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Yes, the recipe is in an old post. That has been discussed a lot. Benadryl and

Mylanta. I don't think anything else? I guess we use Anbesol Jr. not the

other....ooops. Good Luck.

Gretchen and 13

kcclasercreations <eselsor@...> wrote:

Thanks! I sopke with his specialist yesterday and they perscribed a

" Magic Mouth Wash " it

is benadryl, myanta, and some kind of numbing med. They have also recommended

that I

try the pred. when they start and not wait for the fever. We are trying it so

we'll see.

,

Mom of Chance 11

> >

> > Has anyone ever been given anything (meds or otherwise) that helps

> prevent the mouth

> > ulcers? My son Chance gets them terribly right before the fever

> period. Sometimes to the

> > point that he won't eat and is very picky about what he eats.

> Lately he has been getting them

> > on his tongue as well which affects his speech. He normally has 1

> or two small ones

> > throughout the month, but during the time right before he fevers

> they become very large and

> > painful & his mouth and lips swell. Any suggestions would be

> great!

> >

> >

> > mom to Chance 11

> >

>

---------------------------------

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The recipe for Magic Mouthwash is equal parts benadryl elixer, maalox and

viscous lidocaine. Your doctor can order this to be made up for you at the

pharmacy. It gives good relief of the pain from the mouth sores; but you don't

want the child to drink it, just to swish it around in the mouth for the time it

takes you to sing the alphabet song, and spit it out.

---- Gretchen Danson <gretchendanson@...> wrote:

> Yes, the recipe is in an old post. That has been discussed a lot. Benadryl and

Mylanta. I don't think anything else? I guess we use Anbesol Jr. not the

other....ooops. Good Luck.

> Gretchen and 13

>

> kcclasercreations <eselsor@...> wrote:

> Thanks! I sopke with his specialist yesterday and they perscribed a

" Magic Mouth Wash " it

> is benadryl, myanta, and some kind of numbing med. They have also recommended

that I

> try the pred. when they start and not wait for the fever. We are trying it so

we'll see.

>

> ,

> Mom of Chance 11

>

>

> > >

> > > Has anyone ever been given anything (meds or otherwise) that helps

> > prevent the mouth

> > > ulcers? My son Chance gets them terribly right before the fever

> > period. Sometimes to the

> > > point that he won't eat and is very picky about what he eats.

> > Lately he has been getting them

> > > on his tongue as well which affects his speech. He normally has 1

> > or two small ones

> > > throughout the month, but during the time right before he fevers

> > they become very large and

> > > painful & his mouth and lips swell. Any suggestions would be

> > great!

> > >

> > >

> > > mom to Chance 11

> > >

> >

>

>

>

>

>

>

> ---------------------------------

> Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

>

>

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Guest guest

,

In another support group I'm in, they use the same mouth wash.

That person thinks it works well.

Elaine

>

> Thanks! I sopke with his specialist yesterday and they perscribed a

> " Magic Mouth Wash " it

> is benadryl, myanta, and some kind of numbing med. They have also

> recommended that I

> try the pred. when they start and not wait for the fever. We are

> trying it so we'll see.

>

> ,

> Mom of Chance 11

>

>

> > >

> > > Has anyone ever been given anything (meds or otherwise) that helps

> > prevent the mouth

> > > ulcers? My son Chance gets them terribly right before the fever

> > period. Sometimes to the

> > > point that he won't eat and is very picky about what he eats.

> > Lately he has been getting them

> > > on his tongue as well which affects his speech. He normally has 1

> > or two small ones

> > > throughout the month, but during the time right before he fevers

> > they become very large and

> > > painful & his mouth and lips swell. Any suggestions would be

> > great!

> > >

> > >

> > > mom to Chance 11

> > >

> >

>

>

> ------------------------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.432 / Virus Database: 268.16.13/632 - Release Date: 1/16/2007

4:36 PM

>

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Guest guest

Hi,

I have nothing to prevent it what I learned a long time ago was mixing

baking soda with a little water, make a paste and apply it to the sore with

a Q Tip. It numbs it, and eventually after a couple of applications gets

rid of it. Usually by the end of day two its gone. Good luck.

Azzie mom to kianna 9years old

_____

From: [mailto: ] On Behalf Of

kcclasercreations

Sent: Tuesday, January 16, 2007 2:15 PM

Subject: Mouth Sores

Has anyone ever been given anything (meds or otherwise) that helps prevent

the mouth

ulcers? My son Chance gets them terribly right before the fever period.

Sometimes to the

point that he won't eat and is very picky about what he eats. Lately he has

been getting them

on his tongue as well which affects his speech. He normally has 1 or two

small ones

throughout the month, but during the time right before he fevers they become

very large and

painful & his mouth and lips swell. Any suggestions would be great!

mom to Chance 11

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Guest guest

,

The Mouth sores you mention is part of what happens with JRA.

gets them from time to time. Since they are sometimes called Mouth ulcers. You

need to let your Mom know about this. will use warm salty water to

swish around in her mouth and spit it out. She also will use Oragel since they

can be painful. Celebrex doesn't cause the Mouth sores. They do go away.

Robbin

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

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Hi .....I was on celebrex for several years and I did occasionally get

small mouth blisters. Since I have been off celebrex I dont get as many.

Hope this helps.

Donna :-)

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

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:

Tell your rheumatologist and she/he will prescribe folic acid/ folate pills.

You can also get it at the pharmacy.

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

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Guest guest

Sores on your palms and soles may very well have been pustular

palmar/plantar psoriasis. I had it for several years on my palms and

for almost a year on my soles before it was finally diagnosed. It was

variously misdiagnosed as eczema, contact dermatitis, fungus, etc. If

I had not started having excruciating joint and tendon pain, they may

never have figured it out!

regards,

sherry z

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Hello;

I had mouth sores for many, many years before getting P and the PA.

FYI - I can almost eliminate them if I take L-lysine a couple of

times a month. I have included an abstract for a paper that may have

the info you want. Let me know if you can't get the paper and I will

try to help.

Ann Rheum Dis. 2007 Sep 6 [Epub ahead of print] Links

Environmental risk factors for the development of psoriatic

arthritis: results from a case control study.Pattison EJ, on

BJ, Griffiths CE, Silman AJ, Bruce IN.

arc epidemiology Unit, The University of Manchester, United Kingdom.

OBJECTIVE: To identify potential risk factors for the onset of

inflammatory arthritis (IA) in a large cohort of patients with

psoriatic arthritis (PsA) of recent onset. METHODS: We recruited

cases with psoriasis and an onset of IA within the past 5 years.

Controls were patients who had psoriasis but no arthritis. We

assessed potential factors associated with the development of IA

using a detailed postal questionnaire. An unmatched analysis adjusted

for age and gender was performed. Exposure was censored in the

controls at a " dummy-date " assigned randomly in proportion to the

percentage of cases developing IA in any given year. RESULTS: We

studied 98 cases and 163 controls. Exposures showing a positive

association prior to the onset of IA in patients with psoriasis were:

rubella vaccination (OR [95% C.I.] = 12.4 [1.2-122]), injury

sufficient to require a medical consultation (2.53 [1.1-6.0]),

recurrent oral ulcers (4.2 [2.0-9.0]) and moving house (2.3 [1.2-

4.4]). Cases were also more likely to have experienced a fractured

bone requiring hospital admission (50% vs. 9%, p=0.040). CONCLUSIONS:

We found a number of environmental exposures associated with the

onset of IA in subjects with psoriasis. The strongest associations

were with trauma thereby adding to the hypothesis of a 'deep Koebner

phenomenon' in PsA. Our data also suggest that exposure of the immune

system to certain infection related triggers may also be of

relevance. Further studies are needed to verify these observations

and to examine potential immunological mechanisms that underlie them.

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Guest guest

The hand and feet sound more like psoriasis. Did the mouth sores

start before or after the MTX? MTX can cause this reaction and is

helped with folic acid. A dermatologist would be able to help you

best in this situation. Rhuemy's are not necessarily well versed in

the are of P.

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I have psoriasis and PA and I take mtx and enbrel. I had mouth sores

several years ago and they got so bad I had to have them cauterized.

My ent told me I was alergic to raw tomatoes and when I eliminated

them from my diet, no more sores.

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I've had mouth sores since I was a little girl. They come almost every month and

last for 1-2 weeks. If I take vitamin C on a regular basis they are less severe

and sometimes I miss a month. I never fevered as a child nor do I now. If I eat

acidic foods like oranges, tomato sauces, grapefruit, pop.... the ulcers come

immediately. Also if I injure the inside of my mouth...right away it turns into

an ulcer. My son doesn't seem to get them like I do. I have acid reflux

as an adult and my son had it as a newborn. I attribute my ulcers to my acid

reflux. I've seen a little one on my son's tongue once during an episode. I do

think there is a genetic connection between Acid Reflux, Ulcers, and

somehow? Just a guess though!

Amy- Mom to -almost 3 years old

---------------------------------

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I've had mouth sores since I was a little girl. They come almost every month and

last for 1-2 weeks. If I take vitamin C on a regular basis they are less severe

and sometimes I miss a month. I never fevered as a child nor do I now. If I eat

acidic foods like oranges, tomato sauces, grapefruit, pop.... the ulcers come

immediately. Also if I injure the inside of my mouth...right away it turns into

an ulcer. My son doesn't seem to get them like I do. I have acid reflux

as an adult and my son had it as a newborn. I attribute my ulcers to my acid

reflux. I've seen a little one on my son's tongue once during an episode. I do

think there is a genetic connection between Acid Reflux, Ulcers, and

somehow? Just a guess though!

Amy- Mom to -almost 3 years old

---------------------------------

Never miss a thing. Make your homepage.

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Hi Vivian,

My daughter has had mouth ulcers since she was 18 mo. Now she is 13 and

we are still dealing with them. Her doc gives us a swish and swallow

med . Magic Mouthwash. Seems to help. Takes away the pain for a bit.

You can apply it with a q-tip to the ulcer. Ask you doctor about it.

Just try to stay away from any spiceyor salty foods. During this time,

I let my daughter indulge on ice cream. Yum........... Hope this helps.

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Hi Vivian,

My daughter has had mouth ulcers since she was 18 mo. Now she is 13 and

we are still dealing with them. Her doc gives us a swish and swallow

med . Magic Mouthwash. Seems to help. Takes away the pain for a bit.

You can apply it with a q-tip to the ulcer. Ask you doctor about it.

Just try to stay away from any spiceyor salty foods. During this time,

I let my daughter indulge on ice cream. Yum........... Hope this helps.

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I wish I had a doctor to ask! I was diagnosed by an Infectious Disease

doctor who doesnt deal with Reactive Arthritis. I've been to 2

Rheumatologists and both were basically nutty. One actually told me I

have Osteoarthritis. He hugged me on the way out and said he was sure

I would be better soon and not to worry. (That was way back in the

beginning of October)

Then I went though 5 more doctors (long boring story) before I finally

got to the doctor that had a clue and knew right off what I had once he

spent time with me and asked the appropriate questions and examined me.

(Unlike all the others!~) Then he said I should find a Rheumy and I got

the another nut who " doesnt like to give titles or put people into

categories " . I have no idea what that means. Now I have an

appointment at in St. Louis and I'll hopefully get someone who

has actually seen and treats this. In the last doctors profile, listed

at the University, it said that he treats Reiters, but obviously he

just hugs people and wishes them well. (he hugged me goodbye and said

to check back in 3 months because he's sure I'll be alllllllllllllllll

better by then. It must be something they learn in Rheumotology 101

because I've never had a doctor do that before and I get it with both

Rheumotologists? (the good news is they sent me an evaluation in the

mail and you had better believe I filled it out!

So, until my appointment, I'll be here with my cherry anbesol. Its

extremely frustrating if you didnt catch that in my writing....lol!

Thanks for letting me vent. :)

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>(he hugged me goodbye and said to check back in 3 months because he's sure I'll

be alllllllllllllllll

>better by then. It must be something they learn in Rheumotology 101 because

I've never had a doctor do that before and I get it with both

>Rheumotologists?

I've encountered a similar experience with rheumatologists...either they were

condescending about how I would get better, or there was the case of one doctor

who outright told me, " You are never going to get better, so suck it up and get

used to being sick all the time. " I wanted to punch that guy! There I was

desperate for help and he just said " tough luck " and shuffled me out the door.

Good luck with your next appointment---hopefully it will go better than the

previous ones did!

~

_________________________________________________________________

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I guess you would need to find out the cause of the mouth sores first.

I do not think NSAID's cause mouth sores. There is medicine, magic

mouthwash, that can treat the mouth sores but it does not prevent

them. Mouth sores are very painful, is your child getting them bad?

Have you spoken to your doctor about this?

>

> I've heard people worry about mouth sores with mtx, but my son has

> them with NSAIDs. Or else just with the JRA. is there really

> anything that can be done to prevent or heal them?

>

> thanks.

>

> Lucinda

>

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Vitamin C def…or B vitamin

deficiencies are sometimes associated with mouth symptoms…depends on exact

location and symptoms. Maybe also think about drug side effects. See ASPEN Core

Curriculum if available

Amy

Long Carrera MS, RD, CNSC

Clinical

Dietitian

Northridge Hospital Medical Center &

Center for

Weight Loss Surgery

818-885-8500 x

4034

amy.long@...

From:

[mailto: ]

On Behalf Of gracielynn17

Sent: Friday, November 06, 2009

6:07 AM

Subject:

Mouth Sores

Hello,

Do you know of a vitamin deficiency/toxicity related to mouth sores?

-Thank You

Grace L Registered Dietitian | Diabetes Educator

Bon Secours Richmond Health System | St. 's Diabetes Treatment Center

5875 Bremo Road

| Richmond, VA | 23226

W: 804-287-7079 | F: 804-287-7839 | grace_millerbshsi (DOT) org

Good Help to Those in Need®

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Hello,

If the pt is RNY, it's probably a B vitamin deficiency or a vitamin A

deficiency. I'd start by verifying that they're compliant with their daily MVI

(x2)

Robin , MS RD

Registered Dietitian

Richmond Medical Center, Kaiser Permanente

Richmond, CA

>

> Hello,

>

> Do you know of a vitamin deficiency/toxicity related to mouth sores?

>

> -Thank You

>

> Grace L Registered Dietitian | Diabetes Educator

> Bon Secours Richmond Health System | St. 's Diabetes Treatment Center

> 5875 Bremo Road | Richmond, VA | 23226

> W: 804-287-7079 | F: 804-287-7839 | grace_miller@...

>

>

> Good Help to Those in Need®

>

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Joan,

What do you mean cancer sores?  did you mean canker?  I ask cause was at

dentist last week, and i have major mouth sores at times....well the dentist

told me he thought my sore was cancer and to go to oral surgeon...and do your

sores hurt?  I was hospitalized in June as I had 105 degree temp and my tongue

mouth and lips were covered with hunreds of very painful sores.  I couldnt

swallow my own spit.  spent 5 days in the hospital...

 Debra

________________________________

From: jvanvelsor <jvanvelsor@...>

Sent: Thu, February 4, 2010 3:33:21 PM

Subject: [ ] mouth sores

 

I have periodically had cancer sores (oral herpes) for years, many times when my

immune system is low. This was long before I had an auto-immune disease. When I

first feel the beginning symptoms, I take Lysine (an amino acid). I take 2 pills

(500mg) three times a day. Often, I can prevent their development. Many people

take lysine every day to prevent an outbreak. I hope this helps, they are so

painful and make one feel so ugly besides! Yuck.

Joan in Fair Oaks

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I take 17.5 mg MTX/week and 10 mg of Leucovorin Calcium 12 hours following the

shot. It reduces nausea and completely takes away mouth sores.

Why don't you ask your dr for that?

Joy

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