Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 Sheryl- Big step!! I look forward to hearing more as gets settled in and you get used to having her away. I hope she is wildly successful there! Michele W Aubrie's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 You bring back such memories! I remember bringing to Perkins for real (not just for the 2 earlier evals). My husband had to leave, but I stayed for awhile. I didn't know how rough it was to leave until I was at the airport, and an idiot decided I had to be searched (this was pre-9/11). I said that would be fine, and he replied, " it will be unless I find something. " Later, i got a glance at myself in a mirror and realized like I looked as though I'd been hit in the belly a thousand times. The first time the kid had a cold, I was ready to take the red eye. But... adjusted and so have we. My horror now is graduation. How things change! Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 Martha, To be honest, I don't know how I would feel having so far away. I hear wonderful things about Perkins but could not come to make that choice this year when it was proposed. 2 1/2 hours to ISD is far enough for me this year. I only had 1 hour of sleep before we left to take her. I was up all night typing notes to help them getting to know her. I didn't look in a mirrow when I got home, but I sure know that I felt like I had been run over by a truck. My son said he thinks he is doing better than he thought he would do knowing she was away at school. He didn't get to go with us to take her. She was at camp for the weekend before going to school. Mitch had gone up to the camp and spent a couple of hours playing with her before she left. I thought that was very sweet of him to do on his only day off. I wonder how my husband is doing. He drives truck and left this morning. I don't think it will hit him until he gets back home and she isn't here. He always goes to play with her as soon as he gets home. He spends his time with her before he even says anything to me. She is his little angel! Sheryl Mom to Mitch 18 & 17 CHARGE > You bring back such memories! I remember bringing to Perkins for > real (not just for the 2 earlier evals). My husband had to leave, but I stayed > for awhile. I didn't know how rough it was to leave until I was at the airport, > and an idiot decided I had to be searched (this was pre-9/11). I said that > would be fine, and he replied, " it will be unless I find something. " Later, i > got a glance at myself in a mirror and realized like I looked as though I'd > been hit in the belly a thousand times. The first time the kid had a cold, I > was ready to take the red eye. But... adjusted and so have we. My > horror now is graduation. How things change! Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 Oh Sheryl, what a huge day for you. But I understand about the quiet being different, too. Hugs to all of you... Weir Mom to Kennedy 6 yr old with CHARGE, 15, 13 and wife to Graeme. New Brunswick, Canada Weir homepage: http://ca.geocities.com/weirfamilyrogers CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca has started school! Hi all! Yesterday was the big day. is now at Iowa School for the Deaf (ISD). We got her moved into the dorm and while I was visiting with the different people, she was already off doing her own thing. She has a 1:1 for the school day as well as 1:1 in the dorm. I think things will go just fine once they all get to know her and she gets to know them. My husband had a hard time when she started to whimper as we arrived on campus. On the way home, he said she was acting better by the time we left so he felt better about leaving her there. With the 5 weeks she spent at camps this summer, I thought I had gotten used to the quiet. For some reason the quiet today seems so different. Sheryl Mom to Mitch 18 & 17 CHARGE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 I hope does well. I attended a residential school for the blind. Kay Re: has started school! > Martha, > To be honest, I don't know how I would feel having so far > away. I hear wonderful things about Perkins but could not come to > make that choice this year when it was proposed. 2 1/2 hours to ISD > is far enough for me this year. I only had 1 hour of sleep before we > left to take her. I was up all night typing notes to help them > getting to know her. I didn't look in a mirrow when I got home, but > I sure know that I felt like I had been run over by a truck. > > My son said he thinks he is doing better than he thought he would do > knowing she was away at school. He didn't get to go with us to take > her. She was at camp for the weekend before going to school. Mitch > had gone up to the camp and spent a couple of hours playing with her > before she left. I thought that was very sweet of him to do on his > only day off. > > I wonder how my husband is doing. He drives truck and left this > morning. I don't think it will hit him until he gets back home and > she isn't here. He always goes to play with her as soon as he gets > home. He spends his time with her before he even says anything to > me. She is his little angel! > Sheryl > Mom to Mitch 18 & 17 CHARGE > > > > You bring back such memories! I remember bringing to Perkins > for > > real (not just for the 2 earlier evals). My husband had to leave, > but I stayed > > for awhile. I didn't know how rough it was to leave until I was at > the airport, > > and an idiot decided I had to be searched (this was pre-9/11). I > said that > > would be fine, and he replied, " it will be unless I find > something. " Later, i > > got a glance at myself in a mirror and realized like I looked as > though I'd > > been hit in the belly a thousand times. The first time the kid had > a cold, I > > was ready to take the red eye. But... adjusted and so have we. > My > > horror now is graduation. How things change! Martha > > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
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