Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 Lynn, I'm glad to hear is recovering from her surgery and that is SO great about the new place. I'm sure she'll do well! Weir Mom to Kennedy 6 yr old with CHARGE, 15, 13 and wife to Graeme. New Brunswick, Canada Weir homepage: http://ca.geocities.com/weirfamilyrogers CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca Update Hi, Just a note to let everyone know is doing fine. Her left ear with the replacement permanent PE tube is back to normal aided hearing. The left ear is still full of disovable gauze. She has started the drops and on Aug. 26th the doctor will clean out the ear. He is very confident that her aided hearing will be back to where it was. It has been about 7 months since she could hear out if the right ear. Our biggest accomplishment is that yesterday she moved into an apartment with two other girls. They are in but not settled. lived in a dorm at college last year. She has switched colleges, switched majors and is excited about being " out on her own " . She lives about 45 miles from home and about 50 miles from her boyfriend. Far enough to be independent, but close enough to home if need be. Her college last year was 2 hrs. away. It takes me about 50 min. to reach her apartment now. She starts college at Lakeland Community College on Aug. 30. This sememster she will take Accounting, Micro Economics, Logic/Philosophy, and Computers. She is majoring in business and hotel management. She has her work cut out for her. She plans to work part time too. As Mom's do, I worry about her over doing and staying healthy. Blessings and Hugs. Lynn Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 hi all, as you can see this is a generic letter to all....time is limited since school started it seems. Tim is doing great in school, likes his new teacher and has the same kids as last year and therapists--that's a plus. he got his new splints yesterday and likes them along with new shoes--he's a boy after my own heart--he loves shoes--and clothes!!! he gets to go to the Met in NY next week on a field trip--I hope I can go too!!! Tim started swimming at the Y on monday and had a blast--can't wait till next week. Keegan loves his new school and has made several new friends, already asking for play dates. he has soccer practice tues. and thurs eves and games on Sat. he's doing well, but disappointed there are 18 kids on the team this year and all have to play 2 quarters, which means he has to sit 2, not his idea of fun...but he's dealing with it. we just signed both tim and keegan up for cub scouts last night---this is dad's project to help with --mom gets a break to some extent. liam is doing super---LOVES pre-k and is glad to go everyday, but he's tired, he stopped taking naps at 18 months, but has been napping at rest time at school. he got to take the bus last week with 1/2 days and that made his week. he will occasionally take the bus, but for the most part I take and pick up because of keegan's schedule. I am doing the pto thing again, the 1st meeting is tonight, and the fundraiser kick off--such a pain, but no money means no fun. so, throw in b-day parties--for kids and all the other stuff, we are busy. but, having fun and learning lots. I put in my application for subbing, so hopefully, I'll get some work too. have a great day!! and the guys-----oh, and pat is working and driving and the usual daddy stuff. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2004 Report Share Posted September 16, 2004 " ....time is limited since school started it seems. " I can relate to that and I don't have kids at home any more just bunches of them at school. You sound so busy, but isn't it great our kids can be so busy doing all kinds of things. Lynn update hi all, as you can see this is a generic letter to all....time is limited since school started it seems. Tim is doing great in school, likes his new teacher and has the same kids as last year and therapists--that's a plus. he got his new splints yesterday and likes them along with new shoes--he's a boy after my own heart--he loves shoes--and clothes!!! he gets to go to the Met in NY next week on a field trip--I hope I can go too!!! Tim started swimming at the Y on monday and had a blast--can't wait till next week. Keegan loves his new school and has made several new friends, already asking for play dates. he has soccer practice tues. and thurs eves and games on Sat. he's doing well, but disappointed there are 18 kids on the team this year and all have to play 2 quarters, which means he has to sit 2, not his idea of fun...but he's dealing with it. we just signed both tim and keegan up for cub scouts last night---this is dad's project to help with --mom gets a break to some extent. liam is doing super---LOVES pre-k and is glad to go everyday, but he's tired, he stopped taking naps at 18 months, but has been napping at rest time at school. he got to take the bus last week with 1/2 days and that made his week. he will occasionally take the bus, but for the most part I take and pick up because of keegan's schedule. I am doing the pto thing again, the 1st meeting is tonight, and the fundraiser kick off--such a pain, but no money means no fun. so, throw in b-day parties--for kids and all the other stuff, we are busy. but, having fun and learning lots. I put in my application for subbing, so hopefully, I'll get some work too. have a great day!! and the guys-----oh, and pat is working and driving and the usual daddy stuff. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2004 Report Share Posted September 16, 2004 great yes, trying even more so....pat and I just sat down with the calendar from now until end of dec. so he can be on track too--and he doesn't even have 1/2 of what I have. I think the scouting will be good for all 3 of them. liam of course wants to know when he can be a tiger--he has 2 years--an awful long time in his mind, but it will be here before we know it!! maria update > > > hi all, as you can see this is a generic letter to all....time is limited since school started it seems. Tim is doing great in school, likes his new teacher and has the same kids as last year and therapists--that's a plus. he got his new splints yesterday and likes them along with new shoes--he's a boy after my own heart--he loves shoes--and clothes!!! he gets to go to the Met in NY next week on a field trip--I hope I can go too!!! Tim started swimming at the Y on monday and had a blast--can't wait till next week. > > Keegan loves his new school and has made several new friends, already asking for play dates. he has soccer practice tues. and thurs eves and games on Sat. he's doing well, but disappointed there are 18 kids on the team this year and all have to play 2 quarters, which means he has to sit 2, not his idea of fun...but he's dealing with it. > > we just signed both tim and keegan up for cub scouts last night---this is dad's project to help with --mom gets a break to some extent. > > liam is doing super---LOVES pre-k and is glad to go everyday, but he's tired, he stopped taking naps at 18 months, but has been napping at rest time at school. he got to take the bus last week with 1/2 days and that made his week. he will occasionally take the bus, but for the most part I take and pick up because of keegan's schedule. > > I am doing the pto thing again, the 1st meeting is tonight, and the fundraiser kick off--such a pain, but no money means no fun. so, throw in b-day parties--for kids and all the other stuff, we are busy. but, having fun and learning lots. I put in my application for subbing, so hopefully, I'll get some work too. > > have a great day!! > > and the guys-----oh, and pat is working and driving and the usual daddy stuff. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 good luck with the math--we struggle with math at times too, ot going to be a strong point. just started scouts--tim at bears, keegan tiger--going camping this week-end!! maria update > was feeling really discouraged after sep this time wesley just > cant seem to get the multiplication tables has been working on it > for a couple years now and just isn't getting it I asked the > teacher if she would consider just teaching him to use a chart > that shows the answers on it. she said that is good idea for like > the 12 times and such but she wants to still see if he can get these > other ones. > she said wesley is very creative and so is focussing on > story writing with wes. > we took wes to orthodontist he wants wes to go to a facial > clinic thing. > a lady moved in our ward who does cranial sacral work and has > said she will work with wes for next to nothing. > I got the audiologist at school to get wes an FM system. > for him at school wes had swallow study a week ago and > passed on everything but you can see he doesn't chew with his > teeth just mashes with his tong and roof of mouth. > trying to get apt again with dysphasia wes wants his tube > all the way out > we are trying to adjust the scout stuff as wes is now 11 > and ready for the higher level of scouting. > we never heard back from the endo dr. need to call them. > feeling like there is so much I dont know how we have made it > this far with so many things to keep up with. > oh and wesley is starting to be more tolerant with the new > babies cries. > Im glad for what goes well with wes but sometimes Im so > discouraged > when I took him to the hospital the other day he asked if he could > go potty I said yes just min and went to get the baby out of the > car just to have my friend point out wes had started just > peeing on the car next to us. sigh sometimes I wonder does he > understand these things or not. > sigh > KayRena > > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
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