Guest guest Posted August 25, 2005 Report Share Posted August 25, 2005 Thanks > Sending healthy thoughts Hayley's way. Hang in there... > > Hugs - > Michele W > Aubrie's mom 7 yrs > > Tebble wrote: > >> :-) >> >> Hayley not 100% well.. just spent 3 days in hospital as she was >> struggling >> to breath over the weekend. >> >> She is home but for how long I dont know... she has 72 hours to improve >> otherwise she goes back in :-( >> >> >> >> ------------------------------------------------------------------------ >> > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca, or > email info@.... > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 My $ 0.02 ) I have been all over the map in my responses to the question of people staring, commenting aloud or directly questioning. My big paradigm shift came the day (my Charger) was unabashedly staring at an adult in a wheelchair who had one arm and one leg - the other arm and leg having been clearly amputated. All my resentment toward the myriad of strangers in our lives dissipated. I accepted that it is simply human nature to take a second look at that which is unusual - almost to check if what we thought we saw is really what we saw. I cannot expect our lives to be exempt from the peering eyes of human nature. Then after that initial stare - some people are lost in the reverie of their own thought - they don't consider that they can be seen - like a moviegoer sitting in a dark theater. I have seen countless people order food in a restaurant or address a cashier as though they were not human. They just don't realize what they bring to the situation - or maybe more accurately what they don't bring. Then after the stare and the reverie - sometimes there is fear and anxiety. And they need to be reassured because they saw something unexpected and it made them afraid. it made them vulnerable, and it reminded them how nothing is guaranteed in life. And they want reassurance, a sense of control. Maybe they want familiarity. Once I truly realized that their responses were all about them and nothing about us, I could greet each of them with love - for they had fear, and I know fear. Fear is where I walk when I grip too tightly on my blessings and they slip like sand through my fingers. Fear is when I can't feel love, faith or trust. And I want them to feel love, faith and trust. And if I greet them with that intention - it always goes well. Even if they are belligerent - I do not contribute to that energy, and I do not become engaged in it. I feel nothing can be gained by them or me to meet them where they are. .... then there's the day I am tired, spread thin and caught off guard... but that's another story ) Smiles- Yuka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Yuka- Write a book. Your eloquence amazes me. Michele W Yuka Persico wrote: > My $ 0.02 ) Quote Link to comment Share on other sites More sharing options...
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