New here...

[Guest guest]

Hi suzie,

My 5 year old daughter also has systemic jra. She was diagnosed at 9

months old. If you need anything at all let me know. You can IM me anytime.

n

[Guest guest]

Welcome Suzie,

I am and my daughter Alecia has systemic JRA.

[Guest guest]

Hi Sindea,

We live in Puyallup Washington.I just had a little girl who is two months.

Lucky for me my daughters doctors respects my opinion.

My first daughter is Dtap damaged.Your smart for going with the home birth

I wish I had with my second one especially,you get sick of hearing nurses

say whats wrong with your daughter and I reply she was damaged by pertussis.

Then they say its so rare,I look them in the eye and say apparently not it

happened to my daughter.

I love when people are willing to listen though and there are people out

there.

We need to form a anti vaccine support group in Washington.

Washington has got to be one of the worst places to convince doctors that it

vaccines,but after they were done testing my daughter they had no choice.

She was seen by 23 specialist.

We seem to like Childrens hospital the best though they are more open minded

then Bridge in Tacoma and Good Sam!

Overwhelmed just a little!

a

Email me privately :doshiwoo297@...

[Guest guest]

paula,

can you tell me what the vaccine did to your daughter?

christin

[Guest guest]

The Dtap vaccine made her temperature go up to 106.7

she had the weirdest scream you ever heard, I know now that

this was anaphylactic shock its where they want to hang upside down

and there head almost touches there toes. I believe it when it is

pertussis is killing the brain. She also had a febrile seizure from temp.

I have never seen anything like it. I called 911 or who knows how much

worse it could have been, like this was not bad enough.

She became lethargic, she could not roll anymore, she would stare at lights

and it was like the light that used to be in her eyes came.

It is the most heart breaking thing to grieve a what once was a normal and

exceptionally

bright child.

a Mom of Brittany

[Guest guest]

Hi, Sindea -

Glad you found it! I forgot to warn you, though, that there are a LOT of

posts!! I actually have a separate e-mail address for my vax and natural

medicine groups. That way I can peruse when I'm available and it doesn't

fill up my 'personal' e-mail address. Sorry I forgot to warn you! :-)

Teri

[Guest guest]

I want to say HI and Welcome to all the new

members that have posted. I've been busy with a newly walking and

teething 13 month old! =) Our family lives in MI. My

son Aydn was born at home, sleeps with us, still breastfeeds, gets carried

in the Maya Wrap or my arms *a lot*, etc. We didn't circumcise him

and decided there was no way we were having him vaccinated. I'm sure

you'll find all the info you need from this site! Again, welcome!

Odrade ~ Aydn's mama

Sindea wrote:

Hi

there-I am

Sindea, mom to Raiden (almost 4) and pg due in November- with what seems

to be a boy! His name might be Zane Indiana... I am married

to Geoff, and we live near Seattle. I work from home as a photographer,

and am also a very part time doula. I hope to study more about natural

health some day, more formally so I may be able to help people... I

have done a few immunizations. One was not by choice. I had

Raiden in a hospital (this one will be a home birth) and they gave the

Hep B without consent. I was NOT pleased... Now after being so busy

and not dealing with immunizations as much as you do an infant, I need

to re-educate myself!Sindea

www.hurphotography.com

[Guest guest]

Welcome , All of us older ones wish that we had the opportunity

to do this when we were your age. Enjoy you new life because it is

going to be so much better without being severely obese. Fabulous

weight loss !!! By the way please come up with something to

distinguish yourself from all the other 's on the list because

it can get confusing at times.

We are here when you need us.

Marjory/Ca

8/30/00 285/180

New here...

> Hello everyone!

>

> My name is and I am from Indiana. I just joined the

group and

> am happy to be a member. I am 23, and 5 months post-op. I am doing

great! 90

> lbs. thinner and still losing. I work in theatre and am also a

student. I am

> so thankful that I have had the surgery, thus far - no complaints

yet!!

> I have to get some sleep. I hope to hear from everyone soon!

Take

> care!!

>

>

>

>

>

[Guest guest]

Welcome !

Tonya in MN

3-28-01 Dr. R.

New here...

Hello everyone!

My name is and I am from Indiana. I just joined the group

and

am happy to be a member. I am 23, and 5 months post-op. I am doing great!

90

lbs. thinner and still losing. I work in theatre and am also a student. I

am

so thankful that I have had the surgery, thus far - no complaints yet!!

I have to get some sleep. I hope to hear from everyone soon! Take

care!!

[Guest guest]

Ditto to that! Welcome /Indiana and what great success! Phew! Keep

it up.

PhillyJude MGB 11-3-00

[Guest guest]

WELCOME, . And Congratulations on the 90 lb weight loss!

in OK

mgb 3/29/01

303/256.5

Hello everyone!

My name is and I am from Indiana. I just joined the group and

am happy to be a member. I am 23, and 5 months post-op. I am doing great! 90

lbs. thinner and still losing. I work in theatre and am also a student. I am

so thankful that I have had the surgery, thus far - no complaints yet!!

I have to get some sleep. I hope to hear from everyone soon! Take

care!!

[Guest guest]

--

Hi !

Your doing great !

The only regret I have about the MGB is not doing it when I was in my

20's.....power to you! MAy the world be at your feet....endless yrs

of happiness!

Lori

- In @y..., StagePhntm@a... wrote:

> Hello everyone!

>

> My name is and I am from Indiana. I just joined the

group and

> am happy to be a member. I am 23, and 5 months post-op. I am doing

great! 90

> lbs. thinner and still losing. I work in theatre and am also a

student. I am

> so thankful that I have had the surgery, thus far - no complaints

yet!!

> I have to get some sleep. I hope to hear from everyone soon!

Take

> care!!

>

>

>

>

>

[Guest guest]

Hi

Where in Indiana? I grew up in Plainfield due west of Indianapolis about 15

miles. I have my 30th class reunion end of July. I hope to make it!

aW

New here...

Hello everyone!

My name is and I am from Indiana. I just joined the group and

am happy to be a member. I am 23, and 5 months post-op. I am doing great! 90

lbs. thinner and still losing. I work in theatre and am also a student. I am

so thankful that I have had the surgery, thus far - no complaints yet!!

I have to get some sleep. I hope to hear from everyone soon! Take

care!!

[Guest guest]

Welcome to the group and congratulations on the weight loss you have

had. It is fantastic!!!!! I am 6 months post-op today. I will be

posting my stats hopefully tomorrow. I have an appointment with my

PCP today. I also am from Indiana. What part of Indiana do you live

in? I live in Northern Indiana. In a town called Atwood. I wish

you continued good luck with the results of surgery.

Bonded by our experience, strength and hope

Rhonda

MGB - 11/30/00

279/216/???

> Hello everyone!

>

> My name is and I am from Indiana. I just joined the

group and

> am happy to be a member. I am 23, and 5 months post-op. I am doing

great! 90

> lbs. thinner and still losing. I work in theatre and am also a

student. I am

> so thankful that I have had the surgery, thus far - no complaints

yet!!

> I have to get some sleep. I hope to hear from everyone soon!

Take

> care!!

>

>

>

>

>

[Guest guest]

aW,

I am in Southern Indiana near Louisville, KY. )

[Guest guest]

Hi ,

Welcome to our side! Congratulations on your weight loss!

Rosemary

New here...

> Hello everyone!

>

> My name is and I am from Indiana. I just joined the group

and

> am happy to be a member. I am 23, and 5 months post-op. I am doing great!

90

> lbs. thinner and still losing. I work in theatre and am also a student. I

am

> so thankful that I have had the surgery, thus far - no complaints yet!!

> I have to get some sleep. I hope to hear from everyone soon! Take

> care!!

>

>

>

>

>

[Guest guest]

In a message dated 10/05/2001 6:46:20 AM Pacific Daylight Time, jc@... writes:

I have a list a mile long of all my health problems that are

minor and just wanted to see if anyone could give me a clear

list of symptoms and success stories?

JC,

Here's a link to what I consider one of the best sites for thyroid info on About.com.

http://thyroid.about.com/cs/basics_starthere/ Shomon has gathered all kinds of interviews and information into a very effective informative site and you can gain lots of insight into your condition here.

Also, Gail's Thyroid Tips is another good site. You can find it at: http://home.usaa.net/~wurmstein/

It's about 40 pages which I find kinda hard to read from the web so I printed it out to read and then I went back and followed all the links she has in the text of her writing.

My success so far, has come from folowing the T3 protocol called 's treatment. My doctor is helping me with it. I don't remember ever feeling as good a I do now and I'm still on a low dosage and my temperature still isn't back up to 98.6. I gave the link a few emails ago to the 's site but let me know and I'll send it again.

Let us know how you're doing,

in LA

"We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey

http://geocities.com/llheinsohn/index.html

[Guest guest]

and All:

Should any of you desire a long, detailed and comprehensive insight into

thyroid dysfunction and its devastating effects on health, and how to

prevent and reverse it,I am attaching my latest monograph for your perusal.

Earl

[Guest guest]

>Trying to find a cure for the eosinophilic gastroenteritis for him had become my passion

I have no idea what eosinophilic gastroenteritis is, but you might want to check this out: http://www.scdiet.org

This diet seems to be good for a lot of "gastro" problems.Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

So sorry to hear that you have been entangled in this mess! As you already know,

it is an awful ordeal. But I am very glad to hear you have located a doctor in

Hermitage. I'm assuming it's either Dr. J or Dr. S. In either case, you will

receive much better care than you have so far. There are no quick answers, but

with patience and the right mix of antibiotics, most people seem to make

substantial improvement, if not a complete end to their symptoms. So there is

reason for hope!

The insurance problems are no doubt a huge burden for you, financially and

psychologically. I have been blessed to have great insurance coverage so far

through my battle, so I have little to complain of there. I think others on the

list will be able to empathize and share with you some ideas for getting the

treatment you need.

You asked about whether you should keep working. I have worked throughout my

illness (only 7 months, compared to your 2+ years), but have had the flexibility

to take things very slowly when I needed to. It's very important not to push too

hard - - if you overtax your body, you undermine the ability of your immune

system to do its thing. I know firsthand - - when I started feeling quite a bit

better after a couple of months of antibiotics, I pushed really hard and then

had a massive relapse, from which I am still coming back.

You've found a good forum here, though. Feel free to ask questions and draw upon

the expertise of the good folks here!

Best,

Jeff

>>> live4me@... 03/25/03 10:53PM >>>

<html><body>

<tt>

I recently found that I have Lymes, even though I have had on going <BR>

symptoms for 2 + years now, I found out by chance, because I needed <BR>

answers and wasn't getting them. I was involved in a auto accident <BR>

back in 6/2000 after having 2 major back surgeries, upon insisting my <BR>

neuro-surgeon perform an MRI on my surgery site finding all was in <BR>

tact. He advised I get a lawyer and neurologist which he referred me <BR>

to. I followed up on both, thinking that my left side weakness and <BR>

pain was a result of the accident. Mind you this was in 6/2000.<BR>

<BR>

I had been sent to physical therapy for a period of 6 months with no <BR>

help for the pain, weakness and numbness in my left arm and leg, <BR>

although my back tension was immensely relieved!<BR>

<BR>

I was seeing a primary care physician, for an array of issues; <BR>

diarrhea, pain in leg and arm, sinus, breathing difficulties, asthma, <BR>

I developed a tick in my right eye which occasionally moved to the <BR>

left eye. I was having difficulty walking and falling often, my son <BR>

had attempted to wake me since he missed the bus one morning and I <BR>

would not respond to him, he shook me and still I would not respond, <BR>

he & nbsp; waited there & nbsp; a while and finally upon my waking I was <BR>

disoriented and had tremors, suspicious I was having nocturnal <BR>

seizures, (I had seizures between the age of 13-21) since I was not <BR>

getting any answers to my surmounting list of ailments, I made an <BR>

appointment with another doctor I had gone to previously, but had <BR>

stopped because my bc/bs was pulled out from me by my estranged <BR>

husband. At the time I had seen her previous to this, we were <BR>

pursuing the thought that I may have MS, it was when I went to the <BR>

neurologist at that time the insurance had been yanked, stopping the <BR>

pursuit of ruling out MS as a diagnosis. <BR>

<BR>

She then ordered and EMG, a Brain scan and the brain scan indicated <BR>

indifferences on the frontal left lobe, the emg was normal. This was <BR>

in the month of November 2002?? I'm not clear on allot. More recently <BR>

to add to the list of ailments I am experiencing mental fogging, <BR>

memory loss, (brain farts, as I refer to them) and tripping over my <BR>

tongue when I try to speak and typing is another issue thank God for <BR>

spell checker. I know I am missing a few symptoms in here?? Oh I even <BR>

had a tooth pulled out that the Dentist said was good, cause it <BR>

pained me so, after it was out it stilled pained me!<BR>

<BR>

I finally got an appointment in May 2001, with the neurologist, who <BR>

ordered several tests, which were cbc's lyme titer and blot, mri of <BR>

my left knee. She had the brain and back scan sent from my neuro-<BR>

surgeon, all tests but the titer came back negative. The titer which <BR>

was presumptively positive at 1.28. I was not informed of this, even <BR>

upon several calls to inquire of the findings if any. I asked the <BR>

lawyer if they could obtain the findings so I knew if there was <BR>

anything found. since I could not get any answers from her. I finally <BR>

got the results in January of 2002. <BR>

<BR>

In finding that the Lyme titer was indicating I had something going <BR>

on there I contacted my primary who (due to snow was not available to <BR>

see me) I was seen by another doctor who ordered another lymes test, <BR>

and was not going to administer treatment yet I gripped about it and <BR>

he prescribed 100mg Doxycyline BID. The test came back again <BR>

positive. and I found a lymes specialist in hermitage, PA who again <BR>

ran the tests to find them positive. I could make something of all <BR>

this, but my problem is this:<BR>

<BR>

I am a single mother of 2 challenged children, 1 being ADHD with a <BR>

heart block, emotional depressive anxiety, and he just recently <BR>

placed on SSD after it being dropped due to my back surgeries not <BR>

allowing me to file and meet the deadlines of filing. and yet another <BR>

one & nbsp; with a recent diagnosis of Bi- polar. I am going to get them <BR>

tested also!<BR>

<BR>

I have worked beyond my ability and am beat from trying as long as I <BR>

have, I deliver pizza, I get lost in my directions, I am fatigued <BR>

beyond the ability to even explain, not to mention the pain I am <BR>

enduring in doing my every day medial tasks. I have no prescription <BR>

coverage, nor money available to pay & nbsp; for the 333.09 a month anti-<BR>

biotic they want me to take... not even knowing if this is one that <BR>

will work, since the Doxycyline is not helping, I get the herx real <BR>

bad...Please from what I have given you, is there any way you can <BR>

advise me in what direction I should be going with any of this? <BR>

<BR>

I hear that if I try to get SSID or SSD they do not recognize this as <BR>

a disability, My father who is 71 has MS is on SS and my Aunt who has <BR>

CFS was picked up by SSID but I think they will not recognize this, <BR>

and most doctors for what ever reason do not like filing those forms <BR>

out...<BR>

<BR>

Since, I am suppose to rest as much as possible while on treatment is <BR>

it wise to work?.. and I don't know how to pay my bills if I don't <BR>

work.. let alone pay for the prescription..? will I just get worse..? <BR>

since I can not afford to do anything about this..?<BR>

<BR>

I feel very trapped with no where to go...<BR>

Should I write my congressman?, they have more important things to <BR>

worry about with the war and all...<BR>

Please any help would be appreciated!<BR>

<BR>

<BR>

<BR>

</tt>

<br>

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<tt>

[Guest guest]

Welcome to the group...there are a lot of fabulous people here

with plenty of scientific/natural medicine info. and words of wisdom

to boggle the mind!

I guess I'm one of the younger Lymees in the group (21) but

I've really learned a lot in these past few months as a member. I

really think you're pursueing the right road by also having your

children testing. As you probally know, Lyme is a great mimicker and

there are connections to MS, Alzheimer's as well as a host of

depression related disorders.

I am also in the midst of applying for SSD/SSI and a Minnesota

State Healthcare program. I am curious if the state you live in also

has such a program. If you qualify (in MN) you can recieve a low cost

insurance program as well aid if you are determined disabled by the

state health board (I'm wondering how that will go...hoping well!).

Check into that if you get a chance...I know the paper work is a

pain...but it couldn't hurt especially if you are applying for SSD at

the same time. Best of luck and welcome!

Bridget in MN

[Guest guest]

Welcome to the group...there are a lot of fabulous people here

with plenty of scientific/natural medicine info. and words of wisdom

to boggle the mind!

I guess I'm one of the younger Lymees in the group (21) but

I've really learned a lot in these past few months as a member. I

really think you're pursueing the right road by also having your

children testing. As you probally know, Lyme is a great mimicker and

there are connections to MS, Alzheimer's as well as a host of

depression related disorders.

I am also in the midst of applying for SSD/SSI and a Minnesota

State Healthcare program. I am curious if the state you live in also

has such a program. If you qualify (in MN) you can recieve a low cost

insurance program as well aid if you are determined disabled by the

state health board (I'm wondering how that will go...hoping well!).

Check into that if you get a chance...I know the paper work is a

pain...but it couldn't hurt especially if you are applying for SSD at

the same time. Best of luck and welcome!

Bridget in MN

[Guest guest]

I am unable t o start therapy. I can not afford the 333.00 prescription they

want me to start....

linda

Re: [ ] NEW here...

So sorry to hear that you have been entangled in this mess! As you already

know, it is an awful ordeal. But I am very glad to hear you have located a

doctor in Hermitage. I'm assuming it's either Dr. J or Dr. S. In either case,

you will receive much better care than you have so far. There are no quick

answers, but with patience and the right mix of antibiotics, most people seem to

make substantial improvement, if not a complete end to their symptoms. So there

is reason for hope!

The insurance problems are no doubt a huge burden for you, financially and

psychologically. I have been blessed to have great insurance coverage so far

through my battle, so I have little to complain of there. I think others on the

list will be able to empathize and share with you some ideas for getting the

treatment you need.

You asked about whether you should keep working. I have worked throughout my

illness (only 7 months, compared to your 2+ years), but have had the flexibility

to take things very slowly when I needed to. It's very important not to push too

hard - - if you overtax your body, you undermine the ability of your immune

system to do its thing. I know firsthand - - when I started feeling quite a bit

better after a couple of months of antibiotics, I pushed really hard and then

had a massive relapse, from which I am still coming back.

You've found a good forum here, though. Feel free to ask questions and draw

upon the expertise of the good folks here!

Best,

Jeff

[Guest guest]

Welcome..

NH

Mommy to Abby Liz 10-25-94

Mommy to Anne 7-1-99

[Guest guest]

You did not say your name. But welcome. I pressed send before I could finish. I have a 3 yr old girl to. I also have tons to lose. This is a great bunch of gals. Check out the database at groups for our group. Great info.

NH

Mommy to Abby Liz 10-25-94

Mommy to Anne 7-1-99