Hi Everyone

[Guest guest]

I will second this!!! I started out on short term disability as I had to

have female surgery done, I had to go on it a month earlier than my surgery

however because they had to take me off all my meds before hand which was a

nightmare, I couldn't walk and was really feeling rough. After surgery I

thought I'd be back at work, however I was shortly thereafter diagnosed with

s disease and have went on to take advantage of my long term

disability. Luckily I paid the extra 1.00 per pay period to get the larger

of the %'S (60%) of my pay, and I will be on that until either social

security disability is approved (I messed up though, and have had to appeal)

or 17 mos which is what is left of my LTD plan. I agree it is the best

thing I have done to take care of myself. I can't imagine having to work,

and as it stands right now, my endo and my primary care have both deemed me

disabled. I feel blessed, very blessed to have this time to rest and take

care of myself, and my family. Good luck with the SSD!!!

On 1/26/07, rachelviognier@... <rachelviognier@...> wrote:

>

> Hi Deanna...I went on long term disability a few years after I got

> diagnosed

> and before I figured out all of the medications. If your rheumy won't help

>

> you, do you have another doctor that can? My rheumy who did the initial

> disability paperwork retired, so my primary care doctor picked it up for

> me as

> the new rheumy was not overly sympathetic. The disability was the best

> thing I

> did to take care of myself...I had the doctor write it so that I could

> still

> work part time but the extra rest really, really helped get myself better.

>

> If you can't get your current rheumy to help, find a new one...it's worth

> it:-)

>

>

>

>

[Guest guest]

In a message dated 25/01/2007 03:12:46 GMT Standard Time,

deannaacarrigan@... writes:

This is going to sound really stupid but how do you get on disability?

Do you just have to insist on it? Will the Dr. ever suggest it? I

have degenerative osteo arthritis and PsA as well. I just don't know

how long I can keep this up. I have good disability ins thru my work

that I think would carry me thru until the SSD kicked in. I have

worked full time for 30 years and am 49 years old. Any insight anyone

has on this would be greatly appreciated.

Hi Deanna,

Welcome to the group. I know exactly how you feel about trying to work when

you are struggling with this. Although it can be done it's not easy. I stopped

working around 3.5 years ago after having worked for 16 years with PA. At the

end I was going in for a 12 hr+ shift after not having slept the night before.

I am in Scotland but it sounds to me like it is the same idea here as it is

there. (Are you in the US?) You have to fill in a lengthy questionnaire. You

answer the questions going by how you feel when you are at you worst no matter

how well you are actually feeling at the time and you will probably need the

back up of your doctor and/or your Rheumatologist and maybe someone else who

knows you (That's the way it is here anyway) It takes a long time to be approved

and there will probably be an 80% chance of them knocking you back the first

time. If this happens don't give up.

You have probably been told this already by some of the others. I'm

forgetting I'm still about two weeks behind. lol

Best of luck to you,

Take care,

[Guest guest]

I have just walked through this hell with disability

with a friend. he was 3rd degree burned on his hands

at his job in the kitchen and could no longer be a

chef- clear case ? not so fast-two years later he was

still being denied. we finally got an attorney and 6

weeks later he was on

get an attorney

at first problem

good luck

G

--- martincoyless@... wrote:

>

> In a message dated 25/01/2007 03:12:46 GMT Standard

> Time,

> deannaacarrigan@... writes:

>

> This is going to sound really stupid but how do you

> get on disability?

> Do you just have to insist on it? Will the Dr. ever

> suggest it? I

> have degenerative osteo arthritis and PsA as well. I

> just don't know

> how long I can keep this up. I have good disability

> ins thru my work

> that I think would carry me thru until the SSD

> kicked in. I have

> worked full time for 30 years and am 49 years old.

> Any insight anyone

> has on this would be greatly appreciated.

[Guest guest]

Same here... I went and got a lawyer and within weeks they had me on SSDI...

They don't like going to court, so that may help ya...

Love and Peace Always, Shaun and Barb...

[Guest guest]

Barbara,

I'm sure this web site is thrilled to have you on board. Could you answer a simple question that will be easy for you because I see your right here in Jersey. Please give me a name of a neurologist here in Passaic County that relay believes in LDN. Because I have to get ready for the heat that's coming, the pain with the heat is terrible. My neuro now wants me on Rebif, infusions and half heatedly gives me a perspiration for only 3 mg of LDN. I don't to take any of the garbage drugs, just look at the side effects and yes, I have over the last twenty years taken plenty of these drugs. All I want is to take 4.5 mg of LDN. I've read via this web site that 4.5 mg of LDN will help with the pain! Along with the #^*#^* progression so please give me the name or names of the physicians located here in Passaic County. Hopefully there will be one of your type of web site in each state. LDN has no side effects and is inexpensive. Thank You so much, welcome.

Ann F.

annf02@...See what's free at AOL.com.

[Guest guest]

Barbara,

Hi! Yes, I have MS. Thank you for getting back to me. Hope to hear from you again!

Ann F.

annf02@...See what's free at AOL.com.

[Guest guest]

>

> Barbara,

> I'm sure this web site is thrilled to have you on board. Could you

answer a

> simple question that will be easy for you because I see your right

here in

> Jersey. Please give me a name of a neurologist here in Passaic

County that relay

> believes in LDN. Because I have to get ready for the heat that's

coming, the

> pain with the heat is terrible. My neuro now wants me on Rebif,

infusions and

> half heatedly gives me a perspiration for only 3 mg of LDN. I don't

to take any

> of the garbage drugs, just look at the side effects and yes, I have

over the

> last twenty years taken plenty of these drugs. All I want is to

take 4.5 mg of

> LDN. I've read via this web site that 4.5 mg of LDN will help with

the pain!

> Along with the #^*#^* progression so please give me the name or

names of the

> physicians located here in Passaic County. Hopefully there will be

one of your

> type of web site in each state. LDN has no side effects and is

inexpensive.

> Thank You so much, welcome.

> Ann F.

>

> _annf02@..._ (mailto:annf02@...)

>

>

>

> ************************************** See what's free at

http://www.aol.com.

>

Hi Ann,

Well neurologists are a sore subject with me. I had several almost

kill me. Unfortunately I do not know of any neuros in Passaic county

that use LDN. I am trying to educate them but they are leary. I am

not sure what condition you have ( I gather by Rebif comment its MS).

I do know that the Gimbel MS center has prescribed it on occasion. Dr

Lahita in Jersey City ( a very well known rheumy that deals with lots

of AI patients) also is using it on patients that ask.

I will look into my files and see if there is anyone worth your

time.

[Guest guest]

Hi Barabra .. I am in NJ also .. Bergen County .. if ever you need a

speaker at any of your events I would be glad to help. I wrote the

book Up the Creek with a Paddle and have spoken at a few cozy MS

gatherings in Bergen.

All the Best

www.marybradleybooks.com

>

> I just joined this group a few weeks ago to see others

experiences

> with LDN. I am a multiple autoimmune disease patient (7) that

started

> LDN roughly 4 months ago after nothing else was helping. I am glad

to

> say that I started to see an improvement within a few weeks. I

havetold

> several other patients about it (I started and run a nonprofit for

> autoimmune patients and also run a monthly support group for them

here

> in NJ) and am proud to say that the results have been similar with

> them.

> I wanna thank the moderators of this forum for doing such a great

> job. People that are sick need a place to turn to share stories and

> experiences. In this day and age, we are so lucky to have computers

and

> share stories around the world.

> Thnak you all for listning and if there is anything I can do to

> help, please just yell.

> Barbara, Founder of the Autoimmune Inforamtion Network

www.aininc.org

>

[Guest guest]

> >

> > I just joined this group a few weeks ago to see others

> experiences

> > with LDN. I am a multiple autoimmune disease patient (7) that

> started

> > LDN roughly 4 months ago after nothing else was helping. I am

glad

> to

> > say that I started to see an improvement within a few weeks. I

> havetold

> > several other patients about it (I started and run a nonprofit

for

> > autoimmune patients and also run a monthly support group for them

> here

> > in NJ) and am proud to say that the results have been similar

with

> > them.

> > I wanna thank the moderators of this forum for doing such a

great

> > job. People that are sick need a place to turn to share stories

and

> > experiences. In this day and age, we are so lucky to have

computers

> and

> > share stories around the world.

> > Thnak you all for listning and if there is anything I can do

to

> > help, please just yell.

> > Barbara, Founder of the Autoimmune Inforamtion Network

> www.aininc.org

> >

>

Thanks --- I will keep that in mind. I am always looking for

speakers etc. We do various things at our meetings. We work

frequently with massage therapists and reiki masters. They work on

everyone at our meetings free of charge. Holistic doctors,

chiropractors, life coaches, nutritionists...etc. Always something

different.

Keep up your good work. I know this has givne me the chance to find

my calling. I wouldn't change it for the world.

Barb

[Guest guest]

>

> Barbara,

> Hi! Yes, I have MS. Thank you for getting back to me. Hope to hear

from you

> again!

> Ann F.

>

> _annf02@..._ (mailto:annf02@...)

>

> Me too Ann. Hang in there.

Barb

>

> ************************************** See what's free at

http://www.aol.com.

>

[Guest guest]

Hi Amit,

I would stay on the lower dose for as long as you feel you can handle it. Most people get relief as their body gets used to the LDN. I will e-mail you some earlier posts regarding things people have tried for the spasms.

Hang in there

Aletha

[low dose naltrexone] HI EVERYONE

I HAD STARTED LDN ON 1ST JUNE WITH 4.5 MG. GOT SEVERE SPASMS AND AGGRAVATION OF SYMPTOMS . AFTER TWO DAYS REDUCED IT TO 3 MG AND THEN TO 1.5 MG . SYMPTOMS ARE SLIGHTLY BETTER HOW LONG SHOULD I CONTINUE ON 1.5 MG ANY EXPERIENCE HOW LONG IT TAKES FOR SYMPTOMS TO STABLIZE ?YOUR OPINION REQUIREDTHANKSKEEP WELLAMIT

[Guest guest]

Amit, I will send a few things along via e-mails. You can have wine and beer with no problem.

Aletha

[low dose naltrexone] HI EVERYONE

i had started ldn 4.5 mg on first june developed exabrations of symptoms reduced it to 3 mg .i could not tolerate 3mg also so i reduced it to 1.5 mg .presently i am on 1.5 mg but i feel very letargic and low .are these side effects ?can one take alcohol occassionally with LDN ?please adviceamit

[Guest guest]

>

>

> i had started ldn 4.5 mg on first june developed exabrations of

> symptoms reduced it to 3 mg .

> i could not tolerate 3mg also so i reduced it to 1.5 mg .

> presently i am on 1.5 mg but i feel very letargic and low .

> are these side effects ?

> can one take alcohol occassionally with LDN ?

>

> please advice

>

> amit

>

===============

Actually all the increased symptoms you are having is a good sign for

MS'ers. Lets you know LDN is working at boosting your endorphins.

Feeling more fatigue is common but after awhile that subsides.

Gradually work your way up in dosage.

[Guest guest]

HOMEMADE LOW DOSE NALTREXONE

There could be several reasons why some people may want to make their

own LDN: Often their Doctors will not prescribe LDN; Homemade LDN

costs only $10/month; There are no Pharmacy mistakes in Homemade LDN;

There are no capsule " filler " problems and experiments can be

conducted with different dose quantities.

The chemical we call Naltrexone is really the chemical Naltrexone

Hydrochloride (C20H23NO4-HCl). It could be purchased directly from

Spectrum Chemicals for about $100 a gram but only by using a

commercial account and in its pure form is too difficult to measure

in exact small quantities. The best source of Naltrexone, in order to

prepare Homemade LDN doses, is the 50mg " ReVia " Naltrexone tablet

made by DuPont and prescribed by Doctors for treatment of drug and

alcohol addictions. Each 50mg " ReVia " Naltrexone tablet can be made

into 11 to 16 LDN doses depending on whether one takes a small 3mg

dose or a larger 4.5mg dose.

How to acquire 50mg " ReVia " Naltrexone Tablets: Here are a few

methods that have been reported by people on the Histamine, LDN and

Alternative MS Therapies Message Board:

They tell their Doctor the truth: They print out this WebPage and the

WebPage LDN Brief Summary, highlight key areas and give it to their

Doctor and tell him they want the " ReVia " tablets in order to

experiment with minuscule Naltrexone doses at 1/100th of FDA approved

dosages. Hopefully, they get a " ReVia " Prescription.

They tell their Doctor a white lie: They tell their Doctor their

medical condition has caused them to abuse drugs and alcohol and they

would like a Prescription for 50mg " ReVia " tablets to relieve their

possible addiction.

They order 50mg " ReVia " Naltrexone Tablets legally without a

prescription from a foreign country. Most people at the Histamine,

LDN Message Board currently prefer Internet Mexican Drug Stores which

cost about $110 for a one year supply. Any questions can be asked at

the Message Board.

Methods you can use to make Low Dose Naltrexone Doses:

Liquid LDN (Easiest): Acquire some ml measuring equipment from the

baby section of a Drug Store and a small bottle with a screw-on cap.

Put 50ml of water (distilled is best) and one 50mg " ReVia " Naltrexone

tablet in the small bottle and let it dissolve with a little time and

shaking. Now each ml of water in that small bottle contains 1 mg of

Naltrexone. At bedtime shake the bottle, take a desired dose (no more

than 4.5ml), chase it down with some water and store the small bottle

in the refrigerator. Some people have reported splitting the tablet

in half and dissolving it in 25ml of water to assure freshness every

week.

Note: A 50mg " ReVia " Naltrexone Tablet actually weighs about 310mg -

16% Naltrexone and 84% Filler.19mg of the Powder actually contains

3mg of the chemical Naltrexone and 28mg of the Powder contains 4.5mg

of Naltrexone. It would be very difficult to work with 100% pure

powdered Naltrexone Hydrochloride.

http://goodshape.net/HomemadeLDN.html

>

>

> i nhave ms since five years plus .

>

> i am on avonex since 18 months .

>

> its a torture

>

> i will stop avonex from next week .

>

> i have taken ldn twice but i backed up ??

>

> i have a request can somebody guide me how to make LDN from a 50 mg

> tab(naltroxne ) at home . somebody suggested earlier it is not

> stable even in refrigrator ? how to prepare and store at home

> without any pharmacy help ?

>

> please guide

>

> keep well

>

> amit

>

[Guest guest]

Hi Amit,

If you have a supply of 50 mg Naltrexone tablets, you can convert them to LDN

using the instructions given at

http://tinyurl.com/3alm3y

For more information about LDN, visit

http://tinyurl.com/2boot2

With best wishes,

Dudley Delany

dudley_delany

[low dose naltrexone] HI EVERYONE

i nhave ms since five years plus .

i am on avonex since 18 months .

its a torture

i will stop avonex from next week .

i have taken ldn twice but i backed up ??

i have a request can somebody guide me how to make LDN from a 50 mg

tab(naltroxne ) at home . somebody suggested earlier it is not

stable even in refrigrator ? how to prepare and store at home

without any pharmacy help ?

please guide

keep well

amit

[Guest guest]

Hi Amit,

This site lists side effects commonly associated with LDN:

http://tinyurl.com/yosnk5

There is more to treating MS than just taking LDN. Dr. J. McCandless, for

example, suggests that LDNers avoid sugar, soy, dairy, and gluten (found in

wheat. barley, rye, and oats). To learn more, visit

http://tinyurl.com/grpm9

With best wishes,

Dudley Delany

dudley_delany

[low dose naltrexone] HI EVERYONE

i have startrd on LDN 1.5 mg . this is my fourth day .

i am having lots of headache and vertigo and occaional slurring of

speech .

first two days were good .

all this started from third day

any comments please

amit

[Guest guest]

DO NOT take narcotics, steroids or immune suppressing pharmaceuticals while on LDN. mjh

i started cinnarazine for giddiness, taking pain killers and amitryptylline also thanks for your wishes and adviceamit See AOL's top rated recipes and easy ways to stay in shape for winter.

[Guest guest]

Hi Amit,

LDN tends initially to make MS symptoms worse instead of better. That is why Dr.

Skip Lenz, a Florida pharmacist and LDN expert, recommends a nightly dose of 1.5

mg for the first month, 3 mg the next month, and 4.5 mg therafter.

For more information about LDN side effects, visit

http://tinyurl.com/yosnk5

Best regards,

Dudley Delany

dudley_delany

[low dose naltrexone] HI EVERYONE

i am on ldn 3 mg now .its the 8 th day .

i think i am having a relapse ?

giddiness and vertigo,spasticity and headaches .

]

i dont know when it will clear .

i was better on avonex ??

any suggestions please

amit

[Guest guest]

If you are having a relapse, I don't believe that LDN is the cause. The relapse was probably beginning before LDN came along. My opinion: You're not better on Avonex. My opinion again: Avonex is a useless and expensive drug. My opinion again: Take your chances with LDN. Give it a fair chance. I hope you get to feeling better real soon! Marcie amit7017w <amit7017w@...> wrote: i am on ldn 3 mg now .its the 8 th day .i think i am having a relapse ?giddiness and vertigo,spasticity and headaches .]i dont know when it will clear .i was better on avonex ??any suggestions please amit

[Guest guest]

>

>

> amit7017w <amit7017w@...> wrote:

>

> i am on ldn 3 mg now .its the 8 th day .

> i think i am having a relapse ?

>

> giddiness and vertigo,spasticity and headaches .

> ]

> i dont know when it will clear .

>

> i was better on avonex ??

>

> any suggestions please

>

> amit

>

===========

Amit,

Haven't you been on LDN before, like June or July? What was your

reason for quitting the 1st time?

You're not having a relapse, see below.

Dr. Bob Lawrence from the UK who has MS & uses LDN himself explains

why the temporary increase in MS symptoms upon starting LDN treatment.

When starting this LDN(Low Dose Naltrexone) therapy in the treatment

of MS, there may also be some initial transient, though temporary,

increase in MS symptoms.

Experience in using this method has demonstrated most commonly, such

as disturbed sleep, occasionally with vivid, bizarre and disturbing

dreams, tiredness, fatigue, spasm and pain. These increased symptoms

would not normally be expected to last more than seven to ten days.

Rarely, other transient symptoms have included more severe pain and

spasm, headache, diarrhea or vomiting. These additional symptoms would

appear to be associated with the previous frequent use of strong

analgesics, which effectively create an addiction and dependency, thus

increasing the body's sensitivity to pain. This temporary increase in

symptoms may also perhaps be explained when we consider the manner in

which this drug is expected to work.

Dr. M R Lawrence

Posted by

[Guest guest]

hi bren you are right i started in june but could not continue i was sent for a assignment had no reaction time didnt have naltroxne there . this time i have started on full faith . your observations are correct . i will stick to it this time. thanks a lot amit Bren <b63powell@...> wrote: > > > amit7017w <amit7017w@...> wrote:> > i am on ldn 3 mg now .its the 8 th day .> i think i am having a relapse

?> > giddiness and vertigo,spasticity and headaches .> ]> i dont know when it will clear .> > i was better on avonex ??> > any suggestions please > > amit>===========Amit,Haven't you been on LDN before, like June or July? What was your reason for quitting the 1st time?You're not having a relapse, see below.Dr. Bob Lawrence from the UK who has MS & uses LDN himself explains why the temporary increase in MS symptoms upon starting LDN treatment.When starting this LDN(Low Dose Naltrexone) therapy in the treatment of MS, there may also be some initial transient, though temporary, increase in MS symptoms. Experience in using this method has demonstrated most commonly, such as disturbed sleep, occasionally with vivid, bizarre and disturbing dreams, tiredness, fatigue, spasm and pain. These increased symptoms would not

normally be expected to last more than seven to ten days.Rarely, other transient symptoms have included more severe pain and spasm, headache, diarrhea or vomiting. These additional symptoms would appear to be associated with the previous frequent use of strong analgesics, which effectively create an addiction and dependency, thus increasing the body's sensitivity to pain. This temporary increase in symptoms may also perhaps be explained when we consider the manner in which this drug is expected to work.Dr. M R LawrencePosted by

Did you know? You can CHAT without downloading messenger. Click here

[Guest guest]

hi thanks i will go by your words. i will continue LDN . any suggestions for the increased symptoms . i started cinnarazine for giddiness, taking pain killers and amitryptylline also thanks for your wishes and advice amit Marcie <marcie_martin@...> wrote: If you are having a relapse, I don't believe that LDN is the cause. The relapse was probably beginning before LDN came along. My opinion:

You're not better on Avonex. My opinion again: Avonex is a useless and expensive drug. My opinion again: Take your chances with LDN. Give it a fair chance. I hope you get to feeling better real soon! Marcie amit7017w <amit7017w (DOT) co.in> wrote: i am on ldn 3 mg now .its the 8 th day .i think i am having a relapse ?giddiness and vertigo,spasticity and headaches .]i dont know when it will clear .i was better on avonex ??any suggestions please amit

Get the freedom to save as many mails as you wish. Click here to know how.

[Guest guest]

I agree 100% with Marcie.

Art

--

>

> If you are having a relapse, I don't believe that LDN is the cause.

The relapse was probably beginning before LDN came along. My opinion:

You're not better on Avonex. My opinion again: Avonex is a useless

and expensive drug.

>

> My opinion again: Take your chances with LDN.

>

> Give it a fair chance. I hope you get to feeling better real soon!

>

> Marcie

>

[Guest guest]

Hi amit,

I have red in here:

the first month: use 1,5 mg

the next month: use 3,0 mg

You can go back to 1,5 mg now to get a better health

Don't push this too fast, then the troubles like vertigo and spasticity comes.

With the wishes of good luck

on your way to a better health! :-) Ingrid

[low dose naltrexone] HI EVERYONEi am on ldn 3 mg now .its the 8 th day .i think i am having a relapse ?giddiness and vertigo,spasticity and headaches .]i dont know when it will clear .i was better on avonex ??any suggestions please amit

[Guest guest]

Hi again amit

Painkillers?

I hope you stay away from narcotics painkillers,

LDN won't work if you use those. Ingrid

Re: [low dose naltrexone] HI EVERYONE

hi

thanks

i will go by your words.

i will continue LDN .

any suggestions for the increased symptoms .

i started cinnarazine for giddiness, taking pain killers and amitryptylline also

thanks for your wishes and advice

amit Marcie <marcie_martin@...> wrote:

If you are having a relapse, I don't believe that LDN is the cause. The relapse was probably beginning before LDN came along. My opinion: You're not better on Avonex. My opinion again: Avonex is a useless and expensive drug.

My opinion again: Take your chances with LDN.

Give it a fair chance. I hope you get to feeling better real soon!

Marcie

amit7017w <amit7017w (DOT) co.in> wrote:

i am on ldn 3 mg now .its the 8 th day .i think i am having a relapse ?giddiness and vertigo,spasticity and headaches .]i dont know when it will clear .i was better on avonex ??any suggestions please amit

Get the freedom to save as many mails as you wish. Click here to know how.

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