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Re: RE:mayo clinic/U-M

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,

Isn't that just the most irritating thing ever?? *hugs*

I was sooo disappointed with the attitude we got when I took Matty to

UCSD and the doc that we saw there (I don't think she is there anymore,

but could be wrong) took one look at Matty and said " oh, he looks so

good. We thought he would be much sicker than he is. Now I'll have to

reevaluate what we need from him " . Now normally, I would have been

thrilled to hear that Matty wasn't as sick as he " should " have

been...but it was her whole body language and tone of voice that told me

that she was actually disappointed that my son wasn't dying in her

presence. :-(

I'm so sorry that you too had to hear something along these lines.

*hugs*

H.

momma to Matty

(combined PS/KSS)

wagm0707@... wrote:

> Can I ask who you saw at U-M? We went there and we were not impressed.

> The

> doctors had no idea what was wrong with him (and this was a metabolic

> specialist), but after my son was diagnosed with Pearson's (through an

> MSU

> geneticist) he called me at 6:00 one evening to tell me how excited he

> was

> that had Pearson's because he had heard of it, but not seen a

> case of it

> yet. I thought that was very callous, I wonder if he would have been

> that

> excited if it was his own child?

>

> All I have to say is thank God for the Cleveland Clinic and Dr. Cohen!

> We are

> leaving tomorrow for 's six month checkups. I hope the traffic

> isn't too

> bad. :o)

>

> Mc

>

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In a message dated 05/27/2001 11:17:44 PM Eastern Daylight Time,

whyten@... writes:

<< I was sooo disappointed with the attitude we got when I took Matty to

UCSD and the doc that we saw there (I don't think she is there anymore,

but could be wrong) took one look at Matty and said " oh, he looks so

good. >>

:

Do you recall if the female doc's name was Deborah Marsden? She has recently

come to Boston Children's and am curious if it would be her.

Michele

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Michele,

No, the doc that we saw was McGowan. Not too long after we were

there, though, she was in a very bad auto accident, and I know she

sustained very serious injuries. I was told that they were not sure she

would even live through it, but I never heard whether she recovered or

not. :(

In my opinion, her attitude sucked, but I sure do hope that she pulled

through her injuries okay. Anyone know anything about it?

H.

michsull@... wrote:

> In a message dated 05/27/2001 11:17:44 PM Eastern Daylight Time,

> whyten@... writes:

>

> << I was sooo disappointed with the attitude we got when I took

> Matty to

> UCSD and the doc that we saw there (I don't think she is there

> anymore,

> but could be wrong) took one look at Matty and said " oh, he looks so

> good. >>

> :

> Do you recall if the female doc's name was Deborah Marsden? She has

> recently

> come to Boston Children's and am curious if it would be her.

> Michele

>

>

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