Re: Back from the neph and smiling. :)

[Guest guest]

YEAH Amy!!!!!!!! I am rejoicing with you :-) That is fantastic news all

around, and especially that your clearance is up to 48. You are the new poster

child for the success of Prednisone.

I am glad they are starting to wean you down too. Twenty mg a day is better

than 30 mg and going in the right direction. I am sorry you have to stay on

it even longer than the 6 months, but on the other hand, you can't argue with

the success you are having.

Congratulations! I say go have dinner out and celebrate!

[Guest guest]

YEAH Amy!!!!!!!! I am rejoicing with you :-) That is fantastic news all

around, and especially that your clearance is up to 48. You are the new poster

child for the success of Prednisone.

I am glad they are starting to wean you down too. Twenty mg a day is better

than 30 mg and going in the right direction. I am sorry you have to stay on

it even longer than the 6 months, but on the other hand, you can't argue with

the success you are having.

Congratulations! I say go have dinner out and celebrate!

[Guest guest]

Amy your joy is positively palpable. I hope you and yours are doing

something to celebrate! When is your sister in law's wedding? I've noticed

a dramatic dropped off of 's pred side effects when we hit 20 mg. He

essentially stopped growing for a year in response to the pred, but is

making up for it now (one of the the nastier side effects of pred is that is

suppresses growth and emergence of secondary sexual characteristics) .

Wouldn't exactly call him lean, but the extra pounds are coming off too.

Who know? Maybe that moon face will go too!

Cy

Back from the neph and smiling.

> Woo Hoo! Can we give a cheer? Saw my neph today and had my prednisone

dose

> lowered yet again. Now on 20mg daily down from 30mg. My 24hr Creatinine

> clearance is UP...to a 48. When all this started I was at a 35, then up

to

> a 42 on my last test and now I'm at a 48!! My neph was thrilled and wants

> to see if things continue to do well now that my tonsils are out. He

didn't

> expect any upward change from my last 24 hr testing so he was happy to see

> things improving. Now he's wondering if the constant infection in my

throat

> from my tonsils may have been adding to the problem. My 24hr protein was

> still running high at 680.8 mg/24hr so my weaning off the prednisone for

> good is on hold for at least another 3-6 months. Since my protein level

has

> dropped quite a bit from the start he feels things are working well and is

> looking to keep me on the pred for 8-12 months now rather than the 6 he

> initally guessed at. So looks like I'll have to deal with the moon face

> look at my sister-in-laws wedding. Beyond my 24hr results all my other

labs

> were in normal ranges for the first time....well except my serum

creatinine

> of course which is holding steady at 2.0 H mg/dL.

>

> All in all he was very happy with the way things are going especially will

> the surgery and the severe reaction I had to the Cardizem CD last month.

I

> go back in a month now for another recheck and we'll recheck my cholestrol

> level then too. It has started to creep back down a bit since my protein

> spill has dropped. He has also given me a " go ahead " to start losing

weight

> if I can, prior to this he was happy with me keeping my weight stable so

we

> could work meds out without the added stress of weight loss. Needless to

> say I'm on cloud nine right about now. )

>

> Amy

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

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>

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>

> Thank you

>

[Guest guest]

Amy your joy is positively palpable. I hope you and yours are doing

something to celebrate! When is your sister in law's wedding? I've noticed

a dramatic dropped off of 's pred side effects when we hit 20 mg. He

essentially stopped growing for a year in response to the pred, but is

making up for it now (one of the the nastier side effects of pred is that is

suppresses growth and emergence of secondary sexual characteristics) .

Wouldn't exactly call him lean, but the extra pounds are coming off too.

Who know? Maybe that moon face will go too!

Cy

Back from the neph and smiling.

> Woo Hoo! Can we give a cheer? Saw my neph today and had my prednisone

dose

> lowered yet again. Now on 20mg daily down from 30mg. My 24hr Creatinine

> clearance is UP...to a 48. When all this started I was at a 35, then up

to

> a 42 on my last test and now I'm at a 48!! My neph was thrilled and wants

> to see if things continue to do well now that my tonsils are out. He

didn't

> expect any upward change from my last 24 hr testing so he was happy to see

> things improving. Now he's wondering if the constant infection in my

throat

> from my tonsils may have been adding to the problem. My 24hr protein was

> still running high at 680.8 mg/24hr so my weaning off the prednisone for

> good is on hold for at least another 3-6 months. Since my protein level

has

> dropped quite a bit from the start he feels things are working well and is

> looking to keep me on the pred for 8-12 months now rather than the 6 he

> initally guessed at. So looks like I'll have to deal with the moon face

> look at my sister-in-laws wedding. Beyond my 24hr results all my other

labs

> were in normal ranges for the first time....well except my serum

creatinine

> of course which is holding steady at 2.0 H mg/dL.

>

> All in all he was very happy with the way things are going especially will

> the surgery and the severe reaction I had to the Cardizem CD last month.

I

> go back in a month now for another recheck and we'll recheck my cholestrol

> level then too. It has started to creep back down a bit since my protein

> spill has dropped. He has also given me a " go ahead " to start losing

weight

> if I can, prior to this he was happy with me keeping my weight stable so

we

> could work meds out without the added stress of weight loss. Needless to

> say I'm on cloud nine right about now. )

>

> Amy

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>