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Thanks ,

Lynn

Re: 's good news

I'm so glad got good news about her ears!! And that you had such

a fun day together! Way to start the year off right...

Michele W

aubrie's mom

Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

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Thanks,

Lynn

's good news

> Hi,

> I went with to her ear post-op appointment. (When your

> daughter is almost 20 , 9-7-04, you no longer " take " them to the

> doctor. We are so blessed, she takes herself.

> Her ENT was so pleased to see that she is healing ahead of

> schedule. She always has healed fast. With her aids her hearing in

> both ears in back to what is normal for her. She hasn't heard a

> word out of the right ear for about 8 months. We can now stop

> shouting and repeating.

> She had the same surgery 9 years ago. The ENT feels that she

> should be good for about another 10 years. The surgery may need

> repeated again later.

> We had a wonderful " girl's day out " . We went shopping( my

> treat) and out to lunch on Mom . I took her to the grocery store

> and paid for a cart full of food for my college kid. She is so

> grateful for the things her Dad and I do for her it was a pleasure

> to by her food for her apartment. Her roommates were excited too.

> I start back to school tomorrow, the students come Monday.

> starts her second year of colege classes on Monday.

> Best wishes to all the teachers, support staff, and students in

> CHARGE land. The school year begins!

> Blessings and Hugs!

> Lynn

> Mom to Tom 24, ,cHARGE, 20 on Sept. 7th and wife to Doug

>

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

>

>

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glad to know sarah is hearing better and all was successful. my mom and I

had a girls day out when she was here, did christmas shopping, so she

doesn't have to ship it or I don't have to go get and wrap etc. we did it

together--also did lunch and fun shopping too. to clebrate our b-days the

4th and 20th.

have a good year!

maria

's good news

> Hi,

> I went with to her ear post-op appointment. (When your

> daughter is almost 20 , 9-7-04, you no longer " take " them to the

> doctor. We are so blessed, she takes herself.

> Her ENT was so pleased to see that she is healing ahead of

> schedule. She always has healed fast. With her aids her hearing in

> both ears in back to what is normal for her. She hasn't heard a

> word out of the right ear for about 8 months. We can now stop

> shouting and repeating.

> She had the same surgery 9 years ago. The ENT feels that she

> should be good for about another 10 years. The surgery may need

> repeated again later.

> We had a wonderful " girl's day out " . We went shopping( my

> treat) and out to lunch on Mom . I took her to the grocery store

> and paid for a cart full of food for my college kid. She is so

> grateful for the things her Dad and I do for her it was a pleasure

> to by her food for her apartment. Her roommates were excited too.

> I start back to school tomorrow, the students come Monday.

> starts her second year of colege classes on Monday.

> Best wishes to all the teachers, support staff, and students in

> CHARGE land. The school year begins!

> Blessings and Hugs!

> Lynn

> Mom to Tom 24, ,cHARGE, 20 on Sept. 7th and wife to Doug

>

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

>

>

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Bonnie,

Thanks. Yes, is a very determined young lady. I believe it comes from

fighting for her first breath, her first step, her first sign, her first word

etc. We are very very proud of her. She works very very hard to learn and

survive.

My new school year started today with teacher meetings. The students come

Monday morning. Big problem is, the new computer system for schedules and class

list got a glitch in it. I have no class rosters for my classes that start at

7:55 AM Monday. I pray they fix it over the weekend and before school we get

our paper work. An auditorium full of 400 7th and 8th graders without class

schedules sounds like a horror film in the making. Other wise, I can't wait to

start a new year. I do know I have some real challenging kids this year.

It's nice to see Patty on the list.

Lynn

Re: 's good news

Lynn,

What wonderful news! You must be excited to say the least. sounds

like she is one determined wonderful person. You must be very proud.

Good luck with you new school year.

Bonnie

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