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false negatives for porphyrin tests?

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We just got back our son's results from the urinary porphyrin test.

We were surprised to see that our son was low/normal on all aspects.

Is this something like the hair elements when a low/normal reading means the

body is holding on to metals? My understanding is that it's a completely

different mechanism, but I just wanted to ask anyway.

Anyone have links/info on this?

It's frustrating to be spending money on these tests only to have the results

still be questionable! I know you can relate.

Nanci

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Maybe your son is one of the 40% or so of autistics who don't have methylation problems.

Mine were 3-4 times normal.

Subject: false negatives for porphyrin tests?To: mb12 valtrex Date: Tuesday, December 15, 2009, 5:00 PM

We just got back our son's results from the urinary porphyrin test. We were surprised to see that our son was low/normal on all aspects.Is this something like the hair elements when a low/normal reading means the body is holding on to metals? My understanding is that it's a completely different mechanism, but I just wanted to ask anyway.Anyone have links/info on this?It's frustrating to be spending money on these tests only to have the results still be questionable! I know you can relate.Nanci

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no this means your child doesn't have metal issue as as root of his issues

false negatives for porphyrin tests?

We just got back our son's results from the urinary porphyrin test. We were surprised to see that our son was low/normal on all aspects.Is this something like the hair elements when a low/normal reading means the body is holding on to metals? My understanding is that it's a completely different mechanism, but I just wanted to ask anyway.Anyone have links/info on this?It's frustrating to be spending money on these tests only to have the results still be questionable! I know you can relate.Nanci

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I disagree. My younger son had high metals on his hair AND provoked urine tests

and his porphyrins test came out completely within normal range. My son

definitely has metals issues regardless of what his porphyrin test said. Tests

can be inaccurate and that is why it is important to get more than one.

Liz

>

> no this means your child doesn't have metal issue as as root of his issues

>

> false negatives for porphyrin tests?

>

>

>

> We just got back our son's results from the urinary porphyrin test.

> We were surprised to see that our son was low/normal on all aspects.

>

> Is this something like the hair elements when a low/normal reading means the

body is holding on to metals? My understanding is that it's a completely

different mechanism, but I just wanted to ask anyway.

>

> Anyone have links/info on this?

>

> It's frustrating to be spending money on these tests only to have the

results still be questionable! I know you can relate.

>

> Nanci

>

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I disagree. My younger son had high metals on his hair AND provoked urine tests

and his porphyrins test came out completely within normal range. My son

definitely has metals issues regardless of what his porphyrin test said. Tests

can be inaccurate and that is why it is important to get more than one.

Liz

>

> no this means your child doesn't have metal issue as as root of his issues

>

> false negatives for porphyrin tests?

>

>

>

> We just got back our son's results from the urinary porphyrin test.

> We were surprised to see that our son was low/normal on all aspects.

>

> Is this something like the hair elements when a low/normal reading means the

body is holding on to metals? My understanding is that it's a completely

different mechanism, but I just wanted to ask anyway.

>

> Anyone have links/info on this?

>

> It's frustrating to be spending money on these tests only to have the

results still be questionable! I know you can relate.

>

> Nanci

>

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Share on other sites

You can try a provocation test. We used metametrix. > false negatives for porphyrin tests?

> > >

> > >

> > >

> > > We just got back our son's results from the urinary porphyrin test.

> > > We were surprised to see that our son was low/normal on all aspects.

> > >

> > > Is this something like the hair elements when a low/normal reading means

the body is holding on to metals? My understanding is that it's a completely

different mechanism, but I just wanted to ask anyway.

> > >

> > > Anyone have links/info on this?

> > >

> > > It's frustrating to be spending money on these tests only to have the

results still be questionable! I know you can relate.

> > >

> > > Nanci

> > >

> >

>

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You can try a provocation test. We used metametrix. > false negatives for porphyrin tests?

> > >

> > >

> > >

> > > We just got back our son's results from the urinary porphyrin test.

> > > We were surprised to see that our son was low/normal on all aspects.

> > >

> > > Is this something like the hair elements when a low/normal reading means

the body is holding on to metals? My understanding is that it's a completely

different mechanism, but I just wanted to ask anyway.

> > >

> > > Anyone have links/info on this?

> > >

> > > It's frustrating to be spending money on these tests only to have the

results still be questionable! I know you can relate.

> > >

> > > Nanci

> > >

> >

>

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