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Re: Oral Meds

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Priscilla -- I agree. By the way, I live in Miami. Can you recomend a

dermatologist in South Florida? I am still looking.

----------

> From: Plar425@...

> To: rosacea-supportegroups

> Subject: Re: Oral Meds

> Date: Saturday, February 20, 1999 6:14 PM

>

> - Very eloquently put!!! You are absolutely right, rosacea is

not a

> life threatening disease, but sometimes it is very frustrating!!!!!! I

happen

> to live in Southern Florida where it can be very hot and humid especially

in

> the summer. I love to exercise outdoors and this does effect my rosacea,

but

> I am not going to give it up because of the flair-ups!! So I guess it is

a

> very individual issue, if you are willing to give up the things you love

to

> prevent the flair ups that's fine, or if your willing to live with the

flair

> ups to do the things you love that is fine too. The main thing is you

have to

> feel good about yourself! This support group is a wonderful way to share

and

> vent!

>

> Priscilla

>

> ------------------------------------------------------------------------

>

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Guest guest

Nicki -- thanks for the timely advice. I see a new derm on Monday and I

will ask for a perscription. I will let you know what he says regarding

the effects of minocycline on redness.

----------

>

> To: rosacea-supportegroups

> Subject: Re: Oral Meds

> Date: Saturday, February 20, 1999 5:48 PM

>

>

>

> On Sun, 22 Jun 1997 10:29:02 -0400 " STEPHEN YORK "

> writes:

> >Esther, I am still searching for a treatment which works in my

> >individual

> >case. Like you, I take an oral medication (tetracycline)

> >periodically, for

> >a short period of time (usually no more than two weeks) when the

> >cea

> >seems to be getting out of control. The tetracycline seems work well

> >resolving any bumps (which up to now have been few), but has little,

> >if

> >any, effect on the redness. I seem to have a consistently red and

> >blotchy

> >complexion.

> >

> >snip

>

> my new doctor switched me from tetracycline to minocycline because she

> said it works better at making the redness go away...

>

> you might want to ask your derm his opinion on this

>

> nicki

> ___________________________________________________________________

> You don't need to buy Internet access to use free Internet e-mail.

> Get completely free e-mail from Juno at http://www.juno.com/getjuno.html

> or call Juno at (800) 654-JUNO [654-5866]

>

> ------------------------------------------------------------------------

>

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Guest guest

Rob -- I am in the same boat. I believe that single people who have

rosacea face additional hurdles that our married counterparts don't have to

worry about. Best regards, .

----------

>

> To: rosacea-supportegroups

> Subject: Re: Oral Meds

> Date: Saturday, February 20, 1999 9:07 PM

>

> Lance,

>

> Hi Lance! I'm a guy who IS SINGLE, trying to find someone... so in

the

> future show a TINY BIT of sensitivity if your able.

>

>

> Rob.

> Re: Oral Meds

>

>

> >,

> >

> >EXCELLET reply on the rosacea topic! I couldn't have said it better.

Yea,

> >rosacea isn't cancer or something life threating but it can be and is

very

> >frustrating to people. My wife says that I still look the same. I

don't

> >think so. But do you know what? If she had the rosacea and not me I

would

> >probably tell her that she looks the same. Unless your single and

trying

> to

> >pick up girls (or guys) who cares what a little redness and bumps can

do?

> >(well, for the most part.)

> >

> >Most people don't even know what the word " rosacea " means. I didn't

even

> hear

> >of it until recently. Unfortuantaly, my vocabulary starts with it now.

> >

> >Well rosacea victims out there, have faith. You keep trying stuff and

I'll

> >keep trying stuff until we get this thing right!

> >

> >later all,

> >

> >LANCE

> >

> >------------------------------------------------------------------------

> >

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Guest guest

Rob -- I am in the same boat. I believe that single people who have

rosacea face additional hurdles that our married counterparts don't have to

worry about. Best regards, .

----------

>

> To: rosacea-supportegroups

> Subject: Re: Oral Meds

> Date: Saturday, February 20, 1999 9:07 PM

>

> Lance,

>

> Hi Lance! I'm a guy who IS SINGLE, trying to find someone... so in

the

> future show a TINY BIT of sensitivity if your able.

>

>

> Rob.

> Re: Oral Meds

>

>

> >,

> >

> >EXCELLET reply on the rosacea topic! I couldn't have said it better.

Yea,

> >rosacea isn't cancer or something life threating but it can be and is

very

> >frustrating to people. My wife says that I still look the same. I

don't

> >think so. But do you know what? If she had the rosacea and not me I

would

> >probably tell her that she looks the same. Unless your single and

trying

> to

> >pick up girls (or guys) who cares what a little redness and bumps can

do?

> >(well, for the most part.)

> >

> >Most people don't even know what the word " rosacea " means. I didn't

even

> hear

> >of it until recently. Unfortuantaly, my vocabulary starts with it now.

> >

> >Well rosacea victims out there, have faith. You keep trying stuff and

I'll

> >keep trying stuff until we get this thing right!

> >

> >later all,

> >

> >LANCE

> >

> >------------------------------------------------------------------------

> >

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  • 1 year later...

Before I developed rosacea, I was on and off of antibiotics for 3 years.

I was put on them mostly for other medical problems and sometimes to help

control minor acne.

At first the antibiotics kept the skin under control but I never quite

got rid of other infections. Then all of a sudden (while being on an

antibiotic) I turned into a lobster with bumps! I saw my skin texture change

dramatically. I thought that I was having an allergic reaction to the med.(no

such luck!). I was put on Prednisone, Benadryl (which did cut the itching down

a bit, but not the redness)antihistimines and another antibiotic(doxycycline,

which didnt help). Well....the redness is a little bit better than back then,

but it has never left me.

The problem with taking antibiotics over a long period of time is the

risk of what they call a super infection ,or secondary infection,

materializing. Also getting back to the candida theory, an overgrowth of yeast

in your system. I believe this is why Drs dont want to keep you on them for

long and if they do its a very low dose for a month or so.If youre on

antibiotics do yourself a favor and take Acidophilus to help replace the

healthy bacteria that the antibiotics destroy along with the bad. My sister,

who is a nurse and into alternative treatments, told me all along to take

acidophilus, but I was fearful of putting any more bacteria in my system. I

wish that I would have listened to her now. Maybe some of this could have been

avoided. I dont want to take antibiotics anymore, but I know the feeling of

hoping a pill will keep things under control. Thats why Im on Accutane now and

experiencing lovely side effects! Though I must say that the bigger bumps that

were stubborn have gone away since taking it. At least for the moment!

What Im doing at the moment is moisturizing ( Im trying Complex 15

and/or Eucerin) and use Cortaid here and there to try and cut the redness down

along with those great little red bumps. Ive been testing topicals again on

small spots and right now Benzamyacin is helping out some (thanks to one of

you who recomended it for the swelling, bumpy nose).Like you, alot of the

topicals aggravate my skin, so Im hesitant to put any of them on the entire

face.Im sure the Accutane is drying the skin out majorly and is adding to the

problem so i have to be careful what I use until this treatment is over.

I agree with you about it boiling down to figuring out the

triggers,eating right etc..but I also feel that there has to be some sort of

topical, creme,etc... that can help stop this condition from reaching the next

level. Bill

------------------------------------------------------------------------

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Original Article: /list/rosacea-support/?start=1694

> Does anyone else treat thier rosacea solely with oral medications? I have

tried quite a few topical medicines and everyone, more or less, has aggravated

the rosacea or otherwise aggravated my skin. And I am wondering whether anyone

out there is like me. If so, kindly advise regarding your treatment regimen.

It seems that I can calm the rosacea down (some what) with oral medications,

like tetracycline, but as soon as I stop taking this antibiotic the rosacea

reasserts itself. It is sort of a catch 22: I need to take the oral meds to

" control " the rosacea, but the doctors tell me not to take them all the time.

> Periodically and only as a medicine of last resort is what they tell me. Does

anyone else face a similar dilemna?

>

> I am starting to believe that for many of us (those who cannot tolerate

medications or for whom medications do no good) the best treatment and control

of this problem is to identify and avoid triggers.

>

> Finally, I just wanted to echoe what someone else here has already said: We

can send people into space and put someone on the moon, but we can't identify

what causes rosacea.

> I'm also skittish about oral meds, but I've found that Dynacin works well to

controll my rosacea. My derm. is now trying a 6 wk. regimen, versus a ten day

one (which wears off quickly), to see if I can cause my skin to " remember " what

rosacea-free feels like. RM

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On Sun, 22 Jun 1997 10:29:02 -0400 " STEPHEN YORK "

writes:

>Esther, I am still searching for a treatment which works in my

>individual

>case. Like you, I take an oral medication (tetracycline)

>periodically, for

>a short period of time (usually no more than two weeks) when the

>cea

>seems to be getting out of control. The tetracycline seems work well

>resolving any bumps (which up to now have been few), but has little,

>if

>any, effect on the redness. I seem to have a consistently red and

>blotchy

>complexion.

>

>snip

my new doctor switched me from tetracycline to minocycline because she

said it works better at making the redness go away...

you might want to ask your derm his opinion on this

nicki

___________________________________________________________________

You don't need to buy Internet access to use free Internet e-mail.

Get completely free e-mail from Juno at http://www.juno.com/getjuno.html

or call Juno at (800) 654-JUNO [654-5866]

------------------------------------------------------------------------

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Lance,

Hi Lance! I'm a guy who IS SINGLE, trying to find someone... so in the

future show a TINY BIT of sensitivity if your able.

Rob.

Re: Oral Meds

>,

>

>EXCELLET reply on the rosacea topic! I couldn't have said it better. Yea,

>rosacea isn't cancer or something life threating but it can be and is very

>frustrating to people. My wife says that I still look the same. I don't

>think so. But do you know what? If she had the rosacea and not me I would

>probably tell her that she looks the same. Unless your single and trying

to

>pick up girls (or guys) who cares what a little redness and bumps can do?

>(well, for the most part.)

>

>Most people don't even know what the word " rosacea " means. I didn't even

hear

>of it until recently. Unfortuantaly, my vocabulary starts with it now.

>

>Well rosacea victims out there, have faith. You keep trying stuff and I'll

>keep trying stuff until we get this thing right!

>

>later all,

>

>LANCE

>

>------------------------------------------------------------------------

>

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- So far I have not been to a derm that i have been happy with in the

Fort Lauderdale area. The national rosacea society will send you a list of

dermatologists in your area that have identified themselves to the rosacea

society as treating rosacea.

They have a website www.rosacea.org and you can email for this information.

Priscilla

------------------------------------------------------------------------

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