Conference $

[Guest guest]

Sometimes the Deafblind Projects for each state have funding in their grants

for sending families to conferences. That is how we went to our first one.

Kim L

conference $

Hi Everyone,

We've been off the list for a while. Things have just been too busy....but

we're working our way back slowly.

I have a question for you. Have any of you ever done any sucessful

fundraising to help you get to conference? We attended last year close to

home so it wasn't such a big deal. We are determined to make it to Miami if

we have to charge it (which we hope not to). Last years was such a

beneficial experience we will not miss the next one. So I'm just looking for

words of experience. I plan to contact 's numerous specialists and

see if they can make donations and maybe some local organizations. I'd

appreciate any ideas and sample letters.

Theresa

Michigan wife to and mom to Hannah 9 3/4, 8 and 3

CHARGEr.

[Guest guest]

Theresa-

Our state has a consumer stipend fund that allows each family up to $600

every 2 years so I access that for the conferences. We've also gone to

our local Lions Club and Rotary for assistance. I haven't done any

fundraisers myself. The first conference in TX was the one we needed

help on. Then we've been fortunate enough to be close to OH and IN.

Now, like you, I will need to work on help for Miami. Good luck. Share

any leads you find. I'm guessing that there will be many of us in the

same boat.

Michele W

mom to Aubrie (6 yrs) CHaRgE and (12 yrs)

[Guest guest]

Theresa-

Our state has a consumer stipend fund that allows each family up to $600

every 2 years so I access that for the conferences. We've also gone to

our local Lions Club and Rotary for assistance. I haven't done any

fundraisers myself. The first conference in TX was the one we needed

help on. Then we've been fortunate enough to be close to OH and IN.

Now, like you, I will need to work on help for Miami. Good luck. Share

any leads you find. I'm guessing that there will be many of us in the

same boat.

Michele W

mom to Aubrie (6 yrs) CHaRgE and (12 yrs)

[Guest guest]

Our son is a client of the Regional Center (for Developmental Disabilities).

They have a parent resource group associated with it, which helped fund our trip

to the 1999 CHARGE conference. The money actually came from the California

Department of Developmental Resources (or something like that), which has a

certain amount set aside in its budget for parent education. They had a policy

against conferences out of state, but I wrote a letter explaining how CHARGE is

a rare syndrome, that there are only a couple of conferences in the US, none in

California, and promised to share the info I got with others in my area. I

guess you can just ask around.

-Mike Schwartz in Ventura, California