Re: Obstructive apnea and Swallowing problems

[Guest guest]

Hello,

My daughter also was diagnosed with Obstructive sleep apnea and was

put on CPAP at 7 months old. It was better than before but it

wasn't the best (lots of wake ups still). We saw a new

Respirologist and she put in the sleep lab and discovered that

her lungs were getting rid of the Carbon Dioxide and she would wake

up feeling like she was smothering. They transferred her to a BiPAP

machine and she sleeps sooooo much better now!!!!

Hope this helps!

Candace, Mom of (3) CHaRGE

> Dear friends,

>

> I am very touched, so many people wrote back about their

experiences

> and with suggestions. I definetely learn some new things here. for

> instance I had never heard of the aorta wrapping around the

trachea

> and esophagus before. Is this common in CHARGE ?

>

> I will try to address some of the questions that came out:

>

> - kind of info I am looking for? I want to find out as much as I

can

> about CHARGE kids' throats. I want to be aware of all known

possible

> diagnosis. Liam goes under anesthesia in October I would like the

> ENT doc to find a lead.

>

> - we live in the Boston area. We do see an experienced ENT at

> Children's. I will try to contact this doctor in Ohio. And I would

> still appreciate info on CHARGE docs.

>

> Thanks guys, (I am hooked to this now)

>

> All the best,

> Eneida

[Guest guest]

Hello,

My daughter also was diagnosed with Obstructive sleep apnea and was

put on CPAP at 7 months old. It was better than before but it

wasn't the best (lots of wake ups still). We saw a new

Respirologist and she put in the sleep lab and discovered that

her lungs were getting rid of the Carbon Dioxide and she would wake

up feeling like she was smothering. They transferred her to a BiPAP

machine and she sleeps sooooo much better now!!!!

Hope this helps!

Candace, Mom of (3) CHaRGE

> Dear friends,

>

> I am very touched, so many people wrote back about their

experiences

> and with suggestions. I definetely learn some new things here. for

> instance I had never heard of the aorta wrapping around the

trachea

> and esophagus before. Is this common in CHARGE ?

>

> I will try to address some of the questions that came out:

>

> - kind of info I am looking for? I want to find out as much as I

can

> about CHARGE kids' throats. I want to be aware of all known

possible

> diagnosis. Liam goes under anesthesia in October I would like the

> ENT doc to find a lead.

>

> - we live in the Boston area. We do see an experienced ENT at

> Children's. I will try to contact this doctor in Ohio. And I would

> still appreciate info on CHARGE docs.

>

> Thanks guys, (I am hooked to this now)

>

> All the best,

> Eneida

[Guest guest]

Hello,

My daughter also was diagnosed with Obstructive sleep apnea and was

put on CPAP at 7 months old. It was better than before but it

wasn't the best (lots of wake ups still). We saw a new

Respirologist and she put in the sleep lab and discovered that

her lungs were getting rid of the Carbon Dioxide and she would wake

up feeling like she was smothering. They transferred her to a BiPAP

machine and she sleeps sooooo much better now!!!!

Hope this helps!

Candace, Mom of (3) CHaRGE

> Dear friends,

>

> I am very touched, so many people wrote back about their

experiences

> and with suggestions. I definetely learn some new things here. for

> instance I had never heard of the aorta wrapping around the

trachea

> and esophagus before. Is this common in CHARGE ?

>

> I will try to address some of the questions that came out:

>

> - kind of info I am looking for? I want to find out as much as I

can

> about CHARGE kids' throats. I want to be aware of all known

possible

> diagnosis. Liam goes under anesthesia in October I would like the

> ENT doc to find a lead.

>

> - we live in the Boston area. We do see an experienced ENT at

> Children's. I will try to contact this doctor in Ohio. And I would

> still appreciate info on CHARGE docs.

>

> Thanks guys, (I am hooked to this now)

>

> All the best,

> Eneida