my rheumy said  " you are in the early stages of RA and it

seems to be very aggressive, I felt like saying No S**t but I just said that's

what I figured. RA runs very heavy on my moms side and I just knew that I had

it. I just can't tell you my mixed feelings, I was relieved to finally have

someone acknowledge what I was going through. When he put me on the med for RA

it helped allot. Just hang in there and keep going till you get the proper dx.

sometimes it takes several visits for the Dr to see the progression of the

disease.

    May you have pain free days and again welcome.  ....Randy....

 

________________________________

From: <anelica1016@...>

Sent: Sat, May 15, 2010 12:11:33 PM

Subject: [ ] New Here

 

Hi everyone. I am new to this forum. I have yet to get a diagnosis but am in

alot of pain. My hands and wrists mostly. I have had three operations on my

hands and synovitis and tenosynovitis have been found. I also have all over body

pain. Ankles, knees, hips, lower back, neck and so forth. I have tested negative

for RA, SED and thyroid. My hands are getting so bad that its hard to sleep. I

cannot bend my fingers in the morning and they swell up. I have went from a ring

finger 4 1/4 to size 6. I also have osteoporosis. My aunt has RA and grandmother

severe osteoarthritis.

>

> I am on Cellebrex and it takes the edge off. If I don't take it, I get achy

all over and feel like I have the flu, no temp though.

>

> I have been told I might have fibromyalgia but I thought swelling wasn't part

of that diagnosis. Any info would be appreciated. I live in Framingham, MA