intro

May 5, 2007

Ear infections can cause delayed speech. I would go to the school

district, have him evaluated, and do speech therapy through the

school.

Tina

>

> Want to say a quick hi. I am mom to 5 great kids and my 4 yr old

has

> problems speaking clearly. We finally decided that there was

> something wrong at about 2 or 2 and half when he could only say a

> couple of words, and they were not spoken correctly. He did go to a

> speech therapist once a week for a while, and was making minor

> progress, and then he got a new speech therapist who saw him twice

a

> week and for a longer period of time each visit. He started

> improving much more rapidly, but then she decided to end her

> career. He went back to the previous therapist, and I was not

> impressed with the results and the short 20 minute sessions once a

> week, so I pulled him out. About that time, insurance refused to

> pay anymore. We live in a rural area, and there isn't much

> available.

>

> Where would you direct me to " start " learning more about this whole

> topic and what I can do to make things better for my son? I think

> for him, the speech problems were brought on by excessive ear

> infections between 1 and 1 and half yrs old, so he couldn't hear at

> a crucial time of development. This sounds different than a

> neurological problem, or maybe it lead to one?

> Thanks,

>

May 5, 2007

Hi , Start with your pediatrician who should be able to give you the

information for Early Intervention services in your area. They will do an

assessment and provide therapy as needed. At age three, he can begin work in

the public school. Good luck....Fay, Damon's grandmother

[ ] Intro

Want to say a quick hi. I am mom to 5 great kids and my 4 yr old has

problems speaking clearly. We finally decided that there was

something wrong at about 2 or 2 and half when he could only say a

couple of words, and they were not spoken correctly. He did go to a

speech therapist once a week for a while, and was making minor

progress, and then he got a new speech therapist who saw him twice a

week and for a longer period of time each visit. He started

improving much more rapidly, but then she decided to end her

career. He went back to the previous therapist, and I was not

impressed with the results and the short 20 minute sessions once a

week, so I pulled him out. About that time, insurance refused to

pay anymore. We live in a rural area, and there isn't much

available.

Where would you direct me to " start " learning more about this whole

topic and what I can do to make things better for my son? I think

for him, the speech problems were brought on by excessive ear

infections between 1 and 1 and half yrs old, so he couldn't hear at

a crucial time of development. This sounds different than a

neurological problem, or maybe it lead to one?

Thanks,

May 5, 2007

>

> Want to say a quick hi. I am mom to 5 great kids and my 4 yr old

has

> problems speaking clearly. We finally decided that there was

> something wrong at about 2 or 2 and half when he could only say a

> couple of words, and they were not spoken correctly. He did go to

a

> speech therapist once a week for a while, and was making minor

> progress, and then he got a new speech therapist who saw him twice

a

> week and for a longer period of time each visit. He started

> improving much more rapidly, but then she decided to end her

> career. He went back to the previous therapist, and I was not

> impressed with the results and the short 20 minute sessions once a

> week, so I pulled him out. About that time, insurance refused to

> pay anymore. We live in a rural area, and there isn't much

> available.

Well if you live in Florida I've Used Early Steps and if you dont

live in Florida I would contact them and see if they can help you or

direct you in that way.

Nikki

>

> Where would you direct me to " start " learning more about this

whole

> topic and what I can do to make things better for my son? I think

> for him, the speech problems were brought on by excessive ear

> infections between 1 and 1 and half yrs old, so he couldn't hear

at

> a crucial time of development. This sounds different than a

> neurological problem, or maybe it lead to one?

> Thanks,

>

May 23, 2007

See 's posts re: allergies and see if you can try a food diary so

you can see what he eats when throwing up.

Shapsis wrote:

>Hello Everyone,

>My name is I reside in NY with my 19-month old and DH. My son

>is in the Early Intervention program and he has PT, OT, and Speech

>therapy. He is getting better at talking but is still slow for his age.

>Basically, he is learning two languages so this is the problem.

>

>On another note, he has GI irritation due to cutting his molars. He was

>voming a month ago for like 2 weeks off and on and now it has started

>all over again. Has anyone experienced this?

>

><http://www.tickerfactory.com/weight-loss/wcrQNBL/>

><http://www.tickerfactory.com/weight-loss/wpdTo6d/>

><http://www.tickerfactory.com/weight-loss/wcrQNBL/>

><http://newyork.areaconnect.com/>

>

June 12, 2007

Get rid of the milk/dairy.

wrote:

>Want to say a quick hi. I am mom to 5 great kids and my 4 yr old has

>problems speaking clearly. We finally decided that there was

>something wrong at about 2 or 2 and half when he could only say a

>couple of words, and they were not spoken correctly. He did go to a

>speech therapist once a week for a while, and was making minor

>progress, and then he got a new speech therapist who saw him twice a

>week and for a longer period of time each visit. He started

>improving much more rapidly, but then she decided to end her

>career. He went back to the previous therapist, and I was not

>impressed with the results and the short 20 minute sessions once a

>week, so I pulled him out. About that time, insurance refused to

>pay anymore. We live in a rural area, and there isn't much

>available.

>

>Where would you direct me to " start " learning more about this whole

>topic and what I can do to make things better for my son? I think

>for him, the speech problems were brought on by excessive ear

>infections between 1 and 1 and half yrs old, so he couldn't hear at

>a crucial time of development. This sounds different than a

>neurological problem, or maybe it lead to one?

>Thanks,

>

November 5, 2007

Hi ,Welcome to the group!If you have MS, taking LDN will very likely be of benefit.For more information about treating MS, visithttp://tinyurl.com/grpm9With best wishes,Dudley Delany

dudley_delanyFrom: Gibbons

Sent: Monday, November 5, 2007 11:31 AM

low dose naltrexone

Subject: [low dose naltrexone] Intro

Hello,

I'm new here... 35 y.o. female, currently going through the MRI series to see if I have MS. I've suffered from many of my symptoms for over 3 years, with newer, more extreme symptoms over the last 4-6 weeks.

My dr. put me on LDN earlier this year as an experimental approach to treating granuloma annulare. I have it on both arms, and have had it for 8 years. After many months with no change to the GA, I stopped taking it. I didn't think to pay attention to my other symptoms, and I haven't kept a good symptom journal up until now. I have 4 refills left of LDN, and am having some sent out today. I will begin taking it immediately!

I am having vision problems, mobility issues, cognitive issues & moderate to severe pain over the majority of my body. I am hopeful that LDN will help some or all of these symptoms!

Looking forward to reading about everyone's experiences with LDN.

Regards,

November 5, 2007

>

> Hello,

>

> I'm new here... 35 y.o. female, currently going through the MRI

series to

> see if I have MS. >

> Regards,

>

===========

,

my LDN site might help you in your LDN research. Go to the link below

and ignore the little google ads at the top, just scroll past them.

Low Dose Naltrexone Forum - Home

http://ldn.proboards3.com/index.cgi?

November 5, 2007

Symptoms between MS, Fibromyalgia, Heavy metal poisining (amalgams),

Chronic Fatigue , chronic candia/yeast, and Lyme-overlap quite a bit.

I thought i had FMS for 8 years then had optic neuropathy attack(with

loss of some vision and tested negative for MS. I'm on the lyme track

right now. Get tested by IGENEX for wester blot (lab in

california)... also consider candia/yeast strict diet and cleanse. No

easy answers I'm afraid. I'm on LDN. seeing some improvement (but I'm

also doing other things). Also try dairy/gluten/sugar/additive free

diet. Also look at greatplainslab website and work by amy yasko with

autism and overlap with other immune system issues. I hope modern

medicine starts to advance more quickly. Unfortunately, I'm afraid

with immune system issues we are still in the dark ages! In hindsight,

I should not have just assumed I had Fibromyalgia the first 8

years-although I did alot with diet and exercise and supplements it

was not enough. Good luck on your healing journey!

-- In low dose naltrexone , " Gibbons "

<nicoleraegibbons@...> wrote:

>

> Hello,

>

> I'm new here... 35 y.o. female, currently going through the MRI

series to

> see if I have MS. I've suffered from many of my symptoms for over 3

years,

> with newer, more extreme symptoms over the last 4-6 weeks.

>

> My dr. put me on LDN earlier this year as an experimental approach to

> treating granuloma annulare. I have it on both arms, and have had

it for 8

> years. After many months with no change to the GA, I stopped taking

it. I

> didn't think to pay attention to my other symptoms, and I haven't kept a

> good symptom journal up until now. I have 4 refills left of LDN, and am

> having some sent out today. I will begin taking it immediately!

>

> I am having vision problems, mobility issues, cognitive issues &

moderate to

> severe pain over the majority of my body. I am hopeful that LDN

will help

> some or all of these symptoms!

>

> Looking forward to reading about everyone's experiences with LDN.

>

> Regards,

>

November 7, 2007

Hi ...after reading the Enzymes and Autism book, we came to the

same conclusion as you - enzymes seem like they could be good for

everybody! In addition to giving enzymes to my 6 yr old ASD

daughter, we started taking them as well (me, my husband, and 4 yr

old NT son). My husband and I both felt better with the enzymes and

we saw an improvement in my son's ezcema. It's been about 9 months

and we're still taking them. Try them and see how you feel.

Carol

>

> Hi. Not sure if I am doing this right. I tried to send an intro

and

> question before and haven't seen it. Maybe I'll get it right this

time.

>

> My name is . I have three children. 12, 9 and 5. My oldest

has

> been diagnosed with Aspergers. He has a lot of anxiety issues as

> well. His neurologist has been really pressuring us to put him on

> meds. We've resisted b/c we want to exhaust all of our other

options

> before considering that. And, he doesn't want to take meds if he

> doesn't have to.

>

> I ordered the book on Enzymes and Autism from my local bookstore and

> it finally came in this weekend. I'm on chapter 7 and am very

> intrigued by this whole idea of digestive enzymes. It sounds as if

> this is a good route regardless of whether or not you are on the

> spectrum. Sounds like a healthy choice for all. Do any of you all

> take the enzymes as well. I don't have any of these issues, but

from

> reading the book, it sounds like something good for overall health

> regardless.

>

> I've been reading your posts for a few weeks, so I thought I'd go

> ahead and introduce myself.

>

November 30, 2007

Sara – My son is almost 8. This summer I did enzymes, no diet. Just

diagnoses PDD-NOS, very high functioning, social little boy. Anyway, I just

did 2 doses, 2 chewables twice a day and stopped when school started. He

fought so bad on taking them, terrible battle I was sick, of honestly.

Halloween night, he told me he thought he needed to go back on enzymes.

School and I were seeing issues, some that we hadn’t seen in years, like

covering his ears when the toilet flushed. Getting up strangely almost

every night, crying a lot at school and chewing like we’d never seen before.

I wrote his teacher we were starting up and we went back to a liquid vitamin

too.

Fast forward. In just a few weeks we had our old kid back and his OT, PT,

couldn’t not believe the difference in him the past prior weeks (this was at

parent coferences in the middle of Nov.) They hadn’t been told he was put

on enzymes from his teacher and they loved the progress he was making and

told me not to change a thing. We’ll I have cut back on now to do some

testing with Great Plains but still doing enzymes. I’m hoping for great

progress and anxious to see what school has to say in December.

Tammy

Intro

Hello,

My name is Sara. I have a 7 yr ds diagnosed at 3.5 with SPD and at

4.5 with PDD-Asperger's. I have a 3 yr ds that is not diagnosed with

anything, but shows alot of sensory sensitivities. We have done

homeopathy for the past 2 years. Older ds did OT about 3 years ago.

We do not do any special diets. We do not do any special

supplementations.

Things have improved at our house, but it just seems like there is

something more I can do for both boys. I have been sitting on

Defelice's book for a while now, but am hesitant. I started re-

reading it this past weekend. I am very interested in enzymes, but

not so much starting GFCF diet.

I would love to hear from anyone that did enzymes with either no diet

modification or minimal diet modification. What have been your

results?

Thanks!

Sara

November 30, 2007

Tammy...

May I ask what enzymes you are using?

Thanks.

Carla

>

> Sara – My son is almost 8. This summer I did enzymes, no diet.

Just

> diagnoses PDD-NOS, very high functioning, social little boy.

Anyway, I just

> did 2 doses, 2 chewables twice a day and stopped when school

started. He

> fought so bad on taking them, terrible battle I was sick, of

honestly.

> Halloween night, he told me he thought he needed to go back on

enzymes.

>

> School and I were seeing issues, some that we hadn't seen in years,

like

> covering his ears when the toilet flushed. Getting up strangely

almost

> every night, crying a lot at school and chewing like we'd never

seen before.

> I wrote his teacher we were starting up and we went back to a

liquid vitamin

> too.

>

> Fast forward. In just a few weeks we had our old kid back and his

OT, PT,

> couldn't not believe the difference in him the past prior weeks

(this was at

> parent coferences in the middle of Nov.) They hadn't been told he

was put

> on enzymes from his teacher and they loved the progress he was

making and

> told me not to change a thing. We'll I have cut back on now to do

some

> testing with Great Plains but still doing enzymes. I'm hoping for

great

> progress and anxious to see what school has to say in December.

>

> Tammy

>

> Intro

>

> Hello,

>

> My name is Sara. I have a 7 yr ds diagnosed at 3.5 with SPD and at

> 4.5 with PDD-Asperger's. I have a 3 yr ds that is not diagnosed

with

> anything, but shows alot of sensory sensitivities. We have done

> homeopathy for the past 2 years. Older ds did OT about 3 years ago.

> We do not do any special diets. We do not do any special

> supplementations.

>

> Things have improved at our house, but it just seems like there is

> something more I can do for both boys. I have been sitting on

> Defelice's book for a while now, but am hesitant. I started re-

> reading it this past weekend. I am very interested in enzymes, but

> not so much starting GFCF diet.

>

> I would love to hear from anyone that did enzymes with either no

diet

> modification or minimal diet modification. What have been your

> results?

>

> Thanks!

> Sara

>

November 30, 2007

I'm using the Houston, zyme, no phonel, AFP Pep! He feels so much better on

them. Honestly, I didn't see huge gains over the summer except we had a

pretty nice summer. It has just gotten better each year raising him in

general. But he understands now, and we were talking about it all summer,

I'm trying to heal his body and mind. He understands, he gets redirected a

lot at school and home/karatee for lack of focus. Gross motor skills are

improving too. I notice in jumping jacks. Crazy, hey?

Tammy

Intro

>

> Hello,

>

> My name is Sara. I have a 7 yr ds diagnosed at 3.5 with SPD and at

> 4.5 with PDD-Asperger's. I have a 3 yr ds that is not diagnosed

with

> anything, but shows alot of sensory sensitivities. We have done

> homeopathy for the past 2 years. Older ds did OT about 3 years ago.

> We do not do any special diets. We do not do any special

> supplementations.

>

> Things have improved at our house, but it just seems like there is

> something more I can do for both boys. I have been sitting on

> Defelice's book for a while now, but am hesitant. I started re-

> reading it this past weekend. I am very interested in enzymes, but

> not so much starting GFCF diet.

>

> I would love to hear from anyone that did enzymes with either no

diet

> modification or minimal diet modification. What have been your

> results?

>

> Thanks!

> Sara

>

November 30, 2007

Hi to you all. I am new to the group and have up to now just been reading the

posts to see what information I can gather.

Tammy, I was very moved by your reports of your son's progress. My son (just

turned 8) is also PDD-NOS, as well as ADHD and quite possibly Bipolar. He is

very high functioning (talking at 6 months, full sentences by a year). He too

is extremely loving and social boy and quite musically talented. (it is so

easy to brag about our kids, isn't it?)

We have tried just about every mood stabilizer, stimulant and psychotropic med

out there. Nothing really seems to help completely. Stimulants make him calm

and help relieve his sensory stuff, a little. But then he is a zombie with no

purpose. Mood stabilizers calm the rages and rapid cycling, but his sensory

stuff goes off the charts and he has zero impulse control (lately he has to have

his chewy on a lanyard around his neck so that he won't ruin his clothes and

coat, he also has started peeing on the walls and floor and running around the

house flapping his arms).

I am seriously encouraged by your son's progress and would love to try this as

well. Can you tell me exactly what you mean by " enzymes " ? I am so new to this

world of alternative care that I am afraid I don't have a clue as to what

everyone is talking about most times.

Thanks for the post.

Kris

Intro

Hello,

My name is Sara. I have a 7 yr ds diagnosed at 3.5 with SPD and at

4.5 with PDD-Asperger's. I have a 3 yr ds that is not diagnosed with

anything, but shows alot of sensory sensitivities. We have done

homeopathy for the past 2 years. Older ds did OT about 3 years ago.

We do not do any special diets. We do not do any special

supplementations.

Things have improved at our house, but it just seems like there is

something more I can do for both boys. I have been sitting on

Defelice's book for a while now, but am hesitant. I started re-

reading it this past weekend. I am very interested in enzymes, but

not so much starting GFCF diet.

I would love to hear from anyone that did enzymes with either no diet

modification or minimal diet modification. What have been your

results?

Thanks!

Sara

November 30, 2007

Tammy,

Thank you for your response. It is very encouraging.

Some of the issues my 7 yr old seems to be in constant battle with are

focus and noise sensitivity. Socially, he is also a bit behind his

peers. It seems so surreal to think taking some enzymes with his food

could help alleviate some of these struggles.

Sara

December 13, 2007

Hi Jeni,

<<I keep reading about other books on this group and I want to buy

them all! But most aren't available here (Australia)>>

Are you a member of the australian biomedical group? Search for

" biomedicalautismgroup " if you are not already signed up. It's a

fantastic group and they have an extensive lending library. I'm going

to be donating some hard to get books before I head back to California

next month.

December 14, 2007

Hello....Athough I haven't banded Anabel yet....we are set in motion though. I think that if you are worried and/or concerned about the shape of his head then you should persue it and get a second opinion. Good luck and keep us updated.

Keri

Plagiocephaly From: susanginn@...Date: Fri, 14 Dec 2007 08:27:26 -0500Subject: Intro

My name is . My son, Nate, is 12 months old. He was born 6 weeks premature and has a condition called schizencephaly. Currently, he can't sit, roll over, crawl and he hates tummy time. We try to use the Bumbo, a ny jump up and a high chair as much as possible but it seems no matter how hard I try he spends a lot of time on his back. He has significant plagio as a result.I saw his neuro this week. She said he's symmetrical and therefore doesn't want to do a helmet or band. She said his skull is still soft and might round out itself. I'm worried. Is the window of opportunity closed for him? Should I push for it? Is there anything else I can be doing at home?Any advice would be greatly appreciated.

December 14, 2007

Hi ,

welcome to the group. If his head is symmetrical but flat in back it

is called brachycephaly (brachy). That is what my daughter had, and I

would really encourage you to band him since you say it is

significant. With brachy the head gets wider and/or higher than normal

and can be quite misshapen even thought it is symmetric. Unless you

band to hold the width etc, it won't even out. Even with banding it is

not common to completely correct the problem. My daughter did very

well, but I still see some remaining problems. She wore a band from 5

to 10 mo old (starband). I would try and get banded as quickly as

possible so you can catch the most growth. You can see pics of sydney

before and after as well as a scan that shows the change in the photos

section under Our Plagio Babies S/Sydney M. - this link should take

you to the page:

http://health.ph./group/Plagiocephaly/photos/browse/e3ac?b=28 & m=\

t & o=0

It is really hard to repo for brachy since even keeping him off his

back won't keep the head from getting wider. I would push for the

band. Let me know if you have questions.

-christine

sydney 23 mo starband grad

>

> My name is . My son, Nate, is 12 months old. He was born 6 weeks

> premature and has a condition called schizencephaly. Currently, he

> can't sit, roll over, crawl and he hates tummy time. We try to use the

> Bumbo, a ny jump up and a high chair as much as possible but it

> seems no matter how hard I try he spends a lot of time on his back. He

> has significant plagio as a result.

>

> I saw his neuro this week. She said he's symmetrical and therefore

> doesn't want to do a helmet or band. She said his skull is still soft

> and might round out itself. I'm worried. Is the window of opportunity

> closed for him? Should I push for it? Is there anything else I can be

> doing at home?

>

> Any advice would be greatly appreciated.

>

December 14, 2007

, Great information...thank you. I can't believe the

remarkable difference it made with Sydney! You don't think it's too

late for my 1-year-old Nate? Although his corrected age is 10 months,

so maybe that makes a difference. I will definitely push for it though.

Do any of you feel guilty about this? I'm kinda taking it personally

that I could have done more to prevent this. Actually, I KNOW I could

have done more to correct this. Daggone it! Do any of you feel this

way?

On Dec 14, 2007, at 12:35 PM, christineashok wrote: