Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 Dylan does most of his learning lying down. Of course that causes conflict at school where he should be at a desk, but I know he is responding to his body and what works best for him. Allowing him his periods of time on the floor, then he goes back to the desk and does much better. Kim L > Carolyn, > you are most welcome. When I read your note, I realized I didn't > mention one other thing that is in the Manual. Hippotherapy > (therapeutic horseback riding) is often VERY helpful for treating > hypotonia, especially the truncal hypotonia. It helps strengthen the > torso and improve balance. Many kids with CHARGE have improved their > stamina and started walking, or walking with more confidence with the > help of hippotherapy. It probably doesn't help the hip and other joint > problems (or maybe it does, I'm not a therapist, so no expert on that), > but it does help with strength and balance. > > Tanis may be trying to lay down because of physical tiredness, but lots > of kids with CHARGE also just need " time outs " from what they are doing > to regroup, take a little break (mental as well as physical) or to get > ready for the next activity. Jan van Dijk's presentation in Cleveland > (and his CD, which you can buy - contact him at j.vdijk@... if > you are interested) illustrate that very nicely. > Meg > > Date: Mon, 12 Jul 2004 12:48:56 EDT > From: messiegracie@... > Subject: Re: Low tone and hip problems > > Thank you for the information. " W-sit " is a term I had heard and was > the > reason the PT was questioning my son's hips. Also explains why he is > always > trying to lay down. Tanis is a walker, runner, jumper, climber. > However, at > times, it seems he loses his ability to even walk or balance. We have > referrals > in for appointments and assessments. I am printing much of the > information > that has been posted so that I have a resource or information basis of > what I > need to at least ask about. > > Thank you again. > > Carolyn > Mother of Tanis 2 CHARGE and Denny 12 weeks. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 Carolyn- Regarding the " breaks " that Meg mentioned -- Aubrie needs these quite often. I don't know if they see it so much during the school day because they have a mixture of active and quiet activities and she has the 1:1 to help if she does need a quieter moment or seems tired. But at home I definitely see it. Aubrie is doing very well as far as CHARGE goes. Her hearing and vision are impaired but decent, she walks, talks, eats, etc. But everything is at least slightly impaired. Everything takes more effort than for a typical person. Just the effort to see what she's doing, to hear what people are saying, to keep up with walking, sitting, etc -- just paying attention takes more effort -- it takes effort to keep herself erect at her desk. So she tires when playing with friends and lets me know that she's ready for a movie (her way of relaxing and zoning out). She even tells me when she's ready for bed at night. I think the need for breaks in activity is very real for many, if not all, of the kids but, of course, to varying degrees. Michele W mom to Aubrie (6 yrs) CHaRgE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 " Dylan does most of his learning lying down. Of course that causes conflict at school where he should be at a desk, but I know he is responding to his body and what works best for him. " Kim, I teach Sp. Ed. in a public 7/8 junior high, a couple of years ago I had a young man that was often on the floor in my room. I don't think he did it in inclusion classes. I would hope you don't run into too much " conflict " . Lynn Re: Low tone and hip problems > > Thank you for the information. " W-sit " is a term I had heard and was > the > reason the PT was questioning my son's hips. Also explains why he is > always > trying to lay down. Tanis is a walker, runner, jumper, climber. > However, at > times, it seems he loses his ability to even walk or balance. We have > referrals > in for appointments and assessments. I am printing much of the > information > that has been posted so that I have a resource or information basis of > what I > need to at least ask about. > > Thank you again. > > Carolyn > Mother of Tanis 2 CHARGE and Denny 12 weeks. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 Presently it is a quiet struggle between teacher and Intervener with the teacher wanting more desk work and the Intervener trying to respect the teacher, but not to the point of maxing Dylan when she knows he needs a break. The more info I have from Brown, Judith Bluestone *Handle Institute) etc. the more I have to back up my mommy instinct with professional opinion. Kim > " Dylan does most of his learning lying down. Of course that causes conflict > at school where he should be at a desk, but I know he is responding to his > body and what works best for him. " > > Kim, > I teach Sp. Ed. in a public 7/8 junior high, a couple of years ago I had a > young man that was often on the floor in my room. I don't think he did it in > inclusion classes. I would hope you don't run into too much " conflict " . > Lynn > Re: Low tone and hip problems >> >> Thank you for the information. " W-sit " is a term I had heard and was >> the >> reason the PT was questioning my son's hips. Also explains why he is >> always >> trying to lay down. Tanis is a walker, runner, jumper, climber. >> However, at >> times, it seems he loses his ability to even walk or balance. We have >> referrals >> in for appointments and assessments. I am printing much of the >> information >> that has been posted so that I have a resource or information basis of >> what I >> need to at least ask about. >> >> Thank you again. >> >> Carolyn >> Mother of Tanis 2 CHARGE and Denny 12 weeks. >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
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