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,

I did try Acupuncture when I first developed RA. I tried it for several weeks

without improvement. The practitioner was a physician who said that acupuncture

works better for OA than RA, typically. I would try it again though, if I had a

particular joint that was giving me fits.                 Take

care,                    Amy

From: <cynsayre@...>

Subject: RE: [ ] New Member

Date: Sunday, June 27, 2010, 6:35 AM

 

HI Rose and ,

Thank you for your information and suggestions. I have an appt with my

Internists this week to review my current labs and hopefully she will have

suggestions on the next direction to take.

I do currently take VD (10,000 IU) daily and monitor my levels (currently

59.8 w/range 32.0-100.00) which are also important for thyroid conditions.

Because I seem to be allergic to the fillers in pain meds, this journey is

very scary. Once I have a definitive diagnoses, (hopefully possible) I'll

be able to zero in on the more natural supplements. I prefer holistic to

allopathic treatments, since my journey in treatment of the thyroid. It's

amazing how little Dr's know about so much!!

I'm curious to know if anyone on the list has tried acupuncture for RA pain

relief and how successful it may have been.

Thank you all for your sharing of what you have learned.

Abundant Blessings,

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, I am so sorry to hear about your meeting and about your pity party. :-(We have hired an attorney/advocate to help us get through the process solely because I have no idea what we could as for. Lots of legal mumbo jumbo and I'd rather leave it to someone who knows how to navigate those waters - filled with sharks. Please call me if you want to chat. :-) (Max 7 y.o. Suspected AS)214-677-5535Sent via BlackBerry from T-MobileFrom: Gallagher <hgallagher74@...>Sender: Date: Thu, 22 Jul 2010 16:10:23 -0700 (PDT)< >Reply Subject: ( ) new memberHi, I am a new member. My daughter is 12 and diagnosed with PDD-NOS. I just had a horrible IEP meeting where I left crying. Am I the only one who finds these meetings so horrible? Just looking for some support/people who can understand what I am going through right now. I can't believe how difficult the school system is making this process! Sorry for the pity party. I'm having trouble being strong today. :(

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Sorry to hear about your terrible IEP meeting. I am brand new to all of this

myself, just trying to get my son qualified for preschool services and then an

IEP (he is not even officially dx yet with AS, but his OT and developmental

therapist believe he has it), but one thing I have found to be very helpful so

far is the book The Complete IEP Guide - Advocating for Your Special Needs

Child. If you do not have it, it is worth checking out. Also, have you contacted

a parents' advocate network in your area? I found one online before my first

meeting with school services and got some really good tips from a parent

advocate. She said that one of the things they can do is attend IEP meetings to

help you deal with the school. Having someone in your corner might really help

to ease your stress.

Best of luck,

Bridget

>

> Hi,

>

> I am a new member.  My daughter is 12 and diagnosed with PDD-NOS.  I just had

a

> horrible IEP meeting where I left crying.  Am I the only one who finds these

> meetings so horrible?  Just looking for some support/people who can understand

> what I am going through right now.  I can't believe how difficult the school

> system is making this process! 

>

>

> Sorry for the pity party.  I'm having trouble being strong today.  :(

>

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(((hugs))) If it makes you feel better, I've burst into tears at a meeting

before too. They had to get me a box of tissues! Another meeting when kids

were real young, I know I cried lots after I left, soon as I got to the car, was

upset at meeting, trying to recall if I managed to hold back then or cried there

too....

I got better at it. I did find I handled things better (said what I needed to

better) over the phone than in the meetings. And by email. But I did get

better *at* the meetings too.

Guess it can take practice! Did for me.

>

> Hi,

>

> I am a new member.  My daughter is 12 and diagnosed with PDD-NOS.  I just had

a

> horrible IEP meeting where I left crying.  Am I the only one who finds these

> meetings so horrible?  Just looking for some support/people who can understand

> what I am going through right now.  I can't believe how difficult the school

> system is making this process! 

>

>

> Sorry for the pity party.  I'm having trouble being strong today.  :(

>

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Have you looked into slaw, or their books (like from Emotions to Advocacy). They helped me to get organized and battle the schools.

I think the "badder" a school is the more arrogant it is -- and I think that means the more likely the school personnel are to make mistakes that you can pick up on and use to your advantage.

Also, do you bring allies into the meeting with you?

From: <@...> Sent: Thu, July 22, 2010 8:51:26 PMSubject: ( ) Re: new member

(((hugs))) If it makes you feel better, I've burst into tears at a meeting before too. They had to get me a box of tissues! Another meeting when kids were real young, I know I cried lots after I left, soon as I got to the car, was upset at meeting, trying to recall if I managed to hold back then or cried there too.... I got better at it. I did find I handled things better (said what I needed to better) over the phone than in the meetings. And by email. But I did get better *at* the meetings too. Guess it can take practice! Did for me.>> Hi,> > I am a new member. My daughter is 12 and diagnosed with PDD-NOS. I just had a > horrible IEP meeting

where I left crying. Am I the only one who finds these > meetings so horrible? Just looking for some support/people who can understand > what I am going through right now. I can't believe how difficult the school > system is making this process! > > > Sorry for the pity party. I'm having trouble being strong today. :(>

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Take heart! We have all had days where it's hard to be strong. At our last base

(we're Air Force), I used to dread even hearing the phone ring, agraid it was

the school (and it usually was...). IEP meetings were horrible for me there,

for the most part. I usually ended up in tears after I left, if not before. I

think the worst one was when they basically called my son a monster and said he

wasn't fit to be around either " normal " or other disabled kids. Of course, that

was the same meeting when they kicked him out of school for the rest of the

school year since the teacher couldn't/wouldn't follow his IEP. And that was in

the Special Needs classroom. After we let the Air Force know what was going on,

they had us move a few months later. Where they sent us doesn't have the best

reputation for schools, but we have been blessed. The school here that my son

goes to is AMAZING! The staff actually knows what they are doing, and wants to

do the right thing by my son.

Have faith, hopefully it will get better. Sometimes it helps to take an outside

person with you. I would take a friend with me, not to participate, but the sit

on the sidelines and listen in case I missed anything if I got upset. It helped

that I had an infant at the time. That way the school couldn't complain about

my friend being there since she was watching my daughter.

I know what you are going through. Please feel free to contact me if you have

any other problems.

Angi Clifton

>

> Hi,

>

> I am a new member.  My daughter is 12 and diagnosed with PDD-NOS.  I just had

a

> horrible IEP meeting where I left crying.  Am I the only one who finds these

> meetings so horrible?  Just looking for some support/people who can understand

> what I am going through right now.  I can't believe how difficult the school

> system is making this process! 

>

>

> Sorry for the pity party.  I'm having trouble being strong today.  :(

>

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Hugs to you . I think I would be more worried if you NEVER cried at an

IEP! I hated every one of them. Son is 26 now, so went through a lot of IEP's,

always hated it.

One thing I really wish I had done is found an advocate, if there is a STEP

(http://www.tnstep.org/) chapter in your area or similar, they will help you

wade through all the acronyms and gobbledygook that they throw at you. You might

call and see if they can recommend someone in your area.

I have just recently had to go back and revisit all of son's IEP's and

psychologicals and would love to have enough " fight " left in me to DEMAND that

all reports of tests be delivered in a comprehensible manner. I have no idea

what most of them meant. ARRGGH! I get mad all over again remembering how stupid

I felt, how inadequate, because it is entirely up to YOU to be advocate for you

child in those meetings, and they are professionals that get paid and trained to

learn what all that stuff means and YOU are supposed to be a lawyer (know all

the laws and your rights), spec ed professional (understand what a " stanine " is

and all that other garbage in all of that paperwork, a psychologist AND be a

parent. Wait, and maybe a speech pathologist, OT, etc. etc.!!!!

Oh yeah, and to listen, in our case, to an hour or so of " son is below norm in

this area, below average on this test, low IQ, this problem and that problem, "

on and on with all bad news and you are supposed to remain objective and

non-emotional. I don't think so!

Good luck to you.

Sue in Tn

>

> Hi,

>

> I am a new member.  My daughter is 12 and diagnosed with PDD-NOS.  I just had

a

> horrible IEP meeting where I left crying.  Am I the only one who finds these

> meetings so horrible?  Just looking for some support/people who can understand

> what I am going through right now.  I can't believe how difficult the school

> system is making this process! 

>

>

> Sorry for the pity party.  I'm having trouble being strong today.  :(

>

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Thanks so much to everyone who responded. I am going to contact an advocate on Monday- this has been such a challenging year for my daughter with the school district- suspending her for behaviors related to her disability for one..... that I truly think I am beyond my abilities to handle this alone. Each and every email I received has meant so much- I have to work 1-9 today but late tonight or tomorrow I will be rereading every response and feeling so grateful that i have found this group! I hope once I am more together again to be able to help others too since we have been going through this process since age 2 but have been in a fog of good progress on a 504 only for the last 6 years until everything fell apart this past school year. So even though I was going to

504 meetings there wasn't a lot to fight for then.

Feeling a bit stronger today- thank you again!

From: angela <angi_400@...> Sent: Thu, July 22, 2010 9:45:30 PMSubject: ( ) Re: new member

Take heart! We have all had days where it's hard to be strong. At our last base (we're Air Force), I used to dread even hearing the phone ring, agraid it was the school (and it usually was...). IEP meetings were horrible for me there, for the most part. I usually ended up in tears after I left, if not before. I think the worst one was when they basically called my son a monster and said he wasn't fit to be around either "normal" or other disabled kids. Of course, that was the same meeting when they kicked him out of school for the rest of the school year since the teacher couldn't/wouldn't follow his IEP. And that was in the Special Needs classroom. After we let the Air Force know what was going on, they had us move a few months later. Where they sent us doesn't have the best reputation for schools, but we have been blessed. The school here that my son goes to is AMAZING! The staff actually knows what they are doing, and wants to do the right thing by

my son.Have faith, hopefully it will get better. Sometimes it helps to take an outside person with you. I would take a friend with me, not to participate, but the sit on the sidelines and listen in case I missed anything if I got upset. It helped that I had an infant at the time. That way the school couldn't complain about my friend being there since she was watching my daughter.I know what you are going through. Please feel free to contact me if you have any other problems.Angi Clifton>> Hi,> > I am a new member. My daughter is 12 and diagnosed with PDD-NOS. I just had a > horrible IEP meeting where I left crying. Am I the only one who finds these

> meetings so horrible? Just looking for some support/people who can understand > what I am going through right now. I can't believe how difficult the school > system is making this process! > > > Sorry for the pity party. I'm having trouble being strong today. :(>

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I think we all end upin a pity party sooner or later.. I also dread having the phone ring during school times because is usually either her begging to come home or the school telling me to come and get her . This year she starts high school in public school.. I am a nervous wreck.

( ) Re: new member

Take heart! We have all had days where it's hard to be strong. At our last base (we're Air Force), I used to dread even hearing the phone ring, agraid it was the school (and it usually was...). IEP meetings were horrible for me there, for the most part. I usually ended up in tears after I left, if not before. I think the worst one was when they basically called my son a monster and said he wasn't fit to be around either "normal" or other disabled kids. Of course, that was the same meeting when they kicked him out of school for the rest of the school year since the teacher couldn't/wouldn't follow his IEP. And that was in the Special Needs classroom. After we let the Air Force know what was going on, they had us move a few months later. Where they sent us doesn't have the best reputation for schools, but we have been blessed. The school here that my son goes to is AMAZING! The staff actually knows what they are doing, and wants to do the right thing by my son.Have faith, hopefully it will get better. Sometimes it helps to take an outside person with you. I would take a friend with me, not to participate, but the sit on the sidelines and listen in case I missed anything if I got upset. It helped that I had an infant at the time. That way the school couldn't complain about my friend being there since she was watching my daughter.I know what you are going through. Please feel free to contact me if you have any other problems.Angi Clifton>> Hi,> > I am a new member. My daughter is 12 and diagnosed with PDD-NOS. I just had a > horrible IEP meeting where I left crying. Am I the only one who finds these > meetings so horrible? Just looking for some support/people who can understand > what I am going through right now. I can't believe how difficult the school > system is making this process! > > > Sorry for the pity party. I'm having trouble being strong today. :(>

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We all have our down, why don't you understand, can't you say something positive about my child days.It's hard, but we are no good to them in a crumpled heap.This is the best support where you can vent but put a smile on everywhere else.Hugs to youKelI will keep climbing the mountain.Sent from Kel's iPhone On 23/07/2010, at 9:10 AM, Gallagher <hgallagher74@...> wrote:

Hi,

I am a new member. My daughter is 12 and diagnosed with PDD-NOS. I just had a horrible IEP meeting where I left crying. Am I the only one who finds these meetings so horrible? Just looking for some support/people who can understand what I am going through right now. I can't believe how difficult the school system is making this process!

Sorry for the pity party. I'm having trouble being strong today. :(

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Ellen, is he under the care of a rheumatologist. He needs to be on a DMARD

to halt the damage to his joints. How long has he had RA?

in PA

On Sat, Jul 24, 2010 at 8:00 PM, Ellen Riley

<lenell15@...>wrote:

>

>

> Hello group. I am Ellen and my husband is Len. He has RA and is really

> struggling with the pain at the moment. We live in Australia, so it is mid

> winter here and quite cold. Any coping tips would be appreciated. Len is

> taking sulphur and prednisone for his RA plus other drugs for other things.

>

> Thanks for letting us join this group.

>

> Ellen

>

>

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Yes, we are under a rheumatologist. Have been seeing him for the past few

years. See him every couple of months, but live in the country and have to

travel to the city (230kms) for each visit. Thank you for your encouragement

and advice. Ellen

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Welcome Marsha. I too am new to this group. I have full muscle spasms from my

chest down at night :(.

 

Kate Fontaine

 

" Don't cry because it's over. Smile because it happened. "

-Dr. Seuss

 

 

________________________________

From: Marsha Dardenne <mardar@...>

Sent: Tue, July 27, 2010 10:38:45 AM

Subject: [ ] New Member

 

Hi, y'all - I'm new to the group, from south Louisiana. Was diagnosed last year

with a very sudden, severe onset of RA. It's better controlled now, with MTX

among other things, but it's a hard thing to deal with, and I'm glad to have

found this forum where everybody actually understands!!

I'm replying to the insurance post, on moving from full medical to Medicare. I

have no insurance at all, so please, be glad for what you've got!! But I'd like

to tell you what I do have, in case there's anyone else out there in my boat. I

am a member of a national Christian sharing ministry where the members reimburse

each other's medical expenses, and it's actually a wonderful system. If anyone

is interested, please reply to me and I'll tell you what it is ('cause I'm not

trying to sell anything, just sharing what has worked for me).

Also a couple of questions, about some symptoms. I'm trying to figure out if

these are related to the RA:

Leg " jerks " at night- and not just twitches, full out spasms.

Hive-like skin itches in places that get irritated by contact - like if my

watchband is too tight, or under elastic. What's up with that??

And a strange " needles 'n pins " feeling in my legs if I stand for too long. Huh?

I'm enjoying the contact with y'all, even if I don't post much - keep up the

good work!

Marsha

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My arms were doing that... dr said the swelling in your hips and shoulders will

do that because there's really nowhere for the fluid to escape to so it can push

on nerves and cut off circulation...

My dr put me on an antiseizure med Gabapentin when it got so bad my right arm

jumped with every heartbeat.

I get the half asleep legs and feet if I overdue it too... I blame inflammation

in my hips!

Candace

Sent from my iPhone

On Jul 27, 2010, at 9:38 AM, " Marsha Dardenne " <mardar@...> wrote:

>

> Also a couple of questions, about some symptoms. I'm trying to figure out if

these are related to the RA:

> Leg " jerks " at night- and not just twitches, full out spasms.

> Hive-like skin itches in places that get irritated by contact - like if my

watchband is too tight, or under elastic. What's up with that??

> And a strange " needles 'n pins " feeling in my legs if I stand for too long.

Huh?

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  • 2 weeks later...
Guest guest

I am not sure if this cartoon will go through to the list. But when I read your post about IEP meetings making you cry, I remembered it. It is really hard to deal with IEP's. Even when they went really well, I was emotionally exhausted afterward and all I could do was lay on the couch and try to recover.

Roxanna

Whenever I feel blue, I start breathing again.

( ) new member

Hi,

I am a new member. My daughter is 12 and diagnosed with PDD-NOS. I just had a horrible IEP meeting where I left crying. Am I the only one who finds these meetings so horrible? Just looking for some support/people who can understand what I am going through right now. I can't believe how difficult the school system is making this process!

Sorry for the pity party. I'm having trouble being strong today. :(

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OMG, I am still laughing!!!!!!!!!!

From:

[mailto: ] On

Behalf Of Roxanna

Sent: Saturday, August 07, 2010 9:23 PM

Subject: Re: ( ) new member

I am

not sure if this cartoon will go through to the list. But when I

read your post about IEP meetings making you cry, I remembered it. It is

really hard to deal with IEP's. Even when they went really well, I was

emotionally exhausted afterward and all I could do was lay on the couch and try

to recover.

Roxanna

Whenever I feel blue, I start

breathing again.

( ) new member

Hi,

I am a new member. My

daughter is 12 and diagnosed with PDD-NOS. I just had a horrible IEP

meeting where I left crying. Am I the only one who finds these meetings

so horrible? Just looking for some support/people who can understand what

I am going through right now. I can't believe how difficult the school

system is making this process!

Sorry for the pity party.

I'm having trouble being strong today. :(

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From: Roxanna <MadIdeas@...> Sent: Sat, August 7, 2010 10:22:30 PMSubject: Re: ( ) new member

I am not sure if this cartoon will go through to the list. But when I read your post about IEP meetings making you cry, I remembered it. It is really hard to deal with IEP's. Even when they went really well, I was emotionally exhausted afterward and all I could do was lay on the couch and try to recover.

RoxannaWhenever I feel blue, I start breathing again.

( ) new member

Hi,

I am a new member. My daughter is 12 and diagnosed with PDD-NOS. I just had a horrible IEP meeting where I left crying. Am I the only one who finds these meetings so horrible? Just looking for some support/people who can understand what I am going through right now. I can't believe how difficult the school system is making this process!

Sorry for the pity party. I'm having trouble being strong today. :(

Roxanna, that cartoon is perfect, school will be starting here in a few weeks and i am absolutely dreading it as my son will be starting middle school so i am not sure what they will do about the old IEP but already dread any meetings as i just become a train wreck.

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Ms Betty-

 

I am new at this RA thing, but I can tell you that you most assuredly are NOT

alone! We understand and will try our best to be there when you need to talk and

you will see yourself reflected in each of us as we all talk together. This

group is good I think- I see so much technical language and abbreviations that I

wish I could understand - but all in all a good group of folks. I have found two

really cool buddies on here that share and celebrate the all too fleeting good

days and are there for me on the bad ones.

 

Just know that you are not alone, OK? All around the country, we come to share

our pain and our joy. We will listen when nobody else will.

 

                       Gentle hugs----------in SC  ( humidity central! )

i have RA and OA, degenerative disc disease, all the things that come with

arthritis. i am in a wheel chair about half the time now. i do try to get up and

do what i can. i take plaquinil and lortab, oxycontin for pain. my dr. is trying

me on a low dose prednisone every day, to help with the deformity in my hands.

some days, when i have the bad flare ups, i just sit AND CRY WITH THE PAIN ALL

OVER MY BODY. he has told me my last visit, he had run out of options, all he

can do now is give me something for pain.

i would like to talk to other people with this same disease, maybe help each

other feel better, get some good advise. i don't have anyone to talk to about

this, as noone seems to listen .....

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Hi Betty.  Welcome to our group.  I am sorry you are suffering so much pain

from your RA.  I sure hope the Pred. helps you.  It does wonders for me.

 

How long have you been seeing your Rheumy?  Maybe it is time to check out

another Rheumy, and see if there are some other things that can be done to help

you.  I do know how hard it is when people do not understand this disease and

the pain we have daily.  I am also sorry that you don't have anyone to talk to

about your disease and the problems it is causing you.  You will find everyone

here is wonderful, and you can say what you want, laugh, cry, vent etc.  We

have all walked in your shoes for a day.  You will get lots of support here. 

You will be amazed at how much our members know about RA, and our daily

struggles.  We all want a normal life, but just do the best we can each day. 

It is very hard to do much when the pain overuns us.  I so hope you get some

better meds. to help you, and to ease your pain.

 

Good luck with the Pred.  I hope it works well for you.  Wishing you much

better days ahead.  We are all here for you, and you will never be alone in

your daily struggle with RA.  We do know your pain.  Other people who do not

have RA, can't begin to imagine how much we suffer with it.

 

There will be better days ahead for you.  Don't give up on yourself.  We won't

give up on you either.

 

Very hot and humid here too in S.W. Florida.

 

Hugs,

 

Barbara

From: bettgts <bettygates@...>

Subject: [ ] new member

Date: Monday, August 16, 2010, 4:35 AM

 

hi,

my name is betty.... i live in south alabama. all the good hot, humid weather

for arthritis...lol...

i have RA and OA, degenerative disc disease, all the things that come with

arthritis. i am in a wheel chair about half the time now. i do try to get up and

do what i can. i take plaquinil and lortab, oxycontin for pain. my dr. is trying

me on a low dose prednisone every day, to help with the deformity in my hands.

some days, when i have the bad flare ups, i just sit AND CRY WITH THE PAIN ALL

OVER MY BODY. he has told me my last visit, he had run out of options, all he

can do now is give me something for pain.

i would like to talk to other people with this same disease, maybe help each

other feel better, get some good advise. i don't have anyone to talk to about

this, as noone seems to listen .....

hopeing to hear from the group,

betty

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Betty:

It sounds like you need a pain management specialist. Call your primary care

doc, or your Rheumy and get a consult. DO NOT TAKE NO for an answer.

Meanwhile do some proactive stuff for yourself. Try the warm rice tied in a

sock for your hands. Does hot or cold work? Also ask about Rehabilitative

Medicine. You need some rehab therapy. Swimming would be awesome for you, or

even a whirlpool or hottub (if you can, not sure). Water therapy is great.

When my hands hurt, I use my pedicure foot soak machine that my kids gave me for

xmas, it has little jets and devices that massage your feet, I use it on my

hands!! I also use my parrafin wax thing-y I got on QVC where you dip your

hands into the warm wax, that is wonderful.

I have friends in MOBILE and the medical services are not so hot there, but

maybe you need to really hunt around on the net and find yourself better.

OKD

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  • 3 weeks later...

Hi Everyone,

Thought I was long over due joining a support group since silicone implants changed my life forever. They were removed 16 years ago. I had them inside of me for 7 years. Previously, I was very healthy. I was told by the surgeon who removed them that I was loaded.. as they bled into my system. While they were still in there, I developed fibromyalgia, neurological and immunological problems.The progression of the breakdown of my system was slow and insidious. I went to many conventional doctors.. would look them up in the library for credentials and such, but no one put it together till I was just about dead. By 2005 I was diagnosed with Environmental Ilness/MCS. I have some autoimmune diseases and live a very fragrance free/VOC life. I've worked with environmental and holistic docs which bought me many years I never would have had. I'm in a setback right now with one of my autoimmune

illnesses. (UC). I've done sauna, allergy shots, I get IV's with vitamins and nutrients since I also was dxed with malabsorption. I really need those IV's. One of my hopes here is to see if I'm missing anything that might be helpful to me..sinve the UC is proving to be the latest challenge. I've never done chelation. I was told by a few docs, I was not a good candidate for that. I hope to connect with folks here and share.

There would be nothing to frighten you if you refused to be afraid. Gandhi

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I'm in California so I can't help. But, I wish you the best of luck. Another

book to look at is " Insights into Lyme Disease Treatment " by Connie Strasheim.

It's kind of technical and not terrible specific always, but I found it very

helpful in knowing what kind of different treatments are out there.

Connie

[ ] New Member

Hello all,

I'm new to this group and Buhner's protocol. I have yet to read his book but

plan to do so soon. I'm curious to know how most of you receive treatment. If

you don't have a doctor in your area and are unable to make a trip to see one,

what do you do? Do you self-treat? I'm at a lose for where to go at this point

in my journey. I've received western and eastern medicine treatment. From the

latter, I received the most improvement. For about four months, I was symptom

free but now, the fatigue, heaviness, teeth clenching, musculoskeletal, and

cognitive function issues are back. I'd love to find a naturopath or herbalist

in my state, Texas. Any suggestions or recommendations are deeply appreciated.

Thank you and healing wishes,

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Thank you for the reply and information, Connie. I'll be sure to look into

the book you suggested. From your experience in witnessing people's

journeys, what do most people do when they can't find a doctor? Do they

self treat?

On Sat, Sep 4, 2010 at 4:46 PM, Connie Blaze <connieblaz@...> wrote:

>

>

> I'm in California so I can't help. But, I wish you the best of luck.

> Another book to look at is " Insights into Lyme Disease Treatment " by Connie

> Strasheim. It's kind of technical and not terrible specific always, but I

> found it very helpful in knowing what kind of different treatments are out

> there.

>

> Connie

>

> [ ] New Member

>

> Hello all,

>

> I'm new to this group and Buhner's protocol. I have yet to read his book

> but plan to do so soon. I'm curious to know how most of you receive

> treatment. If you don't have a doctor in your area and are unable to make a

> trip to see one, what do you do? Do you self-treat? I'm at a lose for where

> to go at this point in my journey. I've received western and eastern

> medicine treatment. From the latter, I received the most improvement. For

> about four months, I was symptom free but now, the fatigue, heaviness, teeth

> clenching, musculoskeletal, and cognitive function issues are back. I'd love

> to find a naturopath or herbalist in my state, Texas. Any suggestions or

> recommendations are deeply appreciated.

>

> Thank you and healing wishes,

>

>

>

>

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Hi there :) here is a link for a Doctor in Texas. A friend of mine used tog o

there before she moved to Boston. I hope that it helps you. Self treating is

good, but I find it better to have someone to guide you and keep you focused,

run tests etc. namaste'

 

http://www.hopewellness.com/

>

>

> I'm in California so I can't help. But, I wish you the best of luck.

> Another book to look at is " Insights into Lyme Disease Treatment " by Connie

> Strasheim. It's kind of technical and not terrible specific always, but I

> found it very helpful in knowing what kind of different treatments are out

> there.

>

> Connie

>

> [ ] New Member

>

> Hello all,

>

> I'm new to this group and Buhner's protocol. I have yet to read his book

> but plan to do so soon. I'm curious to know how most of you receive

> treatment. If you don't have a doctor in your area and are unable to make a

> trip to see one, what do you do? Do you self-treat? I'm at a lose for where

> to go at this point in my journey. I've received western and eastern

> medicine treatment. From the latter, I received the most improvement. For

> about four months, I was symptom free but now, the fatigue, heaviness, teeth

> clenching, musculoskeletal, and cognitive function issues are back. I'd love

> to find a naturopath or herbalist in my state, Texas. Any suggestions or

> recommendations are deeply appreciated.

>

> Thank you and healing wishes,

>

>

>

>

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Share on other sites

Hi ,

I have a doctor who I love but even with him, I do a lot of self treating. I

started the buhner protocol on my own and bought a rife machine and started

using that. There is a lot of peer support here and on other sites. The

reality is that all treatments are experimental, whether we are trying them

under a doctor's watchful eye or on our own. Nothing has been found to be the

perfect cure so Just don't give up! You could call some doctors that are

listed on lyme sites and see if they know of anyone in your area or if they do

any phone consultations.

judy

On Sep 4, 2010, at 5:46 PM, Connie Blaze wrote:

> I'm in California so I can't help. But, I wish you the best of luck. Another

book to look at is " Insights into Lyme Disease Treatment " by Connie Strasheim.

It's kind of technical and not terrible specific always, but I found it very

helpful in knowing what kind of different treatments are out there.

>

> Connie

>

> [ ] New Member

>

> Hello all,

>

> I'm new to this group and Buhner's protocol. I have yet to read his book but

plan to do so soon. I'm curious to know how most of you receive treatment. If

you don't have a doctor in your area and are unable to make a trip to see one,

what do you do? Do you self-treat? I'm at a lose for where to go at this point

in my journey. I've received western and eastern medicine treatment. From the

latter, I received the most improvement. For about four months, I was symptom

free but now, the fatigue, heaviness, teeth clenching, musculoskeletal, and

cognitive function issues are back. I'd love to find a naturopath or herbalist

in my state, Texas. Any suggestions or recommendations are deeply appreciated.

>

> Thank you and healing wishes,

>

>

>

>

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