intro

[Guest guest]

HI Jo and welcome! Happy new year and you are AMONG FRiends here!!

A fantastic group of people!

For AWESOME Autism gear look here!

http://www.cafepress.com/autismawarenes

-- Re: ( ) Intro

Hi everyone - I just want to quickly introduce myself. I am Jo, and have a son (8 y/o) who has recently been diagnosed with Asperger's. Thank you for letting me join your group. I hope to gain lots of "hands on" knowledge for my family. I live in Michigan. It's been a rough year, but here's to a GREAT 2008!

Happy New Year all!

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

Hi Jo, I'm Kathy and I have a 9 y/o Asp. he was diagnosed in September. This group has a wealth of info. I love being here, I have learned so much...Happy New Year...Kathy

[Guest guest]

I'm Heidi and I have a 4 year old who was diagnosed in May. I have learned a ton here too. It's a great way to anonymously vent, and to glean information from people who have been here. I also feel like I " m getting the support I so desperately need. So welcome.

On 1/2/08, <katherin_carter@...> wrote:

Hi Jo, I'm Kathy and I have a 9 y/o Asp. he was diagnosed in September. This group has a wealth of info. I love being here, I have learned so much...Happy New Year...Kathy

[Guest guest]

THANK YOU all so much for the warm welcomes! I am relieved to be part of a support group .... who understand! :-) Jo Heidi Guarino <heidi.guarino@...> wrote: I'm Heidi and I have a 4 year old who was diagnosed in May. I have learned a ton here too. It's a great way to anonymously vent, and to glean information from people who have been here. I also feel like I"m getting the support I so desperately need. So welcome. On 1/2/08, <katherin_cartersbcglobal (DOT) net> wrote: Hi Jo, I'm Kathy and I have a 9 y/o Asp. he was diagnosed in September. This group has a wealth of info. I love being here, I have learned so much...Happy New Year...Kathy

Never miss a thing. Make your homepage.

[Guest guest]

Happy New Year to you too Kathy and welcome to our happy cyberspot!

RoxannaAutism Happens

( ) Re: Intro

Hi Jo, I'm Kathy and I have a 9 y/o Asp. he was diagnosed in September. This group has a wealth of info. I love being here, I have learned so much...Happy New Year...Kathy

[Guest guest]

Hi Jo,

My son is 7 years old and was diagnosed 2 months ago. It is great to

finally have an answer to all the questions we have had, but it has

also been difficult learning to make adjustments and finding what

works. we moved to Texas from 4 years ago - sure miss all four

seasons! I spoke with my mother-in-law this evening - she and my

father-in-law are attending a lecture about Asperger's this friday. It

is so great to have family support.

I think we will find some great info from this group!

Look forward to exchanging info with you ...

Debbie

>

> Hi everyone - I just want to quickly introduce myself. I am Jo, and

have a son (8 y/o) who has recently been diagnosed with Asperger's.

Thank you for letting me join your group. I hope to gain lots

of " hands on " knowledge for my family. I live in Michigan. It's been

a rough year, but here's to a GREAT 2008!

> Happy New Year all!

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

>

[Guest guest]

Welcome Trysh,

You will get lots of info here. I am 5 years post explant. I walked around like

a zombie for many years asking doctors if it could be my implants and they all

said no. I had continual infections (sinus) and took rounds and rounds of

antibiotics. That was their answer. They were silicone and they finally

ruptured. I am getting better slowly and my focus is starting to come back. I

added vitamin B therapy several months ago and I am sleeping better than I have

in years. Its a journey. Glad you are here.

Joanne

>

> Hello All. I just found this group today. To tell you a bit about where I

am... I received modest saline implants in 1993 in CA. I have had no issues that

I knew of with them and have been pleased with their appearance. I did start

suffering from migraines within a year or two and had sleep difficulty on and

off. However, within the last 4 months I have started experiencing an onset of

fairly extreme symptoms including: significant fatigue, sleeplessness at night;

aches and pains; a round 50 cent piece sized flaky rash on the left side of the

collarbone; enlarged lymph node on left side of neck [ultrasound scheduled for

Monday]; enlarged lymph nodes in left groin area; hair loss; excess oil in hair

and on face; acne-like rash on upper chest; etc. I went to a primary care dr.

about 6 wks ago and she did some blood work revealing an elevated ana of 1:640.

She referred to a rhuemologist who did additional blood work which showed

elevated antiphospoid lipids [sp]. As of last Tues. she did more blood work

which is not back yet. I think she believes it is lupus.

>

> Last night I was continuing to research lupus and came across drug-induced

lupus which made me think of anything that I could ever have taken to cause

it... I thought of the juvederm lip injection I had about 4 months ago but that

didn't seem to be it but some sites mentioned implants. I had NEVER even thought

of them!! Honestly, I don't think I even put them on the medical history for the

rhuemotologist sheet as I was so focused on the symptoms and my prior history of

miscarriages, etc. It just never came up. I realize the issue of whether any

implants cause immune issues is a touchy one and much debated. The fact is that

mine are 15 years old and I am a 38 year old mother of 6 [5 adopted] who feels

98 some days. If it is lupus or lymphoma or other, I will deal with it but if

there is any likelihood that it is the implants, I want them out or even if

there is a chance due to their age they are complicating things. No one ever

suggested at the time that they needed replaced at a certain time unless a

rupture occurred. I never thought of replacing or removal.

>

> I am glad I found this group and the other support groups out there. Of

course, with all of the unknowns, I am scared. I lost my Mother last year to

lymphoma and lung cancer. I also am scared of the more superficial things... how

I will look with the implants out/the damage that may be there, etc. I never

imagined I would be in this position.

>

> Trysh

>

[Guest guest]

Hi Trysh,

Welcome to the group. I think we all can relate to what you said about " never

imagining we would be in this position. " It's tough when you make the

connection between the symptoms and the implants and the last thing you want to

be the cause. Many women here have had your lupus-like symptoms.

I too had the swollen lymph nodes in the neck and was tested for lymphoma. It

turns out it was negative and despite mostly normal blood work, I had a lot of

auto-immune symptoms you have described...fatigue, sleeplessness, aches and pain

among a host of other things. I also had the excess oil on the face but never

thought about it until you just mentioned it...that started about 6 months after

implantation.

I do want you to know that you can get well. Many women have had lupus-like

symptoms and even full diagnoses and recovered through diet, detox and some

lifestyle changes. If you look in the files section you can find a California

doc who is knowledgeable in removal, using a full capsulectomy (this is

critical).

You briefly mentioned replacing...if you have a positive ANA, I wouldn't advise

it. Don't be afraid of what you will look like...many on the forum (including

myself) like our natural selves better than when implanted and have more breast

tissue left than we expected. I defintely look better now than I did

pre-implant.

Good luck with your ultra sound tomorrow and if you have any other questions,

don't hesitate to ask.

~PH

>

> Hello All. I just found this group today. To tell you a bit about where I

am... I received modest saline implants in 1993 in CA. I have had no issues that

I knew of with them and have been pleased with their appearance. I did start

suffering from migraines within a year or two and had sleep difficulty on and

off. However, within the last 4 months I have started experiencing an onset of

fairly extreme symptoms including: significant fatigue, sleeplessness at night;

aches and pains; a round 50 cent piece sized flaky rash on the left side of the

collarbone; enlarged lymph node on left side of neck [ultrasound scheduled for

Monday]; enlarged lymph nodes in left groin area; hair loss; excess oil in hair

and on face; acne-like rash on upper chest; etc. I went to a primary care dr.

about 6 wks ago and she did some blood work revealing an elevated ana of 1:640.

She referred to a rhuemologist who did additional blood work which showed

elevated antiphospoid lipids [sp]. As of last Tues. she did more blood work

which is not back yet. I think she believes it is lupus.

>

> Last night I was continuing to research lupus and came across drug-induced

lupus which made me think of anything that I could ever have taken to cause

it... I thought of the juvederm lip injection I had about 4 months ago but that

didn't seem to be it but some sites mentioned implants. I had NEVER even thought

of them!! Honestly, I don't think I even put them on the medical history for the

rhuemotologist sheet as I was so focused on the symptoms and my prior history of

miscarriages, etc. It just never came up. I realize the issue of whether any

implants cause immune issues is a touchy one and much debated. The fact is that

mine are 15 years old and I am a 38 year old mother of 6 [5 adopted] who feels

98 some days. If it is lupus or lymphoma or other, I will deal with it but if

there is any likelihood that it is the implants, I want them out or even if

there is a chance due to their age they are complicating things. No one ever

suggested at the time that they needed replaced at a certain time unless a

rupture occurred. I never thought of replacing or removal.

>

> I am glad I found this group and the other support groups out there. Of

course, with all of the unknowns, I am scared. I lost my Mother last year to

lymphoma and lung cancer. I also am scared of the more superficial things... how

I will look with the implants out/the damage that may be there, etc. I never

imagined I would be in this position.

>

> Trysh

>

[Guest guest]

Hi Connie, nice to meet you. i have psoriatic arthritis possible ra since

they are treated most the time the same that's what we say it is. I am on

Methotrexate. I also have complex regional pain syndrome and fibro. I have

taken

cymbalta for almost a year with no problems, i thought it wasn't helping for

the nerve pain but i stopped it for a couple days and boy did i know it.

Not only is it an antidepressant it was first used for diabetic neuropothy and

then just recently approved for fibromyalgia. Many people with chronic pain

issues etc also need to take an antidepressant as well. With cymbalta you

get both. Hope this helps

Jolene

In a message dated 4/2/2009 12:11:53 P.M. Eastern Daylight Time,

conniefalaschi@... writes:

My name is Connie. I was diagnosed with RA, OA, and Fibro about 4 years

ago. Two years of trying to find drugs that would work finally had me quit the

whole thing. Things got worse over the two years I was gone so I went back

to my doctor. Came home with a bunch of drugs.

She wants to start me on Orencia if my Insurance will OK it. Has anyone had

this drug and how did it work for you?

I have a kind a rare type of RA that does not cripple you, but if left

untreated can cause a heart attack, congestive heart failure, and it attacks

lymph

cells. That is what she told me at this last visit.

She also game me Cymbalta, which I am not so sure if I want to try. I had

been using Wellbutrin before and that worked well for me. I have read the

side effects of Cymbalta and read what people have had to say on it, and I am

not sure that it is worth trying it. I could use some advice on that also.

I was also thinking that if the Limbrel that she gave me works on both OA,

and Fibro, then why use the Cymbalta? Any thoughts on that? I would like to

limit the amount of drugs that I take if I can.

The fibro makes me more crazy than the rest, and I do not have that as bad

as most. It is mostly in my shoulders. The OA is in my lower back which is

the real pain (excuse the pun) LOL.

Any help anyone could give me with my questions would be appreciated.

Thanks and God Bless

Connie

[Non-text portions of this message have been removed]

**************New Low Prices on Dell Laptops – Starting at $399

(http://pr.atwola.com/promoclk/100126575x1220433304x1201394525/aol?redir=http:%2\

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[Guest guest]

Jolene,

Nice to meet you also.  Thanks for the imput on the cymbalta.  I am still

thinking.  LOL.

God Bless

Connie

 

 

________________________________

From: " Jolenefive@... " <Jolenefive@...>

Sent: Thursday, April 2, 2009 1:11:32 PM

Subject: Re: [ ] Intro

Hi Connie, nice to meet you. i have psoriatic arthritis possible ra since

they are treated most the time the same that's what we say it is. I am on

Methotrexate. I also have complex regional pain syndrome and fibro. I have taken

cymbalta for almost a year with no problems, i thought it wasn't helping for

the nerve pain but i stopped it for a couple days and boy did i know it.

Not only is it an antidepressant it was first used for diabetic neuropothy and

then just recently approved for fibromyalgia. Many people with chronic pain

issues etc also need to take an antidepressant as well. With cymbalta you

get both. Hope this helps

Jolene

In a message dated 4/2/2009 12:11:53 P.M. Eastern Daylight Time,

conniefalaschi writes:

My name is Connie. I was diagnosed with RA, OA, and Fibro about 4 years

ago. Two years of trying to find drugs that would work finally had me quit the

whole thing. Things got worse over the two years I was gone so I went back

to my doctor. Came home with a bunch of drugs.

She wants to start me on Orencia if my Insurance will OK it. Has anyone had

this drug and how did it work for you?

I have a kind a rare type of RA that does not cripple you, but if left

untreated can cause a heart attack, congestive heart failure, and it attacks

lymph

cells. That is what she told me at this last visit.

She also game me Cymbalta, which I am not so sure if I want to try. I had

been using Wellbutrin before and that worked well for me. I have read the

side effects of Cymbalta and read what people have had to say on it, and I am

not sure that it is worth trying it. I could use some advice on that also.

I was also thinking that if the Limbrel that she gave me works on both OA,

and Fibro, then why use the Cymbalta? Any thoughts on that? I would like to

limit the amount of drugs that I take if I can.

The fibro makes me more crazy than the rest, and I do not have that as bad

as most. It is mostly in my shoulders. The OA is in my lower back which is

the real pain (excuse the pun) LOL.

Any help anyone could give me with my questions would be appreciated.

Thanks and God Bless

Connie

[Guest guest]

Hi Connie,

I am going on my third dose of Orencia and it has worked so well for me! I

could really tell a difference after the second treatment. Before, my

hands were so swollen they were bruising and I could barely walk. Now my

hands are back to normal and my hips hurt less. I also was switched from

Effexor XR after 6 years to Cymbalta. If you are taking prednisone at all,

it lessens the effects of many antidepressants. I love Cymbalta and think

it does better for me than the Effexor did and I really like Effexor..

I also went online an researched both drugs. I also got overwhelmed by

the negative press on both drugs. However, I think there is a negative to

every single drug or holistic treatment. Sometimes the internet provides too

much information! In the end, I prayed on it and I just decided I had

little to loose and I would try the Cymbalta and the Orencia.

Good luck!

G

..

<http://geo./serv?s=97359714/grpId=101478/grpspId=1705061610/msgId=

127580/stime=1238688658/nc1=1/nc2=2/nc3=3>

[Guest guest]

,

Thanks for your imput, and the heads up about the effects that prednisone have

when taking antidepressents.  That is good to know.

I hope that these drugs work as well for me as they do for you.

God Bless

Connie

  

________________________________

From: ldydewinter <ldydewinter@...>

Sent: Thursday, April 2, 2009 3:01:33 PM

Subject: RE: [ ] Intro

Hi Connie,

I am going on my third dose of Orencia and it has worked so well for me! I

could really tell a difference after the second treatment. Before, my

hands were so swollen they were bruising and I could barely walk. Now my

hands are back to normal and my hips hurt less. I also was switched from

Effexor XR after 6 years to Cymbalta. If you are taking prednisone at all,

it lessens the effects of many antidepressants. I love Cymbalta and think

it does better for me than the Effexor did and I really like Effexor..

I also went online an researched both drugs. I also got overwhelmed by

the negative press on both drugs. However, I think there is a negative to

every single drug or holistic treatment. Sometimes the internet provides too

much information! In the end, I prayed on it and I just decided I had

little to loose and I would try the Cymbalta and the Orencia.

Good luck!

G

..

<http://geo.. com/serv? s=97359714/ grpId=101478/ grpspId=17050616

10/msgId=

127580/stime= 1238688658/ nc1=1/nc2= 2/nc3=3>

[Guest guest]

Hi Tammy! Welcome to the group! Feel free to join in anytime you like!

 Roxanna

" The only thing necessary for the triumph of evil is for good men to do

nothing. " E. Burke

( ) intro

Hi, my name is Tammy. My ds was just diagnosed with

Asperger's or a form of ASD. We homeschooled for the last 6 years so it

went

unnoticed until recently. He had gotten into some trouble and the

courts got

involved and insisted that he go to public school. I thought for many

years that

he had ADD/ADHD but after a full psyche evaluation we found out

different.

Things have been fitting together since the diagnoses and it has

explained so

much about his actions that I took as " weird " but normal for him. I had

a nurse

friend point out that there may be something wrong with him because

many times

he just blanked out or didn't understand. She also put it this way, "

the lights

were on but nobody was at home. "

 

[Guest guest]

Hi Everyone,

I joined a few days ago and am happy to be here. My name is Kathy, I live in

South Jersey, about 30 mins from Philly. I'm 55 and have had fibro for over 30

yrs now, and RA almost as long.

My main reason for joining is to maybe get insight into how those of you who

work do it. I very much want to start a home-based business, have been wanting

this for a number of years. However with the fibro, this seems impossible. Years

ago I had a home-based business, but gave it up as it became too much being ill,

doing the work, raising our daughter and home responsibilities. I am pretty much

in the same situation now, but my health is very much worse. When I was

diagnosed, Dr told me it would progressively get worse. Now I realize how

correct she was.

Also, after all these years, I still hate being ill, and each day is more a

battle to function than anything else. I feel acceptance is my problem and am

working it--for years now. Each time I think I've made headway, I realize how

strong my non-acceptance is. I go to my Higher Power and always get the same

message, accept it and take it easier. I am assuredly caught in a circle with

this.

I have tried many treatments over the years. Honestly, nothing really gave me

much relief. There were a few things which worked for short periods and then I

evened out, and then progressively went back to where I was. I don't take meds

for the fibro or ra as nothing has helped with the pain. I don't want to take

anything I can become addicted to or have to steadily increase dosage. I've

heard and read many stories of people who wind up doing that. Also, I already am

on meds as I have other conditions for which I must take medications.

I don't get much in the way of support from my family and don't see that

changing. I also joined a fibro support group so this will be a cross post. My

apologies if any of you are on that group also.

Please know if I don't post, it's because I can't, not that I am ignoring the

group.

Thank you for having me, and thanks for reading.

all my best, Kathy R