No support

[Guest guest]

Thank you to everyone but I have to appologise. I guess I was in a pitty

party by myself. I am not happy but I am now handing things over to to

have

him fix things. He is a bit more ..? insisting ?... than I am.

I would also like to explain to the new parents here that life isn't as

horrible as it seems. Patty is one of the most interesting individuals I have

ever

met. She has accomplished more than any doctor or teacher has ever said she

could. With each step she has met every new stage with such drive and

determination that it pains me to not have her dreams and desires put into

motion.

Patty was always told she couldn't or wouldn't be able to do things either

medically or physically. I wish we had an " I Told You So " sign. She is a

CHARGEr! That is what is the most amazing thing about our children. They are

determined and do the impossible. It is always one step at a time but she has

already gone further in her life than I ever let myself dream for her when she

was

a baby.

I just wish it didn't have to be so hard. And you know it doesn't. We all

need to learn from each other so that it gets easier for everyone.

Another pain I have is ofher education. It didn't have to be so hard and

she missed vital learning opportunities. Her learning is in no way done but it

didin't have to be a battle. I am now working in a school system with people

who think outside of those small little boxes. I am working under a teacher

with the gift of being a true " teacher " and is getting things done. I also

watch her doing a job because it is her calling and not doing it based on

finances. There are no hidden adgendas. I have only seen this once before.

Instead

of being one teacher with a few staff I have seen it be almost all staff. Of

course that is Perkins. I see what Patty missed. None of your children

have to miss it though.

So now my job is to fight for Patty to continue to her life as independant as

possible and remove those limits set on her by opinionated people who will do

anything to not be wrong. Wrong they are!

Thank you everyone. We'll see what accomplishes.

Bonnie, mom to Kris 22, Patty CHARGE 20, and wife to a tough and determined