intro

[Guest guest]

Multiple chemical sensitivities.

--- young lee <youngjaem@...> wrote:

> what are mcs?

>

> robbie v <robbiev911@...> wrote:Very

> appropriate to discuss mcs here. Dont worry about

> it .

> --- young lee <youngjaem@...> wrote:

> > is there something wrong with the optizinc you are

> > taking right now? why need to change zinc

> > supplement?You may be heavy metal toxed not just

> hg

> toxed. I personally believe that once hg takes a

> hold

> of you the other metals can accumulate and stick to

> you like glue.If your copper is high you need more

> zincShare your hair test on list and ask andy to

> help[the poor guy i refere everone to him/but hes so

> intelligent and willing to share]

> >

> > Jerdeutsch@... wrote:

> > Hi Thanks for the lovely response Dottie! And I

> > agree Andy is wonderful

> > scientist and humanist with just the little

> > interactions I have had so far. I have

> > monitored my hair about every 3-6 months for about

> 6

> > yrs. my Hg levels

> > fluctuate but have dropped from very high to low,

> > but now are emerging the other

> > metals and the Hg stays about the same the last

> > couple of years. I currently take

> > all that you have mentioned supplementwise and

> MORE!

> > I have felt better since

> > I increased my Zinc to about 85 mg per day but

> again

> > I have used OptiZinc and

> > wonder if I should change to Zinc citrate or

> > picolinate. I have not done great

> > with picolinates in the past however. I don't like

> > to take high Zinc for too

> > long but my copper was high on last hair analysis

> so

> > my Zn/Cu ratio was quite

> > low...very dangerous! I use Trace Elements for my

> > hair but have lab priveldges

> > with DD as well, and MeteMetrix with my work. So

> > maybe I'll try those down

> > the road so we can all be standardized. I am gonna

> > test my Plasma Cysteine and

> > Sulfate next however to rule out this problem.

> >

> > I am confused as to whether or not MMR did have

> > thimerosol back in 1985 when

> > I was injected or not? Even if it was not Hg as

> you

> > say, I may have had

> > anotehr dose of formaldehyde. As well the

> molecular

> > mimicry of measles and Multiple

> > Sclerosis has been observed. I think basically

> that

> > vaccine autoimmunized me

> > back then. The truth is I have been mostly well

> the

> > last decade or so with only

> > flareups and set backs occasionally MS wise and

> with

> > my chemical

> > sensitivities. But the last 8 months have been

> > rough. I suspect i have put the whole heavy

> > ,etal issue on the back burner too long and it is

> > now in my face to work

> > with---and I am grateful to find this group. I

> hope

> > it is appropriate to discuss

> > Hg with regard to MCS/MS and other syndromes given

> I

> > see this site is chiefly

> > orietnted toward Autism. Many thanks.

> >

> > Jerry

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> >

[Guest guest]

In a message dated 5/22/03 11:15:10 AM Mountain Daylight Time,

moriam@... writes:

> I should ask for permission to quote you -- on some other list

> I was looking at someone just recommended that book I think !

> But I guess I shouldn't joke--- glad you didn't die.

>

> Thanks it's been quite a haul. If you quote me please do so anonymously at

this point. I really think many ideas in 's book are important and good,

but she fails to adequately understand ALA's pharmakinetics as well as a few

otherthings. I am currently doing only 60 mg of LA with 100 mg of DMSA evry 3

hrs

including through night. First day or two were rough, today so far is better.

Also correcting the low Mg levels and spacing out C which i have always done.

The MMR seemed to be my turning point and when I started to get ill. It aws

likely through mechanism of molecular mimicry with live virus. thsi was further

complcated by fact that I was LOADED with Hg. I have done well for many years

(about a decade now). I suspect strongly that what happened is that the Hg

was released from my brain and redistributed after some montsh with what I now

call " swing " high dose ALA, meaning taking say 300-600 mg 2-3 times per day. My

best guess is I got some benefit for other reasons such as total reduction in

xenobiotic load and then the Hg reached critical redistribution in my CNS and

brain and VOILA---one sick puppy here.

In any event gonna keep up the low dose ALA as you say and keep the DMSA with

it to facilitate removal from blood and peripheral tissues and organs while I

rebuild my endocrine and immune functions. I am sleeping incredibly deeply

with this first cycle of LA+DMSA even with having to wake to take it. Today so

far is my best day (day 3 of cycle). I actually walked a mile and plan to go to

the store. thanks for your encouragement, Moria. I sincerely appreciate it.

Andy has been incredibly helpful and available to me teh last several days.

The man should be canonized.

Jerry

[Guest guest]

Hello Jerry,

> Just wanted to introduce myself. I sort of wish I had found this site

> a while back! I am just starting on the true protocol of DMSA+LA per

> Andy's book. I had previously been using high and inconsistent

> dosaging with LA alone per Sherry 's book Detoxify or Die---well

> I almost did.

I should ask for permission to quote you -- on some other list

I was looking at someone just recommended that book I think !

But I guess I shouldn't joke--- glad you didn't die.

> For many months this helped some arthritic problems and

> sensitivities, but suddenly gave me some bad neurological side

> effects, which ironically only get worse when I stop the LA.

that is interesting.

> My

> condition is pretty complex, MCS with an MS/autoimmune type syndrome

> since my early twenties. I suspect I was first poisoned by

> MMR/thimerosol vaccination at age 20 at Tufts University where I did

> my undergrad work;

I guess other posts already covered that MMR doesn't (and didn't)

contain thimerosal. Although some other vaxs do, such as flu shots.

> then further botched my immune system up with

> exposure to formaldehyde in cadaver lab. I am actually a graduate

> student in human nutrition at the University of Bridgeport, just

> completing my Masters and thesis as I write this.

>

> I guess I am wondering if others had done improper and or mega

> dosaging with LA and come out the other side alive, and did DMSA help

> anyone in this type situation?

I really hoped Andy would comment on this, as I think he has

" followed " a number of people who got severely messed up using

various methods of chelation. I do think some have gotten

lots better, but I don't have the personal info to really

discuss it well. BTW, it is not DMSA in particular that

one would use for this. It is ALA (the usual) with DMSA

optionally.

best,

Moria

[Guest guest]

Hi a;

My name is and I have a 6 yo son with aspergers. We have

recently(May 1) taken him off all dairy and gluten as well as

implimented vitamins.We are amazed at the difference in him. I just had

to respond as I notice that your sons behaviour and s sound very

similar. If you are interested in this kind of intervention I could

explain more about what we and his teachers have seen. I would be happy

to talk on or off the list.

rybabysmom wrote:

>Hi. I recognise quite a few of you. I guess it's a small world

>afterall. Anyways I'm a mom to two boys. My 9yo is currently dxed

>pddnos and add adhd combined. However I'm not finding what I need in

>my basic autism research. I think he's more Asperger like. Yet our dr

>says he won't dx him as such due to his history of speech delays and

>such. My youngest, whose almost 3, has no dx as of yet, but he's

>definitely on the spectrum.

>I'm in Virginia and am hating our current school. My oldest has a

>speech only IEP. I had him fully tested. Even requested an IEE when

>the committee still found him not elgible. Nothing has changed their

>minds. He's making honor roll grades and that's that. My problem is

>the behavior which is escalating as I type! I'm not talking about

>the " odd " behaviors even. Sure he talks outloud to himself nonstop.

>And he talks too loud. And he's impulsive. Etc. For us that's just

>our son. However over the past 2 yrs, esp the past few months things

>are rapidly changing. It coincided w/ the stratera, but the dr

>doesn't think that's it. And I hate to take him off. He's so much

>more focused in class and at home w/ homework and such. Now though he

>has outbursts. Yells, kicks, etc. He refuses to give an inch. He

>won't listen to reason. And nothing in life is fair. The school has

>steadfastly disregarded my pleas for behavior charts and or

>modifications. They claimed his behavior had turned around. And for

>awhile I stopped getting notes from school. Now we have a new teacher

>due to maternity leave. And she is going crazy w/ my son. So here

>goes the daily notes all over again. I just don't have it in me for

>another fight. The dr's advise is zoloft. I sure hope that helps.

>My youngest was briefly seen by SECEP, our autistic division. He's

>not severe enough to attend their classes. Yet his current staff have

>no knowledge of autism. He's also beginning to have outbursts. He

>kicked, hit, bit, and pulled my hair yesterday. His IEP is next week.

>And I know there's nothing new in it. They aren't doing half of his

>goals now. There has to be something else.

>Any and all advice appreciated.

>

>a

>

>

>

>

[Guest guest]

In a message dated 5/23/03 12:54:47 PM Eastern Daylight Time,

rybabysmom@... writes:

> They claimed his behavior had turned around. And for

> awhile I stopped getting notes from school. Now we have a new teacher

> due to maternity leave. And she is going crazy w/ my son. So here

> goes the daily notes all over again. I just don't have it in me for

> another fight. The dr's advise is zoloft. I sure hope that helps.

>

When my older son was 6 yo, we started zoloft and it was the best thing we

ever did. It really helped a lot. I hope you have as much luck. For some,

zoloft is awful but another SSRI med works great. You have to find the right

med

and the right dosage.

As for the school, I would just reiterate to them that the behaviors go with

the dx and you would love to sit down and work out a positive behavior plan

with them. Until they do so, there is nothing you can do. I would tell the new

teacher that.

As for the school refusing to provide services, some schools will balk as

long as the child is doing well academically. I would just continue to educate

the staff about AS. I would also log all the attempts you make to work with

the school and all the problems he is having. At some point you will be at a

meeting and you will be able to pull out this long list of behaviors to show

them that he needs help. Documentation is your best friend.

<<My youngest was briefly seen by SECEP, our autistic division. He's

not severe enough to attend their classes. Yet his current staff have

no knowledge of autism. He's also beginning to have outbursts. He

kicked, hit, bit, and pulled my hair yesterday. His IEP is next week.

And I know there's nothing new in it. They aren't doing half of his

goals now. There has to be something else.

Any and all advice appreciated.

>>

If they are not doing his goals, you need to have a meeting to discuss why

this isn't happening. If they blow you off, I would either hire a sped atty or

write a letter of complaint to your state education agency. You just need to

document that you have tried to resolve the problem, I think, and then they

(the state) investigates the situation. I've never done this yet but it's on my

list as the next thing I plan to do.

Roxanna

ò¿ò

It makes sense to go up the molehill

dressed for the mountain

Nan, the Wiser

[Guest guest]

Hi a;

We have not done any testing and once you start the diet I think that

the testing for peptides in the urine and blood are no longer valid.

What we did was buy natural factors smoothie mix and natural factors

primrose/cod liver oil. Then I just started taking first all dairy and

then gradually gluten out of his diet. I also bought a product again by

natural factors(I am starting to sound like a sales rep) Multi Enzyme

for times when we weren't sure about ingredients and because I have

five children I can't afford to get too obsessive and grouchy. We just

take it slowly except for the dairy which was pretty easy to erradicate.

From what I have been reading leaky gut is a result of our guts

inability to break down gluten and casien. Peptides usually pass out

through the urine but in people who cannot digest them the gut become

porous and allows these peptides to flood the blood stream and thus the

brain. One of the ways you know is that peptides-which are like

opiates-make it to the brain causing and array of behaviors. Liken it

to being really stoned. I see my son needing to lie down, being

clumsy(as if drugged) or spinning or responding very slowly with

unfocused eyes as if in a fog. Tantrums, crying, hysterical laughing

" bizare " . And interestingly when you notice that your child is a fussy

eater and limits there choices to mostly dairy and gluten(milk, cheese

bread, pasta etc.)These are likely children that are feeding there

addiction to the opiates these foods actually produce.

The diet isn't really easy but with a little planning its not to bad.

Potatoe chips and french fries although a lousy food do still work as a

snack and you can always cook ahead for the kids.

We have not addressed the issue of eating out yet. We simply have not

done it. One of the drawbacks of having five lovely children is that

you simply don't look at going out for something fast as an option. We

have started to make rice bread which is pretty fast and easy and you

can find large bags in the cieliac section of the grocery story, and of

course rice cakes etc.

I had found s behavior, particularly aggression, increasing at

school and he was spending more recesses alone and taking his clothes

off etc . When we started I was very sceptical but within three days he

had more good job stickers on his daily report and within a week we were

seeing stickers from the music teacher which we had never seen before.

Then came the Award certificate, three of them in two weeks, then our

aid stopped sending reports home. I couldn't believe the difference. Of

course being a skeptic I had to " test " and we attended the much looked

forward to hot dog lunch with dilly bar for desert. By that night my

children were complaining about in the extreme. He couldn't be

reasoned with, he had three tantrum and it took him 45 min. to get to

sleep and of coarse had a terrible day at school, fleeing out of

class,out of music almost slapped our lovely aids face. If I was

uncertain about the diet before I am most certainly convinced now. I

think his teacher are probably convinced as well although I have yet to

discuss it with them.

I am really new at this a and wish I had more to offer on testing

but you could go to the autismndi.com site or ari.com I have just read

" Unraveling the Mystery of Autism and Pervasive Developmental Disorder "

by Karyn Seroussi which is loaded with information and one mothers

journey with her child and research. I would strongly recommend you read

that book!

But mainly I would say to you try the diet for a week with the vitamins.

I don't think you will be sorry.

I also am at the stage where I should be testing for something and am

considering buying a Dan protocol for my Dr and I to follow if she will.

I can keep you informed if you like.

Gee I didn't realize this would be so long winded.

rybabysmom wrote:

>Thanks . I'm seriously thinking of going that route w/ my almost

>3 yro. Next week I'm going to request testing. I think he may have

>leaky gut. He always has very soft stools. And often he gets the

>runs. At this rate I'll never get him potty trained. My question is

>how do you know? What type of testing exactly do they do? And what

>kind of foods are now allowed? I've got two kids who are extremely

>picky. Cheese is my youngest's favorite food. And I'm not even sure

>what gluten is exactly? And is it hard? Doesn't such a diet make

>going out near impossible? I know it's worth it if it works. I guess

>I was hoping for an easier way. Bad me, huh?

>

>Thanks, a

>

>-- In , Fraleigh

><sfraleigh@s...> wrote:

>

>

>>Hi a;

>>My name is and I have a 6 yo son with aspergers. We

>>

>>

>have

>

>

>>recently(May 1) taken him off all dairy and gluten as well as

>>implimented vitamins.We are amazed at the difference in him. I just

>>

>>

>had

>

>

>>to respond as I notice that your sons behaviour and s sound

>>

>>

>very

>

>

>>similar. If you are interested in this kind of intervention I could

>>explain more about what we and his teachers have seen. I would be

>>

>>

>happy

>

>

>>to talk on or off the list.

>>

>>

>>rybabysmom wrote:

>>

>>

>>

>>>Hi. I recognise quite a few of you. I guess it's a small world

>>>afterall. Anyways I'm a mom to two boys. My 9yo is currently

>>>

>>>

>dxed

>

>

>>>pddnos and add adhd combined. However I'm not finding what I need

>>>

>>>

>in

>

>

>>>my basic autism research. I think he's more Asperger like. Yet our

>>>

>>>

>dr

>

>

>>>says he won't dx him as such due to his history of speech delays

>>>

>>>

>and

>

>

>>>such. My youngest, whose almost 3, has no dx as of yet, but he's

>>>definitely on the spectrum.

>>>I'm in Virginia and am hating our current school. My oldest has a

>>>speech only IEP. I had him fully tested. Even requested an IEE

>>>

>>>

>when

>

>

>>>the committee still found him not elgible. Nothing has changed

>>>

>>>

>their

>

>

>>>minds. He's making honor roll grades and that's that. My problem

>>>

>>>

>is

>

>

>>>the behavior which is escalating as I type! I'm not talking about

>>>the " odd " behaviors even. Sure he talks outloud to himself

>>>

>>>

>nonstop.

>

>

>>>And he talks too loud. And he's impulsive. Etc. For us that's just

>>>our son. However over the past 2 yrs, esp the past few months

>>>

>>>

>things

>

>

>>>are rapidly changing. It coincided w/ the stratera, but the dr

>>>doesn't think that's it. And I hate to take him off. He's so much

>>>more focused in class and at home w/ homework and such. Now though

>>>

>>>

>he

>

>

>>>has outbursts. Yells, kicks, etc. He refuses to give an inch. He

>>>won't listen to reason. And nothing in life is fair. The school

>>>

>>>

>has

>

>

>>>steadfastly disregarded my pleas for behavior charts and or

>>>modifications. They claimed his behavior had turned around. And

>>>

>>>

>for

>

>

>>>awhile I stopped getting notes from school. Now we have a new

>>>

>>>

>teacher

>

>

>>>due to maternity leave. And she is going crazy w/ my son. So here

>>>goes the daily notes all over again. I just don't have it in me

>>>

>>>

>for

>

>

>>>another fight. The dr's advise is zoloft. I sure hope that helps.

>>>My youngest was briefly seen by SECEP, our autistic division. He's

>>>not severe enough to attend their classes. Yet his current staff

>>>

>>>

>have

>

>

>>>no knowledge of autism. He's also beginning to have outbursts. He

>>>kicked, hit, bit, and pulled my hair yesterday. His IEP is next

>>>

>>>

>week.

>

>

>>>And I know there's nothing new in it. They aren't doing half of

>>>

>>>

>his

>

>

>>>goals now. There has to be something else.

>>>Any and all advice appreciated.

>>>

>>>a

>>>

>>>

>>>

>>>

[Guest guest]

Thanks . I'm seriously thinking of going that route w/ my almost

3 yro. Next week I'm going to request testing. I think he may have

leaky gut. He always has very soft stools. And often he gets the

runs. At this rate I'll never get him potty trained. My question is

how do you know? What type of testing exactly do they do? And what

kind of foods are now allowed? I've got two kids who are extremely

picky. Cheese is my youngest's favorite food. And I'm not even sure

what gluten is exactly? And is it hard? Doesn't such a diet make

going out near impossible? I know it's worth it if it works. I guess

I was hoping for an easier way. Bad me, huh?

Thanks, a

-- In , Fraleigh

<sfraleigh@s...> wrote:

> Hi a;

> My name is and I have a 6 yo son with aspergers. We

have

> recently(May 1) taken him off all dairy and gluten as well as

> implimented vitamins.We are amazed at the difference in him. I just

had

> to respond as I notice that your sons behaviour and s sound

very

> similar. If you are interested in this kind of intervention I could

> explain more about what we and his teachers have seen. I would be

happy

> to talk on or off the list.

>

>

> rybabysmom wrote:

>

> >Hi. I recognise quite a few of you. I guess it's a small world

> >afterall. Anyways I'm a mom to two boys. My 9yo is currently

dxed

> >pddnos and add adhd combined. However I'm not finding what I need

in

> >my basic autism research. I think he's more Asperger like. Yet our

dr

> >says he won't dx him as such due to his history of speech delays

and

> >such. My youngest, whose almost 3, has no dx as of yet, but he's

> >definitely on the spectrum.

> >I'm in Virginia and am hating our current school. My oldest has a

> >speech only IEP. I had him fully tested. Even requested an IEE

when

> >the committee still found him not elgible. Nothing has changed

their

> >minds. He's making honor roll grades and that's that. My problem

is

> >the behavior which is escalating as I type! I'm not talking about

> >the " odd " behaviors even. Sure he talks outloud to himself

nonstop.

> >And he talks too loud. And he's impulsive. Etc. For us that's just

> >our son. However over the past 2 yrs, esp the past few months

things

> >are rapidly changing. It coincided w/ the stratera, but the dr

> >doesn't think that's it. And I hate to take him off. He's so much

> >more focused in class and at home w/ homework and such. Now though

he

> >has outbursts. Yells, kicks, etc. He refuses to give an inch. He

> >won't listen to reason. And nothing in life is fair. The school

has

> >steadfastly disregarded my pleas for behavior charts and or

> >modifications. They claimed his behavior had turned around. And

for

> >awhile I stopped getting notes from school. Now we have a new

teacher

> >due to maternity leave. And she is going crazy w/ my son. So here

> >goes the daily notes all over again. I just don't have it in me

for

> >another fight. The dr's advise is zoloft. I sure hope that helps.

> >My youngest was briefly seen by SECEP, our autistic division. He's

> >not severe enough to attend their classes. Yet his current staff

have

> >no knowledge of autism. He's also beginning to have outbursts. He

> >kicked, hit, bit, and pulled my hair yesterday. His IEP is next

week.

> >And I know there's nothing new in it. They aren't doing half of

his

> >goals now. There has to be something else.

> >Any and all advice appreciated.

> >

> >a

> >

> >

> >

> >

[Guest guest]

Roxanna,

I was happy to see you here. I never really understood why you left

the other group, but I missed your posts dearly. This group seems soo

active. What a blessing. I have been feeling soo alone. And I was

tired of posting and getting no responses. It was an awful feeling.

As always your advice is good. And I appreciate it. I've gotten

pretty good at documentation. And I finally found emails are

definitely a great way to correspond. They pretty much HAVE to answer

you in writing. I LOVE it.

a

> In a message dated 5/23/03 12:54:47 PM Eastern Daylight Time,

> rybabysmom@y... writes:

>

> > They claimed his behavior had turned around. And for

> > awhile I stopped getting notes from school. Now we have a new

teacher

> > due to maternity leave. And she is going crazy w/ my son. So here

> > goes the daily notes all over again. I just don't have it in me

for

> > another fight. The dr's advise is zoloft. I sure hope that helps.

> >

>

> When my older son was 6 yo, we started zoloft and it was the best

thing we

> ever did. It really helped a lot. I hope you have as much luck.

For some,

> zoloft is awful but another SSRI med works great. You have to find

the right med

> and the right dosage.

>

> As for the school, I would just reiterate to them that the

behaviors go with

> the dx and you would love to sit down and work out a positive

behavior plan

> with them. Until they do so, there is nothing you can do. I would

tell the new

> teacher that.

>

> As for the school refusing to provide services, some schools will

balk as

> long as the child is doing well academically. I would just

continue to educate

> the staff about AS. I would also log all the attempts you make to

work with

> the school and all the problems he is having. At some point you

will be at a

> meeting and you will be able to pull out this long list of

behaviors to show

> them that he needs help. Documentation is your best friend.

>

> <<My youngest was briefly seen by SECEP, our autistic division.

He's

> not severe enough to attend their classes. Yet his current staff

have

> no knowledge of autism. He's also beginning to have outbursts. He

> kicked, hit, bit, and pulled my hair yesterday. His IEP is next

week.

> And I know there's nothing new in it. They aren't doing half of his

> goals now. There has to be something else.

> Any and all advice appreciated.

>

> >>

>

> If they are not doing his goals, you need to have a meeting to

discuss why

> this isn't happening. If they blow you off, I would either hire a

sped atty or

> write a letter of complaint to your state education agency. You

just need to

> document that you have tried to resolve the problem, I think, and

then they

> (the state) investigates the situation. I've never done this yet

but it's on my

> list as the next thing I plan to do.

>

> Roxanna

> ò¿ò

>

> It makes sense to go up the molehill

> dressed for the mountain

> Nan, the Wiser

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

In a message dated 5/24/03 7:30:18 AM Eastern Daylight Time,

rybabysmom@... writes:

> Thanks . I'm seriously thinking of going that route w/ my almost

> 3 yro. Next week I'm going to request testing. I think he may have

> leaky gut. He always has very soft stools.

I heard from someone somewhere that " grazing " all day is the problem. Feed

the child regular meals at mealtimes and not let them snack all day and see if

the stools improve.

Roxanna ôô

What doesn't kill us

Makes us really mean.

[Guest guest]

In a message dated 5/24/03 8:27:00 AM Eastern Daylight Time,

rybabysmom@... writes:

> I was happy to see you here. I never really understood why you left

> the other group, but I missed your posts dearly. This group seems soo

> active. What a blessing. I have been feeling soo alone. And I was

> tired of posting and getting no responses. It was an awful feeling.

> As always your advice is good. And I appreciate it. I've gotten

> pretty good at documentation. And I finally found emails are

> definitely a great way to correspond. They pretty much HAVE to answer

> you in writing. I LOVE it.

>

Hey a! You found me! lol. We are indeed a very active list here!!

People have left because we sometimes can chatter quite a bit.

I left the other list - ugh - it wasn't something you would have noticed. I

had a discussion with the moderator off the list about something on yet a 3rd

list (ain't cyber space great?) and then I just got fed up and decided I

didn't have time for this crap - so when that comment got made about someone

copying a post, I just took it as a sign. Someone even wrote me saying the

moderator didn't mean me when she wrote that post but it didn't matter by then

to me

anyway. If I get too many bad vibes at once, I have to remove myself or watch

Sponge Bob, Square Pants for an hour....and for once, Sponge Bob lost.

SOOOOO, glad you managed to find me!! I hope you like it here. :-)

Roxanna

ò¿ò

It makes sense to go up the molehill

dressed for the mountain

Nan, the Wiser

[Guest guest]

Hi Margaret;

I am sure that if you have an AS child you know what I mean if I say

that they have difficulty with their expections not being met. Most

children will shrug things off, be disappointed and " move on " .

of course cannot, resulting in tantrums, crying etc. His aid was amazed

that he was now listening to reason and the incentives that she has put

into place were actually able to stop him from escalating into a tantrum

or fleeing from the class room which he often does.

Music also has been a big problem for him and he rarely made it

through the class without being asked to leave or removing himself of

his own accord. He has stayed in music and recieved wonderful stickers

for the first time ever.

Going to the library is another problem. He has never been able to

sit on the floor with the other children and listen to a story that I am

aware of till after May 1 when we started the diet. May 6 only 5 days

later he sat through story time and it was noted by both librarian and

aid(first time in the whole year!)

He has started joining the other boys running around-I am not sure

he knows what they are playing but he is more determined to be included.

Two things I find cute are that he has always just sat on a swing

and allowed me to push and I am always saying " swing your legs ,

pump! " This week he has started to pump his own swing(not well enough to

keep it going however but still, he's trying) and he also stood!! on the

tire swing and tried to get it going himself. I don't think that he

would have ever have done that without the diet as he has always been so

cautious and awkward. He is also becoming more confident on his bike.

is in a Kumon math program-he loves math-and I thought it

might be good for his fine motor skills as they were very weak. I

always have to sit right beside him and sort of que him for example

-ready set go 5.4.3.2.1. blast-off - this is for every number he

writes-. Rather tedious but maybe worth it if it strengthens his

fingers. This week I have been standing at the counter with him at the

table and I can now say " see if you can do this page before the timer

goes off " (thats ten numbers to a page). He can't always but he has

made some progress with independence and focusing in this area.

One major change (and do I dare admitt that I almost miss the old

who would play for hours quietly while I did my work) is that he

wants to talk to me and show me things and play with me more. I just

realized the other day that part of the reason I am not getting things

done in the house is that my son is engaging me more.

But of course seeing him in such pain after the hot lunch and seeing

the teachers shocked faces after having two great weeks of progress was

enough for me to realize that these two foods are toxic for some people

and my son is definetly one of them.

I would definetly try the diet Margaret there is nothing to loose by

doing it. I am so new to this but I can certainly keep you posted as to

our progress. I have actually decided to attend an autism biomedical

conference this summer so I can understand how to keep my son well.

Did you read my other post about the vitamins that he is on. I feel

those are likely very important as well.

P.S. Going to sleep at night has gone from 1/2 hour to 10 mins-Yes!!!

mom can watch the evening news.

Margaret wrote:

> ~ What kind of behaviors did the diet seem to help with...I have a 7

>year old with Asperger's and am wondering if I should give that a try?

>Margaret

>

> Re: ( ) intro

>

>

>

>

>>Hi a;

>>My name is and I have a 6 yo son with aspergers. We have

>>recently(May 1) taken him off all dairy and gluten as well as

>>implimented vitamins.We are amazed at the difference in him. I just had

>>to respond as I notice that your sons behaviour and s sound very

>>similar. If you are interested in this kind of intervention I could

>>explain more about what we and his teachers have seen. I would be happy

>>to talk on or off the list.

>>

>>

>>rybabysmom wrote:

>>

>>

>>

>>>Hi. I recognise quite a few of you. I guess it's a small world

>>>afterall. Anyways I'm a mom to two boys. My 9yo is currently dxed

>>>pddnos and add adhd combined. However I'm not finding what I need in

>>>my basic autism research. I think he's more Asperger like. Yet our dr

>>>says he won't dx him as such due to his history of speech delays and

>>>such. My youngest, whose almost 3, has no dx as of yet, but he's

>>>definitely on the spectrum.

>>>I'm in Virginia and am hating our current school. My oldest has a

>>>speech only IEP. I had him fully tested. Even requested an IEE when

>>>the committee still found him not elgible. Nothing has changed their

>>>minds. He's making honor roll grades and that's that. My problem is

>>>the behavior which is escalating as I type! I'm not talking about

>>>the " odd " behaviors even. Sure he talks outloud to himself nonstop.

>>>And he talks too loud. And he's impulsive. Etc. For us that's just

>>>our son. However over the past 2 yrs, esp the past few months things

>>>are rapidly changing. It coincided w/ the stratera, but the dr

>>>doesn't think that's it. And I hate to take him off. He's so much

>>>more focused in class and at home w/ homework and such. Now though he

>>>has outbursts. Yells, kicks, etc. He refuses to give an inch. He

>>>won't listen to reason. And nothing in life is fair. The school has

>>>steadfastly disregarded my pleas for behavior charts and or

>>>modifications. They claimed his behavior had turned around. And for

>>>awhile I stopped getting notes from school. Now we have a new teacher

>>>due to maternity leave. And she is going crazy w/ my son. So here

>>>goes the daily notes all over again. I just don't have it in me for

>>>another fight. The dr's advise is zoloft. I sure hope that helps.

>>>My youngest was briefly seen by SECEP, our autistic division. He's

>>>not severe enough to attend their classes. Yet his current staff have

>>>no knowledge of autism. He's also beginning to have outbursts. He

>>>kicked, hit, bit, and pulled my hair yesterday. His IEP is next week.

>>>And I know there's nothing new in it. They aren't doing half of his

>>>goals now. There has to be something else.

>>>Any and all advice appreciated.

>>>

>>>a

>>>

>>>

>>>

>>>

[Guest guest]

Exactly Right. Beautiful description.

rybabysmom wrote:

>I wanted to know all that too. Thanks. Although technically both

>neither of my kids will have the AS dx they are very much the same

>way as ya are describing.

>For the longest time I failed to realise that kids were NOT suppose

>to watch full length Disney flicks at age 1. Or that entertaining

>themselves for hours was not normal. For my oldest the journey has

>been slow. Although I can no longer pinpoint the exact time he is

>just now really engaging in real conversation. For yrs he did not

>speak any real language. Lot's of babble. Then he spoke minimally and

>was hard to understand. Then he went to long monologues. Real

>conversation has finally happened. It still needs lot's of work, of

>course. I learned alot so this time around I'm more w/ it. So my

>youngest has already shown some signs of wanting to connect. He

>actually grabbed my face to look at me one day. He still has little

>speech. And can hardly follow the simplest of commands. But

>occasionaly it clicks and he WANTS to connect. And it's great. It's

>also different. You get use to the self entertaining. And the 1 sided

>conversations. Then boom!

>

>a

>

> He can't always but he has

>

>

>>made some progress with independence and focusing in this area.

>> One major change (and do I dare admitt that I almost miss the

>>

>>

>old

>

>

>> who would play for hours quietly while I did my work) is

>>

>>

>that he

>

>

>>wants to talk to me and show me things and play with me more. I

>>

>>

>just

>

>

>>realized the other day that part of the reason I am not getting

>>

>>

>things

>

>

>>done in the house is that my son is engaging me more.

>> But of course seeing him in such pain after the hot lunch and

>>

>>

>seeing

>

>

>>the teachers shocked faces after having two great weeks of progress

>>

>>

>was

>

>

>>enough for me to realize that these two foods are toxic for some

>>

>>

>people

>

>

>>and my son is definetly one of them.

>>I would definetly try the diet Margaret there is nothing to loose

>>

>>

>by

>

>

>>doing it. I am so new to this but I can certainly keep you posted

>>

>>

>as to

>

>

>>our progress. I have actually decided to attend an autism

>>

>>

>biomedical

>

>

>>conference this summer so I can understand how to keep my son

>>

>>

>well.

>

>

>> Did you read my other post about the vitamins that he is on. I

>>

>>

>feel

>

>

>>those are likely very important as well.

>>

>>P.S. Going to sleep at night has gone from 1/2 hour to 10 mins-

>>

>>

>Yes!!!

>

>

>>mom can watch the evening news.

>>

>>

>>Margaret wrote:

>>

>>

>>

>>> ~ What kind of behaviors did the diet seem to help with...I

>>>

>>>

>have a 7

>

>

>>>year old with Asperger's and am wondering if I should give that a

>>>

>>>

>try?

>

>

>>>Margaret

>>>

>>> Re: ( ) intro

>>>

>>>

>>>

>>>

>>>

>>>

>>>>Hi a;

>>>>My name is and I have a 6 yo son with aspergers. We

>>>>

>>>>

>have

>

>

>>>>recently(May 1) taken him off all dairy and gluten as well as

>>>>implimented vitamins.We are amazed at the difference in him. I

>>>>

>>>>

>just had

>

>

>>>>to respond as I notice that your sons behaviour and s sound

>>>>

>>>>

>very

>

>

>>>>similar. If you are interested in this kind of intervention I

>>>>

>>>>

>could

>

>

>>>>explain more about what we and his teachers have seen. I would be

>>>>

>>>>

>happy

>

>

>>>>to talk on or off the list.

>>>>

>>>>

>>>>rybabysmom wrote:

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>>Hi. I recognise quite a few of you. I guess it's a small world

>>>>>afterall. Anyways I'm a mom to two boys. My 9yo is currently

>>>>>

>>>>>

>dxed

>

>

>>>>>pddnos and add adhd combined. However I'm not finding what I

>>>>>

>>>>>

>need in

>

>

>>>>>my basic autism research. I think he's more Asperger like. Yet

>>>>>

>>>>>

>our dr

>

>

>>>>>says he won't dx him as such due to his history of speech delays

>>>>>

>>>>>

>and

>

>

>>>>>such. My youngest, whose almost 3, has no dx as of yet, but he's

>>>>>definitely on the spectrum.

>>>>>I'm in Virginia and am hating our current school. My oldest has a

>>>>>speech only IEP. I had him fully tested. Even requested an IEE

>>>>>

>>>>>

>when

>

>

>>>>>the committee still found him not elgible. Nothing has changed

>>>>>

>>>>>

>their

>

>

>>>>>minds. He's making honor roll grades and that's that. My problem

>>>>>

>>>>>

>is

>

>

>>>>>the behavior which is escalating as I type! I'm not talking about

>>>>>the " odd " behaviors even. Sure he talks outloud to himself

>>>>>

>>>>>

>nonstop.

>

>

>>>>>And he talks too loud. And he's impulsive. Etc. For us that's

>>>>>

>>>>>

>just

>

>

>>>>>our son. However over the past 2 yrs, esp the past few months

>>>>>

>>>>>

>things

>

>

>>>>>are rapidly changing. It coincided w/ the stratera, but the dr

>>>>>doesn't think that's it. And I hate to take him off. He's so much

>>>>>more focused in class and at home w/ homework and such. Now

>>>>>

>>>>>

>though he

>

>

>>>>>has outbursts. Yells, kicks, etc. He refuses to give an inch. He

>>>>>won't listen to reason. And nothing in life is fair. The school

>>>>>

>>>>>

>has

>

>

>>>>>steadfastly disregarded my pleas for behavior charts and or

>>>>>modifications. They claimed his behavior had turned around. And

>>>>>

>>>>>

>for

>

>

>>>>>awhile I stopped getting notes from school. Now we have a new

>>>>>

>>>>>

>teacher

>

>

>>>>>due to maternity leave. And she is going crazy w/ my son. So here

>>>>>goes the daily notes all over again. I just don't have it in me

>>>>>

>>>>>

>for

>

>

>>>>>another fight. The dr's advise is zoloft. I sure hope that helps.

>>>>>My youngest was briefly seen by SECEP, our autistic division.

>>>>>

>>>>>

>He's

>

>

>>>>>not severe enough to attend their classes. Yet his current staff

>>>>>

>>>>>

>have

>

>

>>>>>no knowledge of autism. He's also beginning to have outbursts. He

>>>>>kicked, hit, bit, and pulled my hair yesterday. His IEP is next

>>>>>

>>>>>

>week.

>

>

>>>>>And I know there's nothing new in it. They aren't doing half of

>>>>>

>>>>>

>his

>

>

>>>>>goals now. There has to be something else.

>>>>>Any and all advice appreciated.

>>>>>

>>>>>a

>>>>>

>>>>>

>>>>>

>>>>>

[Guest guest]

~ What kind of behaviors did the diet seem to help with...I have a 7

year old with Asperger's and am wondering if I should give that a try?

Margaret

Re: ( ) intro

> Hi a;

> My name is and I have a 6 yo son with aspergers. We have

> recently(May 1) taken him off all dairy and gluten as well as

> implimented vitamins.We are amazed at the difference in him. I just had

> to respond as I notice that your sons behaviour and s sound very

> similar. If you are interested in this kind of intervention I could

> explain more about what we and his teachers have seen. I would be happy

> to talk on or off the list.

>

>

> rybabysmom wrote:

>

> >Hi. I recognise quite a few of you. I guess it's a small world

> >afterall. Anyways I'm a mom to two boys. My 9yo is currently dxed

> >pddnos and add adhd combined. However I'm not finding what I need in

> >my basic autism research. I think he's more Asperger like. Yet our dr

> >says he won't dx him as such due to his history of speech delays and

> >such. My youngest, whose almost 3, has no dx as of yet, but he's

> >definitely on the spectrum.

> >I'm in Virginia and am hating our current school. My oldest has a

> >speech only IEP. I had him fully tested. Even requested an IEE when

> >the committee still found him not elgible. Nothing has changed their

> >minds. He's making honor roll grades and that's that. My problem is

> >the behavior which is escalating as I type! I'm not talking about

> >the " odd " behaviors even. Sure he talks outloud to himself nonstop.

> >And he talks too loud. And he's impulsive. Etc. For us that's just

> >our son. However over the past 2 yrs, esp the past few months things

> >are rapidly changing. It coincided w/ the stratera, but the dr

> >doesn't think that's it. And I hate to take him off. He's so much

> >more focused in class and at home w/ homework and such. Now though he

> >has outbursts. Yells, kicks, etc. He refuses to give an inch. He

> >won't listen to reason. And nothing in life is fair. The school has

> >steadfastly disregarded my pleas for behavior charts and or

> >modifications. They claimed his behavior had turned around. And for

> >awhile I stopped getting notes from school. Now we have a new teacher

> >due to maternity leave. And she is going crazy w/ my son. So here

> >goes the daily notes all over again. I just don't have it in me for

> >another fight. The dr's advise is zoloft. I sure hope that helps.

> >My youngest was briefly seen by SECEP, our autistic division. He's

> >not severe enough to attend their classes. Yet his current staff have

> >no knowledge of autism. He's also beginning to have outbursts. He

> >kicked, hit, bit, and pulled my hair yesterday. His IEP is next week.

> >And I know there's nothing new in it. They aren't doing half of his

> >goals now. There has to be something else.

> >Any and all advice appreciated.

> >

> >a

> >

> >

> >

> >

[Guest guest]

In a message dated 5/27/03 12:31:42 PM Eastern Daylight Time,

rybabysmom@... writes:

> I wanted to know all that too. Thanks. Although technically both

> neither of my kids will have the AS dx they are very much the same

> way as ya are describing.

>

Why will they not get the AS dx? If you explained it before, DO IT AGAIN !

lol. I'm slow this week, okay?

Roxanna

ò¿ò

It makes sense to go up the molehill

dressed for the mountain

Nan, the Wiser

[Guest guest]

I wanted to know all that too. Thanks. Although technically both

neither of my kids will have the AS dx they are very much the same

way as ya are describing.

For the longest time I failed to realise that kids were NOT suppose

to watch full length Disney flicks at age 1. Or that entertaining

themselves for hours was not normal. For my oldest the journey has

been slow. Although I can no longer pinpoint the exact time he is

just now really engaging in real conversation. For yrs he did not

speak any real language. Lot's of babble. Then he spoke minimally and

was hard to understand. Then he went to long monologues. Real

conversation has finally happened. It still needs lot's of work, of

course. I learned alot so this time around I'm more w/ it. So my

youngest has already shown some signs of wanting to connect. He

actually grabbed my face to look at me one day. He still has little

speech. And can hardly follow the simplest of commands. But

occasionaly it clicks and he WANTS to connect. And it's great. It's

also different. You get use to the self entertaining. And the 1 sided

conversations. Then boom!

a

He can't always but he has

> made some progress with independence and focusing in this area.

> One major change (and do I dare admitt that I almost miss the

old

> who would play for hours quietly while I did my work) is

that he

> wants to talk to me and show me things and play with me more. I

just

> realized the other day that part of the reason I am not getting

things

> done in the house is that my son is engaging me more.

> But of course seeing him in such pain after the hot lunch and

seeing

> the teachers shocked faces after having two great weeks of progress

was

> enough for me to realize that these two foods are toxic for some

people

> and my son is definetly one of them.

> I would definetly try the diet Margaret there is nothing to loose

by

> doing it. I am so new to this but I can certainly keep you posted

as to

> our progress. I have actually decided to attend an autism

biomedical

> conference this summer so I can understand how to keep my son

well.

> Did you read my other post about the vitamins that he is on. I

feel

> those are likely very important as well.

>

> P.S. Going to sleep at night has gone from 1/2 hour to 10 mins-

Yes!!!

> mom can watch the evening news.

>

>

> Margaret wrote:

>

> > ~ What kind of behaviors did the diet seem to help with...I

have a 7

> >year old with Asperger's and am wondering if I should give that a

try?

> >Margaret

> >

> > Re: ( ) intro

> >

> >

> >

> >

> >>Hi a;

> >>My name is and I have a 6 yo son with aspergers. We

have

> >>recently(May 1) taken him off all dairy and gluten as well as

> >>implimented vitamins.We are amazed at the difference in him. I

just had

> >>to respond as I notice that your sons behaviour and s sound

very

> >>similar. If you are interested in this kind of intervention I

could

> >>explain more about what we and his teachers have seen. I would be

happy

> >>to talk on or off the list.

> >>

> >>

> >>rybabysmom wrote:

> >>

> >>

> >>

> >>>Hi. I recognise quite a few of you. I guess it's a small world

> >>>afterall. Anyways I'm a mom to two boys. My 9yo is currently

dxed

> >>>pddnos and add adhd combined. However I'm not finding what I

need in

> >>>my basic autism research. I think he's more Asperger like. Yet

our dr

> >>>says he won't dx him as such due to his history of speech delays

and

> >>>such. My youngest, whose almost 3, has no dx as of yet, but he's

> >>>definitely on the spectrum.

> >>>I'm in Virginia and am hating our current school. My oldest has a

> >>>speech only IEP. I had him fully tested. Even requested an IEE

when

> >>>the committee still found him not elgible. Nothing has changed

their

> >>>minds. He's making honor roll grades and that's that. My problem

is

> >>>the behavior which is escalating as I type! I'm not talking about

> >>>the " odd " behaviors even. Sure he talks outloud to himself

nonstop.

> >>>And he talks too loud. And he's impulsive. Etc. For us that's

just

> >>>our son. However over the past 2 yrs, esp the past few months

things

> >>>are rapidly changing. It coincided w/ the stratera, but the dr

> >>>doesn't think that's it. And I hate to take him off. He's so much

> >>>more focused in class and at home w/ homework and such. Now

though he

> >>>has outbursts. Yells, kicks, etc. He refuses to give an inch. He

> >>>won't listen to reason. And nothing in life is fair. The school

has

> >>>steadfastly disregarded my pleas for behavior charts and or

> >>>modifications. They claimed his behavior had turned around. And

for

> >>>awhile I stopped getting notes from school. Now we have a new

teacher

> >>>due to maternity leave. And she is going crazy w/ my son. So here

> >>>goes the daily notes all over again. I just don't have it in me

for

> >>>another fight. The dr's advise is zoloft. I sure hope that helps.

> >>>My youngest was briefly seen by SECEP, our autistic division.

He's

> >>>not severe enough to attend their classes. Yet his current staff

have

> >>>no knowledge of autism. He's also beginning to have outbursts. He

> >>>kicked, hit, bit, and pulled my hair yesterday. His IEP is next

week.

> >>>And I know there's nothing new in it. They aren't doing half of

his

> >>>goals now. There has to be something else.

> >>>Any and all advice appreciated.

> >>>

> >>>a

> >>>

> >>>

> >>>

> >>>

[Guest guest]

Tanja,

Go to the " " Home Page at and click on " FILES " on

the left hand side. Read the following:

7-Month Peptizyde/Zyme Prome Summary Report

Dosing Guidelines

Enzymes Success Stories and Not-So-Success Stories

Mixing Suggestions

Possible Side-Effects

Then click on " LINKS " and go to www.enzymestuff.com for more invaluable

information.

Hope this helps to get you started. Good luck! KIM

Intro

Hello everyone. I am not new here, but haven't posted and haven't

really even been lurking since I don't think I was ready to learn

about enzymes yet. I think now I need to though, so any suggestions

you may have would be a blessing. I have a 4 year old autistic

daughter, , who would love to have some of our pizza!!

Whenever we order it she always tries to sneak some -- even if we

put the boxes on top of the frig she will get a chair and try to get

it!! I figured if I started enzymes (which ones though??) perhaps

she could eat it!!

Tanja

[Guest guest]

In a message dated 7/13/03 5:17:14 PM Eastern Daylight Time,

mamaofmany@... writes:

> so glad I found this group. hopefully, together we can explore this

> condition and find hope, help, and understanding for our kids and

> ourselves...

>

> Blessings

>

>

Welcome to our group !! Feel free to join in whenever you like!

Roxanna

ò¿ò

It makes sense to go up the molehill

dressed for the mountain

Nan, the Wiser

[Guest guest]

>>>>>>hello, everyone. I am , mom to eleven, grandma to one. As most

of

our kids are adopted with special <<<<<<

I am speechles, and that does not happen often. welcome !!

F

[Guest guest]

>

> >>>>>>hello, everyone. I am , mom to eleven, grandma to

one. As most of

> our kids are adopted with special <<<<<<

>

>

> I am speechles, and that does not happen often. welcome !!

>

> F

Yeah, what she said...!! Welcome!

Kathy

[Guest guest]

Hello

Welcome aboard.

WOW!!! 11 kids. God bless you.

Sometimes I feel overwhelmed and I only have two. )

Bradley - 6 AS/ADHD/OCD

and Ally - 5 NT

You seem like a kind caring person with a lot of experience to share.

It is comforting to know that your child's behavior wasn't your fault. It

is

a disorder and there are ways to improve behavior but knowing you didn't

cause it is quite a relief.

Jump in anytime.

Take care

Dawn - Happy Birthday to your 11 yr old son.

hello, everyone. I am , mom to eleven, grandma to one. As most of

our kids are adopted with special needs, I thought I'd handled just about

everything. But our puzzlement has always been our almost 14 yo bio-boy.

He has had a string of alphabet soup after his name since early childhood,

including ADHD and SIDS. as a child he had several autistic tendencies, but

spoke early and very well (a car was never a car, but a Volkswagen or a

Ferrari or ...<g>).

As he went through adolescence, his symptoms went thru the roof. His social

skills are nil and he could care less, his hygiene habits sunk to a new low,

he lived on his computer, etc. for a couple years, we wondered what we

were doing wrong!

Just recently we " discovered " asperger's syndrome as a probable diagnosis.

When a friend sent a website listing the usual symptoms, I thought they had

been watching our Will for years, they had him pegged so closely.

What a relief to know that his more-bizarre mannerisms were not bad

parenting, but genetics. (we had always said that what he really had was

" Arthur-itis " after my father, who HAS to be aspie!).

so glad I found this group. hopefully, together we can explore this

condition and find hope, help, and understanding for our kids and

ourselves...

Blessings

FTR: I also have a son (adopted) age 11 today! who has been labeled with

institutional autism (vague definition pending further development). I

strongly suspect he is also aspie, although we are exploring other varieties

of autism for him.

[Guest guest]

Welcome! Sounds like aspergers to me, too. I'm sure you will like it

here. I have learned so much. And everyone has been so supportive.

a

> Just recently

> so glad I found this group. hopefully, together we can explore this

> condition and find hope, help, and understanding for our kids and

> ourselves...

>

> Blessings

>

>

> FTR: I also have a son (adopted) age 11 today! who has been

labeled with

> institutional autism (vague definition pending further

development). I

> strongly suspect he is also aspie, although we are exploring other

varieties

> of autism for him.

[Guest guest]

my son was at times, and the psychiatrist said it is not an intrinsic trait of

AS but the sign that the child has really peaked his stress level......

F

( ) intro

Hi! I am new to the group. I have a 10 year old son with ADHD,

Asperger's, and " ??? " . I also have a 13 year old son with ADHD,

dyslexia, and Asperger tendencies. I am seeking ideas to address the

" ??? " part of my younger son's world. The biggie is that he is

aggressive with peers, disruptive, and provocative. Do you know if

this is rare with AS kids, or is it fairly common. Thanks.

Becky

[Guest guest]

Becky,

Welcome to our group! I've got a 15 year old son also named who's got AS.

When he was about 10, he was very

aggressive with peers, and his teachers found him quite disruptive and

provocative. Mostly, incidents of those sorts

would happen when he was pushed to his limits by the other children. They knew

exactly which buttons to push to get

him to react or melt down. We took him out of the school (a private school) and

put him in public school, which

helped.

The good thing is that at age 15, after lots of good therapy, and pragmatics

(speech therapy), and counseling, he no

longer does that stuff so much. He's got a much longer fuse, and has much better

coping mechanisms. Hang in there,

Liz

Mueck wrote:

> Hi! My name is Becky. I have two sons with a variety of difficulties.

> , 13, has ADHD, dyslexia, and Asperger tendencies. , 10, has

> severe ADHD, Asperger's, and " ??? " . I am trying to get some ideas on the

> " ??? " part of 's life. I think it links to his current diagnosis, but

> the psyhiatrists can't get together on this. The psychologists and I seem

> to be on the same page. can be aggressive with peers, disruptive,

> and provocative. Is this common with AS kids, or is it rare?

>

> Thank you,

>

> Becky

>

> _________________________________________________________________

> Get MSN 8 and enjoy automatic e-mail virus protection.

> http://join.msn.com/?page=features/virus

>

>

>

[Guest guest]

My son is AS, and he can be very aggressive, swipe everything off the desk,

knock over chairs, spit at you, hit, kick, and more. Last year, his first year

at the middle school was a disaster, he disrupted more classrooms than I can

count. H e is only provocative if he is provoked, after 8 years of school, the

one thing they say, if he is never the one to initiate conflict, he just gets

sucked into it, by " trying to help " .

School started today here. My youngest son, his first year in the middle

school, whole different world, compared to elementary, did not go that well, got

lost, couldn't open his locker, the norms of first day at middle school.

But the good news for my AS son is, an aide that worked in the program he was in

at the elementary level for four years, has moved into the program he is in now.

He worked very well with her. He was tickled pink, although at the age of 13,

he tried not to show it.

I guess miracles do happen

Uplift <uplift@...> wrote:

my son was at times, and the psychiatrist said it is not an intrinsic trait of

AS but the sign that the child has really peaked his stress level......

F

( ) intro

Hi! I am new to the group. I have a 10 year old son with ADHD,

Asperger's, and " ??? " . I also have a 13 year old son with ADHD,

dyslexia, and Asperger tendencies. I am seeking ideas to address the

" ??? " part of my younger son's world. The biggie is that he is

aggressive with peers, disruptive, and provocative. Do you know if

this is rare with AS kids, or is it fairly common. Thanks.

Becky

[Guest guest]

Thank you all for your very nice comments regarding our intro. I

have an 11 page protocol and diary for my son if anybody is

interested please e-mail me at jill_martinez@.... Regarding a

pizza recipe and other diet issues, the Body Ecology Diet is

excellent. Also, for our son, we can't overlook the importance of a

good overall educational program. Greenspan is awesome. So, is Dr.

Pardington. Don't forget speech therapy, exercise (my son loves an

open gymnastics program) and playdates. Keep our kids very busy

having fun! Finding compatible playdates can be tricky. I was very

honest and frank with a good friend of mine, asking her son to try

playdates. They were very touched and excited to try and help. I

think if I hadn't approached them this way, they would have assumed

that my son didn't want playdates so they would have shyed away from

him. If I didn't have such a good friend, perhaps I would try a

Sunday school for such support.

Thanks for reading my 2 cents! You all are amazing parents. Jill