Hello

[Guest guest]

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mjbachmantn came up out of the brain fog long

enough to scribble:

> From your description this sounds like the place I'd like to be. I've

> been sick for about 5 years now. Been dx'd for 3. Having a rough go

> of it right now. Does this group have a live chat session? Maybe I'm

> just not finding the right place to " point & click " ! I've never

> joined a chat group before so this is all new to me!

> Thanks,

> mjbachman

MIZ MARCY . . .

HELLO THERE! I'M HOPPING INTO THIS THREAD A BIT BEHIND (AS ALWAYS) --

DUTIES AT THE CFF CLUB KEPT ME AWAY FOR SOME TIME -- I'M SURE YOU

UNDERSTAND.

WELCOME TO THE GROUP. I AM ON SEVERAL MAILING LISTS, AND AM ALSO ACTIVE ON

MESSAGE BOARDS AND IN CHAT ROOMS (BOTH CFIDS AND OTHER STUFF), AND THIS IS

BY FAR ONE OF THE GROUPS THAT IS TRULY MY LIFELINE. I HOPE YOU FIND IT SO

AS WELL.

AS FOR ME: I'M ALLAN, AKA BUBBA SWAMI, HAPPILY MARRIED TO THE EVER-LOVELY

AND SUPPORTIVE CHARLOTTE (AKA MRS. SWAMI), 37, <BUBBA CHECKS TO MAKE SURE>

YEP, MALE, LIVE IN FLORIDA NEAR ORLANDO, WHERE WE ARE BLESSED WITH

WONDERFUL WINTERS, HORRIFIC 9 MONTH LONG SUMMERS AND A DAMNED THUNDERSTORM

SEASON THAT LASTS FROM APRIL TO SEPTEMBER OR OCTOBER

(http://www.cnn.com/WEATHER/9807/08/lightning.strikes/). I HAVE HAD CFIDS

FOR ABOUT 24 MONTHS OR SO, DX'ED IN JANUARY 2002, WORST (AND CURRENT)

EPISODE STARTED DEC 10, 2001. I WAS TERMINATED FROM MY JOB THIS WEEK, AND

I ALSO DISCOVERED TWO MEDICAL PROFESSIONALS SENT FROM HEAVEN.

TWO OTHER THINGS TO CLARIFY FOR YOU: (1) <BUBBA LEANS IN CLOSE TO MARCY

AND WHISPERS, LOOKING AROUND TO MAKE SURE NO ONE IS LISTENING> I AM THE

ONLY SANE PERSON LEFT ON THIS LIST. BE CAREFUL OF THE OTHERS. (2) I POST

INFREQUENTLY SOMETIMES BECAUSE THE ONLY TIME I CAN POST FROM THE

RESIDENTIAL LOCKUP FACILITY I'M IN IS WHEN MY THERAPIST GETS UP TO GO TO

THE BATHROOM AND LEAVES HIS LAPTOP ON HIS DESK. I CAN SOMETIMES SNEAK ON

THERE AND POST UNTIL HE COMES BACK.

YOU ARE AMONG FRIENDS, MARCY, AND I HOPE YOU WILL HANG AROUND, MAKE

YOURSELF COMFY, AND GET TO KNOW US.

HUGS TO ALL . . .

ALLAN ++ BUBBA SWAMI

CEO, BUBBA SWAMI JESTER CO.

P.S. YOU HAD ASKED ABOUT CHATS EARLIER IN YOUR POST FOR THIS GROUP. THIS

GROUP, LIKE ALL GROUPS, HAS A PRIVATE CHAT ROOM, BUT I DON'T BELIEVE THERE

IS A FORMAL TIME FOR CHATS FOR THIS LIST. FEEL FREE TO GET THAT GOING IF

YOU LIKE.

MANY OF US USE INSTANT MESSENGING, AND COMMUNICATE THAT WAY. IF YOU ARE

INTERESTED IN THAT, LET ME KNOW, AND I CAN GIVE YOU MY NICKS FOR EVERY

MAJOR CHAT SERVICE. ALSO, IF YOU *ARE* INTERESTED IN MORE FORMAL CHAT

SESSIONS, LET ME KNOW, AND I CAN POINT YOU TO ENOUGH CHAT SESSIONS THAT

WILL KEEP YOU BUSIER THAN YOU HAVE TIME FOR.

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[Guest guest]

, I know Dell has some deals where you get an additional $100

mail-in-rebate. Hope you get a good deal.

Hello

> How's it going? Computer is still down. :-( But hopefully

soon.

> I think I may have talked Adam into ordering me a Dell and I

will

> make the payments on it. It's the shits when the kids have

better

> credit than the mom! I'm hoping, but if not, I will figure

> something else out. When I get out of work in the morning I'll

be

> off until tuesday night. I NEED A COMPUTER!!!!!

>

>

>

>

>

>

>

> IMPORTANT NOTICE: This e-mail is meant for the use of the intended

recipient.

> It may contain confidential information which is, or may be, legally

> privileged or otherwise protected by law from further disclosure. If you

have

> received this message in error or believe that you are not the intended

> recipient you are strictly prohibited from using, disseminating,

distributing

> or copying the e-mail. You are also directed to forward this e-mail to:

> Helpdesk@... and delete it from your system.

>

>

>

>

>

> " The LUPIES Store " Come check out our store...

> http://www.cafepress.com/thelupies

>

> " The LUPIES Web Page "

> http://www.itzarion.com/lupusgroup.html

>

> " The LUPIES online photo albums! "

> Check out what your fellow Lupies look like...

> http://www.picturetrail.com/gallery/view?username=lupies

>

>

[Guest guest]

Ginger, Welcome. This is a fantastic group with LOTS of knowledgeable

people. I know in my journey, I'm only 6 weeks post op, I've found it

helpful when I had questions. Good luck to you!!!

Carmen

Lap RNY 2/16/06

362/329/288

>

> Hi

>

> My name is Ginger. I am having a lap rny on april 13th at Ohio

State

> University Medical Center in Columbus, Ohio. I live in Baltimore,

> Ohio. I am 40 yrs old, married (22 years), with two daughters, ages

> 20 and 15. I usually get support from obesityhelp.com but I thought

I

> would check this group out!....So....hello!

>

> Ginger

>

[Guest guest]

Ginger, Welcome. This is a fantastic group with LOTS of knowledgeable

people. I know in my journey, I'm only 6 weeks post op, I've found it

helpful when I had questions. Good luck to you!!!

Carmen

Lap RNY 2/16/06

362/329/288

>

> Hi

>

> My name is Ginger. I am having a lap rny on april 13th at Ohio

State

> University Medical Center in Columbus, Ohio. I live in Baltimore,

> Ohio. I am 40 yrs old, married (22 years), with two daughters, ages

> 20 and 15. I usually get support from obesityhelp.com but I thought

I

> would check this group out!....So....hello!

>

> Ginger

>

[Guest guest]

nancy

its so lovely to hear from you.

i am so sorry you have had an infection on top of everything else.

your description of your husband stroking your face was beautiful.

all my life my mother has told me that the loved ones on the other

side come to collect you. she saw it over and over as she just

nursed her own family, people talking and smiling at ghosts.

the last thing she said to my unconscious father was 'go find your

mum', and he did. a few weeks before he died (lung cancer) he was a

bit ill and we were taking turns to sit with him through the nights.

he awoke and told me he could see his two older sisters sitting at

the end of the bed. he said cheekily " am i just meant to pop my

clogs now? " I said, no, you just do what you want. he also asked

me 'who was the baby in my arms' which shocked me but was very

comforting to think that lost babies take the chance to get a cuddle

when the two worlds thin.

the night before my sister died i had a dream that i was sitting by

her hospital bed and a second pauline sat up, whilst the original was

still in the bed, and got out the bed to meet my dad and walked out

the room arm in arm with him. she turned to me, grinned happily and

stuck her tongue out as they both walked away. it wasn't a vision

whilst i was there and sleepy but a dream while i was in a bed. dont

know if that was wishful thinking, her soul leaving her body or a

premonition.

you are a very impressive and special lady and i am so glad that

kathie gave you a little lift. I wonder who sent her.....

love

may uip 0606

glasgow, scotland

>

> Hello everyone,

> Its beeb a while since I have been on. Computer says I have 2,756

> unread messages. I will not be able to read them. Anyway, for all

> of you that cared what happened to me.....thank you very much.

> Somehow I develped a bacterial infection in what is left of my

> lungs. Boy have I been sick. Besides not being able too breathe,

I

> couldnt eat or drink. I tried but just could not do it. My

husband

> did not go to work but stayed home with me. My temperaturee was

very

> high and I just felt really wierd. I took two different anti

biotics

> plus my regular meds. Started to feel a little better last week.

I

> can remember my husband standing at my bedside, carressing my face

> and sayi8ng " please dont leave me yet " But...I wanted to. I am

> tired of this constant struggle. I reallly believe that if my

> children and my husband would tell me that it was ok if I just gave

> up now, that I would probably die soon. I am now using

supplemental

> oxygen in my nose as well as the oxygen in my neck. I really felt

> despondant until.......Kathie came over. She is visiting her

> relatives and they live 2 min. from my house. When I met her, it

> motivated me so much. She has had this disease 12 years, I never

> heard her complain. She lives each day finding the things she can

> still do. I was awestricken with her. Made me get off of my self

> pity wagon. She used to be on 10L and now is on 5. I want to be

> like her. I want to still have hope and find the good things of

> life.

> She came back yesterday, while my son and wife were here from Texas

> to see me. pictures will be posted. I let the neck thing on me

show

> on purpose so that all of you can see what it is like. My husband

> put it in while she was here to she could see that there is no

painj

> or distress involved. She will post the pictures probably this

> weekend. She is a very gentle, kind loving lady and I aam so

> fortunate to have met her. She has helped me to have hope again.

I

> will not be posting often. I still must rest and rest and rest to

> get over all this junk in my lungs. But most of all, I need to be

> able to drink. I have trouble even with a sip. Hope all of you

are

> doing as well as you can be doing. One more thing I want to tell

> you. Some of you may think if was medication causeing it but I

> beliee it really happened. One morning, while I was really really

> sick and struggling......I saw many faces surrounding me. Many many

> people. And I saw my Mom (she is deceased). I could tell she was

> looking for me but she is so short and could not see over the

> people. So, I remember waving and trying to get her to see me.

But

> she didnt. I believe that God probably sends someone to help us

over

> the transition to death and who else but your Mother who loves you

so

> much? It was so comforting but yet a little disconcerting. I

just

> figured she didnt see me cause it was just not yet my time. But I

am

> ready to see her again. Tired of being sick. Tired of trying so

> hard and tired of pretending to people that I am not as sick as I

> really am. Maybe some of you can understand what all this means.

> I appreciate all of you. I really do.

> L

>

[Guest guest]

My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease. Just wanted to say hello and introduce myself.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Hi , I am new to this myself, but I am sure you will be as happy as I've been that I found this group. You can cry, moan, get angry, or just be a little nuts and these people will still love you and be there for you! Ask any questions have, someone will have the answer, or point you in the right direction. Anytime you need me, I will be there. For now, I'll just send some hugs. Keep positive, Terry Kennelly wrote: My name is

and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease. Just wanted to say hello and introduce myself. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi 11/07 IPF Nevada

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Hi , I am new to this myself, but I am sure you will be as happy as I've been that I found this group. You can cry, moan, get angry, or just be a little nuts and these people will still love you and be there for you! Ask any questions have, someone will have the answer, or point you in the right direction. Anytime you need me, I will be there. For now, I'll just send some hugs. Keep positive, Terry Kennelly wrote: My name is

and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease. Just wanted to say hello and introduce myself. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi 11/07 IPF Nevada

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Oh Thank you. I am reading a book about about a guy who has it and I sure wish I could talk to the author. I'm not sure of any procedures here. Is there a time when a bunch are online? Did my email go out to a bunch of people? Thanks Terry, I appreciate the hand of help. Terry Pennisi wrote: Hi , I am new to this myself, but I am sure you will be as happy as I've been that I

found this group. You can cry, moan, get angry, or just be a little nuts and these people will still love you and be there for you! Ask any questions have, someone will have the answer, or point you in the right direction. Anytime you need me, I will be there. For now, I'll just send some hugs. Keep positive, Terry Kennelly <l_kennelly> wrote: My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease. Just wanted to say hello and introduce myself. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi 11/07 IPF Nevada Never miss a thing. Make Yahoo your homepage.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Oh Thank you. I am reading a book about about a guy who has it and I sure wish I could talk to the author. I'm not sure of any procedures here. Is there a time when a bunch are online? Did my email go out to a bunch of people? Thanks Terry, I appreciate the hand of help. Terry Pennisi wrote: Hi , I am new to this myself, but I am sure you will be as happy as I've been that I

found this group. You can cry, moan, get angry, or just be a little nuts and these people will still love you and be there for you! Ask any questions have, someone will have the answer, or point you in the right direction. Anytime you need me, I will be there. For now, I'll just send some hugs. Keep positive, Terry Kennelly <l_kennelly> wrote: My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease. Just wanted to say hello and introduce myself. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi 11/07 IPF Nevada Never miss a thing. Make Yahoo your homepage.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Thanks for the update on what to do. Also thanks for the caregivers. I cry a lot and have panic attacks. I know I'm no help for him because I can't pull myself out of the doldrums. Kennelly Husband Don diagnosed fall of 2006 Became serious fall 2007 We are from the central part of Illinois How many of you are there?Sher Bauman wrote: Hello

.... sorry this is actually a good place for you and your husband. None of us like sharing our disease with another person but you two will be glad you are here. There is a group for caregivers too. http://health.groups.yahoo.com/group/Breathe-SupportCaregivers/ We have all felt what you are feeling now. When you sign off add your husband's name, his diagnosis and date of and your state. Helps us remember you. There are other 's too so add a last

initial. You can go to home page and click around for information and even click on photos and see some of our pictures and get to know us too. Post some of you as well..... Welcome, we'll chat again....... Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there! Hello My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease. Just wanted to say hello and introduce myself. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

... there really aren't any "procedures" as such and you'll get used to everything as you read and post. Peggy named us the "Air-Family" and it stuck. We post all different times...some are in Africa, Scotland, Australia....and all across the country. Yes, your email went out to about 600 members I think we are now. Not all post and some post only occasionally. There does seem to be quite a few of us who post regularly...you'll learn our names quickly.

Does your husband have a good support group within his family? Do you have kids and do they know yet?

Is he seeing a pulmonologist?

Will he be posting himself? What is his name?

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

Re: Hello

Oh Thank you. I am reading a book about about a guy who has it and I sure wish I could talk to the author.

I'm not sure of any procedures here. Is there a time when a bunch are online? Did my email go out to a bunch of people?

Thanks Terry, I appreciate the hand of help.

Terry Pennisi <terrypennisi> wrote:

Hi ,

I am new to this myself, but I am sure you will be as happy as I've been that I found this group. You can cry, moan, get angry, or just be a little nuts and these people will still love you and be there for you!

Ask any questions have, someone will have the answer, or point you in the right direction.

Anytime you need me, I will be there. For now, I'll just send some hugs.

Keep positive,

Terry Kennelly <l_kennelly> wrote:

My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease.

Just wanted to say hello and introduce myself.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi 11/07 IPF Nevada

Never miss a thing. Make Yahoo your homepage.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Hi ,

I am Joe Lamenskie and my wife is Joanie. I was diagnosed in mid Jan. With IPF and we know the feeling like you had a train run over you. This is a great support group and you will get to learn about the disease and discuss several options,opinions and help from the older members. Keep on this site.

Where do you live and Tell us a little about you folks.

Joe/Joanie

-- Hello

My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease.

Just wanted to say hello and introduce myself.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Hi , Welcome to our group. It is so hard to say that other than letting you know you have people in the same boat as you. Is he on 02 ? How many leaders ? About 8 or 9 years ago I had a horrible cough very wet, nasty. Then it stopped. I didn't want to go to the Dr. out of fear. So we moved in March of 04 and the process of meeting a new Dr. led to my Dx.In June I will be 4 years since Dx (diagnosis) All that to say by now you know he is not going to die tomorrow. Live every moment you have. My Dr. just told me March the 12th that attitude is better that any medicine. You will no doubt hear that from others here. It is really hard sometimes hard BUT... There is NO expiration date stamped on his butt...What medications is he on? Do you go to a University Teaching Hosp? That is where most of us go. A bunch of Dr's for one price.. lol.. kidding. They are always up to date with research.Oh I'm blabbing.God Bless you. Love and Prayers, PeggyFlorida, ipf 6/04Worry looks around.Sorry looks back,Faith looks up. Thanks for responding.  Naw!  He won't post. He lets me do all the computer work.   He can turn it on and get to email but that is it.  He is an old farmer who never learned new tech - now I say that tongue in cheek because computers are pretty old and I struggle to tape on the TV.  We have two boys and yes they do know and are very concerned.   The one that lives close is very helpful but they both have young families and they feel helpless.   We are going to have to put a hand rail on the back door and he will do it for us.  We have a wonderful pulmonologist, 2 hours away, who if I have a problem, can talk directly to.   He told us initially that this is a treacherous disease but we are going to fight like crazy to save him.  He continues to weaken.  He has a cough that developed 6 months ago and that was the first real symptom that developed.  The doc said that he has never had coughing be the first and primary symptom.   6 months of listen to him cough hard is tough.  I am a school teacher close to retirement and have had to take an indefinite leave of absence to finish out the year.  I also had another job as a tutor of children with dyslexia and have stopped them both.   To go from busy,busy,busy has been tough. Thanks for your interest and  concern.   I fear he is very very ill, but I'm not sure how much is the medicine he is on.   One day scared to death and the next day confident that we are going to make this.Sorry to ramble.  Kennhusband Don diagnosed fall 2006.  Sher Bauman <bofuswbcable (DOT) net> wrote:...  there really aren't any "procedures" as such and you'll get used to everything as you read and post. Peggy named us the "Air-Family" and it stuck. We post all different times...some are in Africa, Scotland, Australia....and all across the country. Yes, your email went out to about 600 members I think we are now. Not all post and some post only occasionally. There does seem to be quite a few of us who post regularly...you'll learn our names quickly.Does your husband have a good support group within his family? Do you have kids and do they know yet?Is he seeing a pulmonologist?Will he be posting himself? What is his name?  Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there! Re: HelloOh Thank you.  I am reading a book about about a guy who has it and I sure wish I could talk to the author.  I'm not sure of any procedures here.  Is there a time when a bunch are online?   Did my email go out to a bunch of people? Thanks Terry,  I appreciate the hand of help.Terry Pennisi <terrypennisi> wrote:Hi ,I am new to this myself, but I am sure you will be as happy as I've been that I found this group. You can cry, moan, get angry, or just be a little nuts and these people will still love you and be there for you!Ask any questions have, someone will have the answer, or point you in the right direction.Anytime you need me, I will be there. For now, I'll just send some hugs.Keep positive,Terry Kennelly <l_kennelly> wrote:My name is and my husband has been diagnosed with pulmonary fibrosis.  Whoosh, I've had problems finding someone to talk to me.   He is 67 and we feel like we have been run over and tromped upon by this disease.  Just wanted to say hello and introduce myself.Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.Terry Pennisi 11/07 IPF NevadaNever miss a thing. Make Yahoo your homepage.Looking for last minute shopping deals? Find them fast with Yahoo! Search.Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

,

Welcome! Sorry you and your husband have reason to be here but we welcome you all the same. My hope is that you find the compassion, support and friendship on this board that I have. These are some of the best people on the planet.

Just wanted to mention that a persistant cough was definitely my "first and primary symptom" of the pulmonary fibrosis. It made itself known long before I notice any shortness of breath. I was mis-diagnosed with asthma, bronchitis, allergies to my pets etc etc for months before I was finally so sick I ended up in the hospital and was diagnosed via lung biopsy.

What medications is he on?

Please look after yourself too in all this!

Beth in NC age 48 Fibrotic NSIP 06/06

"For as long as I shall live, I will testify to Love."

Re: Hello

Oh Thank you. I am reading a book about about a guy who has it and I sure wish I could talk to the author.

I'm not sure of any procedures here. Is there a time when a bunch are online? Did my email go out to a bunch of people?

Thanks Terry, I appreciate the hand of help.

Terry Pennisi <terrypennisi@ yahoo.com> wrote:

Hi ,

I am new to this myself, but I am sure you will be as happy as I've been that I found this group. You can cry, moan, get angry, or just be a little nuts and these people will still love you and be there for you!

Ask any questions have, someone will have the answer, or point you in the right direction.

Anytime you need me, I will be there. For now, I'll just send some hugs.

Keep positive,

Terry Kennelly <l_kennellyyahoo (DOT) com> wrote:

My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease.

Just wanted to say hello and introduce myself.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi 11/07 IPF Nevada

Never miss a thing. Make Yahoo your homepage.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Hi linda ; I think we have a lot in commonI was raised on a farm my dad retired from school teaching to grow christmas tree'sbefore that we had all the usual animals,,goats, cows, horses, you name it we had it but then he decided to grow xmas treesmy mother was also a school teacher (pre school)but had to quit because of this disease (kids carry a lot of germs)I remember my dad doing everything to take care of herand my brothers and I helped as much as we couldthat was four years ago and I didn't know a thing about this diseasebut I learned as much as I could from all the doctors my mom saw.so I kinda had a head start with this disease when I was diagnosedtry not to think about all the horror's that come with this disease just take it one day at a time it's not the end of the worldtalk to you soon BRETT familial UIP/IPF 11/07 Mi.Thanks for responding. Naw! He won't post. He lets me do all the computer work. He can turn it on and get to email but that is it. He is an old farmer who never learned new tech - now I say that tongue in cheek because computers are pretty old and I struggle to tape on the TV. We have two boys and yes they do know and are very concerned. The one that lives close is very helpful but they both have young families and they feel helpless. We are going to have to put a hand rail on the back door and he will do it for us. We have a wonderful pulmonologist, 2 hours away, who if I have a problem, can talk directly to. He told us initially that this is a treacherous disease but we are going to fight like crazy to save him. He continues to weaken. He has a cough that developed 6 months ago and that was the first real symptom that developed. The doc said that he has never had coughing be the first and primary symptom. 6 months of listen to him cough hard is tough. I am a school teacher close to retirement and have had to take an indefinite leave of absence to finish out the year. I also had another job as a tutor of children with dyslexia and have stopped them both. To go from busy,busy,busy has been tough. Thanks for your interest and concern. I fear he is very very ill, but I'm not sure how much is the medicine he is on. One day scared to death and the next day confident that we are going to make this.Sorry to ramble. Kennhusband Don diagnosed fall 2006. Sher Bauman <bofuswbcable (DOT) net> wrote:... there really aren't any "procedures" as such and you'll get used to everything as you read and post. Peggy named us the "Air-Family" and it stuck. We post all different times...some are in Africa, Scotland, Australia....and all across the country. Yes, your email went out to about 600 members I think we are now. Not all post and some post only occasionally. There does seem to be quite a few of us who post regularly...you'll learn our names quickly.Does your husband have a good support group within his family? Do you have kids and do they know yet?Is he seeing a pulmonologist?Will he be posting himself? What is his name? Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there! Re: HelloOh Thank you. I am reading a book about about a guy who has it and I sure wish I could talk to the author. I'm not sure of any procedures here. Is there a time when a bunch are online? Did my email go out to a bunch of people? Thanks Terry, I appreciate the hand of help.Terry Pennisi <terrypennisi> wrote:Hi ,I am new to this myself, but I am sure you will be as happy as I've been that I found this group. You can cry, moan, get angry, or just be a little nuts and these people will still love you and be there for you!Ask any questions have, someone will have the answer, or point you in the right direction.Anytime you need me, I will be there. For now, I'll just send some hugs.Keep positive,Terry Kennelly <l_kennelly> wrote:My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease. Just wanted to say hello and introduce myself.Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.Terry Pennisi 11/07 IPF NevadaNever miss a thing. Make Yahoo your homepage.Looking for last minute shopping deals? Find them fast with Yahoo! Search.Looking for last minute shopping deals? Find them fast with Yahoo! Search. brett bowserbrett@...

[Guest guest]

Hello

I just wanted to tell you that my brother is well known in Decatur. His name is

Orv Graham. WSOY. Nice to hear from someone from there.

L

---- Fay wrote:

>

>

> Where in central IL are you located. I am in Decatur, IL and was diagnosed

with IPF 06/06 but probably diagnosed 12/05 except that doctor did not want to

tell me. I have been to three different doctors/clinics and settled on

treatment at one in the Chicago area. It is a drive but certainly feels better

than the local doctors.

>

> It is a terrible disease but a positive attitude helps in dealing daily. If I

can help in any way please let me know.

>

> Fay

> IPF 06/06 IL

>

>

>

> Hello

>

>

> My name is and my husband has been diagnosed with pulmonary fibrosis.

Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel

like we have been run over and tromped upon by this disease.

> Just wanted to say hello and introduce myself.

>

>

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

>

>

>

>

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

>

>

>

>

________________________________________________________________________________\

____

> Never miss a thing. Make Yahoo your home page.

> http://www.yahoo.com/r/hs

[Guest guest]

And you are so correct. I might spend a good deal of time on here. I'm gonna have to get a laptop so I can do it in the same room that Don watches tv. Thanks Everyone. K wife of Don Diagnosed fall 2006 Central IllinoisTerry Pennisi wrote: Hi , And you thought you would have no one to talk to! lol I knew you would feel the support from these wonderful people and you sure have. I hope this gives

you and Don much comfort. Here when someone says I know how you feel, you can bet they really mean it! Later, Terry Kennelly <l_kennelly> wrote: My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease. Just wanted to say hello and introduce myself. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi 11/07 IPF

Nevada __________________________________________________

[Guest guest]

Hello, We are in-between Galesburg and Peoria. We live on a farm. Don was a farmer before he retired. I don't know anyone from Decatur, but we call them neighbors. Where do you hail from? I figure from Chicagoland? I grew up in Aurora. Wow guys! I've learned that there are a lot of you out there that have been diagnosed a long time. I know some of you tire of talking about pf but right now I'm still trying to adjust to the life style change in becoming a full time care-giver. Thanks for all the help. Centrnctulip@... wrote: HelloI just wanted to tell you that my brother is well known in Decatur. His name is Orv Graham. WSOY. Nice to hear from someone from there. L---- Fay <wjfay> wrote: > > > Where in central IL are you located. I am in Decatur, IL and was diagnosed with IPF 06/06 but probably diagnosed 12/05 except that doctor did not want to tell me. I have been to three different doctors/clinics and settled on treatment at one in the Chicago area. It is a drive but certainly feels better than the local doctors. > > It is a terrible disease but a positive attitude helps in dealing daily. If I can help in any way please let me know.>

> Fay> IPF 06/06 IL> > > >

Hello> > > My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease. > Just wanted to say hello and introduce myself.> > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > > > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.> > > > __________________________________________________________> Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs __________________________________________________

[Guest guest]

Thanks a ton!!!!!! KJOE & JOANIE LAMENSKIE wrote: Hi , I am Joe Lamenskie and my wife is Joanie. I was diagnosed in mid Jan. With IPF and we know the feeling like you had a train run over you. This is a great support group and you will get to learn

about the disease and discuss several options,opinions and help from the older members. Keep on this site. Where do you live and Tell us a little about you folks. Joe/Joanie -- Hello My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease. Just wanted to say hello and introduce myself. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Hey ,

My Mom was born in Galeburg! Small world.

Beth in NC age 48 Fibrotic NSIP 06/06

"For as long as I shall live, I will testify to Love."

Hello> > > My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease. > Just wanted to say hello and introduce myself.> > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > > > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.> > > > ____________ _________ _________ _________ _________ _________ _> Never miss a thing. Make Yahoo your home page. > http://www.yahoo. com/r/hs

____________ _________ _________ _________ _________ __

[Guest guest]

Hi K,

Welcome to our group. You should sign off using your last name initial because we have a few s.

I am so sorry that your husband has to face the struggle of this disease. It is a hard road to go down, but friends who understand make it easier. That is us. People living through the same situation who "get it."

We will help you in any way that we can.

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16>> My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease. > Just wanted to say hello and introduce myself.> > > ---------------------------------> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.>

[Guest guest]

Thanks, I'll try to remember to do that. I'll eventually get the hang of it. k wife of pf 2006 Central IlJoyce wrote: Hi K, Welcome to our group. You should sign off using your last name initial because we have a few s. I am so sorry that your husband

has to face the struggle of this disease. It is a hard road to go down, but friends who understand make it easier. That is us. People living through the same situation who "get it." We will help you in any way that we can. Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16>> My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we

feel like we have been run over and tromped upon by this disease. > Just wanted to say hello and introduce myself.> > > ---------------------------------> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.>

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Hey MB Kool, Do you know where? I love the quote at the end of your signature. It sends that song running through my head. K Central Ill Wife of Don pf Beth wrote: Hey , My Mom was born in Galeburg! Small world. Beth in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Hello> > > My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease. > Just wanted to say hello and introduce myself.> > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > > > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.> > > > ____________ _________ _________ _________ _________ _________ _> Never miss a thing. Make Yahoo your home page. > http://www.yahoo. com/r/hs ____________ _________ _________ _________ _________ __

[Guest guest]

Oops, I see you are from decatur. Funny, our Doc is in Springfield. K Ill wife of Don pf Fay wrote: Where in central IL are you located. I am in Decatur, IL and was diagnosed with IPF 06/06 but probably diagnosed 12/05 except that doctor

did not want to tell me. I have been to three different doctors/clinics and settled on treatment at one in the Chicago area. It is a drive but certainly feels better than the local doctors. It is a terrible disease but a positive attitude helps in dealing daily. If I can help in any way please let me know. Fay IPF 06/06 IL Hello My name is and my husband has been diagnosed with pulmonary fibrosis. Whoosh, I've had problems finding someone to talk to me. He is 67 and we feel like we have been run over and tromped upon by this disease. Just wanted to say hello and introduce myself. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Never miss a thing. Make Yahoo your homepage.