Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Hi Dave- I don't know if they did check for those things, but he also had a physical last week and many thyroid tests were done. At least we know it's not a stroke! Thanks, as usual, for your ready response! OK - now did you know this off the top of your head, or did you have to look it up? Shel Wife of Fred, PSC 3/04 Tingly Gums 11/04 - . Did they also check > for parathyroid hormone (PTH) and vitamin D levels, which are > responsible for regulating calcium? Have they ruled out low > magnesium which can cause hypocalcemia by reducing the activity of > parathyroid hormone? > > From what I've read, vitamin D deficiencies are not uncommon in > cholestatic liver disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Hey , Amen to the calcium connection. There are some other symptoms that I had besides the tingling and numbness ( which extended all the way down my arms at times and resulted in endless neurological tests until we got to the right person who made the liver disease, calcium absorbtion connection). It can be leg cramps like you would not believe, some vision related stuff. All went away in a few days when I started 20 something years ago taking coral calcium in amost double the usual recommended dose every day. Long before it was fashionable. I used to take a liquid form that I cannot find anymore. Another problem that I think of as being similar that I was able to solve was low sodium. That surfaced after my colon was removed, but I suspect it was always a problem for me. Low sodium makes you feel absolutely miserable, and all I have to do when it is hot now is carry a couple of rx buffered salt tablets. Amazing how simple some of the side effects can be. I was fortunate that my Dad is a chemist and understood a lot of the disease physiology from that perspective and could help me. Hope Fred feels better soon. Tee -- In , " slhussey2001 " <fshus@b...> wrote: > > I had a feeling that Fred's bizarre symptoms this morning were likely > due to PSC, but we didn't know, so we went to the emergency room like > probably so many of you have done. > > He's been waking up for several days with numbness and tingling in > his face, but mostly his lips and gums. However, today the symptoms > didn't go away in a few minutes like they usually did. We did some > quick study on the net, and thought he was quite possibly having a > TIA- transcient ischemic attack - or stroke. I called my sister in > law, who's a physical therapist, and she said to go the emergency > room. (Fred's also had high blood pressure for awhile that has not > been treated, another reason for the stroke concern.) > > They did a catscan, took a bunch of blood, and told him all was clear > but his calcium level was a tad low. We came home, and did more > research. Looks like because of the bile duct blockage, he's not > absorbing calcium as well as he should be. Low calcium levels can > cause tingling and numbness in various body parts, including lips. > Low calcium levels also cause irritability and depression, and many > other symptoms. > > Anyone else have this issue called hypocalcemia? Fred's doubling up > on the calcium until he sees the hepatologist next month. Emergency > room dr. recommended a neurologist, but we've determined that's > probably not necessary. > > And I too, continue to pray Shauna's misery soon ends and the new > liver comes quickly!! > > > Wife of Fred, PSC, 3/04, Numb Lips, 11/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Hi Tee- Showed Fred your post. Yes, he gets awful leg cramps sometimes. And has restless legs syndrome as well. You get those? Anyway, he said his lips are about back to normal. And why this happens right when he wakes up is a mystery, unless there's a big drop in calcium at that time. Thanks for your and Dave's input! What we would do without each other? Wife of Fred, PSC 3/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Hi ; I had heard of the connection between vitamin D deficiency and calcium deficiency before [mostly in relation to bone disease and osteoporosis in PBC], but I did have to look up about the possible parathyroid hormone and low magnesium involvement in hypocalcemia before answering. It is good that they did some thyroid tests ... presumably this would rule out a thyroid cause. I hope that the extra calcium cures Fred's tingly gums etc soon! All the best, Dave R. > > Hi Dave- > I don't know if they did check for those things, but he also had a > physical last week and many thyroid tests were done. At least we know > it's not a stroke! Thanks, as usual, for your ready response! OK - > now did you know this off the top of your head, or did you have to > look it up? > > Shel > Wife of Fred, PSC 3/04 Tingly Gums 11/04 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 Hi , Oh my gosh, you should speak to my husband about it. The poor thing has rubbed my legs every night for 28 years. I tell him all the time that I would not have legs anymore if he had'nt. Exercise before bedtime really helps. The jacuzzi seems to help if I do it right before bedtime. We have one that is a regular bathtub as well as a big one on a porch outside. It's one thing that really helps me. They have improved as I have gotten older, or become more managable. I remember when I was in my early 20's and met the first other person who had psc. I was having some tests done at ochsner and the doc pointed out a young man about my age in the waiting room and told me he had my disease. We were number 13 and 14 that Ochsner's had ever treated at that time. When he introduced me, the young man said hello, and the next thing out of his mouth was " do your legs hurt at night? " . I have a routine for the cramps right when you are waking up business. I sit on the edge of the bed, take my hand on my leg, put my toes on the floor, and push my heal down with my hand. Works every time, no idea why. Best Wishes, Tee > > Hi Tee- > Showed Fred your post. Yes, he gets awful leg cramps sometimes. And > has restless legs syndrome as well. You get those? > > Anyway, he said his lips are about back to normal. And why this > happens right when he wakes up is a mystery, unless there's a big > drop in calcium at that time. > > Thanks for your and Dave's input! What we would do without each other? > > > Wife of Fred, PSC 3/04 Quote Link to comment Share on other sites More sharing options...
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