Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 My son's school has mentioned that there are a few kids that may be getting double implants. The children I have seen, who got their implants early (under 1 year of age) are doing great, they have language (both sign and working on speech). Learn everything you can and listen to your heart as a mother. Bernie, Mom of Josh cHARGE 5 roizyk wrote: Hi! I was wondering if anyone has done a double cochlear implant. The people at NYU and my sons Audiologist have recommended it but I'm wondering if any children with CHARGE have done it. (The surgeon will let me know if he can do both) they told me to think about it and consider. I'm not sure I want to do the whole procedure anyway but I know I have to do it. Now the mention of double implant has sent me right back to the unsure stage of " am I doing the right thing for my son? " Manny is 9 months old. Rose Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 My only concern about doing a double would be if they didn't work, the ci's destroy ANY residual hearing the patient had prior to the surgery (so you couldn't even go back to aiding the best of the two ears for some sound...) Just a thought, W Bernadine Hill wrote: My son's school has mentioned that there are a few kids that may be getting double implants. The children I have seen, who got their implants early (under 1 year of age) are doing great, they have language (both sign and working on speech). Learn everything you can and listen to your heart as a mother. Bernie, Mom of Josh cHARGE 5 roizyk wrote: Hi! I was wondering if anyone has done a double cochlear implant. The people at NYU and my sons Audiologist have recommended it but I'm wondering if any children with CHARGE have done it. (The surgeon will let me know if he can do both) they told me to think about it and consider. I'm not sure I want to do the whole procedure anyway but I know I have to do it. Now the mention of double implant has sent me right back to the unsure stage of " am I doing the right thing for my son? " Manny is 9 months old. Rose Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 I spoke with the DHH specialist at my son's school this morning and his opinion is this. One implant is good. The technology is still considered new and if something else were to become available in the future at least you would have on cochlea available. I don't know if that helps you, but that was another opinion to put in the hat. I know it's hard. Bernie Hill Weir wrote: My only concern about doing a double would be if they didn't work, the ci's destroy ANY residual hearing the patient had prior to the surgery (so you couldn't even go back to aiding the best of the two ears for some sound...) Just a thought, W Bernadine Hill wrote: My son's school has mentioned that there are a few kids that may be getting double implants. The children I have seen, who got their implants early (under 1 year of age) are doing great, they have language (both sign and working on speech). Learn everything you can and listen to your heart as a mother. Bernie, Mom of Josh cHARGE 5 roizyk wrote: Hi! I was wondering if anyone has done a double cochlear implant. The people at NYU and my sons Audiologist have recommended it but I'm wondering if any children with CHARGE have done it. (The surgeon will let me know if he can do both) they told me to think about it and consider. I'm not sure I want to do the whole procedure anyway but I know I have to do it. Now the mention of double implant has sent me right back to the unsure stage of " am I doing the right thing for my son? " Manny is 9 months old. Rose Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Thanks that is great. I'll agree to do one ear and leave the better ear either for new tech. or for aiding if there is a problem or maybe we'll do it at a later time. Rose Weir wrote: My only concern about doing a double would be if they didn't work, the ci's destroy ANY residual hearing the patient had prior to the surgery (so you couldn't even go back to aiding the best of the two ears for some sound...) Just a thought, W Bernadine Hill wrote: My son's school has mentioned that there are a few kids that may be getting double implants. The children I have seen, who got their implants early (under 1 year of age) are doing great, they have language (both sign and working on speech). Learn everything you can and listen to your heart as a mother. Bernie, Mom of Josh cHARGE 5 roizyk wrote: Hi! I was wondering if anyone has done a double cochlear implant. The people at NYU and my sons Audiologist have recommended it but I'm wondering if any children with CHARGE have done it. (The surgeon will let me know if he can do both) they told me to think about it and consider. I'm not sure I want to do the whole procedure anyway but I know I have to do it. Now the mention of double implant has sent me right back to the unsure stage of " am I doing the right thing for my son? " Manny is 9 months old. Rose Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 I have to agree that if you implant both ears, you will not be able to take advantage of new technology that comes along and technology is changing very fast. My child hears very well with one implant. When his cables start going bad or other technical difficulties occur, he is so much more difficult to deal with behaviorally. The implant has been such a blessing. Thank God for it. My audie told me that my son was lucky to get an implant because he had other issues and a few years before you had to be vanilla deaf to get one. Nice. RMP Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.