RE: Beginning to feed at last

[Guest guest]

To help my son learn to chew I taught him how to chew gum...it was a

controlled environment and in the beginning he could only chew gum sitting in

front of

me....this way learned how to move the gum around his mouth...and he

only ever swallowed one piece of gum...now he is learning how to blow bubbles

with bubble gum....Always sugarfree gum.

Ellen mom to 6 (almost 7)Charge

[Guest guest]

<< Do these kids learn to chew at an older age, or do they stay on baby food

forever >>

Eddie is approaching 5 years old and still has trouble chewing. Most of his

food is oatmeal consistency. He'll sometimes chew and swallow soft foods, such

as a french fry or a bean. Often, though, he'll bite it / play with it and

then spit it out. He really likes sliced bananas, but he doesn't always chew it,

just mushes it in his mouth before swallowing.

Feeding therapy has really helped (his therapist can even get him to eat

pieces of chicken!). Its been a long journey but he's come so far. He wasn't

able

to swallow even smooth baby food two years ago without the help of his bottle.

Joanne

[Guest guest]

when wes was 8 he started mimicking a chew he would watch us eat and

move his mouth how we where on the outside. he still does not chew

things well inside. mostly he mashes things with his toung.. if we

remind him he can figure out how to use his teeth some what but

that is hard for him as his teeth dont line up well. wesley can

handle a hamburger, but not tough meats or raw veggies.

the eating stuff sure seemed like we where getting no where

then flash he was eating.

KayRena mom to wesley 10 charger Jake 8 Tristen 7 Zachary 4

KayLeigh 1 month

B & R wrote:

> Hi All,

>

> For the record the estimate that the average age, at least as I

> remember

> reading about it, for feeding by mouth of around 8 yrs old is proving

> to be

> correct for Jaecky it seems. For a while now he has been able to take

>

> totally smooth stuff such as some icecreams and yoghurt. He then

> managed

> some of the little bottles of 3 month baby food of fruit and custard.

> Over

> the past week he has managed to down a couple of bottles of the baby

> vegies

> and meat.- a big step forward to getting him off his pump!!! We have

> a

> little over a year to achieve this. It now looks possible thank God!!

>

> Presumably the cranial nerves are still developing.

>

> Question: Chewing. Do these kids learn to chew at an older age, or

> do they

> stay on baby food forever. I don't recall reading anything about this

>

> before - probably because there was, til now, no need for me to??

>

> God bless,

>

> Bruce

>

>

> ---

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>

>

>

> Membership of this email support groups does not constitute membership

> in the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you

> may contact CHARGE Syndrome Canada at 1- (families), visit

> www.chargesyndrome.ca, or email info@.... Thank you!

>

>

>

>

[Guest guest]

Bruce,

That's great! Thanks for the hope!

Weir

Mom to Kennedy 6 yr old with CHARGE, 15, 13 and wife to Graeme.

New Brunswick, Canada

Weir homepage: http://personal.nbnet.nb.ca/gweir

CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca

Beginning to feed at last

Hi All,

For the record the estimate that the average age, at least as I remember

reading about it, for feeding by mouth of around 8 yrs old is proving to

be

correct for Jaecky it seems. For a while now he has been able to take

totally smooth stuff such as some icecreams and yoghurt. He then managed

some of the little bottles of 3 month baby food of fruit and custard.

Over

the past week he has managed to down a couple of bottles of the baby

vegies

and meat.- a big step forward to getting him off his pump!!! We have a

little over a year to achieve this. It now looks possible thank God!!

Presumably the cranial nerves are still developing.

Question: Chewing. Do these kids learn to chew at an older age, or do

they

stay on baby food forever. I don't recall reading anything about this

before - probably because there was, til now, no need for me to??

God bless,

Bruce

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.721 / Virus Database: 477 - Release Date: 16-07-2004

Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

[Guest guest]

Bruce,

That's great! Thanks for the hope!

Weir

Mom to Kennedy 6 yr old with CHARGE, 15, 13 and wife to Graeme.

New Brunswick, Canada

Weir homepage: http://personal.nbnet.nb.ca/gweir

CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca

Beginning to feed at last

Hi All,

For the record the estimate that the average age, at least as I remember

reading about it, for feeding by mouth of around 8 yrs old is proving to

be

correct for Jaecky it seems. For a while now he has been able to take

totally smooth stuff such as some icecreams and yoghurt. He then managed

some of the little bottles of 3 month baby food of fruit and custard.

Over

the past week he has managed to down a couple of bottles of the baby

vegies

and meat.- a big step forward to getting him off his pump!!! We have a

little over a year to achieve this. It now looks possible thank God!!

Presumably the cranial nerves are still developing.

Question: Chewing. Do these kids learn to chew at an older age, or do

they

stay on baby food forever. I don't recall reading anything about this

before - probably because there was, til now, no need for me to??

God bless,

Bruce

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.721 / Virus Database: 477 - Release Date: 16-07-2004

Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!