RE: PSC supposed to be painless

[Guest guest]

Deb, my gallbladder was removed this summer. My pain in mostly in the RUQ (right upper quad), just under the ribs, right where the liver is. Sometimes its on the right too.

I'm told 'PSC is painless'. Also thought about bacterial cholangitis but I've been on Abx (antibiotics) the whole time. I might think about trying some different Abx coverage after I get a 'curb-side' infectious disease consult. I'm also concerned about intra-hepatic stones but they should have seen them on ERCP. My GI doc is concerned re: duodenal stricture or something obscure. Had joint pain (arthalgias) for years but never this bad.

I can deal with the pain for now (its less than it was) but I am a bit worried with an Alk Phos of 220!-Stef

[Guest guest]

PSC is painless?????? Who the heck said

that??? Someone who doesn’t have it??? Lord have mercy!!!

Bobby & Anne

RE: PSC

supposed to be painless

Deb, my gallbladder was removed this summer. My pain

in mostly in the RUQ (right upper quad), just under the ribs, right where the

liver is. Sometimes its on the right too.

I'm told 'PSC is painless'. Also thought about

bacterial cholangitis but I've been on Abx (antibiotics) the whole time. I

might think about trying some different Abx coverage after I get a 'curb-side'

infectious disease consult. I'm also concerned about intra-hepatic stones but

they should have seen them on ERCP. My GI doc is concerned re: duodenal

stricture or something obscure. Had joint pain (arthalgias) for years but never

this bad.

I can deal with the pain for now (its less than it

was) but I am a bit worried with an Alk Phos of 220!

-Stef

[Guest guest]

Hi all,

Actually my GI (when I was first diagnosed) told me the same thing!! Then I

finallly went to a Hep. who had more experience with PSC and said that pain WAS

normal and the only way to really deal with the pain (if it isn't an official

cholangitis attack of course) is to take painkillers,use heating pads, etc. I

was glad to hear pain was normal because I thought I was going crazy.

Shahina

Toronto, ON

PSC 2003, GB removal 2004

RE: PSC supposed to be painless

>

>

>

> Deb, my gallbladder was removed this summer. My pain in mostly in the

> RUQ (right upper quad), just under the ribs, right where the liver is.

> Sometimes its on the right too.

>

> I'm told 'PSC is painless'. Also thought about bacterial

> cholangitis but

> I've been on Abx (antibiotics) the whole time. I might think about

> trying some different Abx coverage after I get a 'curb-side'

> infectiousdisease consult. I'm also concerned about intra-hepatic

> stones but they

> should have seen them on ERCP. My GI doc is concerned re: duodenal

> stricture or something obscure. Had joint pain (arthalgias) for years

> but never this bad.

>

> I can deal with the pain for now (its less than it was) but I am a bit

> worried with an Alk Phos of 220!

> -Stef

>

>

>

>

>

>

[Guest guest]

Dear Bob and Ann

I agree, painless as a root canal. Please!

jd

UC 1973, Jpouch 2000, Pouchitis 2001, PSC 10-04

ston City IL

krmpotich@...

RE: PSC supposed to be painless

PSC is painless?????? Who the heck said that??? Someone who doesn’t have it??? Lord have mercy!!!

Bobby & Anne

-----Original Message-----From: S H Sent: Thursday, December 09, 2004 10:34 AMTo: Subject: RE: PSC supposed to be painless

Deb, my gallbladder was removed this summer. My pain in mostly in the RUQ (right upper quad), just under the ribs, right where the liver is. Sometimes its on the right too.

I'm told 'PSC is painless'. Also thought about bacterial cholangitis but I've been on Abx (antibiotics) the whole time. I might think about trying some different Abx coverage after I get a 'curb-side' infectious disease consult. I'm also concerned about intra-hepatic stones but they should have seen them on ERCP. My GI doc is concerned re: duodenal stricture or something obscure. Had joint pain (arthalgias) for years but never this bad.

I can deal with the pain for now (its less than it was) but I am a bit worried with an Alk Phos of 220!-Stef

[Guest guest]

Nice - all the top GI docs think its painless, but all the patients

think its painful. Boy that really pisses me off - almost as much as

when medical students mix up IBS and IBD! Esp. since they teach us

in med school " When in doubt, listen to the patient " type stuff.

Time for another poll I guess. . . .

-Stef