RE: Neurontin Problems and Class Action Lawsuit

[Guest guest]

Could you tell us some of the issues associated with Neurontin please? I have taken it for some time and have found it helps a lot with many of my symptoms. I should be sorry to have to give it up.

Penny> I wanted to pass along some information that i just found out, there> is a class action lawsuit beign filed in several states about> neurontin beign prescribed off label. My husband and I both take> Neurontin for medical problems adn we both had severe issues and just> know found out that it was all associated with the neurontin. I belong> to several Fibro groups and i know that there are others besides me> that are takign neurontin for Fibro so I wanted to pass this info> along maybey it can help someone else.> > Kristy

[Guest guest]

Do you know if it could have some bearing on Lyrica at all? What problems? I ask because lyrica and neurontin are supposed to be so similar.

-H

I wanted to pass along some information that i just found out, there

is a class action lawsuit beign filed in several states about

neurontin beign prescribed off label. My husband and I both take

Neurontin for medical problems adn we both had severe issues and just

know found out that it was all associated with the neurontin. I belong

to several Fibro groups and i know that there are others besides me

that are takign neurontin for Fibro so I wanted to pass this info

along maybey it can help someone else.

Kristy

[Guest guest]

From what I read they are suing the drug company that makes Neurotin

because doctors were prescribing it for medical conditions that the

FDA had not approved it for. It was apprantly orignally approved for

epliptic seizures and doctors have been prescribing it for other uses,

i.e. pain relief for fibromyalgia patients. From what I could discern

from the information, the lawsuit is to get doctors to stop

prescribing the drug for anything except specifically what the FDA has

approved it for.

N.

> > I wanted to pass along some information that i just found out, there

> > is a class action lawsuit beign filed in several states about

> > neurontin beign prescribed off label. My husband and I both take

> > Neurontin for medical problems adn we both had severe issues and just

> > know found out that it was all associated with the neurontin. I belong

> > to several Fibro groups and i know that there are others besides me

> > that are takign neurontin for Fibro so I wanted to pass this info

> > along maybey it can help someone else.

> >

> > Kristy

>

[Guest guest]

But what are the problems??? If they win this is a huge blow to fibro patients. And is Lyrica next then????

-Hannah

On Mon, 23 Jan 2006 18:41 , 'Mystic' sent:

From what I read they are suing the drug company that makes Neurotin

because doctors were prescribing it for medical conditions that the

FDA had not approved it for. It was apprantly orignally approved for

epliptic seizures and doctors have been prescribing it for other uses,

i.e. pain relief for fibromyalgia patients. From what I could discern

from the information, the lawsuit is to get doctors to stop

prescribing the drug for anything except specifically what the FDA has

approved it for.

N.

[Guest guest]

Thats rediculous if a medication helps another condition it should be

used as needed. There is nothing that has been approved for treatment

for fibromyalgia so if we waited for approval we would be in a really

bad place.

Neurotin is also used for diabetic neuropathy. Doctors do prescribe it

for neuropathy type symptoms in fibromyalgia. By the way Lyrica is

just a second generation Neurotin. So please dont let hysteria impact

the decisions you make about medications.

deb

[Guest guest]

I am just worried that since I went back on Lyrica it will either be taken away or I will develope problems. Why the F hasn't something been done for Fibro patients?! I think that people develope fibro for a variety of reasons (mine was undiagnosed Chiari) but it is real and it's just plain stupid that no medical research and help is avalible!!!!!

-Hannah

On Mon, 23 Jan 2006 19:19 , 'deb' sent:

Thats rediculous if a medication helps another condition it should be

used as needed. There is nothing that has been approved for treatment

for fibromyalgia so if we waited for approval we would be in a really

bad place.

Neurotin is also used for diabetic neuropathy. Doctors do prescribe it

for neuropathy type symptoms in fibromyalgia. By the way Lyrica is

just a second generation Neurotin. So please dont let hysteria impact

the decisions you make about medications.

deb

[Guest guest]

I know that Neurontin worked wonders with my nerve damage from my

spinal fusion. I still keep some at home for when the nerve pain

comes back. I won't sue. It helped me.

> > > I wanted to pass along some information that i just found out,

there

> > > is a class action lawsuit beign filed in several states about

> > > neurontin beign prescribed off label. My husband and I both take

> > > Neurontin for medical problems adn we both had severe issues

and just

> > > know found out that it was all associated with the neurontin. I

belong

> > > to several Fibro groups and i know that there are others

besides me

> > > that are takign neurontin for Fibro so I wanted to pass this

info

> > > along maybey it can help someone else.

> > >

> > > Kristy

> >

>

[Guest guest]

I just wanted to let you all know that i am not saying anything either way about neurontin but i wanted to pass this information along. There is issues with people attempting suicide while on this med and various other medical conditions. I was only passign along information that may help someone. I didnt mean to cause an uproar with either support or nonsupport of htis med. I do know that for a fact and there are several people that can verify that after my husband and I both started the med we had several mental issues that was never there before. My family has contacted our dr and he told us to stop the med, my husbands rhuemetologist has been tryign to figure out why some of his problems have gotten worsse instead of better and now we know why. Like i said I am not sayign anything either way but wanted to pass this information alogn to you all. Kristyjaynes_photos wrote: I know that Neurontin worked wonders with my nerve damage from my spinal fusion. I still keep some at home for when the nerve pain comes back. I won't sue. It helped me.> > > I wanted to pass along some information that i just found out, there> > > is a class action lawsuit beign filed in several states about> > > neurontin beign prescribed off label. My husband and I both take> > > Neurontin for medical problems adn we both had severe issues and just> > > know found out that it was all associated with the neurontin. I belong> > > to several Fibro groups and i know that there are others besides me> > > that are takign neurontin for

Fibro so I wanted to pass this info> > > along maybey it can help someone else.> > > > > > Kristy> >>1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find

funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor.5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support.Have a nice day everyone.

[Guest guest]

many people have become sucidal and very violent and it has caused other medial problems such has high blood preasure and arthritis and muscle problems...

and that is just what i can remember off the top of my head.oh and it causes memory problems too i think.

Re: Neurontin Problems and Class Action Lawsuit

But what are the problems??? If they win this is a huge blow to fibro patients. And is Lyrica next then????-HannahOn Mon, 23 Jan 2006 18:41 , 'Mystic' sent:

From what I read they are suing the drug company that makes Neurotinbecause doctors were prescribing it for medical conditions that theFDA had not approved it for. It was apprantly orignally approved forepliptic seizures and doctors have been prescribing it for other uses,i.e. pain relief for fibromyalgia patients. From what I could discernfrom the information, the lawsuit is to get doctors to stopprescribing the drug for anything except specifically what the FDA hasapproved it for. N.

[Guest guest]

I would guess that because of the problems with the drug company

telling doctors that the drug will help with other problems that

because of the lawsuits like this 1) the pharamacutical companies will

no longer tell doctors if the drug will help with any other type of

disease except for the one it was specifically designed for and 2) I

would imagine that to keep themselves from becoming targets of

lawsuits that doctors would start refusing to prescribe a drug if the

condition is not under the FDA approved diseases for that drug.

That is just MY personal opinion after reading through some of the

various websites this afternoon.

Right now, they are strictly going after the drug company and making

them pay fines, restitution etc... but I can see where the patients

and lawyers would start suing the doctors after they get through with

the drug companies also, even though none was listed.

Just my opinion

N.

[Guest guest]

And after they took away vioxx, I went on Bextra, and then they took

that away too. Geez!

Peggyb

Re: Neurontin Problems and Class Action Lawsuit

>

> Thats rediculous if a medication helps another condition it should

be

> used as needed. There is nothing that has been approved for

treatment

> for fibromyalgia so if we waited for approval we would be in a

really

> bad place.

I so agree with you, deb. Pharmacueticals are often approved for

their " off label " uses when it is shown that it works for other

conditions as well. For instance, Viagra was originally being

researched as a blood pressure med. But it had a side effect that

made it more useful for another problem.

I hate all these class action lawsuits against drug manufactors.

These " problems " and this lawsuit about Neurontin has been around

for at least two yrs that I know of. I miss Vioxx. Vioxx *clearly*

and repeatedly warned of potential cardiac problems on the brief

insert given out by pharmacies, it was even mentioned in the

magazine ads. Yes, I am sorry that people died on it. But in no

way do I feel it was the company's fault. Suing the pharma company

follows a long standing rule of civil practice - go for the

defendant w/ the deepest pockets.

People need to research the meds they are on, the pharmacy inserts

cannot possibly cover every thing. Use the net, go to the library

and look it up in the PDR - Physcian's Desk Reference. Or ask your

doctor to let you use their copy in the office.

My main dx is for CFIDS, fibro was the fourth listed reason from my

disability approval. I am also bipolar. All of this messed up

chemicals within my body make medicines work very differently in my

body. If it wasn't for the " off label " uses, I probably would have

taken my own life years ago.

Knowledge is power, make yourself powerful, not fearful, where your

medication is concerned.

Mira

1. While it is wonderful to share our experiences with everyone on the

list as

to what treatments do and don't work for us, pls always check with your

dr.

Some treatments are dangerous when given along with other meds as well

as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls

don't be

afraid to ask for help. It is the first step to trying to make that

situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad

at the

same time when it comes to flares and b/c of that potentially take

something

another member says the wrong way. And that includes the things that

one member

may find funny (even if it's laughing at fibro itself) even though we

who deal

with illness whether one such as fibro or multiple illnesses try to

keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day

pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

Oh I had all the

health problems but I hid them because I needed the money from the testing.

Asthma testing put me through my 1st year of college!!

*Hannah*

www.starbrightdesigns.net

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stones, Crystal & Sterling Silver

I agree. what also gets me is that they will use animals well ya know i

have never met a dog, cat or rat with fibro, (while in school I ran a humane

society, so i met alot of animals)

I personally have never been through drug testing/clinical trials

because i have had health issues since i was about a year old (juvinal RA,

asthma, ect ect) but i know several people who would have been perfect but they

were not healthy enough. Which in my opionin is bull.