Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 Glad to hear you are hanging in there, get some sleep when you can. Thoughts and prayers are with you. Bernie Mark wrote: I have not had time to read up hope you are all doing well! Sara is still in the PICU- she had some breathing issues (some low desats but no reintebating!!), and is working up to a full feeding slowly- she's vomitted quite a bit this time. She also had an infection starting in her lungs but seems ok after starting antibiotics. I think her biggest problem now is boredom!!! It's been a long week and boy am I tired! She should be homme soon- tomorrow maybe- couldve been today if the GI docs would return phone calls!! anyway.. miss yall! Mark mom to Sara 9 months and bored out of her gourd!! Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 It's great to hear that little Sara is feeling well enough to be bored -- and that she'll be home so soon!! I hope you both have time for a bit of relaxation and rest before an enjoyable first Christmas! (Ooops-- I'm assuming you celebrate Christmas--if not, then whatever your holiday of choice is :-[ ) Michele W Aubrie's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 Duh-- I remember now that I know you celebrate Christmas -- oops again! Michele W Quote Link to comment Share on other sites More sharing options...
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