Re: Just for all of you and welcome newbies!

[Guest guest]

I am glad you are feeling up today. Kim L

> Well today im at the job finding club and its kinda cool. Finding a

> job is hard when you have deaf/blindness and how do you keep a job

> when your behavioural issues are what keep causing you to loose the

> job? Well these are all issues im dealing with. I guess its something

> for parents of younger kids to think about.

>

> Well at least I know this list is a wealth of resorces and

> information. One thing we are learning about in the job finding club

> is about networking. Asking others if they know where to find the

> resorces you need. Thats exactly what this list is. A family network,

> a support system! (ok thats a no brainer but hey)

>

> I guess I just want to welcome the new ppl here and dont be afraid to

> ask anything cause chances are... someone here knows someone you can

> get the info you need or elce they know where to find what you need.

>

> No matter what country, I think the most important part of this list

> is the fact that we can talk about anything and everyone listens.

> Sometimes the responce is not what we want to hear but its what we

> need to hear. Basicly everyone is here for everyone elce.

>

> I have learnt over the years (ok so its taken me um what 5 years) to

> realize its ok to ask anything and to not be afraid to ask for help.

>

> Gee, That calcium suppliment really did the trick this morning! (or

> maby its the coffee) LOL Gosh im looking over what I just wrote and

> its all true but seriously i am not normaly this upbeat, specialy

> since im waiting for a few things and I havnt had much sleep all

> week.

>

> Oh well, thats the life of a CHARGEr, never can tell what im going to

> be feeling one moment to the next. Who knows, I can be happy one day

> and the next I just want to throw something at someone! Hopefully I

> can start to get all this sorted out!

>

> Smiles

> Chantelle (CHARGE and who knows what elce!)

>

>

>

>

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

> contact CHARGE Syndrome Canada at 1- (families), visit

> www.chargesyndrome.ca, or email info@.... Thank you!

>

>

[Guest guest]

glad you are having a good day!! try to keep having them--

maria

Just for all of you and welcome newbies!

> Well today im at the job finding club and its kinda cool. Finding a

> job is hard when you have deaf/blindness and how do you keep a job

> when your behavioural issues are what keep causing you to loose the

> job? Well these are all issues im dealing with. I guess its something

> for parents of younger kids to think about.

>

> Well at least I know this list is a wealth of resorces and

> information. One thing we are learning about in the job finding club

> is about networking. Asking others if they know where to find the

> resorces you need. Thats exactly what this list is. A family network,

> a support system! (ok thats a no brainer but hey)

>

> I guess I just want to welcome the new ppl here and dont be afraid to

> ask anything cause chances are... someone here knows someone you can

> get the info you need or elce they know where to find what you need.

>

> No matter what country, I think the most important part of this list

> is the fact that we can talk about anything and everyone listens.

> Sometimes the responce is not what we want to hear but its what we

> need to hear. Basicly everyone is here for everyone elce.

>

> I have learnt over the years (ok so its taken me um what 5 years) to

> realize its ok to ask anything and to not be afraid to ask for help.

>

> Gee, That calcium suppliment really did the trick this morning! (or

> maby its the coffee) LOL Gosh im looking over what I just wrote and

> its all true but seriously i am not normaly this upbeat, specialy

> since im waiting for a few things and I havnt had much sleep all

> week.

>

> Oh well, thats the life of a CHARGEr, never can tell what im going to

> be feeling one moment to the next. Who knows, I can be happy one day

> and the next I just want to throw something at someone! Hopefully I

> can start to get all this sorted out!

>

> Smiles

> Chantelle (CHARGE and who knows what elce!)

>

>

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

>

>

[Guest guest]

Hello everyone, Last Wednesday my grand daughter was DX with Charge

syndrome. I immediately joined the group after a brief research session.

Saturday morning I found myself unable to sleep so at 230AM I was up and

searching the web for any and all info on Chargers(I learned some of the

lingo also.) When Lexie was born I was able to see her 10minutes after her

delivery. The reason I mentioned this is because I noticed she didn't look

100%. I do believe that in Heavenly Fathers eyes she is perfect. I fought

long and hard with my son and daughter in law about seeking more advanced

help with the DX. They both said that she was fine. Lexie was unable to

nurse about her birth and began having breathing difficulties. She saw a

neonatologist and was then transferred to Nashvilles, Vanderbilt Children

Hospital. Much more was discovered as the days and months went on. I sure

as many of well no could write days on what happened. She will be 6 mos. on

16 July 2004. Oh yeah the Dr. said that she had a sub archnoid brain

hemorrhage. Did any of the other chargers-experience this?. I look forward

to getting to know you all. Love to all, Melenie Espinoza, Kay

Cosmetics- Just for all of you and welcome newbies!

Well today im at the job finding club and its kinda cool. Finding a

job is hard when you have deaf/blindness and how do you keep a job

when your behavioural issues are what keep causing you to loose the

job? Well these are all issues im dealing with. I guess its something

for parents of younger kids to think about.

Well at least I know this list is a wealth of resorces and

information. One thing we are learning about in the job finding club

is about networking. Asking others if they know where to find the

resorces you need. Thats exactly what this list is. A family network,

a support system! (ok thats a no brainer but hey)

I guess I just want to welcome the new ppl here and dont be afraid to

ask anything cause chances are... someone here knows someone you can

get the info you need or elce they know where to find what you need.

No matter what country, I think the most important part of this list

is the fact that we can talk about anything and everyone listens.

Sometimes the responce is not what we want to hear but its what we

need to hear. Basicly everyone is here for everyone elce.

I have learnt over the years (ok so its taken me um what 5 years) to

realize its ok to ask anything and to not be afraid to ask for help.

Gee, That calcium suppliment really did the trick this morning! (or

maby its the coffee) LOL Gosh im looking over what I just wrote and

its all true but seriously i am not normaly this upbeat, specialy

since im waiting for a few things and I havnt had much sleep all

week.

Oh well, thats the life of a CHARGEr, never can tell what im going to

be feeling one moment to the next. Who knows, I can be happy one day

and the next I just want to throw something at someone! Hopefully I

can start to get all this sorted out!

Smiles

Chantelle (CHARGE and who knows what elce!)

Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit www

chargesyndrome.ca, or email info@.... Thank you!

[Guest guest]

Hello and welcome to the list.

Kay

49 year old CHARGEr

Just for all of you and welcome newbies!

>

> Well today im at the job finding club and its kinda cool. Finding a

> job is hard when you have deaf/blindness and how do you keep a job

> when your behavioural issues are what keep causing you to loose the

> job? Well these are all issues im dealing with. I guess its something

> for parents of younger kids to think about.

>

> Well at least I know this list is a wealth of resorces and

> information. One thing we are learning about in the job finding club

> is about networking. Asking others if they know where to find the

> resorces you need. Thats exactly what this list is. A family network,

> a support system! (ok thats a no brainer but hey)

>

> I guess I just want to welcome the new ppl here and dont be afraid to

> ask anything cause chances are... someone here knows someone you can

> get the info you need or elce they know where to find what you need.

>

> No matter what country, I think the most important part of this list

> is the fact that we can talk about anything and everyone listens.

> Sometimes the responce is not what we want to hear but its what we

> need to hear. Basicly everyone is here for everyone elce.

>

> I have learnt over the years (ok so its taken me um what 5 years) to

> realize its ok to ask anything and to not be afraid to ask for help.

>

> Gee, That calcium suppliment really did the trick this morning! (or

> maby its the coffee) LOL Gosh im looking over what I just wrote and

> its all true but seriously i am not normaly this upbeat, specialy

> since im waiting for a few things and I havnt had much sleep all

> week.

>

> Oh well, thats the life of a CHARGEr, never can tell what im going to

> be feeling one moment to the next. Who knows, I can be happy one day

> and the next I just want to throw something at someone! Hopefully I

> can start to get all this sorted out!

>

> Smiles

> Chantelle (CHARGE and who knows what elce!)

>

>

>

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

> contact CHARGE Syndrome Canada at 1- (families), visit www

> chargesyndrome.ca, or email info@.... Thank you!

>

>

>

>