Son reactive to many foods

[Guest guest]

Hi everyone! This is the first message I am posting, and I hope

someone can help me. I started the dairy-free SCD diet with my 21

month old son about 3 1/2 weeks ago. He had some autistic-like

symptoms, and also chronic severe constipation (he required 7 tsp. of

Miralax per day to have one bowel movement) and eczema. His response

to the diet was dramatic. His stool changed from light-colored and

full of food to dark with no food, and we were able to reduce the

Miralax to 2 3/4 tsp. per day. His eczema disappeared, and his

autistic-like symptoms went away. The problem is that each time I try

to expand beyond the intro diet, his symptoms start coming back. I

tried pecan nut flour and it made his eczema return, and he stopped

interacting, so I removed it, and he improved again. Too much fruit

makes him unable to sleep at night, so I give him 3/day now. He eats

carrots cooked in a crockpot sometimes, but won't eat any type of

squash. I tried giving him carrot curls, and his stool turned light-

colored and full of carrots, and now he is getting more constipated

again, so I took them out. I think he needs his fruits and vegetables

fully cooked, but then he doesn't like the way they taste. I started

eggs which he had not had on the intro, and some of his eczema came

back. He is relating very well now, but also really not getting

enough calories. He eats some chicken and meat, but is really sick of

it, and often refuses to eat even though he is hungry. He often lies

on the floor with no energy (which he never did before), and asks for

cereal. The only food he is having beyond the intro is 3 cooked

fruits/ day, and mealtime has become a battle. He is sick of seeing

chicken and meat on his plate, even if it is in different forms.I am

on his diet myself because I am still nursing him, so I know how

limiting it is. I myself feel very weak and hungry even though I eat

as much meat as I can, and I am also eating squash. I'm sorry for the

length of this message, but I wanted to give as many details as I

could. Thank you in advance to anyone with ideas.

Tali, mother to 21-month old Avi, SCD 3 1/2 weeks

[Guest guest]

Welcome to the list Tali,

> Hi everyone! This is the first message I am posting, and I hope

> someone can help me. I started the dairy-free SCD diet with my 21

> month old son about 3 1/2 weeks ago. He had some autistic-like

> symptoms, and also chronic severe constipation (he required 7 tsp.

of

> Miralax per day to have one bowel movement) and eczema. His

response

> to the diet was dramatic. His stool changed from light-colored and

> full of food to dark with no food, and we were able to reduce the

> Miralax to 2 3/4 tsp. per day. His eczema disappeared, and his

> autistic-like symptoms went away. The problem is that each time I

try

> to expand beyond the intro diet, his symptoms start coming back. I

> tried pecan nut flour and it made his eczema return, and he

stopped

> interacting, so I removed it, and he improved again.

It sounds as if you are doing great and having wonderful results

after only 3 1/2 weeks! Depending on how much repair work needs to

be done on his gut he may just need more time before he can tolerate

nut flours. Some do better with nut butters until they are able to

tolerate the nut flour. You can make recipes, like the peanut

butter cake, using the appropriate nut butter. You can find that

recipe on http://pecanbread.com/recipes.html You may also want to

try using one of the other types of nuts.

Another thing is to start slowly and add tiny amounts. That way if

he reacts it won't be as bad as if he had a lot of the new item.

>Too much fruit

> makes him unable to sleep at night, so I give him 3/day now. He

eats

> carrots cooked in a crockpot sometimes, but won't eat any type of

> squash. I tried giving him carrot curls, and his stool turned

light-

> colored and full of carrots, and now he is getting more

constipated

> again, so I took them out. I think he needs his fruits and

vegetables

> fully cooked, but then he doesn't like the way they taste.

The carrot curls are harder to digest than cooked carrot. He may be

able to better tolerate them later on in the diet.

I started

> eggs which he had not had on the intro, and some of his eczema

came

> back.

Have you tried just using the yolk, as some people are sensitive to

the white of the egg? Also, when you say eggs do you mean on their

own (boiled egg etc.) or baked into something? Some people are okay

with eggs baked in but it takes longer before they can tolerate eggs

on their own.

> He is relating very well now, but also really not getting

> enough calories. He eats some chicken and meat, but is really sick

of

> it, and often refuses to eat even though he is hungry. He often

lies

> on the floor with no energy (which he never did before), and asks

for

> cereal.

This may be, in part, some die-off - having cravings for non legal

food and the " no energy " part. You can still have die-off at 3 1/2

wks.

The only food he is having beyond the intro is 3 cooked

> fruits/ day, and mealtime has become a battle. He is sick of

seeing

> chicken and meat on his plate, even if it is in different forms.I

am

> on his diet myself because I am still nursing him, so I know how

> limiting it is. I myself feel very weak and hungry even though I

eat

> as much meat as I can, and I am also eating squash.

HAve you tried " chicken cupcakes " ? You may be able to make it

carrots instead of the cooked squash. What type of squash are you

using? There is a different taste between the butternut and the

buttercup. Have you tried the " chicken tots " recipe? Are you

eating green beans? They seem to be tolerated early on by many.

How about the " Avacado meatloaf " ? You may be able to make it with

just the yolk or one of the egg substitutes.

Are you using a probiotic?

Sheila

[Guest guest]

Welcome to the list Tali,

> Hi everyone! This is the first message I am posting, and I hope

> someone can help me. I started the dairy-free SCD diet with my 21

> month old son about 3 1/2 weeks ago. He had some autistic-like

> symptoms, and also chronic severe constipation (he required 7 tsp.

of

> Miralax per day to have one bowel movement) and eczema. His

response

> to the diet was dramatic. His stool changed from light-colored and

> full of food to dark with no food, and we were able to reduce the

> Miralax to 2 3/4 tsp. per day. His eczema disappeared, and his

> autistic-like symptoms went away. The problem is that each time I

try

> to expand beyond the intro diet, his symptoms start coming back. I

> tried pecan nut flour and it made his eczema return, and he

stopped

> interacting, so I removed it, and he improved again.

It sounds as if you are doing great and having wonderful results

after only 3 1/2 weeks! Depending on how much repair work needs to

be done on his gut he may just need more time before he can tolerate

nut flours. Some do better with nut butters until they are able to

tolerate the nut flour. You can make recipes, like the peanut

butter cake, using the appropriate nut butter. You can find that

recipe on http://pecanbread.com/recipes.html You may also want to

try using one of the other types of nuts.

Another thing is to start slowly and add tiny amounts. That way if

he reacts it won't be as bad as if he had a lot of the new item.

>Too much fruit

> makes him unable to sleep at night, so I give him 3/day now. He

eats

> carrots cooked in a crockpot sometimes, but won't eat any type of

> squash. I tried giving him carrot curls, and his stool turned

light-

> colored and full of carrots, and now he is getting more

constipated

> again, so I took them out. I think he needs his fruits and

vegetables

> fully cooked, but then he doesn't like the way they taste.

The carrot curls are harder to digest than cooked carrot. He may be

able to better tolerate them later on in the diet.

I started

> eggs which he had not had on the intro, and some of his eczema

came

> back.

Have you tried just using the yolk, as some people are sensitive to

the white of the egg? Also, when you say eggs do you mean on their

own (boiled egg etc.) or baked into something? Some people are okay

with eggs baked in but it takes longer before they can tolerate eggs

on their own.

> He is relating very well now, but also really not getting

> enough calories. He eats some chicken and meat, but is really sick

of

> it, and often refuses to eat even though he is hungry. He often

lies

> on the floor with no energy (which he never did before), and asks

for

> cereal.

This may be, in part, some die-off - having cravings for non legal

food and the " no energy " part. You can still have die-off at 3 1/2

wks.

The only food he is having beyond the intro is 3 cooked

> fruits/ day, and mealtime has become a battle. He is sick of

seeing

> chicken and meat on his plate, even if it is in different forms.I

am

> on his diet myself because I am still nursing him, so I know how

> limiting it is. I myself feel very weak and hungry even though I

eat

> as much meat as I can, and I am also eating squash.

HAve you tried " chicken cupcakes " ? You may be able to make it

carrots instead of the cooked squash. What type of squash are you

using? There is a different taste between the butternut and the

buttercup. Have you tried the " chicken tots " recipe? Are you

eating green beans? They seem to be tolerated early on by many.

How about the " Avacado meatloaf " ? You may be able to make it with

just the yolk or one of the egg substitutes.

Are you using a probiotic?

Sheila

[Guest guest]

Hi Tali,

>Are broiled lamb chops or steak okay on the

> intro, and if not, how soon can they be introduced?

You can start the brolied lamb and/or steak after the intro.

> Is food made in a

> slow cooker harder to digest?

Not necessarily. Meats can be moe tender but it depends how long

you cooked them etc.

> How long should I wait before starting

> that (he likes his carrots slow cooked)?

I have found that carrots and other vegetables don't get very " soft "

in the slow cooker unless cut very, very thin. At the beginning you

may need them a little softer you will have to just try small amount

to see what stage of cooking needs to be done. ie. Cooked and

pureed, cooked till very soft, a little firmer but still cooked etc.

until you eventually reach raw.

> Is baked chicken okay on the

> intro, or should it be introduced later?

The chicken is boiled (as in the soup) and the fish or beef patty is

broiled. At the beginning some of the oils can be irritating.

Since you've been on the diet a while (and he doesn't have severe

diarrhea, correct?) you can probably go with baked chicken.

> Are chicken pancakes a

> problem since they are fried?

Again, it depends on his symptoms.

> When I start introducing more foods again, I'm thinking of

starting

> with nut butter since it is filling. Anybody think that's a bad

idea?

Gradually introducing nut butter products sounds okay. Just let his

symptoms (or lack of) be your guide.

> My DAN doctor told me to pre-soak the nuts for 24-48 hours. Does

> anyone else do this?

Elaine does not recommend it because of the possibility of

encouraging microbial growth.

> Does anybody have a recipe for eggless nut

> butter cookies (my son prefers cookies to muffins or cakes).

I would

> prefer a recipe with no honey or fruit puree, as I'm not sure of

my

> son's reaction to fruit and honey. If I use a recipe that calls

for

> nut flour, how much nut butter should I substitute?

There are some egg free recipes at http://pecanbread.com/recipes.html

Just scroll down to Egg free baked goods.

Sheila UC, 20 years -- in remission after 39 mos SCD

mom of SCD 24 mos

[Guest guest]

Hi Tali,

>Are broiled lamb chops or steak okay on the

> intro, and if not, how soon can they be introduced?

You can start the brolied lamb and/or steak after the intro.

> Is food made in a

> slow cooker harder to digest?

Not necessarily. Meats can be moe tender but it depends how long

you cooked them etc.

> How long should I wait before starting

> that (he likes his carrots slow cooked)?

I have found that carrots and other vegetables don't get very " soft "

in the slow cooker unless cut very, very thin. At the beginning you

may need them a little softer you will have to just try small amount

to see what stage of cooking needs to be done. ie. Cooked and

pureed, cooked till very soft, a little firmer but still cooked etc.

until you eventually reach raw.

> Is baked chicken okay on the

> intro, or should it be introduced later?

The chicken is boiled (as in the soup) and the fish or beef patty is

broiled. At the beginning some of the oils can be irritating.

Since you've been on the diet a while (and he doesn't have severe

diarrhea, correct?) you can probably go with baked chicken.

> Are chicken pancakes a

> problem since they are fried?

Again, it depends on his symptoms.

> When I start introducing more foods again, I'm thinking of

starting

> with nut butter since it is filling. Anybody think that's a bad

idea?

Gradually introducing nut butter products sounds okay. Just let his

symptoms (or lack of) be your guide.

> My DAN doctor told me to pre-soak the nuts for 24-48 hours. Does

> anyone else do this?

Elaine does not recommend it because of the possibility of

encouraging microbial growth.

> Does anybody have a recipe for eggless nut

> butter cookies (my son prefers cookies to muffins or cakes).

I would

> prefer a recipe with no honey or fruit puree, as I'm not sure of

my

> son's reaction to fruit and honey. If I use a recipe that calls

for

> nut flour, how much nut butter should I substitute?

There are some egg free recipes at http://pecanbread.com/recipes.html

Just scroll down to Egg free baked goods.

Sheila UC, 20 years -- in remission after 39 mos SCD

mom of SCD 24 mos