Re: Digest Number 3121

[Guest guest]

Dear Allida,

What kind of discomfort are you having? Sounds familiar......

Last month I was experiencing a lot of intestinal pain and thought

nothing of it because it had happened on and off for months. But this

time it was unrelenting. I left work early and headed to the hospital

like a robot, my subconscious had taken over my brain. I got there in

time as I was headed for a perforation of the intestinal tract. In the

ER I was diagnosed with diverticulitis. I'm only 45 years old. No one

could believe it.

After 4 days in the hospital and given a special diet and an IV of Cipro

and Flagl I felt like a million bucks and couldn't wait to go home. But

those antibiotics kill your appetite!

A colonoscopy a few weeks later confirmed the diverticulitis, and

thankfully no cancer, as they were suspecting (trying hard not to alarm

me further by actually saying that, I saw it in the chart).

The colonoscopy was a piece of cake, so much easier to go through than

the liver biopsy.

So if you hare still having the very dark stools or none at all, please

get it checked out ASAP.

Love,

[ ] Digest Number 3121

[Guest guest]

HI

I STILL HAVE NOT GOTTEN MY BRACELETS. I HAVE SENT SEVERAL E-MAILSO ALIA AND

STILL HAVE NOT GOTTEN A RESPONSE FROM HER. I WAS WONDERING IF ANYONE ELSE HAS

GOTTEN THEIRS, OR IF EVEN SPEAKS TO HER IF THEY CAN MENTION SOMETHING TO ALIA

REGARDING THIS POSTING. I WAS REALLY WANTING THESE BEFORE THE BIG WALK HERE.

THANKS,

AMY (Mother of Dakota 6yrs JRA)

>

> From:

> Date: 2005/05/03 Tue AM 10:22:18 EDT

>

> Subject: Digest Number 3121

>

>

> There are 25 messages in this issue.

>

> Topics in this digest:

>

> 1. Re: Checking in on and n

> From: " sonia1md " <sonia1md@...>

> 2. RE: Alia-- does anyone know if everything's okay with her?

> From: " Pranke, Alia " <Alia.Pranke@...>

> 3. RE: Checking in on and n

> From: " Tepper, Michele " <MTepper@...>

> 4. Re: bracelets

> From: maydo65@...

> 5. Bayly

> From: " Grant + Jo " <gtur5559@...>

> 6. RE: Bayly

> From: " Tepper, Michele " <MTepper@...>

> 7. Re: Bayly

> From: " Jo & Grant " <gtur5559@...>

> 8. Re: bracelets

> From: H Schulz <snooksmama@...>

> 9. Re: Bayly

> From: " sonia1md " <sonia1md@...>

> 10. RE: Re: Bayly

> From: " Ray " <leslie@...>

> 11. Re: Bayly

> From: " hskidmore " <h.skidmore@...>

> 12. Re: Bayly

> From: H Schulz <snooksmama@...>

> 13. Re: Helen and :

> From: H Schulz <snooksmama@...>

> 14. RE: Helen and :

> From: " Ray " <leslie@...>

> 15. Re: Digest Number 3115

> From: cardiogirl610@...

> 16. help needed

> From: faces1999@...

> 17. Re: help needed

> From: " weaverb96 " <christineweaver@...>

> 18. Re: help needed

> From: " hburger64 " <hburger64@...>

> 19. Re: Bad News - MRA trials

> From: " hburger64 " <hburger64@...>

> 20. Re: Help...more ?'s about mtx side effects

> From: " hburger64 " <hburger64@...>

> 21. Re:

> From: " hburger64 " <hburger64@...>

> 22. RE: Re: ever hear of uticaria

> From: " Pranke, Alia " <Alia.Pranke@...>

> 23. Re: Mad at this disease./Helen

> From: " hburger64 " <hburger64@...>

> 24. Re: Checking in on and n

> From: " hburger64 " <hburger64@...>

> 25. Camp Joint Venture

> From: deerhuntert6@...

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

> Message: 1

> Date: Mon, 02 May 2005 13:47:13 -0000

> From: " sonia1md " <sonia1md@...>

> Subject: Re: Checking in on and n

>

> Hi ,

>

> That is so wonderful with how successful n has been at track. I

> am sure that you must get such a thrill watching her meets and seeing

> how far she has come and her willingness to push thru the pain in

> order to pursue her talents!

>

> If I remember correctly the last time n was on mtx she had side

> effects and had to go off. Are things going better for her this

> time?

>

> You will have to let us know how the wednesday track meet goes. I

> will say a prayer for her to stay healthy and jump far! :-)

>

> God Bless,

> (Aundrea 9 systemic)-

>

> -- In , Price <bc.price@c...> wrote:

> > Hi , I am still here, but just a lurker anymore. We have

> > updated our computer, so I have been down for a short time. n

>

> > is doing okay. Her wrists are holding their own, and we are waiting

>

> > for the mtx to start working. She began mtx at the beginning of

> > February. Her foot (the top of it) has been bothering her, and last

>

> > week it was her neck that was hurting. She started track in

> February

> > and does high jump. She is number one on varsity and is doing quite

>

> > well. We are crossing our fingers, for right now she is the number

>

> > two jumper in the district. The top two go to state. Pretty good

> > for a kid with jra and on mtx. She can't train with the team, she

> > just walks our neighborhood for training. No matter what happens,

> we

> > are quite proud of her. She has won every track meet so far, and

> her

> > last one is this Wednesday.

> > I still read everyone's posts, and everyone is in my thoughts and

> > prayers. (n, 16,systemic)

> > On May 1, 2005, at 2:55 PM, sonia1md wrote:

> >

> > > Hey ,

> > >

> > > I don't know if you will get this but I haven't seen any posts

> from

> > > you

> > > for awhile and I just wanted to check in and see how n has

> been

> > > doing.

> > >

> > > The last post I recalled was you mentioning her wrist pain was

> still a

> > > problem. I hope that things have been going well for you guys!

> > >

> > > God Bless,

> > > (Aundrea 9 systemic)

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi Amy - I have emailed you directly off line... I am not sure why you

aren't getting my responses. I will email you again.

Alia

Re: Checking in on and n

>

> Hi ,

>

> That is so wonderful with how successful n has been at track. I

> am sure that you must get such a thrill watching her meets and seeing

> how far she has come and her willingness to push thru the pain in

> order to pursue her talents!

>

> If I remember correctly the last time n was on mtx she had side

> effects and had to go off. Are things going better for her this

> time?

>

> You will have to let us know how the wednesday track meet goes. I

> will say a prayer for her to stay healthy and jump far! :-)

>

> God Bless,

> (Aundrea 9 systemic)-

>

> -- In , Price <bc.price@c...> wrote:

> > Hi , I am still here, but just a lurker anymore. We have

> > updated our computer, so I have been down for a short time. n

>

> > is doing okay. Her wrists are holding their own, and we are waiting

>

> > for the mtx to start working. She began mtx at the beginning of

> > February. Her foot (the top of it) has been bothering her, and last

>

> > week it was her neck that was hurting. She started track in

> February

> > and does high jump. She is number one on varsity and is doing quite

>

> > well. We are crossing our fingers, for right now she is the number

>

> > two jumper in the district. The top two go to state. Pretty good

> > for a kid with jra and on mtx. She can't train with the team, she

> > just walks our neighborhood for training. No matter what happens,

> we

> > are quite proud of her. She has won every track meet so far, and

> her

> > last one is this Wednesday.

> > I still read everyone's posts, and everyone is in my thoughts and

> > prayers. (n, 16,systemic)

> > On May 1, 2005, at 2:55 PM, sonia1md wrote:

> >

> > > Hey ,

> > >

> > > I don't know if you will get this but I haven't seen any posts

> from

> > > you

> > > for awhile and I just wanted to check in and see how n has

> been

> > > doing.

> > >

> > > The last post I recalled was you mentioning her wrist pain was

> still a

> > > problem. I hope that things have been going well for you guys!

> > >

> > > God Bless,

> > > (Aundrea 9 systemic)

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hello to nne in Ontario,

My daughter had--among other things--food contamination type issues in the past.

I'm happy to say, she's done GREAT for past 21 months since she had her tonsils

out--NO new obsessions or compulsions--just one or two old habits or quirks she

awhile to finally face and conquer. ?

Anyway, one thing that worked SO well for her was her " Detective Notebook. " In

it we used forms, shared with us by Boston University's Center for Anxiety &

Related Disorders. She would record what bothered her earlier that day or

previous day, and:

1) what her anxiety level ranged from during whole episode,

2) what consequences there were (i.e. missed out on some fun at party, poor

night's sleep, etc.)

3) what probability of the fear (swallowing chicken bones)

4) other comments

Another page of this " detective notebook " would include a plan?i.e. steps to

overcome this particular worry/fear/obsessive thought

In a way, recording this was an exposure activity. Other things for exposures

could include drawing a cartoon about the obsessive thought/fear or writing

silly rhymes or poems about it the fear/obsessive thought. Also, for practical

exposures: steps toward eating meat with bones (smelling it, helping to serve

it, tasting broth made from chicken or other meat, seeing others eat such meats,

touching it to her lips, licking it, one bite, then two bites, etc?)

Not sure of your dd?s age, but a great analogy used in one of the books we used,

perhaps you?re familiar with, is talking about the obsession as ?junk mail.?

Junk that is cluttering her mind, as junk mail can clutter up a counter. It?s

interfering with fun and nice thoughts she should/could be having.

Hope this helps! Sue

Sue ?