Re: fairly new to SCD - have serious questions - little long

[Guest guest]

Hello,

I do not know much about Crohn's Disease, I have a child with ASD.

But, I'm sure your wife is in a lot of pain and discomfort, and you

both are pretty frustrated by now. IF IT WERE ME, I would give SCD

a real good try for at least a month. That is what Elaine states in

her book. That means: doing the intro for a few days, slowly adding

new foods (making sure they are peeled, deseeded and cooked), and

keeping a food journal. I have been doing this diet for my son for

almost a year now, and the key to success is GOING SLOW. I would

recommend not eating out at this point. Just be fanatical about the

diet for 1 month, and see if you have any positive results. And if

you aren't seeing any improvement by going to the Hoffman Center, I

would quit for a while, and see what SCD can do by itself. Please

keep us posted on how your wife is doing and/or you have anymore

questions.

Gia

Mom to Jack and

SCD 11 mos.

[Guest guest]

Hello....

Most of our list members are parents of children doing the diet for GI problems

associated with autism.... so we don't have questions often from adults with

Crohn's. I confess I've never heard of the Hoffman Center.... so am not sure how

they implement the diet, or how that might differ from Elaine's book. I wouldn't

recommend deviating from the book in your situation. Have you read Elaine's

website thoroughly? Are you on any of the adult SCD lists? I have no clue what's

in the vitamin infusions..... but since it's via IV, it shouldn't be a problem

for the gut.

I think eating out..... for someone who is still very symptomatic with something

like Crohn's...... would be tricky. There could be other things added to the

food besides salt. If I were in your situation, I would want to do all the food

preparation myself, to be sure there were absolutely no illegals. I would be

slightly suspicious of any medical clinic who was supposedly implementing SCD

but telling you not to worry about eating out at this point. If you've not seen

ANY improvement..... it's not time to relax the restrictions!

Can you tell us more about what your wife is eating.... and how the Hoffman

clinic's version of the diet differs from the book BTVC? Sounds like it's time

to go back to square one.

Patti, mom to Katera, SCD for over one yr.

fairly new to SCD - have serious questions - little long

I am writing this for my wife.

She has had crohns for many years & no treatments have worked thus far.

After reading this group for a while my wife read the Vicious Cycle

book & decided to give the SCD Diet a try - by now we were ready to

try anything.

We went to the Hoffman Center in NYC & under their care she started

the diet 2-3 months ago. They give her nutritional counseling & advice.

A few questions / comments:

- So far we really havent seen any improvement in her condition - we

are not yet dismayed as we know results can take a while - How long

should we give the diet to work?

- At the Hoffman Center, per their recommendation, my wife has had

weekly intervenous vitamin infusions, specifically formulated for

crohns patients. Anyone else out there doing this in conjunction ith

the diet? They are costly approx $100 - $150 each time. Is this a

waste of money?

- My wife started the diet very strictly - preparing ALL foods at

home. Even going so far as to using the one brand of salt they

specified was SCD legal. That salt issue really meant you could never

eat out because almost all food has salt in it & I am sure restaurants

were not using the SCD approved salt. After they did many blood &

allergy tests they found out she was allergic to gluten, potatoes &

various other things. At our 2nd appointment, after about 3-4 weeks on

the diet, their nutirionist said we could ease the restrictions a

little bit & said she could eat out & not worry too much about what

kind of salt was being used etc, because that was not one of her

allergies. Now, after still not seeing any improvement I was thinking

this eating out was hurting the SCD diet & perhaps you members might

say " oh no, you can not eat out at all " .

- Due to the crohns flare ups, before atarting the SCD my wife had

always wanted to eat bland & that usually meant bread - which I guess

with the gluten allergy was actually like poison. She was also a sugar

junkie. All this has ended.

While the Hoffman Center has been good at guiding us & the

nutritionist is great, it is costing a LOT of money & they take no

insurance.

I am looking for some advice:

- are we wasting our money at the Hoffman Center & with these

infusions? Should we just follow Elaines Book & save the money?

- should she only be eating home prepared foods where we know exactly

whats in them?

- any other input / advice greatly appreciated.... we have high hopes

on this.

Thanks

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Welcome to you and your wife,

I hope you don't mind but before I can be of much help I 've got a

couple of questions. (If you prefer you can reply to me off-list at

sheilatrenholm@... )

What kind of treatments has she had, is she on any meds currently?

Any other supplements? What are her symptoms? Constipation,

Diarrhea, cramping gas?

Did you start with the intro diet and are you keep a food log/symptom

chart as Elaine describes in BTVC?

What foods are you eating now?

Sheila UC, 20 years -- in remission after 38 mos SCD

mom of SCD 23 mos

> She has had crohns for many years & no treatments have worked thus

far.

> After reading this group for a while my wife read the Vicious Cycle

> book & decided to give the SCD Diet a try - by now we were ready to

> try anything....

- any other input / advice greatly appreciated.... we have high hopes

> on this.

>

[Guest guest]

Welcome to you and your wife,

I hope you don't mind but before I can be of much help I 've got a

couple of questions. (If you prefer you can reply to me off-list at

sheilatrenholm@... )

What kind of treatments has she had, is she on any meds currently?

Any other supplements? What are her symptoms? Constipation,

Diarrhea, cramping gas?

Did you start with the intro diet and are you keep a food log/symptom

chart as Elaine describes in BTVC?

What foods are you eating now?

Sheila UC, 20 years -- in remission after 38 mos SCD

mom of SCD 23 mos

> She has had crohns for many years & no treatments have worked thus

far.

> After reading this group for a while my wife read the Vicious Cycle

> book & decided to give the SCD Diet a try - by now we were ready to

> try anything....

- any other input / advice greatly appreciated.... we have high hopes

> on this.

>