Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 , Know what you're saying! That EEG has got me doubting the neuro though (not for the 1st time of course). Almost wish it had been a bad one, would have had something concrete to look at, say that's what we've got to work on, and relooked hard at the meds. What it's done though, has enabled me to look at a 'not there' while seeing very little sub clinical epileptic activity on the EEG, now got to figure out if this is actually 'him' now, or whether the meds really are a big issue still. We withheld his morn meds today, just given them now (2 hrs late), waiting to see what happens. He was not wonderful this am without them, but don't think he is as bad as usual at this time of day. Really should have withheld a different one each day I guess to see which one, if any, is the culprit. Such a puzzle, is there a solution....... Hill in NZ > richard & susan hill wrote: > > > Is he really getting more toxic with each reduction we do, I just am > > having such a hard time with the logics, especially when trying to > > explain it to 's neuro, who doesn't feel 's AED levels are > > at a theraputic level any more, never mind a toxic level. (Depakote > > 400 mgs, lamictal 75 mgs, nitrazepam 8.25 mgs) > > > > Barb S made some good points, problem is there is no way to tell whether > the kid needs the drug or they are hurting things until after the fact, > hindsight is 100%. One comment I can make - I have seen kids toxic on > the depakote with the diet, seizures out of control, drs demanding dose > be increased because its it way below theraputic values. I know of a > few parents who went the other way and reduced the drugs, things > improved, of course sometimes only after getting worse.. Seems like > with depakote, with every drop it can get worse, the lower the level, > the worse the effect until its all gone. > But its all a geussing game. Follow your gut, make a choice, try to > commit to stick it out for at least four week, preferably a little > longer and then reassess > > > > Quote Link to comment Share on other sites More sharing options...
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