Hello Everyone

March 6, 2005

In a message dated 3/6/05 6:58:19 PM Eastern Standard Time,

giggles_sk@... writes:

> I am terribly scared and I understand by the medical professionals

> that I have a tad of a journey ahead of me.

>

Giggles,

What kind of cancer were you diagnosed with and what treatments are you

seeking?

There are many knowledgable people on this list that can offer information

that you can then chose to explore further for your recovery plans.

March 6, 2005

what kind of cancer do you have and what do the doctors say?

C

giggles_sk <giggles_sk@...> wrote:

Hello:

I joined the group for support and further understanding in dealing

with my recent diagnoses of cancer.

I am terribly scared and I understand by the medical professionals

that I have a tad of a journey ahead of me.

giggles

March 16, 2005

Hi Geoff, If you don't mind me asking what your other " couple more conditions "

are? I have a 17 mo old son who has congenital hypothyroidism basically due to

midline birth defects. You can check out his website in my signature if you

would like. I really like talking to adults about it all as my son cannot tell

me how he feels. I think that's the hardest part for me. I don't know what he is

going through as I have never had any of his issues. Thanks

Amy

Wife to wonderful husband Mark and mommy to Tyler (10), Kaylee (7), Spencer (6)

and Chance (15 months, PACC,SOD,ONH,DI,hypothyroid,GHD)

Chance's Webpage

http://home.comcast.net/~tknbychance/wsb/html/view.cgi-home.html-.html

Hello Everyone

Hi Folks,

Geoff Here, just joined today.

Had Hypo since birth but it wasnt diagnosed till i was 3yo,

apparantly my parents had to carry me everywhere & I could'nt talk

until i started on medication after that & have been taking it ever

since. I have annual blood tests to check levels.

I am 55 year young now & as I have a couple more conditions &

think , what the hell, today is for living, Go for it!.

If, through my experiences, I can help anyone, pls. feel free to

leave me a message in hte group or e-mail me. Its nice to have

people who can empathise with a condition & not class us as

hypochondriacs.

Looking forward to meeting (metaphorically) likeminded-minded people

& maybe meeting neww friends, that woudl be nice.

Take Care Everyone, Bye for now

Geoff

March 17, 2005

Hey how are you?

My name is Natt and I was also born hypothyroid. Im now 19 and

besides having to take medication until im extinct ive had no

problems. If you have any questions you would like answered, ill

definately have a go at them for you.

> Hi Geoff, If you don't mind me asking what your other " couple more

conditions " are? I have a 17 mo old son who has congenital

hypothyroidism basically due to midline birth defects. You can check

out his website in my signature if you would like. I really like

talking to adults about it all as my son cannot tell me how he

feels. I think that's the hardest part for me. I don't know what he

is going through as I have never had any of his issues. Thanks

> Amy

> Wife to wonderful husband Mark and mommy to Tyler (10), Kaylee

(7), Spencer (6) and Chance (15 months,

PACC,SOD,ONH,DI,hypothyroid,GHD)

>

> Chance's Webpage

> http://home.comcast.net/~tknbychance/wsb/html/view.cgi-home.html-

..html

> Hello Everyone

>

> Hi Folks,

> Geoff Here, just joined today.

>

> Had Hypo since birth but it wasnt diagnosed till i was 3yo,

> apparantly my parents had to carry me everywhere & I could'nt

talk

> until i started on medication after that & have been taking it

ever

> since. I have annual blood tests to check levels.

>

> I am 55 year young now & as I have a couple more conditions &

> think , what the hell, today is for living, Go for it!.

>

> If, through my experiences, I can help anyone, pls. feel free to

> leave me a message in hte group or e-mail me. Its nice to have

> people who can empathise with a condition & not class us as

> hypochondriacs.

>

> Looking forward to meeting (metaphorically) likeminded-minded

people

> & maybe meeting neww friends, that woudl be nice.

>

> Take Care Everyone, Bye for now

> Geoff

>

July 28, 2005

i've heard good things about baclofen. i can't take muscle relaxers, but if i

could... i would want to take that one.

congrat's on your new doctor. it makes all the difference in the world.

-mel

> Hi all. These past two weeks for me have been crazy. My pain gets worse

and

> worse every day, and now I have pain and numbness in both of my feet. I

have

> been bounced around from dr. to dr. all this past week, and one tells me I

> will need surgery in probably 6 months or so for the herniated discs and the

> nerves they are pinching, but only prescribed a chiropractor and a soft back

> brace ( already tried those and they did not work) and looked at me like I

> was crazy for asking for something for pain. Another told me I am not a

> candidate for surgery and would only prescribe physical therapy to help the

> pain. This one only prescribed Ultram because they never prescribe

narcotics

> for pain relief unless its for post op. I get about as much pain relief from

> Ultram as I do from a glass of water.

>

> Finally, I went to see a pain specialist yesterday and he was Fantastic. He

> spent more than an hour with me, went over all the pain and numbness I

have

> been having, and he actually LISTENED to me!!He prescribed Oxycodone

> extended release to take routinely for pain, Oxycodone fast release to take

> for breakthru pain, Elavil to help me sleep and Baclofen for muscle spasms.

> I am finally getting some relief now after constant suffering over the past

> 3 months. I am so happy to have actually found a physician who cares.

>

> Has anyone ever taken Baclofen before? This is a new one to me and I

would

> like to know if anybody has had good results with it.

>

> Thanks for listening

>

July 28, 2005

Hi !

I've been taking Baclofen (10 mg, 3 times a day) for about two years

now. It works better than flexoril or soma for me. It does wonders

for that 'tremor' type thing that makes my bones feel like they're

shaking loose. I have spinal stenosis and a few other 'spondo...'

thingies. I've just started with the pain clinic in St. Louis

(where Reeve went- superman). The doc I saw was VERY

understanding and explained lots to me. I'm waiting for an MRI and

return to the clinic on Sept. 1. I hope to write the group about

the experience, in the mean time I'm having a rough go of it-

swelling, cramps,etc...

So, try the baclofen!!

GBY

> Hi all. These past two weeks for me have been crazy. My pain gets

worse and

> Has anyone ever taken Baclofen before? This is a new one to me and

I would

> like to know if anybody has had good results with it.

>

> Thanks for listening

>

July 29, 2005

Hello , I must say...I have been taking the baclofen three times daily

for 3 days now, and I feel no relief from the back spasms. I think my doc

is going to have to change this one to a different one. Over the past 10

years, I think I have tried all the muscle relaxers, and the ONLY one that

has ever worked for me is Soma. I was given a Valium on one visit to the ER

that worked well also.

Oh Well! I guess I can tough it out til my next dr. visit.

Thanks

-- Re: Hello everyone

Hi !

I've been taking Baclofen (10 mg, 3 times a day) for about two years

now. It works better than flexoril or soma for me. It does wonders

for that 'tremor' type thing that makes my bones feel like they're

shaking loose. I have spinal stenosis and a few other 'spondo...'

thingies. I've just started with the pain clinic in St. Louis

(where Reeve went- superman). The doc I saw was VERY

understanding and explained lots to me. I'm waiting for an MRI and

return to the clinic on Sept. 1. I hope to write the group about

the experience, in the mean time I'm having a rough go of it-

swelling, cramps,etc...

So, try the baclofen!!

GBY

> Hi all. These past two weeks for me have been crazy. My pain gets

worse and

> Has anyone ever taken Baclofen before? This is a new one to me and

I would

> like to know if anybody has had good results with it.

>

> Thanks for listening

>

August 20, 2005

Hi Marina,

Will keep you in my prayers, get some much needed rest, T

> Hello to everyone!! I haven't posted a whole heck of a lot

lately.

> We have been soooo busy at work that the only thing I can do when I

> get home is lay down in bed and try to rest. I have a 3 day

weekend

> this weekend, so I am most definately looking forward to that!! I

> have been flaring since last week and I started myself back up on

> the prednisone. I hate doing that cause all I want to do is eat!!

> But, it does help settle things down.

>

> Saw my orthopedist yesterday. He wants to have my right ankle and

> knee scoped. He also wants to do trigger finger release in both my

> thumbs. He said there really isn't any point in doing the

> injections first because with RA in almost ALWAYS ends up in

> surgery. Oh joy!! He will inject them for me when I want, we work

> together!! One of the perks of working in surgery with your own

> doc. I'm just not ready for the surgery of any kind at this

point.

> If it gets any worse, I may try an injection, but after what our

Ken

> went through, I think I may just wait it out!! :-) As for the knee

> and ankle, that will have to wait. I know being on my feet all day

> doesn't help it, but it is still tolerable at this point. I think

> I'm getting used to having pain all day, everyday!!

>

> I also wanted to say hey to everyone and welcome to all the

> newbie's!! I have come to think of this group as the " pot of gold

> at the end of the rainbow " .

>

> I hope everyone has a wonderful weekend and as painfree as possible

>

> Gentle hugs to all......Marina

August 20, 2005

I hate takining the predisone too but cause it makes me sweat so badm its gross,

i take like 3 showers a day. Thanks god its only for the flares and not

everyday!!!! I cant do that, no way. But your right it does help with the

flares, good luck, hope you feel well soon.

Cortnee

marina_troi <marina_troi@...> wrote: Hello to everyone!! I haven't posted

a whole heck of a lot lately.

We have been soooo busy at work that the only thing I can do when I

get home is lay down in bed and try to rest. I have a 3 day weekend

this weekend, so I am most definately looking forward to that!! I

have been flaring since last week and I started myself back up on

the prednisone. I hate doing that cause all I want to do is eat!!

But, it does help settle things down.

Saw my orthopedist yesterday. He wants to have my right ankle and

knee scoped. He also wants to do trigger finger release in both my

thumbs. He said there really isn't any point in doing the

injections first because with RA in almost ALWAYS ends up in

surgery. Oh joy!! He will inject them for me when I want, we work

together!! One of the perks of working in surgery with your own

doc. I'm just not ready for the surgery of any kind at this point.

If it gets any worse, I may try an injection, but after what our Ken

went through, I think I may just wait it out!! :-) As for the knee

and ankle, that will have to wait. I know being on my feet all day

doesn't help it, but it is still tolerable at this point. I think

I'm getting used to having pain all day, everyday!!

I also wanted to say hey to everyone and welcome to all the

newbie's!! I have come to think of this group as the " pot of gold

at the end of the rainbow " .

I hope everyone has a wonderful weekend and as painfree as possible

Gentle hugs to all......Marina

August 21, 2005

Hey there Marina:

I have not posted much myself lately either......but I

do try to read them all..............hope you take

advantage of the long weekend and stay off your feet

abit............

I actually went out for my bday and danced

abit.........paid for it the next day with my knees

but I figure they hurt anyway so why not have some

fun. My wrists have been flaring for a few

days.......so much for getting caught up on housework

and yard work.

Hope you do get some rest..........

Hugs

Pat

--- tdianaok <tdianaok@...> wrote:

> Hi Marina,

> Will keep you in my prayers, get some much needed

> rest, T

>

> > Hello to everyone!! I haven't posted a whole heck

> of a lot

> lately.

> > We have been soooo busy at work that the only

> thing I can do when I

> > get home is lay down in bed and try to rest. I

> have a 3 day

> weekend

> > this weekend, so I am most definately looking

> forward to that!! I

> > have been flaring since last week and I started

> myself back up on

> > the prednisone. I hate doing that cause all I

> want to do is eat!!

> > But, it does help settle things down.

> >

> > Saw my orthopedist yesterday. He wants to have my

> right ankle and

> > knee scoped. He also wants to do trigger finger

> release in both my

> > thumbs. He said there really isn't any point in

> doing the

> > injections first because with RA in almost ALWAYS

> ends up in

> > surgery. Oh joy!! He will inject them for me

> when I want, we work

> > together!! One of the perks of working in surgery

> with your own

> > doc. I'm just not ready for the surgery of any

> kind at this

> point.

> > If it gets any worse, I may try an injection, but

> after what our

> Ken

> > went through, I think I may just wait it out!! :-)

> As for the knee

> > and ankle, that will have to wait. I know being

> on my feet all day

> > doesn't help it, but it is still tolerable at this

> point. I think

> > I'm getting used to having pain all day,

> everyday!!

> >

> > I also wanted to say hey to everyone and welcome

> to all the

> > newbie's!! I have come to think of this group as

> the " pot of gold

> > at the end of the rainbow " .

> >

> > I hope everyone has a wonderful weekend and as

> painfree as possible

> >

> > Gentle hugs to all......Marina

>

__________________________________________________

August 22, 2005

Dancing, Pat? It was soooo worth it, though, wasn't it!! I know I

endulge myself like that every so often, knowing that I will pay for

it later. It's my little way of being defiance of the RA and taking a

little part of my life back. My short moments of denial!! I enjoy

those moments!! LOL......Marina

August 24, 2005

June, what a huge part of your life to give up. I think we have to

choose our battles some days, don't we? You just have to look the

disease in the eye sometimes and tell it where to go. I know that you

treasure that dance with your son and I hope you shook your little

bootie off! That would be worth a WEEK in bed, wouldn't it! what

wonderful memories you must have of that day. You go, girl.

Hugs

Jane

> Jane, I can really relate to the dancing. All my life I have skated

and danced. For many years we hung out with 8 other couples and we

went dancing every Sat. night and I was usually on the floor from

beginning to end. When I had my first knee replacement 8 years ago,

the operation was done Nov. 24 and my eldest son was getting married

again on Feb. 14. There was no way I was not going to have a dance

with my son so I took lots of pain medication and boy did I dance. Of

course I spent two days in bed after but it was sure worth it.

>

> Hugs

> June

> ----------

>

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.338 / Virus Database: 267.10.14/79 - Release Date:

8/22/2005

>

August 26, 2005

You cannot give up. You have love for your family, and more strength

then you know. It is hard when this happens, but we do the best that

we can, and go on. I don't know what to say about your finacial

matter, I know its hard with one income. Have you thought of a part

time job, and your fiance'taking some extra work on? Not sure what to

say. We lived on one income for a over a year until the disability

came in, and it was hard, but we managed.

I am sorry that your still having so much pain, I know how you feel.

I have been in a constant pain for over two years. I am just now

finding some relief, because I found a med combo that works. I wish

that I had a magical answer for you, but I don't. I will keep you in

my prayers, and hope you will feel better soon. You need to talk to

your rheumy, let him know how your feeling, and all the pain that

your in. Your worry about employment.

Hugs, Tawny

> Just a note to thank you all so much for the kind words and for

> letting me know that I am not alone.

>

> I ended up at the hospital on Wednesday morning, unable to move.

The

> pain in my back and legs was excruciating. As soon as I mentioned

RA

> and fibro to the doctor, he just said... " it's JUST a flare-up " I'm

> going to give you a combination steriod shot and a pain shot. Go

rest

> 2 days at home and see your rheumatologist. So 2 more unpaid days

at

> home and I'm back at work.

>

> Financially we are sinking and it's all my fault. I missed a week

and

> a half just 2 weeks ago because my 5 year old had surgery and

needed

> her Momma. I just don't know what to do anymore. My fiance

doesn't

> act upset at me, but he is constantly worrying about money and how

we

> are going to make it. The stress of me knowing that it's my fault

I

> am missing work (and of course it's unpaid because I've used all my

> vacation and sick time already).

>

> I've been reading up on disability. But everything I read just

> discourages me more. According to what I've read being that I'm

just

> 34 will count against me. And I must be NOT WORKING to apply,

right?

> And it will take 3-5 months MINIMUM before approval or denial. So

how

> can we financially survive??? And that's IF I get approval. A 34

> year old with a failed back surgery, rheumatoid arthritis and

> fibromyalgia. I'd probably be denied anyway.

>

> I just don't think I can take much more guys. I love my children

and

> fiance more than words can say and know that my kids needs their

> Momma. But right now, I just want to give up. I just don't have

> anything left to give.

>

> I just can't.

August 26, 2005

Please stop blaming yourself and beating yourself up

for something that you have no control over. It is

not your fault that you have missed work, anymore that

it is any of our fault that our pain and disability

keeps us from working or other activities. Your

children need you much more than you can ever know -

you need to stay strong for them. I know that it must

be terribly hard when you are in so much pain, but

hang in there.

" Just a flare up " , eh? I wish they could have just a

flare up themselves ........ that was just so wrong of

him to say. Yea, a couple of shots and we're going to

be as good as new ....... NOT.

I personally think that you should apply for

disability - with all that you mentioned, I think you

are a good candidate no matter what your age. What's

the harm in trying?

Again, it is not your fault. We, too, have money

problems and I go into the feeling quilty mode too

because I can't find a job that I would be able to do

and not put myself into a flare (RA/Fibro/OA). I am

hoping with my current meds that I can maybe find

something, but, honestly, when you need a job where

you can stand, sit, and move around when you need, or

just sit still when you need, it's kind of hard to

find. It is frustrating, I know. Please keep posting

and let us know how things are going - we are always

here for you -

Kathe in CA

--- casterramom <casterramom@...> wrote:

> Just a note to thank you all so much for the kind

> words and for

> letting me know that I am not alone.

>

> I ended up at the hospital on Wednesday morning,

> unable to move. The

> pain in my back and legs was excruciating. As soon

> as I mentioned RA

> and fibro to the doctor, he just said... " it's JUST a

> flare-up " I'm

> going to give you a combination steriod shot and a

> pain shot. Go rest

> 2 days at home and see your rheumatologist. So 2

> more unpaid days at

> home and I'm back at work.

>

> Financially we are sinking and it's all my fault. I

> missed a week and

> a half just 2 weeks ago because my 5 year old had

> surgery and needed

> her Momma. I just don't know what to do anymore.

> My fiance doesn't

> act upset at me, but he is constantly worrying about

> money and how we

> are going to make it. The stress of me knowing that

> it's my fault I

> am missing work (and of course it's unpaid because

> I've used all my

> vacation and sick time already).

>

> I've been reading up on disability. But everything

> I read just

> discourages me more. According to what I've read

> being that I'm just

> 34 will count against me. And I must be NOT WORKING

> to apply, right?

> And it will take 3-5 months MINIMUM before approval

> or denial. So how

> can we financially survive??? And that's IF I get

> approval. A 34

> year old with a failed back surgery, rheumatoid

> arthritis and

> fibromyalgia. I'd probably be denied anyway.

>

> I just don't think I can take much more guys. I

> love my children and

> fiance more than words can say and know that my kids

> needs their

> Momma. But right now, I just want to give up. I

> just don't have

> anything left to give.

>

> I just can't.

>

Kathe in CA

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

August 26, 2005

I second that statement!! Just a flare up, just once I wished they could get one

too, or my family members so they understand one fraction of my daily pain!!!!

Cortnee

Kathe Sabetzadeh <lv2ryd@...> wrote:

Please stop blaming yourself and beating yourself up

for something that you have no control over. It is

not your fault that you have missed work, anymore that

it is any of our fault that our pain and disability

keeps us from working or other activities. Your

children need you much more than you can ever know -

you need to stay strong for them. I know that it must

be terribly hard when you are in so much pain, but

hang in there.

" Just a flare up " , eh? I wish they could have just a

flare up themselves ........ that was just so wrong of

him to say. Yea, a couple of shots and we're going to

be as good as new ....... NOT.

I personally think that you should apply for

disability - with all that you mentioned, I think you

are a good candidate no matter what your age. What's

the harm in trying?

Again, it is not your fault. We, too, have money

problems and I go into the feeling quilty mode too

because I can't find a job that I would be able to do

and not put myself into a flare (RA/Fibro/OA). I am

hoping with my current meds that I can maybe find

something, but, honestly, when you need a job where

you can stand, sit, and move around when you need, or

just sit still when you need, it's kind of hard to

find. It is frustrating, I know. Please keep posting

and let us know how things are going - we are always

here for you -

Kathe in CA

--- casterramom <casterramom@...> wrote:

> Just a note to thank you all so much for the kind

> words and for

> letting me know that I am not alone.

>

> I ended up at the hospital on Wednesday morning,

> unable to move. The

> pain in my back and legs was excruciating. As soon

> as I mentioned RA

> and fibro to the doctor, he just said... " it's JUST a

> flare-up " I'm

> going to give you a combination steriod shot and a

> pain shot. Go rest

> 2 days at home and see your rheumatologist. So 2

> more unpaid days at

> home and I'm back at work.

>

> Financially we are sinking and it's all my fault. I

> missed a week and

> a half just 2 weeks ago because my 5 year old had

> surgery and needed

> her Momma. I just don't know what to do anymore.

> My fiance doesn't

> act upset at me, but he is constantly worrying about

> money and how we

> are going to make it. The stress of me knowing that

> it's my fault I

> am missing work (and of course it's unpaid because

> I've used all my

> vacation and sick time already).

>

> I've been reading up on disability. But everything

> I read just

> discourages me more. According to what I've read

> being that I'm just

> 34 will count against me. And I must be NOT WORKING

> to apply, right?

> And it will take 3-5 months MINIMUM before approval

> or denial. So how

> can we financially survive??? And that's IF I get

> approval. A 34

> year old with a failed back surgery, rheumatoid

> arthritis and

> fibromyalgia. I'd probably be denied anyway.

>

> I just don't think I can take much more guys. I

> love my children and

> fiance more than words can say and know that my kids

> needs their

> Momma. But right now, I just want to give up. I

> just don't have

> anything left to give.

>

> I just can't.

>

Kathe in CA

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

September 30, 2005

Rita wrote:

>Hi Caryn,

>Forgive me but what is NT?

>I know I have to read all the files but haven't done it yet.

It's a book: http://www.amazon.com/exec/obidos/tg/detail/-/0967089735/

--

Ross McKay, Toronto, NSW Australia

" Let the laddie play wi the knife - he'll learn "

- The Wee Book of Calvin

October 23, 2005

Channing

What do you mean by chronic autoimmune hives and chronic itching? My

husband has many symptoms of hypoT but the Va. Doc says his test are

normal so he doesn't have it " HAHA " . Of course he beleives them. He

has had itching for several years now, usually when he goes to bed

ends up getting up and taking a shower before he can get it to stop.

Recelently he has developed a very bad rash on his feet. Looks like

little red dots & itches really bad. Dr. gave him Hydrocortizone

cream. Said she did not know what it is. Cream has helped. I am

HypoT.

Dottie

-- In hypothyroidism , " Channing Ashbaugh "

<channing28270@y...> wrote:

>

> Questions I Have

>

> 1. I have Hypothyroidism and I suffer from chronic Autoimmune

hives

> and chronic itching is there anyone with Hypothyroidism other that

me

> that has chronic Autoimmune hives and itching?

>

> If you know the answers please e-mail me at channing28270@y... I

> am looking for snail mail pen pals that can keep my postal mail

box

> full that deal with chronic Autoimmunne Hives.I would like the

people

> who would like to be my pen pal to please understand and accept I

> write short letters with questions only. If you would like to be

my

> pen pal please e-mail me at channing28270@y...

>

> Channing

>

October 23, 2005

My feet do that too!!!!! Uncontrollable itching I did and did until I bleed

and it still itches!!!!!

_____

From: hypothyroidism [mailto:hypothyroidism ]

On Behalf Of moveson03

Sent: Sunday, October 23, 2005 11:10 PM

hypothyroidism

Subject: Re: Hello everyone